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Here's to New beginnings. ,,,
After a long awaited surgery, many consults, several good cries, lots of good meals, an excellent medical team and supportive family and friends, I am happy to be posting that surgery is complete. Although there were some surprises both good and bad ... The over all results are very good. Negative margins achieved at all…
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The speaking assignments are flowing in
OK, I exaggerate; only one more. I have been asked to speak to a bunch of women at church. The lady in charge told me what she wanted, and I told her what I would do. HA! One thing I do want to emphasize, other than the 'GET YOUR COLONOSCOPY IF YOU'RE OVER 50' speech, is don't treat stage IV Cancer patients like they are…
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Nexavar (Sorafenib) for RAF mutation please help
I need to know how good is Nexavar (Sorafenib) at targeting RAF1 mutation, I ask this because Mom used Foundation One, have this mutation, and one of three Targeted Therapies recommended is Sorafenib, the other two being Regorafenib and Trametinib The mutation is related to cell division pathway called the MAPK path:…
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Here
just tried typing back to, my PM's but find it is impossible, something on CSN so I give up. Doing okay, my son says my eye are the color of a yellow highlighter. I sleep a lot too, ok, this is bad trying to type as well, if I go to back up for misspelling or even to correct a word I have to go to subject line, hit then…
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banned from infussion site for having to much fun
so i have to spend 6 hours at the infussion center getting all my chemo drugs and it seems in between waching netflicks i make cancer jokes being stage 4 myself i tend to have to much fun saying things like everyday out of the pizza oven is a good day or saying hurry up people are dyeing of cancer here. any way i guess…
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heavy metal chelation and where is kefir? gcmaf
So I am working, oh joy! And slowly fixing money problems. But it is successful oops I meant stressful. Still doing 3 iv vit c a week. Doing dmps nac suppositories twice a week and dmsa nac other days. In the morning I remineralise. Using humid acid afternoon tea time to stop reabsorprion problem. In the evening using zero…
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Need Advice - GOOD Update
Update: Dad is home with a normal hemoglobin (12). He doesn't seem to be losing any more blood. The oncologists believe that he had a bad reaction to Avastin(sp?) And he will no longer be on that. From what they could see, the rumors in his colon and rectum have still not come back. Hi all, This morning my dad woke up and…
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Chemo Brain
Has any one experienced chemo brain. I feel like I have dimencia. Sometimes I can't spell a word that I always knew how, forget peoples names.
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Maxicat??
Any updates from Maxicat?
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Mom will have HIPEC this Thursday
Hey everyone. Just wanted to share that my lovely mother will undergo HIPEC surgery this Thursday. She was originally scheduled last July 24 but it was cancelled as she spiked fever on that day. I really hope and pray this will help her a lot. I sometimes feel hopeless but I have to be strong for her. It was such a big…
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Genetic Testing Results
I was genetically tested for the BRCA 1 and 2. I found out I was just a carrier for this gene. However, I did test positive for colorectal cancer gene that was done along with the BRCA 1 and 2 genes. I did not hae a first or second degee relative other than my first cousin on my mom's side. My 3rd degree relatives (a…
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No More Ox As Of Today, Plus Interesting News About FOLFOX Study
So went into #10 today. As I mentioned in other posts, my Onc really keeps on eye on the Ox and the effects, with neuropathy being big concern. He wanted 9 with the Ox, but my hand is increasing and he said it snowballs, not linear. So this treatment and the reamaining 2 after this one are Ox free. He also mentioned Japan…
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I am going to be a guest speaker At local Relay for Life - UPDATE
On Thursday evening I recieved a call from a gentleman asking me if I would be the guest speaker at the opening ceremony for this years local American Cancer Society 'Relay for Life' on Saturday. Well, that was a surprise. I guess two different people had put forth my name as an inspirational 'survivor'. I actually don't…
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Karin ..lilacbroller?
wondering how you are doing? I haven't seen any posts in a while, but I haven't been on much so maybe I missed something.
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more than 3 years...
