mixed glioma(oligodendroglioma/astocytoma)

lltitus
lltitus Member Posts: 5
edited March 2014 in Brain Cancer #1
I have been Dx in May 2003 with this kind of brain tumor in my right frontal lobe. I have had surgery to remove it, but am taking temodar, PCV and then Radiation to remove any residue. My mind seems very foggy, and I am in need of anyone out there with this type to respond and make me understand what my future holds. Will my cognitive thinking be injured? Is this the way it is for the rest of my life? Growing back and more chemo over and over?

Comments

  • nanc721
    nanc721 Member Posts: 29
    #2
    My husband was dxd in May of 2003 with Grade 4, Glioblastoma multiforme. He has done beautifully. Some short term memory loss, some mild cognitive issues, but considering the alternative, has done very well. All things considered, he is amazing the doctors, who at first, had many dire predictions. As to what the future holds, none of us know, nor do we chose to dwell on that, because if we start obsessing about what might be, we will miss the "what is", and with 2 kids, that is not an option we want to visit. His tumor was in his right temporal lobe, and the doctor has talked about possibilities if it does come back. Knowing what might happen is only helpful to us in that it helps us to appreciate what we have now..wish I could answer your question as to what the future holds...but I'm not sure anyone can. Doctors told us things (i.e.memory loss, cognitive processing) could improve, could stabilize, could get worse...just no way to know.
  • lltitus
    lltitus Member Posts: 5
    #3
    nanc721 said:

    My husband was dxd in May of 2003 with Grade 4, Glioblastoma multiforme. He has done beautifully. Some short term memory loss, some mild cognitive issues, but considering the alternative, has done very well. All things considered, he is amazing the doctors, who at first, had many dire predictions. As to what the future holds, none of us know, nor do we chose to dwell on that, because if we start obsessing about what might be, we will miss the "what is", and with 2 kids, that is not an option we want to visit. His tumor was in his right temporal lobe, and the doctor has talked about possibilities if it does come back. Knowing what might happen is only helpful to us in that it helps us to appreciate what we have now..wish I could answer your question as to what the future holds...but I'm not sure anyone can. Doctors told us things (i.e.memory loss, cognitive processing) could improve, could stabilize, could get worse...just no way to know.

    U R so right. Thank U for responding. Good luck to your family. with an attitude so positive, it has to be catchy!
  • jabojones
    jabojones Member Posts: 4
    #4
    nanc721 said:

    My husband was dxd in May of 2003 with Grade 4, Glioblastoma multiforme. He has done beautifully. Some short term memory loss, some mild cognitive issues, but considering the alternative, has done very well. All things considered, he is amazing the doctors, who at first, had many dire predictions. As to what the future holds, none of us know, nor do we chose to dwell on that, because if we start obsessing about what might be, we will miss the "what is", and with 2 kids, that is not an option we want to visit. His tumor was in his right temporal lobe, and the doctor has talked about possibilities if it does come back. Knowing what might happen is only helpful to us in that it helps us to appreciate what we have now..wish I could answer your question as to what the future holds...but I'm not sure anyone can. Doctors told us things (i.e.memory loss, cognitive processing) could improve, could stabilize, could get worse...just no way to know.

    I ALSO HAVE GBM, SURGERY WAS IN FEB 04,MAY I ASK WHAT TREATMENT YOUR HUSBAND HAS HAD? THANKS
  • HopeOne
    HopeOne Member Posts: 9
    #5
    nanc721 said:

    My husband was dxd in May of 2003 with Grade 4, Glioblastoma multiforme. He has done beautifully. Some short term memory loss, some mild cognitive issues, but considering the alternative, has done very well. All things considered, he is amazing the doctors, who at first, had many dire predictions. As to what the future holds, none of us know, nor do we chose to dwell on that, because if we start obsessing about what might be, we will miss the "what is", and with 2 kids, that is not an option we want to visit. His tumor was in his right temporal lobe, and the doctor has talked about possibilities if it does come back. Knowing what might happen is only helpful to us in that it helps us to appreciate what we have now..wish I could answer your question as to what the future holds...but I'm not sure anyone can. Doctors told us things (i.e.memory loss, cognitive processing) could improve, could stabilize, could get worse...just no way to know.

    Thanks for your words of encourage and what a great attitude your family has in battling this illness.

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