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Tamoxifen Withdrawal
Hi - I have been on Tamoxifen for 3 years. I went off it about 2-3 weeks ago to try to get pregnant. Am experiencing severe fatigue and hot flashes, depression. Has anyone else had these kind of experiences getting off of Tamoxifen? Thanks, Nancy
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Arimidex
I have been on Arimidex for a year and a half. The only real side effect except fatigue has been severe joint pain and swelling. In the last 4 months the pain is not as bad. Has anyone else experienced this side effect from the drug and have you found anything to take for relief?
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Managing Serious Chronic Illness and Breast Cancer / Reconstruction
Hi, I'm new to this community. Currently undergoing chemo for breast cancer, stage 2b, also in my lymp nodes. I am a mom in my 40s, with 2 great young children. I also have lupus, reflexive sympathetic dystrophy, fibromyalgia, and esophogeal disease among other issues. Up until now my health issues were an everyday part of…
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New to the Board - Seeking PT/Exercise Recs
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New to site Oncotype issue...help
New to site and was diagnosed with invasive breast cancer end of March. Had bilateral mastectomy in April. Was told by surgeon margins were good. 2 tumors removed biggest one 4.6 cm. Saw oncologist first of week . Onco score 19. Normally would not need chem With this score. Oncologist said due to size and grade 3 she would…
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Breast cancer on both breasts, I am new here, please any one long term survivor, please help
hi any one had 2 stages breast cancer on each breast, Er+, Pr+ and Her2 negative. And also long term cancer survivors please contact me i had stage0 5cm. Stage1b 1.7 cm, 0.8cm, 0.4cm, 0.2cm, 0.2 cm all on left breast and I hah stage0 0.8cm , stage1 0.9 cm, on right breast. I am done all treatments, now taking tamoxifen.…
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Long term survivors with recurrent poorly differentiated
First, for anyone out there reading this, I’m a 35 year, Stage 2 survivor !! I was 34 in 1985 and had only radiation and partial mastectomy. Now after enjoying the last 35 years of being cancer free, it has returned. I just got the biopsy report, minus some of the hormonal results and one area is a high grade ductile with…
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It's Time.
After reading a post on port removal, I went ahead and got mine scheduled. It had been quite the road to getting it out. I had it scheduled last October, but due to a family emergency that was reschduled, then the surgery center had an issue. With covid beening so high I just let it go. I called today and got it scheduled…
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Any one had DCIS and IDC on both breasts , I am newly diagnosed
hi i had DCIS 5cm, IDC stage1B. 1.7cm, 0.8cm, 0.4cm, 0.2cm, 0.2cm all on left breast and my right breast I had DCIS stage0 0.8cm, IDC stage1A. 0.9cm. I had 4 chemo, 15 radiation and bilateral mastectomy. Now I am on Tamoxifen. Please any survivor have the same case like mine please message me, I need help and thank you
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Fears about upcoming surgery and breast cancer
Hello everyone, So far I have one breast cancer lump in my left breast at the 3 o clock position under the nipple that will be taken out by lumpectomy surgery on March 15th. I have gone round and round with my surgeon, surgical scheduler, and my treatment team and there are so many things because I believe the doctor will…
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Financial help?
Where can a person find financial assistance? I know that I'm not the only one who is suddenly on Social Security Disability with much less income while I have greater expenses due to medical co-pays and Medicare Supplemental Insurance plans, pharmaceutical drugs, etc. I seem to make just SLIGHTLY too much to qualify for…
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First time here large cancerous mass in breast and lymph nodes
I am female, 72 years old and was recently informed that I have a large fast growing cancerous mass in my breast and medium mass in my lymph nodes which is spreading. I have to have radiation and/or chemo to shrink the tumors. They can't do surgery now due to the size, therefore treatment is now first in line. My question…
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Hysterectomy Vaginal Cuff Dehiscence
I opted for a hysterectomy due to my hormone positive breast cancer. I did not want monthly injections to stop estrogen and I'm not having any more children, so I figured I didn't need those organs. They took everything: ovaries, tubes, cervix and uterus. After 9 weeks of recovery, I had to have emergency surgery due to a…
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How long to heal port installation? 10 to 14 days?
