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Scan results...
Thank you to those who have wished me luck and prayers. I had both chest and pelvic scans a few weeks ago, then between holiday, family, and internet problems, have barely been on line for a while. Although the words NED were not there I am satisfied with "stable". They are watching a small cyst on my liver, and a nodule…
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And the results are in...
I saw my oncologist last week and my scan was CLEAR again! Blood work was also good. I'm now a year post treatment. In fact, the end of my treatment was the beginning of my retirement (same day)- (early retirement from 37 years of teaching). Unfortunately, I wasn't able to complete the school year. I'm doing well. I still…
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I Made It!
Well I made it through the treatment even got a certificate and a graduation bear from the radiation therapists! I had 26 treatments with an additional 3 focus treatments. I did really good throughout the treatment my skin is not too sore and I didn't feel any fatigue. I managed to keep the constipation issues under…
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Life Changes
As everyone on this site knows, cancer brings on many life-changing experiences. For me, it brought about getting very real, becoming very true to myself. And since ending treatment I have morphed into a certified Pilates instructor and a holistic personal trainer with plans to open my own studio called 'Breathe' by the…
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I'm just not the same...Had mri...need a new hip!
Hi all - I am 3 1/2 years out.I am basically feeling "ok" except for pelvic stiffness and pain which i mentioned before.My other main complaint is not having strength.i just dont have the physical stamina i used to have.I am learning golf and after three holes..had to pack it in.There are times when im standing with people…
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Just wanted to say hi......
I know its been quite awhile since I posted but I do read the discussions from time to time. I have found another site which is for 'ostimates' & the discussions really help. So to update its been 5 months since my ostomy surgery & while its been a roller coaster for the most part not too bad. Doc says takes 6-8 months to…
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Clean colonoscopy!
I finished treatment on 11/11, have had two followup appointments with my oncologist and colorectal surgeon. Both recommended a colonoscopy. Well, today was the day and everything was good! Of course the prep wasn't pleasant, it's a small price to pay for peace of mind. I am very relieved and grateful. And, I won't have to…
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Hemorrhoid relief and after tx constipation
Do any of you have a suggestion for my daughter's painful constipation and hemorrhoids? She has the "urge" to move the bowels, but it feels like "it won't come out". There is some stenosis and some bulging hemorrhoids that are contributing to the pain. She's tired OTC stool softener. And under the doctor's recommendation,…
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Estrace cream
I just saw my oby/gn to get my vaginal dilators. She prescribed Estrace cream for me to use while using the dilators. Has anyone else used this?
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HPV Question
A friend asked me the other day and I should have known the answer but wasn't sure....She has a 20yr old daughter never had the HPV vaccine. Daughter has recently become sexually active. Although the vaccine is recommended before sexual activity begins, is it still available/effective if given afterwards??? She is checking…
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And the liver biospy is in............
Well its confirmed the spot on liver is cancer:(But the weird thing is he said something about it being a gland type cancer and thats not the same kind I have in my rectum.He said because it borders my anus/rectum it can have characteristics of both types of cancer which dont make to much sense in my head but I called my…
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Waiting on 1st PET scan ODD Situation
Hi. New to the board, so wish I found it sooner! I was diagnosed with Anal Cancer Apr 13, 2011, one day before my 50th birthday! I was also diagnosed with a severe abdominal infection and 2 major fistulas (due to the infection from that dang mesh). Anyway I did the myomiticin and 5-FU and radiation treatments for 6 weeks.…
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New to this
Well let me start by saying hello and my name is Patsy and I am 3 weeks shy of 30.I found out I had a malignant tumor in my rectum In the beginning of June.So I did all the research I could find on colon-rectal cancer when I went to meet with my oncologist they called it a squamous cell cancer so they think it might be…
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I think I have Anal Cancer
Hi everyone, let me start with saying I think I have anal cancer, and I'm scheduled to see a GI specialist tomorrow afternoon. I just wanted to post my doubts and questions because I am so nervous... to see what you guys might think. I am 29 years old and have a two year old so I am terrified. First Symptoms: - About a…
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Sex
To make a long story short, my husband and I have been having some problems. But being an optimist from birth I have been regularly using the large dilator all throughout treatment and until now. Last night, after watching "A Week with Marilyn", we had a breakthrough somehow and it was almost like old times except my…
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Wanted to say hello and vent
Have been trying to figure out my life since all this has happened, I find it extremely hard to stay positive, I fight every morning to put a smile on my face and bounce out of bed to face the day. I am slowly getting my energy back, bathroom issue are still a problem, I still cry some days I just want my life back! I am…
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radiation destroyed my hip
Hi all- Well I had hip replacement surgery two days ago.Im writing from the hospital and am still a little loopy..so i apologize up front for any grammatical and or spelling mistakes.Surgery went well and i just started walking today...30 steps..not as good as you martha.LOL but maybe on my way.the doctor said my hip had…
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Now what???
