Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Phil64 Update / Wedding
Hello all, The last time I posted was about the big CEA scare we had. My CEA had jumped to 8.0 on a 6/25 test. A retest and scans on 6/26 confirmed that the 8.0 was a glitch. Yesterday was the third Under 1.0 CEA test since the scare. I continue to receive Erbitux and continue to battle the Erbitux achne, AND CONTINUE TO…
This is tearing my family apart
Hi. I'm a newbie here and was hoping to get some advice. My mother is fighting colon cancer and the whole experience is ripping my family apart and I feel like I'm going to lose my mind. I'm going to put it all out here and hope that no one judges me. I am married (marriage is strong), have 1 son who is married, 2 young…
Got a reminder how time flies...
Dear Fellow Cancer Assassins ! Its been a long time since I posted. I was lurking for a long time but was in no state of mind to actually post. Been a tough time with a revised j-pouch, removing the last inch of colon, new temporary ostomy, reconnection, paralyzed bowels, TPN feeding, strictures, etc etc. The last 6 months…
How are things going Jeff!
Hopefully you are back in the comfort of your home by now and that infection is subsiding. Just wanted to open a new page so everybody can give you support we all can use during hard times. Wish you speedy recovery and lond term resolution, Laz
ahhh the smell of vomit in the morning
still stage four almost 3 years out 2nd round of chemo on 6 of 12 keep geting it it my groin i gues thats better then brain,liver ect
Need advice
hello all, my wife,47, has been diagnosed with stage 4 colon cancer with liver mets. This was in April last- it's tragic- her mom had same but we were not told to screen her. May 3 we started with chemo - the size of the lesion in liver was big. docs advised to do chemo and hope for window of surgery to open. After first…
Lovekitties...................Need Your Help
Have you or anyone else heard from Ann recently? I don't have facebook, but I know you do and she probably does. I PM'd her a few days ago, but no response. We have been "buds" on here for a long time. Just worried. I remember her mentioning a vacation in the Tetons, so hopefully that's where she is and I'm real jealous.…
Job hunting, what do I tell a potential employer?
I looked it up on the employment guidelines for Canada and it said I don't have to say anything unless I'm asked why I was off work for a long period of time. Also, that they can't refuse me insurance coverage which I was surprised at. I have to look for a job because I owned my own business when I was diagnosed and had to…
Diagnosed at 34 with stage 4 colon cancer. Been battling for a 11/2 years. Need Help!
Hi everyone! Someone please help me understand more about the CEA & how accurate is it?
How are things with you, Winter Marie?
I've been thinking of you and hoping things are going as well as can be expected. Would love an update. Sue - Trubrit
Newly diagnosed-hoping to talk with similar Stage 3 healthy, active, descent diet...
I'm a 44 year old man and was diagnosed with colon cancer a feew weeks ago. The CAT scans showed that it was only in my sigmoid colon so surgery was performed. I healed quick and was back home with three days - normal bowel movements again within 5 days! After extracting 48 lymphnodes the pathology showed that 14 were…
Delays, good news and an update
My third chemo treatment last month was delayed a week because of a low white blood cell count. The count was back up after the third week. Went for my fourth treatment today after two weeks and the same thing happened, so we're waiting another week for the count to come back up. I asked my oncologist if she was going to…
RFA advice
Doc has recommend I see a liver spec for a RFA. Need advice on this procedure. Anyone have this done?
Need tips for Showering
I'm fairly new to the Colorectal forum. I had colonrectal cancer suergery on 2-13-15. I had my large intestine removed and ended up with a pernament iliostomy bag. I need tips for showering-What does everyone do to keep thier bag dry when they shower? Does anyone have a great tip
mistletoe injections hopkins cancer center
my daughter has been taking mistletoe injections for over one year , right after she was diagnosed with colon cancer stage 4 so i was excited to read the article in the baltimore sun , believe big on mistletoe, her scans are clear so far. Has anyone else read this or is doing these.
Husband skipped chemo yesterday
