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Brain Cancer

24 y.o. looking for help (GBM)
I am 24 years old and recently diagnosed with glioblastoma mulitform grade IV. I am currently on Temodar and doing radiation. I would love to talk with anyone in a similar situation
Hello
Hi I'm a 22 year old young woman with brain cancer. I am at my one year anniversary of the discovery date... If anyone would like to talk... find me
Gliosarcoma - nausea 6 weeks after Gamma Knife
My 41 year old female friend was diagnosed with Gliosarcoma - from biopsy taken during her December 10 2003 resection. She spent 6 weeks Jan thru mid February with radiation treatment. February 19th was Gamma knife procedure. March 8 had a seizure as a result of low blood sodium. Since then, she has tremors and now for the…
Help me to help my brother
This past Friday my brother had a brain tumor removed and today we got the path results back and they were found to be a malignant tumor. He is feeling really scared, confused and is having panic attaks because he thinks his life is over. He is only 18 yrs old and really needs to talk to someone who has gone through this.…
Dad has brain cancer
i am 15 years old and my dad has had brain cancer for 3 years. i have 2 brothers, younger (13) and older (17). i am the only girl in my family. both of my parents work, and my dad often comes home early because he is too sick to stay. i end up having to take care of things around the house. i know my dad is sick and…
GBM IV astrocytoma PLEASE HELP
My husband (41) has just been diagnosed with GBM astrocytoma (IV) and we are still in shock and horror. The prognosis is not good. It's 2" diameter. One tumor was removed, one is inoperable. We're beginning a case study at U Penn and we have 4 children all under eight years old. 8, 5, 2, 3 months. We need to talk with…
mixed glioma(oligodendroglioma/astocytoma)
I have been Dx in May 2003 with this kind of brain tumor in my right frontal lobe. I have had surgery to remove it, but am taking temodar, PCV and then Radiation to remove any residue. My mind seems very foggy, and I am in need of anyone out there with this type to respond and make me understand what my future holds. Will…
reaction to radiation
My dad has gliablastoma multiforme diagnosed in December. He had most removed. he only has 10 radiation sessions left, and he is really bad. He is worse off now than before surgery. Short term memory is gone. He cannot read or write, and his coordiantion for eating is gone also. He has been reduced to eating over the sink.…
Newbie with oligodendroglioma
I have just finished 6 weeks of radiation and chemo (Temodar) for a Grade II oligo. I also had two surgeries. I am still on Dilantin and just finished weaning off of Decadron. I still get fatigued easily and my legs are very weak. I am also emotional. My biggest concern at this point is my vision, it seems to unfocus and…
Glioblastoma Multiforme
I was wondering if anyone knows what the recommended protocol is from MD Anderson for the treatment of GBM. Is it Temodar for 2 years, or alternating Temodar with CCNU? I know what Duke University suggests, but would be very curious to know what MD Anderson says....thanks, guys.
What can nurses do to better help you?
I am an RN student and I would like to know what the nurses who care for you could do to better help you? I'm anxious to get your feedback! Please reply!
No Subject
I was diagnosed about a month ago with a primary brain tumor astrocytoma. It sits on the motor skills part of my brain. I have beeen in radiation treatments for about 5 weeks and have 1 week left. I'm still scared and looking for some one to talk to.
Support Group
My name is Kevin Poston and I am trying to get a support group started for Teen, and young adult cancer survivers in the North West part of Alabama, if you live in that area and know someone who may be interested please email me at krp@hiwaay.net
radiation
Has anyone had radiation? What is it like?
Brain Stem - Anaplastic Astrocytoma
My sister had a biopsy on Dec 20, 2000. She was diagnosed with Grade 3 (diffused) Anaplastic Astrocytoma on the Brain Stem. She is currently participating in a trial study at MD Anderson with a combination of Two Chemo Drug.
Compuslive Lying
My boyfriend has a brain tumor and has recently started lying compulsively. I caught him in very large lies that don't really affect major things, but his lies are extremely detailed and amazingly planned out. Does anyone know whether this is a symptom of his brain tumor? I'm trying to get a grip on what's going on. Thanks
CSN Chat Room
