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Clinical trials
Has anyone been ask to do Clinical study's.If so would you advise it?Thank you
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Interleukin 8
Hi All, I have been reading extensively on IL-8. Mine is high and read it is most studied in breast cancer. I did not have breast cancer, it was colorectal cancer. Does anyone have experience with IL-8? I would love your feedback.
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Breast cancer index test
Any information on the breast cancer index test? My doctor wants me to take the test to determine whether I need to stay on tamoxifen past the five year mark. The test will cost me just under $1000 out of pocket. If I use my insurance (which is acting like they wont cover it) I will pay $1350. i Honestly don't know what to…
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Mother Newly Diagnosed
Hello All, Last night my mom (early 60s) shared with me that she had a biopsy and that the result came back positive for Grade 2 invasive lobular carcinoma with signet ring cell features. According to the mammogram & ultrasound, the tumor appears to be roughly 18mm x 17mm x 16mm diameter. She is having an MRI today and we…
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How soon should a treatment start after mastectomy?
Hi all, I'm new here and hope someone can share experiences. I recently had double mastectomy in August with stage 2 diagnosis. My doctor said we'd start hormone therapy (no chemo) as soon as I recover from the surgery. Now in October I just had a follow up appointment, thinking we'd start the therapy; then the docfor told…
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Methadone
Hi All, I wanted to ask if anyone had been put on Methadone for bone and joint/nerve pain from side effects of chemo? I had the combo of Taxotere with A/C for 6 treatments. Still have not heard many women talk about having the Taxotere regimine. But have heard (on other sites) that they are using Taxotere for chemo…
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Double Mastectomy
My Niece is in her 40's and is going to have a double mastectomy. She would like to have them both done during one surgery. Her surgeon is telling her she has to have 2 separate surgeries, i.e. one breast and a separate surgery for the other breast. Has anyone else had this experience? Has anyone else had both breasts…
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Vitamin C IV PharmaLife Laboratories E.U Standards
Hi, I'm new member... I want to start the Vitamin C Intravenous ( IV ) therapy at home on the doctor's recommendation. I researched and saw that many clinics in Europe and even in the United States use Vitamin C IV from PharmaLife Laboratories... I just wanted some opinions. Thank you very much. Esther
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Flasodex (Fulvestrant)
Hi all, In July I was in a trial study with a very new drug, then I got endometrial cancer and had to leave the study since I have to have chemotherapy. My breast cancer oncologist wants to start my on Flasodex when I am done with my treatments. It is an injection and I have heard/read one side effect is burning at the…
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Taxotere ruined my tear ducts
My chemo regimen was 4A/C treatments, and 12 taxotere treatments. I was told that my eyes would tear, but would go away after chemo was over....nope. I put up with it for a while because I was dealing with fluid around my lungs heart and infiltrations in my lungs.... After seeing 3 eye doctors locally I was referred to a…
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low white blood cell count 3mos after chemo finished
I'm a little concern I finished my chemo November 2 I'm half way through my RAD therapy and instead of my wbc coming back up it keeps dropping my red blood cells have recovered and are in a normal range now. Should I be concern that my bone marrow won't recover? Should I really be concern about infection.
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Battling Breast Cancer
Hello, Thank you so much for sharing all of your incredibly touching stories. Wishing all of you hope and strength during your battles <3 Recently, I interviewed my guidance counselor about her experience with breast cancer for my blog. I hope that her story provides some comfort and support to you. Here is a link:…
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Chemo pill for pedipineal Cancer
Hi everyone.No one answered my question on petipeneal boards.Its a rereads Cancer I been dignosed with.They are talking maybe a Chemo pill for treatment.I took a pill after breast Cancer.But this is different.Does anyone no anyone or themselfs taken it.?Wondering about side effects.Thank you.I appriatte any reply's.
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Cancer center in NJ
Hi all, I had uterine cancer last year. No chemo. I have breast cancer this year and need chemo. I'm going to have chemo at the John Theurer Cancer Center in Hackensack, NJ. I haven't met my oncologist yet and I do not know what kind of drug I'll have. All I know is that I want to prevent neuropathy at all cost. I have…
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Thoughts to share after ringing the bell for those facing chemo
I am just two days away from one of the most emotional days of my life, ringing the bell for the end of chemo. My nurses and I cried, danced and might have even snuck in a hug or two. I am sure chemo is always scary. Being diagnosed and treated during a pandemic was surreal. I have a long way to go--I'm triple negative and…
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Did you know that psyche is involved in cancer process?
