-
Help with colostomy bag sticking better
Hi. I am new to this network. I just signed up tonight for me and my Mom who has rectal cancer. She has a permanent colostomy. She is currently living with me. I change the wafer for her and she has been handling the daily bag change quite well for herself. She is 79 years old. I am having trouble getting the wafer to…
-
Rather creative use for a colostomy bag:
Check this out,esp if you're an ostamate: www.nydailynews.com/news/crime/s-man-hid-stolen-steaks-colostomy-bag-deputies-article-1.2323860
-
Worred for my wife (possible colon cancer)
So over the past year or so my wife has had constant bloating and stomach pain off and on. Four or five times it made her double over in pain... once even causing vomiting. Anyway fastforward toa few nights ago I finally made her go in to the ER as her primary Dr didnt think anything was wrong. They did a regular and a…
-
surprisingly good scan report
It was way better than I expected after all the Hell I went through over the past 2 months. The tumor between my IVC, liver and kidney that we did 4 rounds of SBRT is gone. The lung tumor and the chest wall tumor on my back that was ablated aren't even mentioned. The liver tumor that I did y90 on and ablated last December…
-
Another Cancer Faker
Some people are messed up for sure. http://www.nbcnews.com/news/us-news/pennsylvania-beauty-queen-arrested-allegedly-faking-cancer-n408416
-
waiting game
Since my brother's liver tumor grew a little bit while on irinotecan, the doctor decided to try to add 5-FU back, but only via IV, not with the pump. My brother had the first 3 doses of chemo, but after the 3rd he developed severe diarrhea that Lomotil AND Imodium didn't help. So he went for the 4th chemo and the doctor…
-
Dark days. Need Hope
As the main caregiver to my long time partner, this disease and its horrors are starting to consume me. Seeing the man I have known and loved for so long detiriorate so quickly is breaking my heart. My wonderful and corageous man was diagnosed 2 1/2 months ago with stage 4 colorectal cancer with spread to peritonneal…
-
Prayers, good vibes, any kind of loving though for our dear friend herdizziness - Winter Marie
Winter has just been told that her bili is high, and that she is in liver failure. After a fight between her Doctor, nurse and pharma, they are going to try Erbitux again. We need to rally around our friend with all the prayers or good vibes we can muster. We all know Winter is a fighter, and she will do her part, so we…
-
Reply or new comment?
I've noticed- after all this time- that I seem to only be able to comment by clicking on 'Reply' as New Comment never comes up for me. So it looks like I'm responding to the last comment whether I am or not. Any idea what I'm doing wrong or why that is? Thanks! Jan
-
Grandson
Those of you who are my friends on facebook already know this. My grandson, who is 12, has been diagnosed with Hodgkin's Lymphoma. He's started chemo and is starting to feel icky. Queasy and tired all the time. I thought I hated it when I had cancer, but that was nothing to this. So, so sad... *hugs* Gail
-
Vein Damage?
I hate to sound like a whiner but I get so freaking sick and tired of all the little extras that come along with cancer. It's a life long sentence as it is, in so many ways. Which one of us won't worry about it forever? None, I don't think. So even if it never rears it's hideously ugly head again we'll never know if or…
-
Winter Marie
Are there any updates on Winter Marie? I'm still pulling for you and praying that things start looking up for you! <3 Lin
-
Daughter recently disgnosed at age 35
My daughter was recently diagnosed after a colonoscopy for what the doctors thought was an ulcer,she then had a ct scan,an appointment with a surgeon,more bad news the ct scan showed something suspicious in her liver,had a liver biopsy all within a week and a half.She had the biopsy on friday and now we are just waiting to…
-
Fatigue & Hair Loss
I had colon surgery in March and I am so tired but not anemic my hemo is 12. I notice my hair is getting thinner too. I was extremely lucky the cancer was stage 1 and did not require any further treatment. Is this normal for me to be so tired and for my hair to be coming out? Any suggestions? I am so new to this and would…
-
Pain management
My husband has been in mostly uncontrolled pain for about a month now. He's talked to the Onc about it and he is saying that with the amount of morphine he takes a day, nothing else would work with it or instead of it. He takes 180 mg (120 mg extented release & 60 immediate release) in the morning and supposed to take the…
-
Today I celebrate another clear scan and CEA of 0.6
I am beside myself with joy . This makes it 13 months since my liver ablation, 13 months with NED. I consider myself blessed. I have worked hard to get to this point, and will continue to work hard to stay there. Happy me!