Hi folks, I have breast cancer. I just got port installed yesterday. They say to start chemo 4 days later (Monday). Huh? The google mentioned that it takes 10 to 14 days to heal. What do you say? Thanks in advance! DeafPaul
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93 year old with breast cancer
I'm writing on behalf of my 93 year old mother who was just diagnosed with breast cancer. She is an independent, active 93 year old who lives on her own. Her surgeon has suggested a lumpectomy for a 2.5 cm malignant tumor to be done under local anethesia and hopefully he will get some decent margins with this surgery. He…
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Deciding between lumpectomy and mastectomy
I was diagnosed with grade 3 invasive ductal carcinoma, stage 3b with at least one lymph node involved. Due to the size of the tumor and the lymph node involvement, I am having chemotherapy before surgery. I've had 13 rounds and have 3 more to go. My oncologist says if the tumor is small enough after the last chemo, I may…
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Port removal
Looking for some advice. I was diagnosed triple negative in April. I just finished chemo two weeks ago and have a lumpectomy scheduled in two weeks. My surgical oncologist suggested taking out my port during the lumpectomy to save me from having another procedure. My oncologist agreed to that, but also said it's ultimately…
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Eyes Still watering
Thanks to everyone who gave me advise as to what to use for these watery eyes of mine. Problem is they don't stop even with the eyedrops. Have used Visine now bought Genteal. Does anyone else have the "faucet" eyes? People look at me in stores or when out because it is so noticeable. Now "bags" are forming under my eyes…
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Why you SHOULD NOT go to Sloan Kettering
Heartbreaking lack of care during my treatments, misdiagnoses, and no anesthesia during procedures. The doctor missed 6 of my tumors which were metastatic. He was just going to do a lumpectomy on the two he found and send me home. I "knew" I had more cancer and I had to insist on a breast MRI about a half dozen times…
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Tomotherapy Radiation vs. Pencil Proton Radiation Therapy
I would like to find out feedback regarding radiation treatment for Tomotherapy Radiation vs. Pencil Proton Radiation Therapy? I am deliberating between the 2 radiation treatments. My BC returned after 20 years in the same breast. I need a radiation that is targeted. I live in Los Angeles, and the closest Pencil Proton…
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Could use some advice
Hi everyone. I have IDC in my left breast and will be having a left side mastectomy in a little over two weeks. I really did not want to have a mastectomy. I had surgery in late January that included three lumpectomies (two locations on the left and one location on the right) as well as removal of 8 lymph nodes on the left…
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Implants flipping
I'm 2 years post double mastectomy with silicone implants that kept flipping. I had another surgery 2 months ago to use my pec muscles to help make the pockets smaller and Have worn a bra 22 hours a day since the surgery. My right breast ( cancer side) has started flipping again. I feel stuck, my surgeon doesn't want to…
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lymphadema
Hi there I was just wondering if anyone else has had lymphedema about 10 years out from having my breast and and lymph nodes removed. I had it come on all of a sudden and was wondering if anyone else has pain(to the touch of the skin) when it happens to them or if you have ever felt having a cold had brought it on?
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Nervous about surgery
I was diagnosed with breast cancer in January and next Tuesday I will be having a double mastectomy . I still really struggling with the diagnosis . Not sleeping well at all. I have so many questions . Maybe you guys can help calm my nerves and give some advice. So here I go..... How can I calm my nerves? I'm so scared for…
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HER 2 + bi-lateral masectomy
I had HER 2 + bc with bi-lat. I had my surgery plus reconstruction May of 2020. I had fat graphting twice, the last one being December 3, 2020. I now have a pain in my back right below my shoulder blade. It's not a muscle pain so I wonder if I should be concerned about it or if anyone else has experienced the same thing. I…
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Breast cancer scare?
Hello, all! I am a 27 year old Canadian male with a looong history of hypochondria and cancer scares (Thank you, Internet!) A few days ago, on Wednesday, I started feeling a little bit of wetness around my right nipple, on my shirt (No visible wet marks, but definitely a slight feeling of dampness or coldness), and brushed…
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Radiation treatment
How long did everyone have to take radiation treatment? How did it effect you. Newl diognosed with grade 3 stage 2 breast cancer. I go next week to have a lumpectom. very unsu of the different types of radiation treatment????
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Small tumor but lymph nodes positive
Hi everyone. I am a new to this group. In October, I was diagnosed with Invasive Ductal Carcinoma. I underwent a lumpectomy in November. My tumor was 1.4 cm. My tiny tumor managed to make its way to 2 lymph nodes. It's ER/PR positive, HER 2 negative, & after having a decent Oncotype score, my oncologist feels that…
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Tamoxifen Short and Long Term Effects
Hi, I took Tamoxifen for 5 years and off for one year now. I have experienced extreme hot flashes, night sweats, extreme edema in both legs/feet for three years that I was told not due to Tamoxifen and now high blood pressure/heart rate issues. Anyone else?
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Stage 1 BC treatments
Stage 1 invasive ductal carcinoma with no lymp node involvememt. After mastectomy, chemo ( paxlitaxel and herceptine and hormon teatment advised). Does anyone went through this much of treatment for a stage1 BC?