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Another bump in the road
Hi, I'm 3 months post treatment, I just had my first p e t , which did not see any cancer left, but the doctors want to do a biopsy to make sure. I am fine with all of that, butI now have swollen lymph nodes in the lungs. They were going to do a needle biopsy but now want to do an open biopsy because it is not safe to do…
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Oncologist Follow-ups Post Treatment ?????
Question for those of you post treatment regarding follow-up visits to your oncologist. Post Treatment how often did you have follow-up visits with the oncologist and what occurred during the follow-up (blood work, etc.)??? I'm two months out and the oncologist was not particularly diligent during treatment, he seems to be…
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Rectal Cancer Rate Increasing in Young Adults
(Since there is no rectal cancer board, i chose to post this article here instead) http://abcnews.go.com/Health/CancerPreventionAndTreatment/rectal-cancer-rates-rising-young-adults/story?id=11463628 Using data from the Surveillance, Epidemiology, and End Results (SEER) cancer registry, Dr. Joshua E. Meyer of New York…
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Advise
I am a 10 year anal cancer survivor. Anyone else out there this long? Side effects now showing up are very severe diarrhea. Can not control. Anyone else experiencing this? Nothing helps.
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ct scan results spn
Hi everybody, I received my ct with contrast results to check out my spn (solitary pulmonary nodule) in my lung. On 5-4 the pet-ct showed a 7mmx8mm spn and on 8-11 the ct with contrast showed a 11mmx9mm spn. I will have a consult with a thoraic surgeon on 8-31 to see what the next step is. This dr told my oncologist if its…
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anal cancer & treatment
I was diagnosed with anal cancer from what I thought was "just a hemorrhoid". I began chemo (mytomycin & 5FU) and radiation on 6/23/10. The skin being treated has started to burn and I'm using 2 creams and cornstarch talc for irritation. During my first round of 2 chemo treatments, I followed doctor advise and started…
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Chemo-more specifically_
My specific question is about Mitomycin vs cisplatin. All my research says mitomycin is the gold standard, but her rad/onc last week said we were going to have a hard time convincing this chemo dr otherwise....We are at MD Anderson and this chemo doc has been on every study confirming mitomycin........but that she will…
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Leg and Hip Pains
While reading the thread about Lymphadema (ankle swelling), I noticed a lot of people mentioned aching in their legs and hips - especially at night while sleeping. I too have had this problem since about halfway through my treatment. To me it feels like the growing pains I used to get in my legs when I was an adolescent.…
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Newbie
Finally ran across this site & really enjoy reading all the info so HAD to join. Im 51, diagnosed with stage 3b rectal C. in May of this yr. Underwent 28rds of Radiation treatments along with Xeloda.PET scan showed spread to 2 LN, liver ok. Have me going back Aug 31st to look and set up for surgery Sept 15th if it has not…
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1st p e t results
So I got my p e t results today. The doctor said nothing lit up or was a red flag, but she wouldn't say there was NED. She wants me to have a biopsy to make sure. She said that the p e t scan does not sometimes give a good view in the anal area. Has anyones doctors ever said that? However I have 2 lymph nodes in lungs that…
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weight loss
HELP!!! I need to know what is the best weight gain plan. I topped off today at 86.2...not good. My skin is hanging off me, I'm wearing the Hannah Montana collection, for Gods Sake, and they are too big. I eat bagels with cream cheese, pudding, oatmeal, cookies, ice cream, sherbet, I drink Ensure every morning, but the…
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thanks for peptalk
Thanks so much for getting back to me on this. Trace (my husband), does try to understand, but yeah, a bottle of water and a bowl of pudding is not all I need right now. He works out of town Mon - Fri, and when he's home on the weekends, I try to make everything as normal as possible. I either sleep too much, or not…
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Does the ripping every end?
I have been cancer free for a year (go me!) but I am still struggling with fissures almost everytime I have a bowel movement. I take colace daily. I will admit I have been slack with the water lately but I am having a lot of mucus recently, some of the discharge not well controlled. I haven't really had those types of…
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chemo
My sister was diagnosed 4 weeks ago with stage III anal cancer. I am of course going somewhat blind into this thing trying to help- getting as much info as possible. I found your message board last weekend and have learned more from you all in that short amount of time- than I have in a month of research. She had her first…
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Biopsy of the liver needed?