More and more researches prove that chronic stressful state of mind creates predisposition towards development of cancer by weakening the immune response and other anti-cancer defence systems. For example, in a study carried out in the University of Manchester in the UK, 1,596 women were psychologically examined before the…
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Chemo didn’t work as they hoped
I'm devastated. My dads chemo didn't work as they had hoped. 6 months of seeing him suffer through the side effects of chemo down the drain. When they did the midway ct scan and at the end, they reported shrinkage but after surgery they said it wasn't as they hoped. im not sure what I want by posting this, I'm sad, mad,…
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reactions from bug bites since radiation and chemo
has anyone had reaction bug bites reactions such as welts? i have had both chemo and radiation and didn't know if it was caused from one of the treatments and never had this issue but since treatments. I am a survivor of 3 years out. Wondering if either treatments would be related to why i react
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new to boards- requesting input on this issue
Hello- I am a new to the boards, and so not sure where to post this quesition- hopefully its the correct area but if not please let me know I am a breast cancer survivor of not quite five years. I had invasive ductal carcinoma with 2 positive lymph nodes. I had surgery, chemotherapy and radiation and a mastectomy of the…
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Heat and itchy skin
For the past few months, I've developed extreme all-over itching when I get hot - hot flash, hot weater, exercise, anything that heats my skin. It's making me crazy because it's getting hot now. It goes away immediately when I get cooled down. It's like what I imagine prickly heat to be, except not rash or redness. Anyone…
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Question About Stage IIA and Radiation Therapy
I had my surgery 01/29 and elected to do the bilateral mastectomy for left sided breast cancer (prophylactic on the right). They found two positive nodes. I am half way through a 6 course cycle of Cytoxan and Taxotere. I have two oncologists in the same office that I work with. One sounded pretty definite that I would have…
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My Mother and Breast Cancer
Hello. My name is, Samuel. About twelve years ago, my mother was diagnosed with stage I breast cancer, on the right side of her right breast. I believe the size was about 1.2cm. Her treatment was surgery and radiation. As of the last few weeks, she's been feeling pains and numbness in her right arm and pain on the right…
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What can I do to stop the itch?
I feel silly asking this, with all of the serious issues Sisters here are dealing with. But I am having a hard time with itching. It's intense. I'm scratching my poor breast raw. I am post-lumpectomy since May, post-rads since end of August, on Tamoxifen for about a month. Still using generic Biafine (Prutext) or Aquaphor…
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Phantom itch
I've recently developed an itch in my right breast. The problem? It isn't there anymore! Is this like the phantom pain that amputees experience? Has anyone else had this issue. It's really tough to get rid of an itch that you can't scratch. What's with this anyway? Those nerves were cut and damaged so there's no feeling…
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DCIS Experience
Looking for someone to discuss their experience. I was diagnosed in Sept. Had mastectomy in Oct.
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Post Chemo Hair Regrowth Supplements
My hair has started to grow back, and I'm trying to research hair growth supplements. I'm wondering if any of you have any recommendations on what worked or what didn't work to speed up this process? Thank you!
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How long before hair starts to grow after chemo?
Hi, Can anyone tell me their experience about how long it takes for hair to start growing back after chemo. I had my last chemo treatment 6 weeks ago and still there is no hair growing, no fuzz either and I am starting to get really worried. My Dr. has giving me different answers about this. First she said 3 weeks after,…
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Breast reconstruction or prosthesis
Is breast reconstruction worth the pain and possible complications? If i choose to use breast prostises will they stay in place? Do they look natural? Will i regret not reconstructing?
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Tamoxifen & Childbearing
I am a cancer survivor. Right now I am taking Tamoxifen. My doctor said that if I want to become pregnant to stop taking Tamoxifen for 6 months to clear my body since this drug can have severe side effects which could be malformation of the fetus. I would like to know if there is anybody out there that has become pregnant…
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Hot Flashes on Tamoxifin
I have been on Tamoxifin since December 2017 and I have had hot flashes during the day, which I've figured out how to manage, but now I am having a very hard time sleeping because of them. I wake up anywhere from 6-10 times a night and am just thoroughly exhausted every day. I've looked into some research and it says to…