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Just venting a bit
I just started a job a couple of weeks ago. It's dental reception which is a job I've done for years but haven't done in three years. They use a program I'm not familiar with so I'm having to learn it. I don't know if it's the chemo brain or just being over 50 but I've really been struggling with learning it. I'm so…
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New Oxaliplatin Victi... err.. Patient
I just did a quick scan looking for others who've had issues with Oxaliplatin and one post answered about 3 of my questions. I went for first treatment today and tolerated it well. The doctors and nurses have been upfront about the neuralgia so when the infusion site and a space of about 10 inches above the site started…
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The Wait and See Approach for "things" in Liver Scan
Today I finally started on my 3rd stage of treatment, the mop-up chemo. They have me on IV Oxaliplatin, once every 3 weeks for 8 cycles. I've also started Capecitabine today which I take twice a day for 2 weeks, take a 1 week break and then start the cycle over. For the past 6 months the focus has been on the colorectal…
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Update stage 3 with chemo going awesome
so it's been a while... I had surgery last July to remove an " orange" from my colon and since then I had clear PET CT scans prior to chemo in August . Port placed thereafter and I dug in and started working out like a SOB... I'm 45 and in pretty good health so all of this was quite surprising, as for all of us. I decided…
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Illeostomy reversal, pros and cons
I saw my surgeon yesterday and he says I can have it reversed if I want. The waiting list as about a year so I have time to really consider this. If it turns out that my lung spots are cancerous and there's not much they can do I won't get it reversed as I want whatever time I have to be good as long as possible but if I…
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Been out of touch for awhile
Hi Everyone. I have been out of touch for a few weeks. We just got back from a month in Costa Rica. We were celebrating my 60th birthday. 4 years ago I wasn't sure I would ever see it so we decided to celebrate with an adventure. I learned a few things about myself while we were gone. See, Costa Rica is amazing. For a…
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Just found out
Hello I just found out yesterday that I have a mass on my colon after having a colonoscopy. I have so many questions now. I go for a ultrasound on the 20th. I am 38 years old with a wife and 4 yo daughter. I have found this board and seen the encouragement you have given to others and I would like to be a part of that. I…
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Clear scan!
A little hope for all of us. Just got clear scan number 4 since my liver resection. 13 months NED and counting, Doc felt so good about things he set me up for the next one in 4 months. Whew! Easyflip/Richard
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Colon surgery, colostomy
Looking for info on those who have had surgery for tumor removal in colon, followed bycolostomy (no re-section) and continued with chemotherapy.
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Never thought I'd have colon cancer
Hi everyone I am a 50 year old nurse and have just found out that I have colon cancer. Some of these posts feel all to familiar. I had my first colonoscopy cancer screening and a 50 mm mass was found in my sigmoid colon. It was biopsied and diagnosed as cancer. My doctor says 'Im hoping we caught it early' but I find it…
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Stage 4 NED 7 Years
I had my semi-annual visit with my onc yesterday. My CEA was still good so I guess I am still NED. The Doc says we can reduce my visits to once per year instead of twice per year. He thinks I am cured. Anyway I wanted to let everyone know that my program to prevent recurrance is still working. For those new to the board my…
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hawaii
anyone on the big island of hawaii? i am just diagnsed stage IV colon cancer. i attend the hilo clinic. i am 59, female, and feel very alone and scared. i have had a total hysterectomy as well as a colostomy and i am now looking at liver surgury.
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round 2 symptoms
So I got round two of oxaliplatin and leucovorin yesterday with a 5fu push and now wearing my pump. I had some neuropathy yesterday in my hands and lips. This morning I am having trouble with strange muscle contractions in my hands. Like if I move in a certain way, the muscles tense up. It's mild but it's a new symptom and…
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Vegan diet
Has anyone turned to a vegan diet to prevent tumors from growing? A holistic healer advised this and was wondering if anyone has had a positive outcome
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How ya doin' Jeff (janderson)?
