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B39 Trial Study for radiation
I was offered to participate in a trial study called B39. The study is to determine if partial breast radiation 2x day for 5-10 days is as effective as whole breast radiation 1x day for 5-7 weeks. They especially wanted someone in my age group (43) because there haven't been very many in the study under 50. Have any of you…
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Taxol Leakage
Yesterday I received my last Taxol treatment. The nurse did not put the needle in well nor did she stay for the 15 minutes to ensure there were no side effects or check on me once during the 3 hours of treatment.It took a couple of tries as she missed the vein and did not secure it well with tape (I even questioned her on…
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what to wear
My bilateral mastectomies are next Tuesday and I don't own clothes that open in the front. Because of shoulder issues I have to carefully put one hand in sleeve and pull over head. Why is it that everyone says to get clothes/nightgowns that open in the front??? My surgeon said I will only have drains if lymph nodes are…
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I Absolutely Hate My Surgeon
I went to see him last Thursday to hear the results of my MRI, at that time I told him "NO" I didn't want any reconstruction, he said I have to go and see a plastic surgeon to hear all my options, then after that if I still don't want any reconstruction then he will take off both of my breats on July 9th. So this morning I…
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Advice need for Taxol and Herceptin
Hi Gals, Just looking for advice on Taxol and herceptin - has anyone had side effects and what to expect ??? - will be starting this shortly - heading for pet/ct scan Monday and then talk with onc to see how the A/C work on the dreaded beast Cheers Joan
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What to do with stuff?
Ok this may sound weird but I have two size 14 mastectomy bathing suits, hardly ever worn and I am a clean person. Does it sound gross to ask but they dont fit me. also have scarves. PM withyour address and I can send them to you.
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Friday my daughter gets her first mammogram
My 28 year old daughter gets her first mammogram this Friday. Anyone who has read my posts knows that I have a really sucky family history (2 sisters with breast cancer, father with colon cancer, grandmother with breast cancer, etc.). I was just 33 when I was first diagnosed. Please send prayers, positive vibes, happy…
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Made it through 1st fill
Well, I did a lot of worrying for nothing. I never felt the needle prick, and the pain is not unbearable at all. Of course I only got 60 cc's this time because I have had so much problem with skin healing. I am a little tight and sore. I was glad to get such good advice from everyone. This is a great site to answer…
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when is it ok to color or frost hair after chemo?
Since my hair is growing back it is very different than before...Im Irish so i had strawberry blonde hair and a little wavy and very thick....now its coming in straight and very dark with a nice surprise of a little white on the sides..which is new! and that white stuff has to go cuz im too young to have that yet...but the…
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Clothes
Hello. This is my first post. I have 2 questions. 1). Having breast sparing double masectomy with immediate reconstruction. Any spacific questions to ask surgeon on meeting 6/29? 2). After surgery I have been told that "patio dresses" ( the ones that zip up the front) are best. Any other ideas. My grandmother wore those!
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Funky vein looking thing...
Hi Invisi-Sistas! OK so I did a whole lot of worrying for nothing. Still on for nipple reconstruction this Saturday. Starting to overeat in an effort to cope. What's new? Anyway, I kept seeing this strange large "thing" that resembled a large vein moving aroud the top of my boob. I thought I'd better tell the plastic…
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Candles in the wind on Wed.......
I light not one but 6 candles last night, per Traci's wish.......I hope everyone could feel the love to one aother from all of us warriors in this dreadful battle........Lights shining bright last night......
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Medical tape
I am very allergic to medical tape, it takes my skin off. I plan on telling my surgeon at pre-op visit. What are the other options and how big of a complication does this create?
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Has anyone tried Nioxin?
Just wondering if anyone has tried Nioxin and how soon after chemo is completed can it be used to promote hair growth? My friend purchased the starter kit for me (much cheaper from a supply store if you have a friend who has a beautician's license). Thanks for any advice!
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My Candle is Glowing
May God bless and encourage all the pink sisters worldwide. Amen.
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Please don't be scared - Live your life to the fullest!
