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Petscan lit up but can't find spot with scans
I am a stage 4 survivor. I have had a couple of recurrences and each time my CEA has been a good indicator. I've been NED for 3 years. During a routine check up my ct scan was clear but my CEA raised from 1.9 to 4.9. I had a petscan which had one spot light up on my abdomen with an uptake value of 5.1. I then had an…
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Mom with cancer - question about kids
Hi everyone - I'm new here, this is my 1st post. I am 41 with 2 kids (ages 11 & 13) I have Stage 4 Colon Cancer which has spread to my liver and lymph nodes. I am told I am terminal, but going to fight as hard as I can anyway. My first 'set' of chemo has been cut to 60% for my 6th cycle this week. It will might be my last…
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pinched nerve?
Hey everyone! I finished chemo in January - oxaliplatin and xeloda, 8 rounds - and I was wondering if any of you have experienced pinched nerves in your lower right or left side of your back/hip. I have had sciatica problems before, on both sides, and the pain also shoots down my leg in those cases. About 3 weeks ago - i…
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Heard back from Hallwang
Sent them my medical records, and they responded with a tentative plan of treatment. It includes Removab, DC vaccine, and chemo-embolization for the liver, which is very similar to what they are doing for Pete. They also recommended additional genetic testing of my tumor(s), as well as some immunu-boosting therapies. All…
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Cancer and Pets
We have three dogs. Chloe is our oldest dog at 8 years old. She's had some bigger skin tags on her tummy for some time. In November I had them checked at the vet's and they came up as non cancerous. This morning one of them came off, no idea how, and was bleeding all over the place. Got her into the vet and it turns out…
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Horrible Twist
I have been on this site a few years updating all at times - I am NED 4 1/2 years. Just living life. Was able to see my daughters graduate through Masters programs and my older daughter married this past Nov. I am doing well, clean everything, great CEA's. My new son in law was having some symptoms, including bleeding and…
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Help for FIL chemo side effects
Hello everyone and I certainly wish I could meet you all under better circumstances, that's not possible at this time. My wonderful FIL was diagnosed with peritoneal carcinomatosis in February. Very scary to say the least. He opted for the Folfox protocol with Avastin and had his first treatment yesterday. It is not well.…
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Good Update
He's eating and drinking again. He's even cooking dinner on his own. His leg strength is coming back and so is his cognitive function. He declined hospice because he's feeling better and less weak (his decision, not ours). His doctor was shocked when she saw him this week and found he had stopped losing weight and was on…
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Arthritis in the Hip after radiation
12 years ago, I was treated with chemo and radiation for a tumor at the end of the colon (where it meets the rectum). I was told at the time that I would likely develop arthritis in my hips from the radiation. From that point on, I have had sore hips (and surrounding area). I'm not able to lay on my side on a hard surface…
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Difficult recovery
I need help! I had APR Surgery May 25. It took 2 weeks for my bowels to restart. Got out of the hospital and the next day they slowed again. So I have 1 good day and 2 bad. Wicked vomitting and nausea. Doing miralax, stool softeners and magnesium citrate. Not working. Has anyone else been through it like this? Surgeon…
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Non-Hodgkins Lymphoma (NHL)
I was wondering how many of you had NHL before you had rectal/colon cancer. My brother had NHL in 2000 and treated aggressively with CHOPS, a type of chemo cocktail. His doctor feels that treatment led to his rectal cancer. Just wondering since Joemetz and WinneyPooh also had NHL. I was thinking recently of my…
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The NEDness continues
I saw the Onc yesterday, he had the blood test results, but not the scan yet, said he'd call me later and if things are okay we'd bump the next round to four months. Well he called, and this very conservative doctor sounded almost giddy talking about my liver looking exactly the same over a few scans now, so he bumped the…
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Anyone found a good remedy for constipation due to chemo after a colon resection?
We're trying Senokot S and a a Dulcolax stool softener, but have only had a little success, and I'm worried about the constipation impacting his colon resection. He had a resection of his transverse colon on 7/16/11 when they removed a tumor that was obstructing it.