I've been thinking of you and hoping all is going well as you continue you recovery from surgery. Sue - Trubrit
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Nausea & treatment
Candace - 63 years - living in central Maine. I was dx with satge 3 with 3 nodes in 9/2012. Resection. 11 rounds of Folfox and I stayed "clean" until 8/2014 when 3 medium size tumors showed up in ovary, cul de sac, and close by. Total hysterectomy. 10 rounds of Folfiri till 3/2015, and while I know I have the disease,…
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Joint pain after Chemo and Raditaion
I know the Chemo and Radiation messed with my joints - messed with allot of things - but I have noticed something interesting, wihch makes me wonder if what I am expereincing is related to the treatments or is it age related (57 in a December). I have noticed the joint pain for the few years I have been out of treatment,…
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Continuing Erbitux (Cetuximab) Treatement
Hey all. I haven't posted in a while. I've been super busy with work, family, home, etc. [which is a good thing]. The one downside is that I really haven't had much time to read/post. I'm scheduled for another round of scans (CT and MRI) on Monday. And then Erbitux treatment number 16 on Thursday next week. I expect to get…
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I forgot all about my "cancer-versary" this year.
I guess that's a good thing! September 28th went by, and it was only a few days later that it dawned on me that I hadn't even thought about the fact that it's been six years since my first surgery. I don't post here as much these days, but I thought I would on this occasion, just to give a little hope to some of our newer…
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My 4 year Lifeaversary
4 years ago today I was diagnosed with stage 3 colon cancer. I heard the words "you have cancer" for the first time. My life has been changed forever by those 3 words. Unfortunately I heard "your cancer is back" a few months after completing the first 8 months of treatment. Over the last 4 years, I have had 2 major…
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Question re 30mm polyp/adenoma
Hello all, im a healthy 58 yo female. None smoker, non drinker. Average weight. I had my first colonoscopy a week ago. Doc found a 30mm sissile adenoma in the ascending colon. She did not remove it. Tuesday, I have another colonoscopy with a more experienced doc and I guess he is going to try and remove it. The doc wanted…
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Planned Outage on 10/9
There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience. Rowan CSN Support Team
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Oxaliplatin Tingling and Sensitivity to Cold
Hi Everyone, I am new to this forum but have read through some of your topics and am pleased to see what a wonderfully supportive group this is! My name is Cheryl and I live in Vancouver, B.C. (west coast of Canada). I was diagnosed with Colon Cancer December 19th, was admitted then and there to the hospital, set up on IV…
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Cannabis Oil / Rick Simpson Oil
anyone tried this with good results? just got done watching run from the cure the rick simpson story.
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Been having major foot problems post chemo
Hello crc family I hope everyone here is doin great.. Been a few weeks since lasts post.. Did my last treatment July 4th wknd.. Besides the fatigue an occasional aches an pains everything has been great EXCEPT for my poor feeties .. I have pretty bad neurothopy in both feet and in the last 7 weeks an really bad an painful…
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How often do you get scans and CEA checked?
I have noticed that there is a great difference in how often we are getting scans after our Chemo regime is over. I know it depends on the type of Cancer, or where it was, where it spread or how big and the like; but I still thought it would make a good reference thread to see how often folks here get their scans. I am 17…
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Passing gas with a colostomy
When my husband Tim passes gas thru the stoma IT IS LOUD! Does not smell, but you can hear it across the room. Other than diet, is there anything that he can purchase or use that will muffle the sound?
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Pain in hips. buttocks, legs and groin area after radiation and chemo for rectal cancer
Hello, I am new here and not sure how this all works, but here goes. I am a rectal cancer survival of 1 yr. I have consistently experienced pain in my hips, buttocks, legs and groin area. Some days are worst than other but I hurt everyday. I get very stiff when I sit for periods of time and it hurts if I stand for too long…
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First chemo round done and update
I got mFolfox 6 from Thursday 10/1 through 10/3. I crashed hard on 10/3 and 10/4. However, I also have a really bad cold that is going around here in San Antonio. I slept all day the day the pump came off and a lot of the next day. I was nausious and did not eat much at all for two days. I had extreme fatigue, headaches,…
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A call out to Maxiecat
We haven't heard from you since your surgery in July, and I'm hoping that all is going well. Sue - Trubrit