-
Supporting friend and emotional health
I have been quiet lately. I guess I have been silently spinning a bit out of control for the last couple of weeks. As far as I know (being in between tests) I am still NED (13 months since the end of chemo, 22 months since my small recurrence was surgically removed). We are planning an amazing month long trip to Costa Rica…
-
Jeff Anderson treatment update
So I have a very busy 6 weeks ahead of me as my plan has finally come together. 6/3 I do a trial run of SBRT to be sure everything is programmed right 6/5 I get my fist actual SBRT treatment 6/11 SBRT treatment #2 6/19 SBRT treatment $3 6/26 SBRT treatment and final treatment #4 7/9 back to Baltimore for more cryoablation…
-
NED or in remission?
What's the difference? The few times that I share with someone that I had cancer I'm never sure what to say. I say I had cancer last year. Do I say I'm in remission? Or that it's gone? People are always curious and I'm not sure that I'm saying what's really happening. Is it ever really gone? If I get tests and it's back…
-
How are things going for you, Hippiechicks?
I've been thinking of you, and hoping that things are moving along. Keep us updated when you can. Sue - Trubrit
-
Stage 4 and 4 Folfox treatments in
We found out that my beloved bf of 8yrs has stage 4 cancer 2 months ago. Doctor started him on chemo about 2 weeks after diagnosis as they first wanted to control the chrons flare up he was dealing with. It has so far been a crazy and heartbreaking ride. 34 just seems way too young to have to deal with this. His cancer is…
-
surgery decision help
Hi - I was diagnosed with colorectal cancer at the beginning of April this year. I immedietly went straight to chemo and radiation because they wanted to increase the margins for surgery because my tumor was in the lower rectum. We finished that treatment 6 weeks ago, and they recently had me in for a procedure to see the…
-
I've been DEPORTED :)
Hello all... this morning I did it... I'm 4 weeks post chemo and against some others thoughts that said I should leave it in I decided to go ahead an remove my port.. has anyone removed theirs as early as I did? Feels wonderful not to have to look/feel my lil buddy everyday. I just wanted to start a new chapter, a clean…
-
Different type of Poop Question
I thought I would post here rather than on the anal cancer site where I belong because there are never many people on that and you guys have the same sort of bathroom issues that we do. Last week, while on vacation on my friend's boat, I managed to get a sloppy lump of poop on my favorite, italian leather, woven belt. Only…
-
update and good colonoscopy
Coming up on 9 years surviving and thriving as a stage 4 guy. Just had my 4th colonoscopy today since dx and everything looked good. All the nurses and the Dr. were amazed and happy at my journey. Many peeking in the room to see this "bigfoot' like survivor. All my best to everyone out there. I know I don't post as much…
-
Oral care
Just finished four standard treatments - 5FU and Oxy - after proximal colon resection in May (Stage IIIc) and have been getting small oral ulcers after each treatment. I switched to a baby rubber toothbrush which helps a lot but wonder if there is some other toothpaste (I am using Crest) that is less likely to irritate my…
-
stage 4 question
Any stage 4's out there that have been declared NED? I have multiples in lung and liver?
-
Folfox treatmens protocols, europe vs america
Has anyone heard or read that the standard protocol treatment in europe is only 6 rounds of folfox vs US is 12? Any reason why this is so dramatically different?
-
After surgery chemo
Well just finished up my surgery, they pretty much took everything......rectum, colon....and created a stoma for me. Dealing with the "bag" isn't all that bad, its been 4 weeks and more uncomfortable than anything else, still not fun...but a fair trade to get rid of the cancer. I met with the Dr. and wondered what is next?…
-
Clear Scan!
For those of you who don't know me from other forums- Clear scan!! 11 months NED and 3 scans in a row! Thank you for all the support and well wishes, this is an amazing group of people. Next step is port removal! Easyflip/Richard