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Radiation Burn Spray
Hi, this may be of use to anyone but was thinking of Pattie at this time. I know she mentioned starting treatment this week. The spray I used to ease the pain on my butt, groin area is called Dermoplast...it is usually given to women to spray on after childbirth and can be purchased over the counter at most pharmacies, I…
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New here-my story
Hi everyone, I found this website through Relay for Life - I started a team in our community. I am 51 years old and was diagnosed with Stage Four Anal Cancer on August 10, 2011. I was devasted. I had just retired July 1st. How could I get cancer and it reach stage 4 without even knowing it? Of course, a few months earlier…
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My Journey Through Anal Cancer (It's been a tight squeeze but it's opening up now.) ;) lol
I'd like to start off by introducing myself. I'm Kim (Ann, or Anni is fine as well), I'm 45, three children and a hubby(can't forget him.) My oldest son is 21, then I have a 17 year old son and then my baby girl, she's 15. I was misdiagnosed in October of 2010, and then correctly diagnosed in January of 2011. (I have gone…
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Need advice, so confused
Ok this past week has been a whirlwind of tests, pet,ct, chest x-ray all clear. Which was great news.....now the confusing part My Diagnosis: distal rectl polyp, left anterior quadrant, transana excision: invasive squamous cell carcinoma, size 0.6cm, sugical resection margins ar univolved staging pT1, pNX, pMx This…
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So much admiration
I just wanted to take a minute to let you all know what an inspiration you are to me. I do not have cancer, but I've had other issues that led me to this board and after reading what all you go thru....I'm in awe!!! I would probably lay down and just cry all the time, but y'all seem to handle it all with such grace and…
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Light drainage question?
I am about 1yr. post treatment and a question came up at my doc appointment today. I was seeing someone I have not seen before as a consultation before a colonoscopy (I have a colostomy as a result of my AC) and so he wanted to discuss the procedure. In going over my condition he seemed bothered about the fact that I have…
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Very Young, Treatment starting soon.
I was diagnosed after what was suppose to be a hemorrhoid removal surgery in 2/12. Ended up being warts/tumors. Luckily the tumor ended up only measuring about 5mm but the doctor did not do any sort of "margins". I am scheduled for 6 weeks of radiation plus chemo (2 treatments with Mitomycin and 2 (4day) treatments of 5FU…
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What if...
I just had a thought, most of the recent posts are from people who are newly diagnosed or just 1-3or4 yrs post treatment. The majority of us are doing well, and although side effects are there we seem to deal. What if AC recurrs, is there a standard treatment like there was the first time? I'm guessing it becomes pretty…
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Heard about the possible cancer vaccine????
While I was waiting for my hubby at the VA waiting room, I came across a Time magazine from 2011, discussing a possible vaccine for cancer treatment/prevention. It is of course in "trials" and mainly for breast cancer victims, at least that's what I remember reading. Has anyone else seen this or anything like it?…
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I hate cancer!!!!
Some days, I just get so mad that this cancer happened to me... and my husband's cancer has come back... I get so ticked off! I don't like not being in control... and let's face it, cancer doesn't discriminate, so we just never know. I hate not being able to do what I used to.. and to walk like a penguin, and everything…
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Mile 24
Hi Everyone-- I hope y'all had the best possible weekend and that your week is off to a good start. I wanted to let all my friends on CSN know that I will be gone for a few days beginning April 19th. Thursday, I am leaving for Indiana, where I will be running in my very first marathon ever on Saturday, April 21st. I am…
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My Story
Hi All, So glad I found this forum, I couldn't find many forums on this type of cancer that would teach me something, you all are helping to educate me. So let me begin.......... Routine colonoscopy, they found two polyps, I was diagnosed with invasive squamous cell carincoma, margins uninvolved. The first copy I got there…
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Residual lump
Hi everyone. I completed treatment (5FU, Mitomycin and 28 radiation blasts) a month and a half ago and although my insides now feel healed I can still feel the "lump" that was there before. I wondered if anyone else had this and if it turned out to be clear or persistant at follow up?
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I turned the corner
Just wanted to say today I turned the corner and the pain is almost gone! I can actually sit on my behind as opposed to my hip!!! The burns are healing fast and I feel sooo much better. My last treatment was 10 days ago. You were right Martha, one day you feel miserable and then overnight things change. My stamina is still…
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Anal pain
My place hurts so bad that I don't want to eat because I know it will have to come out, using sitz bath but they burn I asked for pain meds but they said let's try and do this now with baths and some cream called hdrocortisone acetate that my husband bless his heart has to inject up inside of me. It really hurts I do see…
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Just diagnosed
I have just been diagnosed with anal cancer and will be starting treatment of chemo and radiation in a couple of weeks. I have no idea what to expect as don't know of anyone whose been through this. Any advice or info. would be appreciated. I lost my husband to stomach cancer 14 months ago so a cancer diagnosis is…
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End of week 5!!