Husband had CT today - 3 years and 9 months after stage 4 diagnosis with mets in liver. CT looks clear... details on tuesday... but - hurray - he still seems to be NED Hurray Petra
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Help with colostomy bag sticking better
Hi. I am new to this network. I just signed up tonight for me and my Mom who has rectal cancer. She has a permanent colostomy. She is currently living with me. I change the wafer for her and she has been handling the daily bag change quite well for herself. She is 79 years old. I am having trouble getting the wafer to…
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Rather creative use for a colostomy bag:
Check this out,esp if you're an ostamate: www.nydailynews.com/news/crime/s-man-hid-stolen-steaks-colostomy-bag-deputies-article-1.2323860
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Worred for my wife (possible colon cancer)
So over the past year or so my wife has had constant bloating and stomach pain off and on. Four or five times it made her double over in pain... once even causing vomiting. Anyway fastforward toa few nights ago I finally made her go in to the ER as her primary Dr didnt think anything was wrong. They did a regular and a…
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surprisingly good scan report
It was way better than I expected after all the Hell I went through over the past 2 months. The tumor between my IVC, liver and kidney that we did 4 rounds of SBRT is gone. The lung tumor and the chest wall tumor on my back that was ablated aren't even mentioned. The liver tumor that I did y90 on and ablated last December…
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Another Cancer Faker
Some people are messed up for sure. http://www.nbcnews.com/news/us-news/pennsylvania-beauty-queen-arrested-allegedly-faking-cancer-n408416
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waiting game
Since my brother's liver tumor grew a little bit while on irinotecan, the doctor decided to try to add 5-FU back, but only via IV, not with the pump. My brother had the first 3 doses of chemo, but after the 3rd he developed severe diarrhea that Lomotil AND Imodium didn't help. So he went for the 4th chemo and the doctor…
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Dark days. Need Hope
As the main caregiver to my long time partner, this disease and its horrors are starting to consume me. Seeing the man I have known and loved for so long detiriorate so quickly is breaking my heart. My wonderful and corageous man was diagnosed 2 1/2 months ago with stage 4 colorectal cancer with spread to peritonneal…
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Prayers, good vibes, any kind of loving though for our dear friend herdizziness - Winter Marie
Winter has just been told that her bili is high, and that she is in liver failure. After a fight between her Doctor, nurse and pharma, they are going to try Erbitux again. We need to rally around our friend with all the prayers or good vibes we can muster. We all know Winter is a fighter, and she will do her part, so we…
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Reply or new comment?
I've noticed- after all this time- that I seem to only be able to comment by clicking on 'Reply' as New Comment never comes up for me. So it looks like I'm responding to the last comment whether I am or not. Any idea what I'm doing wrong or why that is? Thanks! Jan
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Grandson
Those of you who are my friends on facebook already know this. My grandson, who is 12, has been diagnosed with Hodgkin's Lymphoma. He's started chemo and is starting to feel icky. Queasy and tired all the time. I thought I hated it when I had cancer, but that was nothing to this. So, so sad... *hugs* Gail
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Vein Damage?
I hate to sound like a whiner but I get so freaking sick and tired of all the little extras that come along with cancer. It's a life long sentence as it is, in so many ways. Which one of us won't worry about it forever? None, I don't think. So even if it never rears it's hideously ugly head again we'll never know if or…
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Winter Marie
Are there any updates on Winter Marie? I'm still pulling for you and praying that things start looking up for you! <3 Lin
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Daughter recently disgnosed at age 35
My daughter was recently diagnosed after a colonoscopy for what the doctors thought was an ulcer,she then had a ct scan,an appointment with a surgeon,more bad news the ct scan showed something suspicious in her liver,had a liver biopsy all within a week and a half.She had the biopsy on friday and now we are just waiting to…
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Fatigue & Hair Loss
I had colon surgery in March and I am so tired but not anemic my hemo is 12. I notice my hair is getting thinner too. I was extremely lucky the cancer was stage 1 and did not require any further treatment. Is this normal for me to be so tired and for my hair to be coming out? Any suggestions? I am so new to this and would…
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Pain management
My husband has been in mostly uncontrolled pain for about a month now. He's talked to the Onc about it and he is saying that with the amount of morphine he takes a day, nothing else would work with it or instead of it. He takes 180 mg (120 mg extented release & 60 immediate release) in the morning and supposed to take the…