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Hi All!
Wow....so much to catch up on!!!! Just wanted to say HI to everyone and that you are all still in my prayers! Hope everyone is feeling strong from the support on this site.....so nice to see how far it's come, but at the same time sad to see so many new posts! I'm feeling great and trying to forget I have stage IV anal…
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Joanne - how are you?
Joanne, Just checking in to see how you are. Hope all is well. I've been thinking about you and we all miss you. xxoo Liz
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Pain...after all this time
Help!! I have felt relatively ok for almost 13 days, with of course the discomfort of alternating bowel activities, but today I'm wishing for the hemmys to come back. I have not rested, slept in, taken it easy, cuz we just moved into the house, and I think maybe I overdid it. Today the pain is almost unbearable, and my…
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When did you return to work?
I am just wondering when everyone returned to work after treatment. This Friday I will be three weeks post treatment. I need money, so I was thinking about trying to go back next week. My fatigue is better this week, although certainly not gone. Norma
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back from MD Anderson
I am 13 months post tx for anal c. just had procto and blood work. all good. still have inflammation and pain on left side of anus (tumor on right). thought i felt a bump but apparantly is scar tissue. Dr. said might need another year to heal radiation damage then if not healed after that probably permanent. I am amazed at…
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cystoscope
hey, have had small amt of blood in urine for over 2 years. only noticiable in blood work, not to my eyes. no symptoms of UTI . this was happening even before my radiation and chemo so not related to that. now my Monroe urologist wants to do cystoscope. have anyone of you had this??? i think that it is an easy test but…
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looking for the foolproof (ha!) chemo/rad survival tricks (insider knowledge)
I am headed to MDA-Houston tomorrow to begin treatment. I have been reading this board and find the support here and information here very valuable. I will just put out the request to give me what helped you get thru the treatment the best and what do you wish you had known then that you know now?
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green discharge, yes I said GREEN
I went to my pcp dr because of a clear discharge that I believe to be coming from my urethra. She has referred me to a gyn dr, and that appointment is scheduled for Monday. Since I saw my pcp dr, I have had two episodes of GREEN discharge, now from what might be the vaginal area. Has anyone else with anal cancer…
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5-FU cardiac toxicity
I have Stage 2 anal cancer and was put on standard treatment of 5-FU infusion + Mytomicyn for 1st and last week and 30 radiation sessions. During first chemo cycle I developed severe cardiac reaction to 5-FU including chest pains, abnormal EKG and left ventricule dysfunction so that it was pumping at 30% instead of the…
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good news....
I just got my results from my biopsy and the doctor said it was clear (NED) I had a pet at the beginning of the month but my onc wanted a biopsy also.I still have the port in hopefully I will get that out soon. I have wanted it out ever since it caused a blood clot in my neck! With an earlier post I made about the swollen…
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what is vaginal protector
i read that Dr. Crane gave some of you a vaginal protector during radiation??? is this a dilator or something else. i did not have Dr. Crane last year when I was going thru treatment but was given dilators after treatment. maybe they learned something better. sephie
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HELP PLEASE;;;5 YR ANAL CANCER SURVIVOR , PELVIC RADIATED ALSO ABNORMALLY BLEEDING?