I know that for a lot of us that are still so new with our diagnosis of breast cancer, that the postings of the recurrence's scare us to death. But, maybe that isn't a bad thing in the fact that it will make us more diligent and keep us fighting harder to keep the beast away and out of our lives forever. I know the thought…
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Let's light candles to life on Wednesday evening
It's been a tough week here on this board, as we've gathered around several of you just learning of recurrences, and done our best to walk with everyone here, no matter where you are in your journey. I can't write poetry like some of you can -- and, to be honest, I'm not even very good at *reading* poetry -- so I'd like to…
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silicone or saline?
does anyone have any thoughts or experiences they would like to share on choosing between silicone and saline implants? I've had a double mast with expanders and am going in for final reconstruction next month. I know the up side to silicone is a softer feel but they have to be checked periodically by MRI for leaks. Any…
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claritin for bone pain from Neulasta shot
Claritin does work for the bone pain from the Neulasta shot. I took one around 6pm last night and this morning I feel a lot better some aches but not like yesterday. They told me to take it for 5 days after the shot. Margo
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Candle lighting
I wrote this song for Relay for life last year...it seems appropriate for tonight " I am lighting this candle for you my friends a symbol of hope and of light for every survivor I'll raise my candle higher We will fight, we will fight , we will fight!" Go Pink Power!!! Dee
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Prayer for tonight (just a suggestion)
First of all, I want to thank Traci again for such a wonderful idea! I told my husband about it (he thinks you're all pretty great, too!) and he's going to light a candle with me tonight at 7:00. I work for a religious congregation (nuns) and one of the sisters gave me this prayer when she heard I had breast cancer. I…
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Sorry double post!
Sorry - double posted!
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Interesting article.
Not meant to inflame, but information is power. http://www.msnbc.msn.com/id/37690573/ns/health-cancer
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SALINE OR SILICONE
I HAVE TISSUE EXPANDERS IN RIGHT NOW, CANNOT DECIDE IF I WANT TO GO WITH SALINE OR SILICONE, MY SURGERY WILL BE IN FEB SOMETIME, ANY COMMENTS ON EITHER ONE WOULD BE HELPFUL!
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BlownAway~ I got your PM, but you have replies blocked!
I am not sure why the PM you sent to me says "Sender cannot recieve replies" or something like that, so I was not able to send you my home address! If you can't unblock it, write me again, giving me your email address and I will send you my home address via my Yahoo email addy. Hugs, Chen♥
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Joke For The Day
Lawyer Joke Billing A doctor and a lawyer were talking at a party. Their conversation was constantly interrupted by people describing their ailments and asking the doctor for free medical advice. After an hour of this, the exasperated doctor asked the lawyer, "What do you do to stop people from asking you for legal advice…
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Wife had a bilateral
All went well....for some time. She wanted to put on the $90 mastectomy shirt. She had a bilateral, 2 drains....and she took the hospital gown off She saw herself in the mirror and freaked....I hate to say, I saw her chest and got a "feeling". Doesnt mean I am splitting,,,,,just got a "moment". Make sense? Greggie. scared,…
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Phone Call Stress
I don't know how a you women get through the stress of scheduling all of this at the same time as going through it. Today I had to call my insurance company twice to verify once and for all if a wig will be covered (it will, yah!!); and ask them if they had gotten preauthorization requests for the mugascan and chemo (they…
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Chenheart, Meena1 and bjmom1….I am heartbroken for all of you
Our deep and sometimes never spoken fear is recurrence or mets, and now we have three in such a short span of time getting this news. Knowing that we are all strong, courageous warriors doesn’t help in the middle of the night, but all I can say is that you are all strong, in mind and in body, and this setback cannot stop…
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Tamoxifen can cause ER and PR negative BC
I have been doing some research on tamoxifen because I go back to the doctor on the 21st and know he is about to put me on tamoxifen for 5 years and found that it can actually cause ER and PR negative breast cancers because it only targets the ER and PR positive cells leaving the negative ones to grow somehow. Anyone else…