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3+ yrs NED!!
I finished tx in May '09 and my follow up tests for this year were scheduled for late May/early June. However my Mom passed in late May so I had to reschedule. I saw my colorectal dr. last month (DRE) and I just saw my med. oncologist today for the results of my last CT scan and everything looks good. I wanted to share the…
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Some good news
You all have been so very helpful to me. I can't thank you enough. I'm listening to the wonderful advice you give, and the support and encouragement get me through. So...I wanted to share some good news for a change. First of all, my HIV doc called to check on me today. He told me about a CT scan I had last year compared…
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Stage 4
I am just curious, how many of us that post here are stage four. I was diagnosed in August, 2011 with a large tumor, 3 smaller tumors in lymph nodes and 1 very small tumor in liver. Had radiation, chemo and liver resection. I am cancer free right now but know the survival rate for stage four isn't good. I thought hearing…
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great check up
i am 3 years 2 months post tx and NED. Yea!!! i did not get a CT this time. i still have obvious radiation proctitis that the colo rectal surgeon sees but i can deal with that .... hugs to you all..... sephie
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3 Years NED
I wanted to share my good news but then as soon as I logged on I read about Joanne. So I walked away from the computer, but then thought that Joanne would want us to continue to encourage each other. So with that thought and in memory of our dear founder and friend Joanne, I share my news that my check up was good and I am…
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Being depressed and angry when I'm supposed to be happy
I would think that since I passed my first three month check-up NED, that I would be a happy camper all the time. But not so. Now I'm mad I got cancer and although I appreciate my family and friends asking me how I'm feeling all the time, I would really rather not have had cancer to begin with and have to talk about it all…
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Hospitals, hospitals, and hospitals
I spent last week at the hospital in Dallas taking care of my daughter who had her Thyroid removed. Size of an avocado but NOT CANCER! Hallelujah! Then got a call that my Mom had a major heart attack. Now at the hospital with Mom in New Mexico. Congestive heart failure output from left ventrical Is only ten percent and…
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I think this a new question- older radiation burns- anal verge
First off , Hi! I have been lurking for two years, sorry My cancer dx and treatment was two years ago, finished treatment November of 2010, so far, no reoccurrence or any other cancer thankfully no major hip issues, or sexual issues, aside from the early menopause (stupid hot flashes) Treatment itself went as smoothly , as…
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Survivor who did not have the second round of chemo
Anyone here who is NED that did not get the second round of chemotherapy?
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Radiation Center down all week, treatment completion delayed, disappointed.
My Radiation center had technical problems all week and will not be up until Tuesday. My completion date just got moved up by 8 days. I am disappointed, because I am giving myself two weeks to return to work after the completion of treatment. I am due to return to work on Oct.15, my last day was initially scheduled for…
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Joanne Smith Duke Rest In Peace 8-18-12
I wanted to let everyone know that JDuke has passed on 8-18-12. She is the person who had CSN start the anal cancer discussion board, as there was none until then. I have posted her obituary below: DUKE, Joanne Smith, of Tampa, passed away August 18, 2012 at home, after a heroic four-year fight against cancer. Joanne was…
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Latest CT Results
First off, I would like to welcome all the newbies who have joined this group recently. If I have missed someone, I apologize. I hope your journies will be as smooth as possible and that you find the support you need. I had my 6-month follow-up scan on August 13th. and saw my medical oncologist yesterday to discuss the…
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Stage 3b Anal
Hi....I'm Cindy...I have been on this site but posting under a different topic...squamous cell...cup....but it is anal for sure.....maybe I've already mentioned it....chemo is doing a number on brain,,... Starting week three today....did mito c and 5FU in hospital....rad everyday for total of 31 treatments....back to…
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Question re. Protocol
Does anyone know the accepted protocol for treatments and post treatment surveillance? I have particular concerns about follow up scNs. I have been told that the risk posed by radiation outweighed the need for a scan. I am just wondering what is the current practice, as people here have experienced it.
