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It's official! My 10-year cancer-free record STANDS!!!!
MRI done! The final word on my shoulder is that at some point I must have done some damage. My oncologist has referred me to a PT person that comes highly recommended for 'old injuries'.....she said that unless the pain became unbearable, she would not recommend surgery to remove the fluid lump. Thank you all, my dear…
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Colorectal /colon cancer scholarships
Hi my dad passed a few years back from colon cancer unfortunately and now it's time for me to go to college... I didn't know if any of you out their knew of scholarships or grants that could possibly help me out. Some key things about me are: I'm going into a business mgmt degree, Im legally an adult, and I start college…
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poked and prodded
Well, it's that time of year again: scan and less common tests season. Midnight confession: First up, my wife has never had a full colonscopy. Really. Last time, in 2010, they got stuck at about 6 inches in with the obstruction and all hell broke loose after that. Big C and our journey into the twilight zone, along with…
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janderson cancer roller coaster
Many of you read my recent post about the good scan results. Not so fast. I had a really wild ride the past 2 days. I drove to Baltimore on Tuesday to see the interventional radiologist so he could look at the scan with me and determine how will the rib ablation was and what to do next if anything. Well the 80% he was able…
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Bacteria concerns, am I being a nut?
Okay, so my understanding is that our bodies can fight off cancer cells to a certain extent if we're healthy or our immune system is strong enough. I live with my husband and his son moved in in January because he never finished high school and his mom kicked him out for beating up his brother and my husband is trying to…
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Update haven't been posting or reading for awhile
I was in remission from colonrectal cancer stage 3. March of this year was told that the cancer has moved into my lung. Had surgery they removed 2 nodules and 1tested positive for CA. They say it metazied to my lung. So in April I started to go they chemo again, I go every 2 weeks. So far my WBC, CEA is fine. Just the side…
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CT scan today
Just feeling bummed out. It's been six months since the last one. I get the results in about five days. Most of the time I can avoid thinking about the cancer and tell myself that I feel pretty good and it's probably gone but when I have to get a test done, whether its a blood test to check my CEA or something like this,…
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Six years in recovery and counting. :)
I haven't been around for awhile, but I like to check in now and then to offer encouragement to those of you going through a rough time. I took my my first colonoscopy in May, 2009 when I was 68, and so it was long overdue. I was awake during the procedure and got to see the bloody tumor the size of an orange in real time.…
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What to anticipate rounds 6-12
Haven't been here in a long time. Emotionally I have needed to distance myself. Ironically chemo and all of it's side effects make that a tad challenging. Decided maybe what I need is the support. i have #6 this Wednesday. Anxious to learn from others who are further along or done! Thus far neuropahty hasn't been too…
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Stage 2a colon cancer - Deciding on chemo with oncologist
My husband had surgery last month to remove 12 inches of his colon and I am grateful that he is recovering well. The surgeon told us that his tumor was T3, N0, M0 which is stage 2a. We are seeing an oncologist tomorrow and getting a second opinion at MD Anderson. i noticed there's a lot of disagreement among doctors on…
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Has anyone heard from Kipper? - UPDATE
She was having HIPEC on May 22nd, and hoping to update us. I don't recall seeing an update or post from her. It has been over a month now. Kipper, if you are reading this. We would love to hear from you. To know that all went well, and that you are recovering. You are in our thoughts. Sue - Trubrit
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Chance for Life - the natural way
Hello all, I haven't posted much over the past 2 years but have read many of the journeys everyone has gone through mnay of times with tears. The last few weeks have finally given me some hope. My wife (stage 4, mets to liver, lungs, lynph nodes, thyroid) has battled this the last 2 years with over 24 treatments of folfox,…
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One diagnosis after another
Hi All, I will be quiet for a few weeks. Nothing is wrong. Actually we are heading off to Costa Rica for a few weeks. I will be spending my 60th birthday celebrataing with an adventure. I am blowing out the celebration this year because 4 years ago I wasn't sure I would make 60. I am alive! Thank you! I have been a bit…
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Unbelivable story, but true
http://www.thisisoxfordshire.co.uk/news/13619793.Olivia__2__a_picture_of_health_after_beating_ovarian_cancer/ I know this isn't CRC, but so unusual for such a little one to get Ovarian Cancer. Just thought I would share. Sue - Trubrit
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Diarrhea: question, help
If someone has diarrhea because of the treatment, I'd like to learn if the food is absorved correctly by the small intestine before the treatment drugs process begin, or part of it isn't absorved? is the diarrhea because it passes quickly on the bowel, therefore not affecting how food is digested, absorved? thanks!
