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This week
Hello everyone. You guys gave me some good advice when I was diagnosed in October 2015 I had one foot of my colon and rectum removed on 18nov15. Today I was discharged with a Foley's catheter. I should get pathology on my Lymph nodes tomorrow. Surgeon still thinks we caught early with to spread. My question is if results…
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Gratitude
I wanted to drop in and wish everyone a blessed Thanksgiving! I often think of the silver lining that exists around these dark clouds that settle over us in our lives. Grateful that this happended to me and not my daughter, husband and family that I love dearly. Grateful for all of the extra phone calls from my…
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Grand Canyon and Cancer
We just got back from a trip to Las Vegas. While there we took a day and went up to the Grand Canyon. I have been there a few times, but not in the last few years. Not since my first cancer diagnosis a little over 4 years ago. As we stood at the top, the snow at our feet, nothing but silence and the wind in the trees, I…
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46 yrs diagnosed with Colon Cancer with Liver Metastases
Hi, A new bee here. I was diagnosed with Colon Cancer about a month ago. Saw blood in stool, went to a Gastro who in turn did a colonoscopy to discover a tumor in the colon. I had subsequent CT / PET Scan that confirmed the disease and looks like they did not see anything else in the PET scan which is good. It was in total…
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Thanksgiving week - Off topic
Thinksgiving week has arrived. A time to ponder all of the things we have been blessed with and are grateful for. I would love it if those of you in America would share their Thanksgiving plans, and those who live outside, well, you can share as well. We've all got things we are grateful for. Sue - Trubrit P.S. To all of…
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Update
I have not posted here for some time. In June I had a colon resection and HAI pump implant at MSK. My first scan since starting on the pump chemo (8 weeks) showed a 10% shrinkage in the liver tumors. I am trying to get enough shrinkage to get to liver resection, I don't know how much that is... I feel good other than chemo…
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janderson scan results
Well today was the day that I feared for a long, long time. I saw my onc. The scan was not good to say the least. I have 12 new nodules in my lungs. a spot on my spleen. A spot on my abdominal wall. it appears that there might be more tumor hidden behind what they took out of my chest wall back in September. The spot on my…
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NED
It's official. I am NED. I've prayed every night about it and prayed with gratitude when I found out. The lung spots haven't changed and likely have nothing to do with the colon cancer. They also discovered I have an old compression fracture in my back but that's another story. I am so grateful and relieved. After all the…
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Lightheaded ??
The one constant symptom my husband has with his folfox6 with avastin treatment is he is always lightheaded when he is up walking around. The onc. tells him to drink more fluids, but he drinks at least at least 5 - 6 12 oz bottles of water a day. Does anyone else have this problem and what solutions have you tried? Thanks,…
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Insurance Drops MD Anderson
For some reason I thought I saw this posted here, but looking at the date did not see the topic. Apologies in advance. And blame chemo brain http://www.houstonchronicle.com/business/medical/article/Loss-of-insurance-plans-could-devastate-cancer-6603232.php
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If you want a good ahhhh cancer you still haunt me laugh
So I have a permanent ostomy and I had a serious "explosion" at work. It's a big office, 18 floors. I ran up one floor and used the bathroom there because it is private and has a sink and shower. I quietly went up the back steps, got in, washed everything, slipped back out and was back at my desk without anyone knowing.…
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Seeking answers for my dad
Hello, I am out and about trying to find answers to my dad questions. A month ago we took him to the ER, they found a tumor blocking his colon. He was admitted, had a biopsy and emergency surgery to have the tumor, lymph nodes, part of his small intestine and apart of his abdomen removed. Surgery was a sucess, he was in…
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How comfortable are you talking about your illness?
When I was diagnosed I needed some time to tell my loved ones the situation. As I'm going through the mental and physical healing process I find it easier and easier to talk about my illness at work or with strangers. To me it's a fine line between showing people that even when you have or had cancer you could be well and…
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Husband's CT Scan, still unclear
I know most people would be relieved by these results but I am just not, I try so hard to be positive but I am not getting a definitive answer. His CEA which has been a good indicator for him in the past went from 1.34, 2.24, 4.88. The ins refused a pet scan and only allowed a CT Scan which showed his fluid accumulation on…
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Off Topic: Peace for Paris ... and the World
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In about 2 Weeks, I see the Oncologist. I am lousy at knowing what questions to ask
What questions did you wish you ask? What questions did you ask? I don't care if they turned out to be dumb questions. I just don't want to stand there like a deer in the headlights (by the way, drive carefully, everyone. It's that timed yeah) Chemo is, I understand, a foregone conclusion. It will cause my immune system to…
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Off Topic: Patch of Ringworm under son's arm
anyone have any experience how to clear this up? Dermatologist confirmed ringworm and suggested drug store cream anti-fungal. It has been four weeks of day and night application with no clearing. I am freaked by this and have been washing everything obsessively because I don't want to get it!