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Full bladder during treatment
I see this often recommended here. My rad team was opposed to this. Even though the possibility of bladder damage is possible. Everyone should check with their rad team first
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chemo back to week 5
I pressed for a reason on giving me chemo week 6. I essentially was told it makes no difference, so I made the point that week 5 would be better since the side effects from radiation would be worse week 6. The doc hadn't thought of that, thought it was a good observation, and put me back to week 5. My understanding of…
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Some colonoscopy humor....
Is there anything humorous about colonoscopies. Just a little. I had my second one since diagonsis. Had it done in Colorado, was glad I didn't have to fly to Houston for that one. Former MD Anderson colleague of my doctors did it. Last time I was out cold. This time he tells me I'll be awake. I'm like "Are you crazy? I…
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Back from England
Well I made it over to England and back with no ill effects. I didn't find the long flight anymore tiring than usual. I was able to eat just about anything with no ill effects so I was very pleased, I even managed to gain a couple of pounds! Apart from the fact that it rained some part of everyday except 3 I enjoyed myself…
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Red Wine
I was watching this movie, "K-19, the Widowmaker". I had seen it before a long time ago but this time something jumped out at me. When the crew was subjected to radioactivity, the captain ordered they be given red wine. So I looked it up a bit and it seems that there is some theory that red wine helps to prevent radiation…
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Can I work full time, is it reasonable, just new diagnosis?
I am a gay man, and noticed not too many men comment on this board;I just had an transanal excision, my pathology came back "squamous cell ca". I admire all the women who have posted here and supported and educated each other, would you please assist me? I have a few questions about what to expect and how to manage over…
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Womens health
I am happy to report that my tests, CT scan, Mammogram, Sigmoidoscopy are all good. I have been feeling exhilarated about that. But a couple of days ago my mother passed away at the Assisted Living Center where she has lived the last three years. She had been in hospice care since mid July, not from cancer, but heart…
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Two weeks down, four to go
Dear friends...my second week of treatment ended today. I think about you everyday and cannot express my gratitude and appreciation for you standing by me and for all your words of advice, encouragement, and support. I'm feeling good and side effects seem slight so far. My understanding though is that it's week three when…
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SWIMMING DURING TREATMENT
HAS ANYONE TRIED SWIMMING DURING TREATMENT FOR EXERCISE??
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Small wart, didn't have before, in treatment with Radiation now, should I have it removed?
I have a small wart on my anus, external, well almost internal if you know what I mean. I have never had warts, I am entering my 4th week of radiation, and having Proctitis. The wart actually causes additional pain. Should I have it removed? Or will I have more pain/swelling if I do? I think the radiation and chemo lowered…
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The medical establishment just may be turning a corner? It's about time.
Hot off the press and DEFINITELY worth the read. http://www.naturalhealth365.com/cancer/study.html
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Public awareness
I am just wondering why there has been no public awareness campaign about anal cancer and hpv. Is there any organization which focuses attention and funding to this cancer? Some cancers get so much attention and funding. Has there ever been a public awareness campaign? I wonder whether Farah fawcett started a foundation?…
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Mediport Insertion
Had my mediport inserted on Friday 8/31 and had much more pain than I ever anticipated. My pain level was a 9 by the time I got home at 10:15 and ended up rotating t#3;s ( 2 tabs), oxycodone ( 1 tab) and naproxen every 60-90 minutes from 10:30- 7:00 PM, with pain rating starting at 9 and gradually going to 3. Finally…
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Just put in my profile, still finding my way around this site
Hi folks. I just joined and wrote about myself. I am still finding my way around this site.
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PET scan results: stage three with lots of swollen lymph nodes in pelvic area
Last Friday, I posted that the PET scan showed lymph node involvement, and the resident told me stage two. I met with the doc today, and he said my pelvic area was full of swollen lymph nodes. He said staging was difficult, but he did say stage three. He said the prognosis was still very good, but would be slightly…
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Praying for those in treatment
I just want you to know that I am praying for you guys who are in treatment. I know how much it helped me to know there were people praying for me whille I was in treatment. Hang in there, cancer warriors! Peace and love!