Welcome. I'm a 53 yr old male with stage 4 glio blastoma multiform. I was diagnosed in July 2003. Surgery on Aug 21st where they removed 80% of the tumor, and implanted glio wafers, which are chemo wafers. I started radiation (6 wks)and chemo (temadar) on Sept 12th. Since then I have completed 4 rounds of chemo. I wanted…
a new caregiver
Hi everyone. My best friend was told that she had a brain tumor. She hasn't told anyone, except me, yet. The time the doctor told her of it was 6 months ago. It was also her last visit to the doctor. She says she is "too busy" to go. I have only known for about 3 months. We are very very close, but we hardly see each other…
GBM IV
Back in early October, we learned that our 63 year-old Mom has a grade IV Glioblastoma Multiforme in her frontal lobe. The first (and only) symptoms she presented were impaired memory and cognitive skills. She immediately underwent surgical de-bulking of the tumor, and a couple of weeks later, started three weeks of…
Decision on Clinicals
My Dad (age 72) was diagnoswed with GBM IV on January 26. The doctors recomended Temodar. Surgery is not an option. A second opinion at Sloan Kettering has introduced us to two clinical trials, Poly ICLC and R115777. Both will be combined with radiation. We are working toward a decision. Any thoughts, insights,…
gamma knife
Hi all, I stumbled across this discussion group just today. I am writing to you all the way from Denmark. My father was diagnosed with GBM IV in November 2002. He has already survived 1 year and 2 months thanks to radiotherapy and termodar, which he is currently taking. In December 2002 he was not doiing well, with almost…
concern for my mother's progress with glioblastoma grade IV
I posted a message on here recently after my mother's sugery. Her progress is going down hill. I need some hope. She is doing chemo now and just recently she is really weak from not eating and not drinking enough water. She can't even lift her self up out of bed. My dad has to help her. She also is losing hearing in her…
Not sure if its cancer
Please pray for a friend of mine, they have just found a mass in the back part of his head. we have not heard yet if its cancer. He has had a stoke so it could be a pool of blood from that but either way its doesn't look to good. Thanks so much. I'm the Mother of Dr. Gary Jones ( Dentist ) who passed away April 30th from…
Are false "negatives" possible?
My husband had rectal cancer and we found in October 2003 that it has spread to his lungs. He had CPT-11 in November and stopped because he suddenly became very delusional about me, thinking I was not his wife. His other memories and functioning is intact, except he complains of increasing back pain. He had a CT-Scan on…
update
Hi All!! We have the best news! Jenny had surgery on Thurs the 4th and they got 100% of the tumor!!! TA DA! We are so very blessed. She was awake during the whole process and the dr said it went "smooth as silk". She had the best possible care. I'm sure most of you have heard of Lance Armstrong? The same dr that treated…
Re: Brain cancer(glioblastoma grade IV
Denise, Thanks for responding. That is very encouraging to hear your mother is on her fifth year. What is the gamma knife treatment? I have never heard of it. My mom has been pretty positive up until now. The temodar is costing $4,000 a treatment. She has a medical card that says they paid for the first one now she has to…
My friend Jenny
Hello again! I have a bit of an update. I took Jenny to the neurosurgeon yesterday and he was very friendly and helpful. We feel very confident with his manner and deameanor. He is going to do a "functional" MRI next week. That is an MRI while they have her do tasks...toe tapping, finger moving, talking to her, asking…
Coping with siezures
I have been brain cancer free coming up on two years, but am going through siezure episodes lately. The tumor was on the right side and the effects of the siezures start on my left side with feelings of numbness and sometimes going to full blown grand mal. My oncologist has me on Carbatrol now up to 800mg a day. This is a…
for a friend
Hi all! I am here for a friend, mostly. I am fighting a cancer battle myself, colon cancer, but am doing good with treatment. My questions are for my best friend of 45+ yrs. She has been diagnosed with a brain tumor. The paper work says possibility of "low-grade malignancy". She is to see a neurosurgeon tomorrow, Wed. Some…
Temodal
Hi, my name is Billie and my father in law was diagnosed with stge 4 gioblastoma in May at the Mayo clinic in Rochester. He has gone through the 30 treatments of radiation. They can't do surgery. He is high doses of dilatin and decadron. Now the Dr.'s say he can try a chemo drug Temodal. We aren't sure we want to go…

Brain Cancer

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