SOMEONE PLEASE HELP ME....I HAD ANAL CANCER 5 YRS AGO, AND AS MOST OF YOU KNOW WHEN THEY RADIATED THE RECAL ANAL CANCER, THEY ALSO RADIATED THE "OUTSIDE" PELVIC ORGANS, WITH NO CANCER PRESENT, THEY DID IT AS A PRECAUSION...BECAUSE OF THE LYMPH NODES....IVE NEVER HAD KIDS, I GOT ANAL CANCER AT 43....NEVER HAD HYSTERECTOMY…
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post tx for anal cancer...urethral discharge (women)
I am post treatment by a little over a month now, but I have been having a discharge. I called the radiation doc and went in for a visit, explained my symptoms and she prescribed diflucan for what we thought was a vaginal yeast-type infection (the 2nd one since radiation started). However, I actually think the discharge is…
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only 3 more rad txments left. yesssssss
Hi everyone, I only have three more boosts of rad txments left, for a total of 28 txments!!!!!! I am sick, tired and burnt, but thankfully I see the end of this part of the nightmare!!!! Just a few weeks ago I really didn't understand why they use the term cancer survivor, boy do I know now. Thankfully I have had the…
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PET Scan Coming Up
Well, my first PET scan since treatment ended is coming up on Wednesday and the anxiety is overwhelming. I was anxious to have it done asap but now I'm thinking that if the news is bad, I'll just be back in a world of despair. My treatment ended in April and the CT scan in July showed that my pelvic lymph node, which was…
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New here
Hello to you all, I do not have anal cancer but my wife of 26 years does. I have read through many of the posts on this forum and have already had so many unknowns clarified but I have a couple questions: I have two questions for the group: 1. Is asking about the stage important? 2.Nobody has ever said a word about HPV or…
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Moving
Hey All. Just wanted to say that I've moving to Central Oregon. My last day here at work is tomorrow. I currently work at a place where I can easily pop on the boards and see how everyone is doing and maybe share a thought or answer a question fairly easily, however, that won't be possible with my new job. So I'll check in…
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cancer treatment centers of america
anyone have experience with these hospitals
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thanks
i really appreciate your feedback. in 2008, my proctologist could not see nor feel what I was trying to show him and he kept telling me that I did not have cancer. so I thought it was hemmorrhoid . finally after over 9 months of going to him , I got a 2nd opinion who immediately put me in hospital for biopsy. then i got…
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Fissures
I completed my treatment about 10 weeks ago, and it was very painful. I am still recovering, but suspect I have a fissure, since everytime I have a BM it hurts and even bleeds, depending on how the stool is. When I went back to the surgeon, he said everythings looked normal, and I just needed more time to heal. Has anybody…
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Got good news today
I am typing this while sitting in the infusion chair for my 3rd of 4 carbo/taxol treatments. I got the results of Mondays PET scan today. Apparently the chemo is doing its job as there was not a sign of the pleura thickening on the PET. Got this news from the med/onc. She was delighted. She recommended that I proceed with…
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About to start week 5 radiation & 2nd Chemo - side effects to come?
Hi I'm from Australia and its almost impossible to find local information. I am 40 and had routine surgery to remove a "skin tag" when my cancer was diagnosed. What a shock. Anyway I am on a 2 week break from radiation and about to start week 5 next week. At week 3 my inner thighs started to go purple and my "fanny" got…
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Let's Talk about Sex, Babee (Salt N' Pepa)
I see every other topic on the board, but this one - SEX. What happens from here? I am only 6 weeks post treatment, but I'm still a newly wed! My husband and I have been married almost 10 years and he has been a real sweetheart! When I hit the worst of my treatment, I told my husband that he had to stay away from that area…
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thanks
Again, thanks for words of encouragement. I am allergic to benedryl, however. But Dr. Chiu gave me 2 new meds on Thursday, 1 a cream called Regenecare, which stings like crazy going on, then it numbs it a bit. Then he also gave me a pain patch called Fenadryl which I leave it on for 72 hours at a time, so I've been getting…
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13 months after completion
I was stage 2 . i am still having trouble on my left side of anus. tumor was on the right side. have bumps and inflammation. can not sit for very long. cannot do fast walking for exercise. sweat really irritates. have to apply lantaseptic, aquaphor to go out. have to use KY Jelly to have BM. still have 3-5 Bm's each day.…
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Anal Cancer Foundation
Hi Everyone-- I have learned through one of my forums that three people, the Almadas, who are siblings and the children of a woman who died from anal cancer recently, are starting an Anal Cancer Foundation. I spoke at length on the phone this past Saturday with one of them and am so very impressed by their knowledge and…
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How fast does it spread?
Hi, So, when my mom was initially diagnosed, it was good news as it was a cancer that spread "very slowly". Does anyone have any idea as to what that means?? As I'd mentioned in another post, we learned that it had already spread to lymph nodes and the liver. The odd thing is that she had a pet scan last Jan as she…
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almost done
Hey y'all...one more week and the rad is done!! Good news today, my lab was almost perfect. My white blood cells were at 1.9 when I started, they are now 10.0. ABC is up to 7.3, hemobloglin up to 2.7hemocrit up to 37.8. My paletlets are only 71, but they were in the 20's just weeks ago. My onc told me that my body produces…
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3 wks into treatment
Hi Y'll. Okay, I'm 3 weeks into treatment and boy do I hurt!! Imagine going to the beach nude, on the hottest day of the year, and falling asleep for 5 or so hours. I am so red down there and I feel like someone has lit a blowtorch every time I go to to bathroom. I use a cream after each incident, but the relief doesn't…
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burning
Hi, thanks for answering. The burning is mostly when I pee, when I have a BM it's just like sitting on glass. I'm almost done with radiation, so I'm hoping the "sunburn" will go away. What's should I expect after radiation? I really have no clue. Melodie