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My brother- Always smiling...
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Urgh - It May Be Back
PET Scan time, one of those blips in the lungs does not look like it is behaving properly. I suggested giving it a "time out," but Oncologist said that doesn't work usually. On the good news side, the other biopsy for the new cancer is probably going to be postponed if this is something and the Oncologist said if this one…
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Non-stop diarrhea
Hi, I am pretty new here. I am a woman of 69. Last December was diagnosed with colon cancer stage 4 which was mostly in my large intestine but also with mets to my liver. Had surgery in Dec., (they removed a chunk of my large intestine) and started chemo end of Jan. 2016. They gave me 4 different chemos plus I signed up…
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Problems with Ileostomy reversal
I had my ileostomy reversed in December after 7 months. I am having problems with pain/burning/urgency to go/leakage. Having more bad days than good. Maybe it is too soon but nothing seems to be helping. I have tried numerous creams. nothing is stopping the burning. I do sitz baths which help but I have to do several a…
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Neulasta and Insurance Issues
I've been trying to stay positive throughout this whole journey with my mom (Stage 4 Colon Cancer, mets to liver and lungs) and she's been doing well, but when we went to her 10th round of treatment this week, we found out her Neulasta was not covered by the insurance anymore. Her Oncologist and the second opinion…
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Circulating Tumor Cells ( CTC )
Dear Friends, What is your opinion on CTC test methodolgy ? I was told it is more effective in detecting cancer cells at early stage compare to PET? Have anybody in our group done the test?
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Who here can't relate to this!?!
shareably.net/elderly-customer-at-kroeger-story/ (sorry i can't link it automatically)
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Confirmed Colon Cancer on Liver After 13 Years of NED [Dad]
Hi All, It was confirmed through a needle biopsy that the spot on my dad's liver that showed up on the PET scan is colon cancer. I am sad, but we're in good spirits and ready to fight! The surgeon wants to be sure of the size and location so I believe he will need a MRI or CT, but first the surgeon has to get in touch with…
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4 years and 9 months...
... and hubbys latest CT is clear. Who would have expected this at time on dx in Nov 2011 when Colon Cancer, 2 Liver mets and one met on Peritoneum were found. Surgery, temp. ileostomy, chemo, ileo takedown followed. He/we chose the right surgeon and right clinic so all the cancer could be removed and so far never…
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"Outdated assessment of treatment response makes good cancer drugs look bad"
Something to think about: http://medicalxpress.com/print389971580.html I'll add this too: www.eurekalert.org/pub_releases/2016-08/cums-oot080916.php www.clinicaloncology.com/Colorectal-Cancer/Article/08-16/Sleep-Disturbances-Worsen-Ouytcomes-For-Colorectal-Patients/37482
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moving forward with life
So after 9 years with the last two in remission, I made the decision and had my port removed yesterday! Hurray. I had promised myself if I hit two years, I would do it and it's gone. Everyone at the hospital was so surprised that I had my little port for nine years. Even more amazing, the doctor that discussed the…
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colorectal cancer with liver metastases
After Folfox tretments (2 so far) I have a viscous fluid with some blood coming from the anus and urge to urinate. Is this "normal"?
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Mucous from anus after folfox
After Folfox treatment - mucous comes from anus with some blood. Onc. coud not specify exactly why. Anyone have same reaction? I have no other reactions fom the Folfox except for some fatigue and loss of apetit.
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What do you think?
http://abcnews.go.com/Health/terminally-ill-cancer-patients-fully-understand-prognosis-study/story?id=39305350&cid=share_facebook_widget I am having a debate about this article on my Facebook page. Well, not a debate, as only a few people have replied to my post. Anyway, I just can't belive that only 5% of Cancer patients…
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FOLFOX- how many treatments did you make it through? Lasting symptoms?
I just had Folfox #5 today and vomited while there. That was the first time this happened. I usually get sick on disconnect day. So I wanted to know how many people make it through all 12 treatments? What symptoms did you have and are still lasting? Did you stop treatments and did your onc agree with it? What stage were…
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Scans + Bloodwork = Biopsy Time
Yippee. 50/50 shot of having new cancer. Urgh.
