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PET results are in
Hi Everyone-- I had my PET scan yesterday, which was a follow-up to the one I had in May, which showed some activity in my upper vaginal area. Well, I got good news--yesterday's scan showed complete resolution of the activity--it's gone! I'm very relieved with this news, as the SUV in the vaginal area was over 7 in…
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Round two over
I have been lurking behind the scene while I recovered from round two of chemo. I am so impressed with all the supportive activity here on the board. I am grateful for the opportunity to be in the company of such caring individuals. Round two was not quite as bad as one. Little more queasiness, little less pain, LOTS more…
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Ready - Set - GO
Saw the oncologist today for bloodwork and office visit. Bloodwork was perfect. Triology Sterotactic radiation for liver met to start Monday March 8. Five treatments, approx. 1 hour each day, including imaging and treatment. Finished Friday. Don't really know what to expect. Radoch says fatigue is the number one complaint.…
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Hair today...gone tomorrow!
Hey! I've got a crazy question? Does the pubic hair grow back?
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Burns
Hi, well I made it thru 5 1/2 weeks of treatment until the burns got to bad we had to stop. It has been a week in a half since last treatment. During that time they put me on the Fentanyl pain patch. That is one nasty patch.I was very sick from it, the only time during all this treatment that I threw up! after that came to…
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newbie
Hi all, I am Norma. I started mytomycin and 5fu yesterday. Today I begin IMRT radiation. T4N1MX squamous cell anal cancer. Just wanted to check in. I have been reading the posts for about a week, I feel they have helped me get ready more than anything else. I have always been a fighter and survivor, so we will see how this…
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Sue, I'm thinking of you.
Good Morning Sue, Just wanted to let you know that you have been on my mind all weekend. Hope all went well with your scan results. {{{Hugs}}}, Joanne
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Liver resection
Hi All, I had my appointment with a surgical oncologist Friday. I guess the good news is that I am definitely a candidate for surgery. He will be removing most, if not all of the left lobe. Unfortunately, he is going away on vacation for two weeks, but will schedule a date shortly after he returns. I'm very anxious to have…
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Back from Houston
Well I am home from Houston. Got home yesterday about noon. Yes, we had to reschedule our return flight because our appointment ran three hours late. Poor planning on my part, I should have given that possibility consideration when I made the reservations. I have to get it off my chest that I was extremely disappointed…
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Good PET Scan Results
Just wanted to update everyone about good results on my husband's PET scan! Hoping that it's scar tissue but will let you know the biopsy results next week. BWK
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Radiation to the vulvar
Has anyone had radiation for vulvar cancer? Bumperless in NJ
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cat scan but no pet scan
I was just diagnosed with anal cancer. A few days ago I got a cat scan but no pet scan? Is this adequate? Or am I being shortchanged because I am on medicare? I am very confused and worried about this. Any input would be greatly appreciated.
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Scar Tissue After Anal Chemo & Radiation?
Has anyone been told upon finding a "mass" that it might be scar tissue? We're waiting for test results, but wondered if anyone had ever been given this information by their doctor, i.e. scar tissue as opposed to tumor recurrence.....