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Any former Chantix users
This may just be a huge coincidence but a friend of mine asked me the other day how long ago it was that I took Chantix to stop smoking, about a 1 1/2 yrs now, and he told me that I was the 5th person he knows that developed some form of cancer within 2 yrs of stopping Chantix. Was wondering if anyone has noticed this…
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9 Months From Surgery And A Clean Scan
Had scan results yesterday, surgery anniversary today. So far so good, though there is one iffy thing in lungs that seemed to be reduced in size. Oncologist thinks it is not cancer though. Items in liver and kidneys just look like general things, cysts and whatnot. So nine months NED I guess....
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New to the site
Hi! I was diagnosed on July 31 when I was taken in for emergancy surgery. The pet scan and biopsy have me at stage 4. I have had 2 rounds (4 treatments) of folfox and am trying to stay positive. I am 57 and they have approved me for Social security disability. I fell very tired almost all the time and would like to know if…
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Need help, support and advice
The good news is that Dennis was able to get his first chemo last week... that his platelets seem to be cooperating more now.The bad news is that they did a scan and saw something in the peritoneal nodes (*spelling) to add to the liver and lung tumors. Does anyone have any advice or experience they could share as for the…
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Facial Rash from Irinotecan & Cetuximab
I just started treatment for CRC with Irinotecan & Cetuximab. I have broken out in the most horrible rash all over my face. I can't believe my doctor would put me through this. Not only is it hideous, it's painful. It's definitely affecting my QOL ...I can't leave the house. Have others experienced this? How long does it…
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Sir-Spheres (Y-90) procedure...anyone have it?
In about 10 days I'll be having the SIR-Spheres procedure on my liver tumor. Many months of chemo (FOLFOX, FOLFIRI plus Avastin) have not seen much shrinkage. They say this mircorpheres procedure will put radiation directly on the tumor and it will start to shrink and continue to do so over several months. Then they say, I…
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Prevention regiment after high-grade dysplasia.
Hi all, I've had Crohn's disease for 16 years now, and after a routine colonoscopy last revealed probable high-grade dysplasia, my GI guy recomended a total colonectomy with out the option of a j pouch (due to the likelihood of Crohns manifesting in the pouch). I couldn't bear the idea of that, so I elected against it.…
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fanny pack kind of weekend and questions about tumor markers
Hello all! Chemo treatment #4 now. So when I recover from this one, I'm 1/3 of the way done. Yay! I am having more side effects from oxaliplatin as I go. More numbness, tingling, hand and eye cramps, cold intolerance. Nothing horrible, but hoping not to have to stop or reduce dose....we shall see. Went to MDACC for an…
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Rectal Cancer
New Here. Rectal cancer 1 cmm from anal verge. T2 N0 M0 and still the standard protocal is a APR. Come on give me a break. Thank God for a enlightend surgeon who gave me options. I'm not looking forward to radiation ,chemo and then surgery but the other option was out of the question. I have been reading a lot of the posts…
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Saunas with colostomy
Does anyone here know if you are able to in an infrared sauna if you have a colostomy? I just recently bought a sauna and now I find I may be going on a permanent colostomy.
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Lobectomys
was wondering if anyone has had. multiple lobectomys ? Thanks
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tumor
Hello, I have rectal cancer and was operated on 2/13/2015 and underwent a proctocolectomy ended with a pernament ileostomy and chemo for a year. The colon-rectal surgeon was unable to get a margin around the tumor anterirorly and on the right lateral aspect because of involvement of the vagina, bladder and pelvic sidewall.…
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CEA Results continue to be great.....with an update
To All, Update 11/11/15: a special note, this weekend my eldest daughter will be getting married. This is a day I thought I would not see when I was Dx'ed over 4 years ago. I kept thinking I was not going to be here for this or anything else. Well here I am and here we go. I will be the proudest and happiest Mother of the…