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Colonoscopy results
All, It's been 5 years since my first diagnosis of C/R cancer. Statistically, this is my year to die. I had a colonoscopy yesterday and, for the first time in 10 years, they found NOTHING!!! Not even a polyp! God is good...All the time!! Thank you all for your support. I'll bet you didn't know how much your posts help…
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Quick Tips for Colonoscopy for friend
A Friend is having his first Colonoscopy,have all the theoric procedure clear: the papers explaining it and the preparation, but wants other tips that come with folks who have experience, she's constipated so it may affect your suggestions, thanks!
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Phil64 Continues NED Status!
Hello All. I just wanted to post a quick "good news" update. I went in for another CEA test yesterday. CEA continues to be stable at under 1.0. This was the first CEA test in a couple of months. Seems like my doctor is getting to be more comfortable and spreading out the tests a bit. Hard to believe. After two recurrences…
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Nanotechnology May Be Able To Detect Cancer Very Early
This is interesting. Everyday there is some bit of news that gives me hope. As reported today in the journal Nature Nanotechnology*, the IBM team’s results show size-based separation of bioparticles down to 20 nanometers (nm) in diameter, a scale that gives access to important particles such as DNA, viruses and exosomes.…
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My Dad, 13 year survivor may have a reoccurrence
Hi Everyone, I was active on this forum about 13 years ago (micheleamw) when my dad was diagnosed with Stage IIIC Colon cancer. He was 59. No family history, no symptoms -- found during a colonoscopy. He had a colon resection, and 6 months of chemo...I believe it was Folfox and Avastin (sp?). He has done amazing well!…
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Quick Question - Message System Working?
Think I had an issue with a couple of messages sent through the system. Not sure if anyone else has had that? I had sent a couple and there are not showing up as sent.
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Proton Therapy
Update- I was watching a Football Life about Kenny Stabler last night and at the end I found out that last Feb, one month before my diagnosis, he was diagnosed with Stage 4 Colon Cancer, the same as me. After a little research, I found that he was on Chemo when he died 5 months later in July 2015 at age 69. I return to…
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Harnessing the Immune System to Fight Cancer
Harnessing the Immune System to Fight Cancer Some interesting news: New drugs and methods of altering a patient’s own immune cells are helping some cancer patients. The concept is far from "new", since the practice of Traditional Chinese Medicine has been using the concept for thousands (not hundreds) of years. And…
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Cyber knife experiences
Hi Everyone, I am stage 4 HNPCC, diagnosed 2012. I've been in the clear for 2 years, found out that cancers back on my lung (2nd time). May not be operable, as its pushing on my aorta. My doc thinks the cyber knife is the way to go...problem- traditional radiation therapy almost killed me. (I'm not trying to scare…
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hope4cancer institute
This is their link http://www.hope4cancer.com/. Once again on my Facebook I'm being sent a GoFundMe for money to send a cancer patient to this place. I can find articles with people who swear by it and articles where it's called a hoax. I haven't donated to any of these attempts to get funding for this because I don't…
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Hope this doesn't affect anyone:
www.fiercepharma.com/manufacturing/fda-allows-imports-from-8-banned-drug-plants-to-avoid-shortages? There have been drug shortages in US for at least 5-6 years.....including instances of fake Avastin (about 3 years ago)among others
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Two years NED
After nine years of battling cancer with 4 surgeries, at least 56 rounds of chemo, removing various body parts and a colostomy bag, I can now say that I am 2 years NED. My CEA, which has always been a good indicator, is vacillating between 1.8 and 2.8. Prior to my last surgery I was never NED for more than 10-12 months. I…
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Pain in port area....around right shoulder...any answers?
Hello, so my mom had a PET Scan last tuesday, still awaiting results, im really just hoping for the best...but today, i called my mom and she said at around nighttime just now, she started having amazing pain, like 8 out of 10 scale, around where her port is located, right shoulder. I just need to ask if any of u…
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Healing and Upcoming Tests
Hi all. I have been out of the loop for awhile. I have been focusing on healing from my surgery and trying to get back to as normal life as I can. We have taken a couple short trips and done a little DIY. All in all I am healing well. I am back to walking 3 miles every day. I am eating about 75% of my pre-surgery diet. I…