I just found out my lab results - vitamin D, thyroid and cholesterol are abnormal. I knew I had low vitamin D before treatment which is unusual since I live in the Southwest. Thyroid test was normal two years ago. Also had a bone density test and will find out that result next week along with what's next for abnormal…
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1st Post Treatment PET Scan Results
I had my 3 month post treatment PET Scan today and the result was NO cancer in my body!! I am feeling relief like I have never felt before. I am going to ride this high as far as it will take me, YEEEESSSSSSSSSSSSSSS!!!!!! Randy
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HI been a long time on here
Hi everyone well my cancer is gone yay me!! Sorry I haven't been on but a lot has happened in Dec 2011 I was in the Hosp I had blew up like a balloon from the waist down I had CHF plus my copd flared up real well docs said it was from the chemo I am just starting to feel better but I am very happy that the cancer is gone…
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Let the healing begin
Hi All, Sorry haven't posted anything in the last few weeks. Had a really bad bout of diarrhea for 3+ weeks and ended up in the hospital last week for 2 1/2 days. Was dehydrated and potassium depleted. Went back Friday for the last of my first 25 treatments and then was expecting to have 10 more focused ones but the Dr.…
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leg weakness and hip pain
HI, I have been lurking off and on around here for awhile. Finished tx in August 2010. NED for anal cancer. Just an fyi, I have ignored leg and hip pain, as it seems to be a fact of our new lifes. Anyway, my ct in March showed an illiac artery occlusion, blocked artery, which happens to be about two inches from my pelvic…
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Seeking help for my mom!
Hello, I am writing on behalf of my mother who is currently in remission and has been since April and for that we are so BLESSED and thankful every day!! But lately she has run in to some problems that are embarrassing for her to talk about. That is why I am the one seeking advice for her. She is starting to have bowel…
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Helping to get the word out . . .part 2
I don't know about you all, but I've hit a brick wall when trying to secure speaking engagements regarding anal cancer. Even the local Cancer Society is hesitant to allow me to speak and I feel it's because it's not a 'popular' cancer such as breast or cervical. Although I gained created community awareness when…
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A REAL vacation!
My other half and I joined a couple, who are good friends of ours, and spent the last week in Durango, Colorado. I am sooo scared of water, but went whitewater rafting!!! It was so much fun! I was into front and was soaked immediately. Loved it! Then took the steam train to Silverton and back. (Going up was really nice,…
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A year ago...
I was in the emergency room with my father over the weekend and came across a nurse that took care of me last year when I was hospitalized. Once I saw her face it was a flash back and with the monitors beeping I just filled with tears. I would never imagine that a kind face would start a flow of emotion. Anyway, just…
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Update
Hi all. I have been checking the boards but have been kind of in the shadows for awhile. I have done so well that I couldnt bring myself to post an update when others have had and are having such a difficult road. I finally decided that maybe my experience would help someone just diagnosed and afraid by showing that we all…
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Helping to get the word out....Anal Cancer
So last night I was invited to a charity event for people going through or recovering from Breast Cancer sponsored by K-Tech Charities. It is an annual golfing fundraiser that primarily focuses on raising money for Breast Cancer (like so many), and unfortunately that is my current condition! Anyhow, when I stood up to tell…
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JDuke
Joanne, How are you, I think about you often and hope you are doing well. Lori
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All radiation is not the same
I am at the end of my treatment. I started on May 7th with the usual chemo/radiation followed by 3 weeks of radiation alone followed by one week of chemo/radiation. While the chemo is standard for everyone, radiation is not. It is very much individualized. I had 22 imrt treatments and 3 "boosts". I still have one boost…