He was diagnosed stage IV last October, mets to liver, lungs & stomach lining. Been on two cocktails of chemo and over the past week or so has been in severe pain in his stomach and back (stomach pain is new). We went in for treatment yesterday and Dr recommended doing a scan and to forego treatment if my husband didn't…
Life after rectal cancer
I am post surgery 4 weeks. I came out of surgery with a temporary ileostomy and an intact rectum and anus. I am dealing with the ostomy pretty good, but do any of you have any suggestions on dealing with the discharge coming from my recturm? It seems to come mostly when I get up and walk and the odor is horrific! Does this…
Splenectomy for low platelets
Has anyone had their spleen removed for low platelets without a significantly enlarged spleen? If so, was spleen removal successful with respect to increasing your platelet counts, how much did they come up, and how long were they at a higher level?
48 hr fasting before having chemo!????
MY dad is starting chemo this week. I have read somewhere that it is more effective and even tolerable if you fast 48 hrs prior to the treatment. has anybody fasted b4 their treatment. if you have, has it benefitted in any way? PS: How are you doing pepe? Praying for all of you! never loose hope and faith! Gabrielle
#12 DONE!! :)
Wow cannot believe 7 mnths have passed. Not sure what to expect now that chemo is over but in my last 7 months here I have learned to imprevise, adapt an overcome NOT just expect or accept. im not a huge "word" guy but I do post frm time to time and read posts almost daily. I want to thank EVERY person on this board for…
close your eyes...count to 10...and FLY!
Hi all, Today I had my chemo port removed. I guess you can say I was "deported". At my Oncology appointment last Monday, she really felt for my emotional healing I needed to have it taken out. I am now on every 6 months for CEA tests and once a year for CT scans and she felt that going into the infusion center monthly to…
Children
Wondering, My kids are 22 and 24. Completely in denial. I'm stage 4, mets to liver but Ned since resection in May. More to come no doubt. They think when my chemo is done in two months that life continues the way it was before. Anyone else experienced this? I don't want my mortality to dominate their thoughts but realism…
Update from Laz.
HI Everyone, I come here almost every day and try my best to give good support and advise to those who need it. I just had my 6 month check up again and everything is looking good. I was very nervous because my CEA went from 1.3 to 1.7, but under 2.5 is normal they say. The ct did not show anything. I dont know when they…
Husband Newly Diagnosed - Scared
My 48 year old husband was just diagnosed with colon cancer. He went in for his first colonoscopy last week and they found a 5 cm mass in his sigmoid colon. We only have the preliminary pathology report now, we will get the final one on Friday, hopefully. He had a CT scan with contrast which also showed the tumor but was…
How common is this?
I have colon cancer and it has spread to a lymph node in my neck.I also have numerous spots on both lungs It has not been confirmed what they are.The dr says it looks odd. He said it looks as though both lungs were shot with BB's.But my liver is clear.If this in my lungs is cancer how rare is it that my liver is clear?
Port Removal Update
Today I get to remove the dressing and take a shower! The burning at the incision point is getting better. I am beginning to adjust to not having my "little buddy" riding on my chest just below the skin and having tubing up my neck. I see my counselor next week. We will work on feeling comfortable with this big step.…
If you want to make your head explode...
check out this video of a 60 Minutes interview with Belle Gibson, cancer faker extraordinaire. https://www.youtube.com/watch?v=xsw90DY5gEI
Interesting......
www.healthnewsdigest.com/news/New_Product_460/Device-that-Makes-Chemotherapy-More-Personalized-Efficient.shtml
Heartbroken in Michigan to OH HAPPY DAY!
I just told my wife the bad news... And she started crying over the phone. I've been riding a remission now for six months. I know, six months is hardly that long of a time, but for me it was the longest stretch of <1.0 CEA results and clear scans. Ever since my liver surgeery on December 5th I have been clear. And we were…
Oncologist recommendation SF Bay Area anyone?
My oncologist has left the area and I am hoping someone can recommend one for CRC surveillance in San Francisco Bay Area or vicinity. I am two years out from diagnosis. is there a suggestion from Stanford or UCSF? Thank you wonderful people on this forum!

Colorectal Cancer

Discussion List

Discussion Boards