Bilateral Wilms

father-to-4
father-to-4 Member Posts: 2
edited March 2014 in Childhood Cancers #1
Hello, I am looking to start a dialog with anyone who has survived and/or is currently going through the challenges associated with Bilateral Wilms. My daughter was 13 months when diagnosed and we have had 4, 3 week rounds of chemo since january 07 (week 1: V,A,D, week 2: V, week 3: V). We will be going in soon to meet with the surgeon to talk about the surgical plan.

This has been such a stressful time, I would really appreciate a perspective of persons who have lived what we are going through.

now the conversation is looking at radiation as a part of her treatment, but because she is so young, we are especially concerned. There are many reports about how children under 5 are especially susceptible to gliomas after exposure to radiation.

I guess I am really acknowledging just how afraid I am, as I am new to CSN.

Hope to hear from you soon.

Comments

  • Unknown
    Unknown
    #2
    This comment has been removed by the Moderator
  • lilbit63
    lilbit63 Member Posts: 5 Member
    #3
    i am new to this website but just saw your message i am a 39 year old survivor of wilms tumor.
    had cancer at 5 years old
    at that time there was little chance of survival
  • annedora
    annedora Member Posts: 3
    #4
    Hi father-to-4,

    I am 33 years old and was diagnosed with a Wilm's tumor at the age of 4 and 1/2. I had the tumor (a stage 3-B) removed along with my left kidney. I went through 18 months of chemo and a total of 1 month of radiation.

    I can not imagine having a bilateral Wilm's tumor and what you all must be going through. If you need a friend, an ear or a shoulder I am here.

    I would also be happy to discuss with you what I have experienced as a childhood cancer survivor and what I go through as a result of receiving chemo and radiation at a young age.

    My thoughts and prayers are with you and your family!

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