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Here's to New beginnings. ,,,
After a long awaited surgery, many consults, several good cries, lots of good meals, an excellent medical team and supportive family and friends, I am happy to be posting that surgery is complete. Although there were some surprises both good and bad ... The over all results are very good. Negative margins achieved at all…
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The speaking assignments are flowing in
OK, I exaggerate; only one more. I have been asked to speak to a bunch of women at church. The lady in charge told me what she wanted, and I told her what I would do. HA! One thing I do want to emphasize, other than the 'GET YOUR COLONOSCOPY IF YOU'RE OVER 50' speech, is don't treat stage IV Cancer patients like they are…
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Nexavar (Sorafenib) for RAF mutation please help
I need to know how good is Nexavar (Sorafenib) at targeting RAF1 mutation, I ask this because Mom used Foundation One, have this mutation, and one of three Targeted Therapies recommended is Sorafenib, the other two being Regorafenib and Trametinib The mutation is related to cell division pathway called the MAPK path:…
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Here
just tried typing back to, my PM's but find it is impossible, something on CSN so I give up. Doing okay, my son says my eye are the color of a yellow highlighter. I sleep a lot too, ok, this is bad trying to type as well, if I go to back up for misspelling or even to correct a word I have to go to subject line, hit then…
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banned from infussion site for having to much fun
so i have to spend 6 hours at the infussion center getting all my chemo drugs and it seems in between waching netflicks i make cancer jokes being stage 4 myself i tend to have to much fun saying things like everyday out of the pizza oven is a good day or saying hurry up people are dyeing of cancer here. any way i guess…
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heavy metal chelation and where is kefir? gcmaf
So I am working, oh joy! And slowly fixing money problems. But it is successful oops I meant stressful. Still doing 3 iv vit c a week. Doing dmps nac suppositories twice a week and dmsa nac other days. In the morning I remineralise. Using humid acid afternoon tea time to stop reabsorprion problem. In the evening using zero…
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Need Advice - GOOD Update
Update: Dad is home with a normal hemoglobin (12). He doesn't seem to be losing any more blood. The oncologists believe that he had a bad reaction to Avastin(sp?) And he will no longer be on that. From what they could see, the rumors in his colon and rectum have still not come back. Hi all, This morning my dad woke up and…
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Chemo Brain
Has any one experienced chemo brain. I feel like I have dimencia. Sometimes I can't spell a word that I always knew how, forget peoples names.
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Maxicat??
Any updates from Maxicat?
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Mom will have HIPEC this Thursday
Hey everyone. Just wanted to share that my lovely mother will undergo HIPEC surgery this Thursday. She was originally scheduled last July 24 but it was cancelled as she spiked fever on that day. I really hope and pray this will help her a lot. I sometimes feel hopeless but I have to be strong for her. It was such a big…
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Genetic Testing Results
I was genetically tested for the BRCA 1 and 2. I found out I was just a carrier for this gene. However, I did test positive for colorectal cancer gene that was done along with the BRCA 1 and 2 genes. I did not hae a first or second degee relative other than my first cousin on my mom's side. My 3rd degree relatives (a…
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No More Ox As Of Today, Plus Interesting News About FOLFOX Study
So went into #10 today. As I mentioned in other posts, my Onc really keeps on eye on the Ox and the effects, with neuropathy being big concern. He wanted 9 with the Ox, but my hand is increasing and he said it snowballs, not linear. So this treatment and the reamaining 2 after this one are Ox free. He also mentioned Japan…
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I am going to be a guest speaker At local Relay for Life - UPDATE
On Thursday evening I recieved a call from a gentleman asking me if I would be the guest speaker at the opening ceremony for this years local American Cancer Society 'Relay for Life' on Saturday. Well, that was a surprise. I guess two different people had put forth my name as an inspirational 'survivor'. I actually don't…
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Karin ..lilacbroller?
wondering how you are doing? I haven't seen any posts in a while, but I haven't been on much so maybe I missed something.
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more than 3 years...
Husband had CT today - 3 years and 9 months after stage 4 diagnosis with mets in liver. CT looks clear... details on tuesday... but - hurray - he still seems to be NED Hurray Petra