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Nausea tips
Just a quick little tip that a friend suggested for minor nausea. Ginger Chews - they are kind of like a candy. We found them at Whole Foods in the bulk food and nuts section. I also had an Rx for Compazine (prochlorperazine) for severe nausea but could only take that every 6 hours. Inbetween doses of that, I could nibble…
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Flavored water
I am having a terrible time finding something I enjoy drinking these days. Now that I am doing chemo again, I know I need to work at staying hydrated. As a rule I do not like flavored water. Too artificial tasting to me. My BF Teresa suggested I try Hint flavored water. On the heals of her recommendation I read about it in…
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Opinion on what to do please
Hello everyone, First I want to say this is an excellent forum and I have learned a lot here. Thanks to all of you for that. Second, I need everyone's input/opinion on something please. Approximately 2 plus years ago I had a hem'ectomy. Tissue from hemmy was sent to lab and came back with severe dysplasia, doc said level…
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options``
Dear Dottie, So sory to hear all your circimstances. You definitely need to look up and down every street, avenue, highway, subway, alley, etc to check out all your choices. I know only rich people aren't the only ones that get canceer, so there have got to be resources available to us regular people. have you checked with…
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washing hair
I got this figured out. After radiation tomorrow I will put on my bikini and have my sister wash my hair. They are taking weekly turns driving me to my appointments, bringing my groceries up, changing the litter boxes, etc. I got the first chemo pack off today and they checked my mouth. It's not thrush, but my tongue and…
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Keep on keeping on
Hey y'all. I haven't been able to visit in a couple of days...see we have some new friends. Sorry to meet you, but welcome.This is Melodie, I'm still in the hospital, with no home in sight yet. As of this am, my whites are .667, my platelettes are 17. They have suspended treatment for awhile to try to get these counts up,…
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Hey Friends
This such a nice place to come...I wish it were under different circustances, but it does help tp just talk and listen to others tell thier live stories. I got out of the hospital at oon today, and I think my hbby is worse than the nazi nurses, lol. In our bedroom we have the bed of course, but the room is large enogh to…
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Good News on 1st Set of Followup Scans
Diagnosed on 03-04-10. Stage 2 N2M0. Started Protocol on 04-05-10. Hospital 05-12-10 to 05-23-10. Finished Protocol on 06-03-10. Good news: I had a CT Scan done 07-06-10 and the booty cancer is gone completely. Also verified with "latex glove" exam and a proctoscope. My butt is no longer broken. Also good news: The lymph…
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new member
just been diagnosed with anal cancer for the third time in three years. I start treatment monday july 26th. My first diagnoses in 07 i had 5fu and mitomycin with radiation for 6 weeks(with a week break for burns)the second time was 09 when it reappeared i was dealing iwth lymphoids and liver. i was given 5fu and cisplatin…
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Thanks for thinkin' of me
I last posted on June 30th the day of my first chemo infusion. I just reread it and laughed at my comment "hope I don't hit the wall in a couple of days...". I would say now that it was an understatement. I felt unbelieveable energetic on Thursday (day following treatment) just at suggested by the infusion nurse, due to…
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Dialators
In the various postings, vaginal dialators have been mentioned by several different women. Here is my really stupid question: How did you know whether you needed a dialator? Did you set up an appointment with a gynecologist to check for tissue damage? I think someone may have mentioned painful intercourse, but I am not…
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Women only found something that helped
Hi I posted earlier about my problem with radaition side effects and hemoroids etc. I found I was having a hard time starting to pee and then I would strain my anus and it would hurt. I decided to try to pee standing up and WOW what a difference. NOt pretty but whatever (been doing it like that in Turkey for ever) Hope…
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Stamina following treatment
I'm finding the lack of stamina following treatment a bit discouraging, and am wondering if others have run into the same situation. I've always run at warp speed and am now finding that even a short walk, or brief period of watering my garden leaves me winded and tired. My treatment was completed roughly two weeks ago.…
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Joanne how are you?
Joanne Just checking in to see how you are doing? Thinking of you. Liz
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PET scan results
I found out that I do have an involved lymphnode in the anal area, but also they found I had abnormal uptake of my left ovary. They arent sure if its cancer yet, I went yesterday for a MRI and now I am having to wait. The doctor said the radiologist couldnt be 100% sure it was cancer until they did a MRI. Im, like as many…
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sleep and food
I've already gone from 102 to 89, and just started treatment. I love yogurt, so I'll pick up a bunch tomorrow, My sister is taking me to the grocery after radiation. Now I'm finding it almost impossible to sleep. Can't find a comfortable place to put the fanny pack. It gets easier,,,doesn't it? Melodie
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Words of encouragement
I thank all of y'all for your input.I get the chemo back off tomorrow for a few weeks, now the mouth sores are setting in. I feel like I'm swallowing glass. I know you all say it gets easier...I'm heading into week 2 of treatment...so that is my point of focus. My prayers are with each of you in this journey we are all…