Hi, quick question please. I'd mentioned that the oncologist found a single lesion on my mom's pet scan. They decided against biopsy and rather, attack it w/ chemo/radiation. My question is if biopsy is generally foregone with activity in the liver for those with anal cancer? I guess I am just curious as to what the common…
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Have any of you LADIES experienced this?
For the past several weeks, but much more frequently now, I have been experiencing a very weird, sensation in the vaginal area, specifically right in the clitoris. (Sorry if TMI, but this is a little embarrassing talking about this, but I've got to find some answers). This may sound crazy, but it almost feels like some…
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anal rectal cancer
Hello to all. I hope you are doing well. I have read a number of postings, particularly Philly AC(/) and would like to add a few things based on my experience. I was diagnosed in '03 with stage 2 anal rectal cancer. A short but agressive program of chemo (FU5) and radiation for 8 weeks. I have extreme and unusual responses…
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need a pep talk
Hi Y'all. It's me again, Melodie. I just got out of the hospital yesterday...2nd time in 2 weeks. The first time I spent 5 days in, due to a defienency in my enzyme or what ever. I also had the shedding inside of the mouth, loss of balance, painful (extremely!!)BM's. So I got home that Sunday, and was back in on Monday…
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Tiffanys ??
Looks like we've been HIT again! I reported it. I only wish I could afford TIFFANY's with all my doctor bills!
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PET scans
Hi y'all, as you know, or maybe not, I'm fairly new to all this. Where I should be going itno week 5 of radiation, I'nly finishing week 2, due to hospital interruptions. What is a PET scan, and should I ask ny doc when they start? Thanks, Melodie
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It's that time again....
Scan time on Monday 8/9. My whole being changes a week to 10 days before CT scans. All of a sudden I have aches everywhere which of course I conclude are related to the cancer. Like a fool I go back and read all my radiology reports online and find something that makes me think will turn into something. You know, the tiny…
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CONGRATULATIONS and THANKS - WE ARE HERE TO STAY!!!
Our dicussion board's six month anniversary was July 25th. The significance of that, you ask? When I initially inquired about the possibility of having an anal cancer discussion board I was told that it would be allowed on a six month trial basis. If there was enough participation to justify its existence, it would remain,…
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A Possible Remedy for the Broken-Glass-Through-The-Butt Syndrome
I was given a suggestion by another anal cancer survivor who suffered from an anal fissure and I tried it and WOW what a difference! She told me when I'm ready for a BM, sit on a sitz bath filled with very warm water (hot enough that I could bear it), relax (read a book or magazine) and release the stools in the sitz bath.…
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Brand New Here and Concerned
Hello fine people. I have spent the better part of my day perusing this specific discussion board. My name is Kim and I will turn 45 on Friday. Today, my nurse, Teresa, phoned me with the results of my CT and it seems I have a plethora of issues to contend with on top of old issues. Firstly, I have a kidney stone I'm…
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colostomy
Thanks for your response Lovekittie, I appreciate the information. I have spoken to many suppliers, stoma nurses, home care nurses, and manufacturers. In fact Hollister, whose products I use gave me the best information. My stoma problems stem from the fact that it is very small and it mushrooms over half my skin. The…
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SO, do you want the GOOD news or BAD news first?
Okay, it always seems so much better starting with the good news. I had an appt with the GYN today because of possible atrophy of the vagina due to the radiation. Well, GOOD NEWS...the problem can be fixed! BAD NEWS...I have severe vaginal stenosis meaning my vagina has fused! She attempted to insert her pinky finger with…
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side effects
Can someone help me answer this question? What side effects does morphine have? I just got out of the hospital and resumed radiation treatment. On the way, my sister & I were talking about my recent hospital stays and tho I really don't remember most of time in there, she told me about some of the things I said or did.…
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Update
Hi all, I came to this board back in June after I was diagnosed with anal cancer and had my treatment plan in place.I was not in the mood to go on the computer much lately so I have just caught up on all the posts here.I just wanted to share my journey these past eitht weeks or so. I started treatment on June 8th with 30…
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Joining for the 1st Time
Hi, I was recently diagnosed with anal cancer in April of this year. I completed 30 radiation treatments and two rounds of chemo. I have been looking for someone to talk to for a very long time. I have had some real challenges during my treatment, but now that I'm in recovery, I thought things would get easier, but…
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first pet scan
Hi I was reading the post on pet scan instructions. Weird how there are differences. I go for my first pet on tuesday. I was told no carbs at all the day before, and to eat high protien the day before, and nothing to eat 6 hours before, but could have water. Thankfully it is a late morning appoitment so I can handle it.…