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Web Scams
Web Scams I posted this to the same thread that I had flagged earlier. It bothers me that there are so many damned scams that prey on those most vulnerable and cause them to accept a "remedy" that does nothing more than put cash in the pockets of the promoters. Searching on the web has become very difficult lately. Finding…
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Metformin Treatment
Good morning Some weeks ago Takingcontrol58 posted an interesting thread on metformin I asked our onc and she said this could be an option at least to control or reduce mets, so 2 days ago we started our journey through metformin. We are in a low dose of 425+425 and we are controlling or glucose levels, no side effects…
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Aspirin and Cancer (Colon Specific) New Study
Wanted to add to the recent thread, but could not find it. A study which is going to be of interest http://www.dailymail.co.uk/health/article-3638887/Aspirin-boost-chance-surviving-cancer-25-study-claims.html http://jco.ascopubs.org/content/early/2016/05/25/JCO.2015.65.3519.abstract
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Memorial for those passed 2015/2016
Please forgive my tardiness. I was on vacatoin over the Memorial Day weekend. It is never too late to remember members of our forum who lost their lives to Cancer and the loved ones of our caregivers who post here. Today, I would like to remember several who have lost their lives since Memorial Day 2015. Skeets1961 -…
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Please Update Search Function (Mods)
One of the real weaknesses of this board is the search function. I cannot even find posts from two months ago or less when using very specific phrases that I know were in the posts. There was a recent one discussing aspirin. I did a search for aspirin, 2014 was the latest one. Tried advanced search and other things to try…
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Just diagnosed
Scared to death out here. Tell me some good news, PLEASE!
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Scared to Move to Another Area
My husband is retiring in a couple of months. He'd love to move some where warmer or just have a fresh start. I'm terrified of moving somewhere where I won't get the same level of treatment. We live in Canada so we have healthcare coverage but if we were to move to somewhere south I wouldn't be covered. And even in Canada…
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Avastin or Erbitux
please help... long story some what short is my stage 3c colon cancer is now stage 4. finished first round of chemo (5FU+oxiliplatin) 3/28/16, re-scanned in April and found it in my liver. Tumor board recommended surgery, met with surgeon and she said i was not a good candidate because my tumors formed while i was on…
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adhesions after colorectal surgery
Any one have any luck finding a doctor help them manage pain and vomiting from adhesions via diet, medication or otherwise?
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Of colon cancer and brain mets
There isn't a lot of info out there on mCrc brain tumors, except that the prognosis is poor.. A search on this site pulled up Kerry S (Attitude,Attitude,Attitude). Such a character he was! The longer survival of mCrc patients means the incidence of brain mets is increasing. Seven and half years after diagnosis, 1.5 cm…
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Good News and Questions
Had an appointment today with the new oncologist. My dad had a CT scan yesterday and it showed that his colon/rectum show no evidence of tumors (2 years!), just some diverticulitis, and the thyroid area still is tumor free (6 months). MRI of the brain confirmed that he just has some slight residual damage from the…
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An interesting article worth reading.
An interesting article worth reading. Sometimes our choices appear more difficult than they need be. Never, ever allow fear to be your driving force. Treatment options There are "other ways". Results may vary, and there is presently absolutely no "cure" or guarantee that any modality will work against cancer. Recurrences…
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What to do.......
My brother started his 2nd round of Lonsurf last week and was hospitalized this past weekend. He had what they believe was a GI bleed and low BP and heart rate. Chemo is weakening his heart and the cardiologist feels it will only get worse. The oncologist said he can go back on Lonsurf at a lower dose and risk having this…
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Janderson1964 update
Better late than never. I just finished making the biggest decision and change of my life. As of last Friday I am retired. I now have the same BCBS I had through group insurance but now I am getting it through the Affordable care act. We still have the tailor shop for income and I am in the process of obtaining disability…
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Lung Met Radiation was a Success!
I got my results from the CT scan I had over a week ago. My lung mets are gone. Blasted into oblivion by radiation. He described it as a great success. However, I have to have another CT scan in 3 months and then 6 months and then a year, etc. And apparently I have fluid in the lung which is normal. I didn't even know it…
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surgery after radiation /chemo
Information anyone?..Husband has a tumor in his colon/rectal ...Dr's have done six weeks of radiation with chemo..In April 2016...Cat scan showed only one tumor low in colon ..with no lymph nodes involved...Although it has taken a toil on my hubby at 75 years young hehas had only small amounts of side effects..Blood sugar…
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Thin Tumor in Cecum, Has Anyone Else Had This? Please Help
Thin Tumor in Cecum, Has Anyone Else Had This? Please Help My colonoscopy showed a tumor in my cecum. The tumor is thin and unobstructive, 3 cm(1 ¼ inches) long by 3 mm (1/8 inch) thick. The biopsy with cold forceps during the colonoscopy showed no sign of cancer. The tumor is firm to hard. The doctor said it did not…