I finshed week 5 today!! Chemo done and only 3 more radiation treatments left!! I know you cant see me but I am smiling ear to ear! I was very fortunate as I didnt have bad reactions from the chemo, just a sore mouth for a couple of days. The radiation is what can I say.. a pain in the **** LOL! Got some open areas on my…
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Will I need help?
I have just read "Kicking Cancer in the Butt" very informative but it has got me wondering if I can go through this treatment on my own? I will be starting the chemo and radiation in a couple weeks. I am a recent widow and moved to this place while I was caregiving my husband to be closer to the hospital so I don't know a…
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Finished treatments today
I had my last radiation treatment today! I am looking forward to slowly healing now and getting my life back. In the middle it sure did seem to be going so slow but today looking back it really went pretty fast. Having you all here has been a major support. I am grateful to each of you. I send good vibes to all and hope…
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Pain-fighting foods - worth a read from livestrong.com
http://www.livestrong.com/blog/10-pain-fighting-foods/?utm_source=newsletter&utm_medium=email&utm_campaign=04112012 Pain-Fighting Foods Your body is under attack—only you probably don’t realize it. Inflammation. It’s a normal process that is designed to help your body recover, which causes the occasional ache or pain. In…
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Hi SueRelays - Joanne - Martha - Lizdeli, Phoebesnow, Z and the Rest of the Crew...
You know, I've gotten to know quite a few of you - both here and on the colorectal board...and as such, I feel a kindred spirit with you folks:) I don't look at our cancers - I peel back the layer underneath so that I can see the person that's inside, because that's the core of what we all really are...this is where you…
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Finally a surgeon
Ok, I finally got an appointment with a surgeon. He's not a color-rectal surgeon, per se, but he specializes in hemmarhoid surgery, so SURELY he'll know what he's looking at. I go the 17th. I think I'm only going to get peace of mind, but it's worth it to know I'm ok, right?
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Another DRE!
So apparently the receptionist at my doctor booked me for an appointment yesterday that was supposed to be next month. I saw the doctor in February and had a DRE and thought I was supposed to go today but it was next month. Anyway he gave me another DRE and said things looked good. He did say that I had a "couple" of…
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Pet/Ct scans
The stage of my anal cancer was T2 without any lymph node involvement or mets. NCCN guidelines does not indicate a Pet or Ct scan for anal cancer in remission. I am not sure my insurance company will pay for a PET/CT scan in view of the NCCN guidelines, so I am not sure I should go ahead and have one. What has been your…
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Martha, questions please
Martha, I know you used silvadene and I am as well for the open areas on my tailbone and gluteal folds. My question is that I notice that I seem to develope a pale greenish slime a few hours after applying the cream. Did you have this? Thanks, Randy
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reflux
Hi, I have felt "lumpy" in my chest when I swallow or eat for years and it is getting worse. I know I have asthma reflux from the endoscopy that was done ten years ago. I am going back for another one soon and of course am really trying not to "go there" to the cancer thing. My neighbor died of esophogeal cancer and my…
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6 carnation breakfasts a day!!!
Asked my doctor about any special diet I need to follow and he ran out of the room and came back with a paper on diet supplements for me. Said I was to start now before treatment. (treatment should begin in a few more weeks I think). I am to consume 6 carnation instant breakfasts a day plus take 15g of L-glutamine twice…
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Sympathetic Pain?
Just wondering if this has happened to anyone else. I'm about three weeks status post my last surgery, and all of a sudden this morning I developed a horrific spasm in my lower back, in the area of the lumbosacral junction. Since I just happened to have an appt with my primary MD today I told him about it, and he thinks it…
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This time last year
This time last year I started chemo and radiation treatments. Wow! What a difference a year makes! I'm 10 months post treatment and so far NED is still my friend. I'm keeping my fingers crossed. I had a sore right hip for a little over a month, but it's better now. It improved not too long after DRE and scope so maybe that…
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2 years clear
Hi, everyone. I have not posted in a while. My insurance changed and I was not able to afford my 4-month scans since last June 2011. Luckily, I was able to access the cancer clinic at the VA hospital (I am a Veteran), and finally as of last week was able to get a CAT Scan. Today, I got my results... Thank God I am still…