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Tamoxifen Withdrawal

nankoni
nankoni CSN Member Posts: 11
edited March 2014 in Breast Cancer #1
Hi - I have been on Tamoxifen for 3 years. I went off it about 2-3 weeks ago to try to get pregnant. Am experiencing severe fatigue and hot flashes, depression. Has anyone else had these kind of experiences getting off of Tamoxifen? Thanks, Nancy
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  • cammie
    cammie CSN Member Posts: 102
    #2
    I wanted to reply to you to say good luck with having a baby. That is terrific Nancy!!! I am on tamoxifin currently - just started in July so I can't help you. But wanted to say - You Go Girl! Cammie
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  • nankoni
    nankoni CSN Member Posts: 11
    #3
    cammie said:

    I wanted to reply to you to say good luck with having a baby. That is terrific Nancy!!! I am on tamoxifin currently - just started in July so I can't help you. But wanted to say - You Go Girl! Cammie

    Thanks Cammie - for the kind words!
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  • krisrey
    krisrey CSN Member Posts: 194
    #4
    cammie said:

    I wanted to reply to you to say good luck with having a baby. That is terrific Nancy!!! I am on tamoxifin currently - just started in July so I can't help you. But wanted to say - You Go Girl! Cammie

    Hello, I am new to this so please bear with me. I am suppose to start tamoxifen this week but am nervous about the side effects. I am hoping to get information from someone as to the side effects. I am worried about hot flashes and weight gain. Can someone please share their experiences with me..thanks so much!
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  • j1
    j1 CSN Member Posts: 1
    #5
    Post Tamoxifen Hot Flashes

    Recently went off of Tamoxifen after 4 years.  The hot flashes during the 4 years were frequent and intense.  As I am 74, I made the decision to get off and enjoy my remaining years with a quality of life.  However, after 3 weeks of no Tamoxifen, the hot flashes although as frequent or lasting in duration continue and the intensity is just that, intense.

    I have tried Melatonin because of their statements of increasing the Tamoxifen effectiveness by as much as 100%, the ability to help with sleep and reduce the hot flashes.  After discontinuing the Tamoxifen I have continued to use the Melatonin, but hot flashes continue.

    Anyone have the same experience?

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  • DBBCS2017
    DBBCS2017 CSN Member Posts: 1
    #6
    tamoxifen with intrarosa prasterone vaginal inserts

    I have been using tamoxifen for almost 4 years.  Had stage 1A estrogen positive cancer in left breast.  I chose lumpectomy and radiation for my treatment  My oncologist referred me to a urerogynocologist for vaginal atrophy and dryness from the tamoxifen.  She prescribed intrarosa prasterone vaginal inserts that I started using about two years ago.  I had good results for about a year, but my bladder started to feel like I had a bladder infection all the time.  I recently stopped taking intrarosa and started taking Bonafide Revaree.  The Bonafide does not have any estrogen. I am wondering if I should be taking a mild estrogen supplement for bladder health. I still am experienceing some bladder sensitivity.  

    What are others using to help with the side effects of the tamoxifen?

     

     

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