-
Off topic - sorry - except psychological stuff
I was going along really well and truly feeling my oats back to singing like my oldself and exercising like a forty year old, when I had a very violent case of vertigo that led to an ER visit. By the time I got there, I had virtually lost the use of arms and legs and my head was lying either to the right or left of my…
-
new discussion board announcement
A new discussion board is available to report and discuss technical problems. Please give it a try. It is the last discussion board listed on the page with all the boards, please bookmark it for future use. The URL is http://csn.cancer.org/forum/200. Best, Greta aka Your CSN staff
-
More on diet....meat
While treating "pink slime" with ammonia has been in the news lately, another common practice has been less visible in the past few years: treating meat, poultry, and fish with carbon monoxide (CO) gas. CO is not a preservative, but it makes packaged meats look pink and fresh. It actually prevents the product from changing…
-
IMPORTANT QUESTION ON FOLFOX!
I' m visiting from the rectal cancer patients, however since my cancer is right on the anal sphincter my treatment is very similar to yours except that in September they have to remove my sphincter and rectum. I just had a visit with my oncologist and everything is looking good. He presented a plan to me that is different…
-
Forgot I had cancer!
After being consumed by cancer treatment and recovery over the past three years and being cancer-free now for 2.5 years, this week, for four consecutive days, I actually didn't think about cancer one single time. When I realized this it took my breath, just a little. Yes, I find myself celebrating the small stuff. Like my…
-
Raising awareness globally: The latest! This is GREAT!
Read and explore this entire site. You will be inspired! http://www.nomanisanisland.co.uk/ We've got to more on a national level here in the US to raise awareness.
-
Too long!!
Hi...for those of you who remember me! I was on Facebook the othe day and saw a picture of Joanne Smith Duke pop up and i was getting on the comments to say how nice it was to see her face! I had no idea of her passing last year. One of her friends was nice enough to email me the details . I was so sooo sorry to hear.…
-
Scan Report......
Hi Everyone, hope all had a nice holiday doing things that make you smile. I met with my doctor to go over recent CT scan and Chest x-ray and all is seemingly well! There are a couple lesions on my liver unchanged and probably cysts to watch although it is noted that the liver is somewhat enlarged, (another possible SE of…
-
Long week ahead
Well, this week I have appointments Monday and Wednesday. I am praying that the problems that they see in the scans are benign. Thanks for the prayers.
-
Back to the OR for biopsies
Last surgery for anal pre-cancer was this past January, (one of many since 2009) after healing doc put me on Aldera, worst month of my life. Looking back not sure how I funtioned, chills, body aches, headaches, burning, rash etc... Went to work everydaybut not quite sure how ? Came home useless each day and crashed until…
-
Prep for CT Scan this am (been BUSY, forgot to ask!)
Hi, everyone: I have a CT scan this am at 8:45. I know there's no eating or drinking anything 4 hours prior to the test. I'm guessing I should show up an hour prior to the test? Is there anything else I should be know? This is my first CT scan followup, I finished my chemo/radiation back in January. Since January an…
-
WHY DO YOU THINK YOU GOT CANCER?
One of the most frequent questions we ask ourselves is : Why me? And What did I may have done to increase my chances of getting cancer? In my case I'm doing a genetic test so we will see. In Eastern Europe each winter we consumed a whole pig in the form of bacon, sausage, and ham that was heavily smoked, which is the worst…
-
Blood in stools...kind of scared
I'm 5 months post treatment. I've had a colonoscopy and there was no more cancer. I've been on a vegan diet for 5 months. Things were going well until this morning. I had a "normal" stool and it kind of hurt, but there was bright red blood in it. I'm not in pain but it really scared me. I see my general onc next week.…
-
An uphill battle..with steep hills!!
So my latest update for everyone who has been reading my updates. I had my picc line put in this past Thursday. That was an experience in it's own considering they tried 2 piccs the first time with no success, but was successful with the third. Didn't help with my nerves what so ever! I started my contiuous infustion chemo…
-
Vaginal Dialators after Pelvic Radiation for anal cancer
I saw my radiation onc at the beginning of this week. He told me he was giving me a vaginal dialator because the radiation has caused scar tissue and I need to use it so nothing closes. I was surprised because he didn't mention this to me before I had treatments. So I use it 10 minutes a day and it is still painful. I do…
-
Radiation Exposure
I'm struggling whether to have ordered x-rays. I do not believe I have any factures just soft tissue/sprains suffered from a fall several weeks ago. Yet, doc wants to x-ray hip, lower back and ankle. Ugh! I have nerve damage in my spine thanks to the radiation treatment and it is effecting my stability. I asked that I be…
-
My update!
Hi everyone, So my latest update is I just got finished with my fertility treatment and officially have fertilized embryos for the future! Which is such a great feeling to have considering my odds are against me. I will be starting my first week of chemo next week as well as my radiation for the next 6 weeks. I'm so scared…
-
Vit C by IV infusion or Myers Cocktail IV Infusion as post-radiation fatigue & nutritional boost
Anyone try mega doses of VIT C by IV infusion or a Myers Cocktail by IV Infusion for post-radiation fatigue, GI cell regeneration support? Any postiive results? Entertaining the thought of spending $1000 for a series of 5 Myers Cocktails (hefty out of pockeet cost)......VIT C IV infusion has been successfully used for…
-
scan/port ?
Thank you all for the crossed fingers, prayers, and positive thoughts sent out for my tests today. I do not see my doctor till next week. Usually I am more anxious, but truthfully, I feel so good......if they find something I think I have the amunition I need. On another note, I still have my port (breast cancer…
-
Follow up of bad scan
Tomorrow, I see new team regarding possible mets to lungs. I believe in the power of prayer and I would appreciate any prayers. I am finding it more terrifying than the first and second diagnosis. I just cannot leave my child without a mother.
-
I recommend this book
I just bought a book, that I am finding quite helpful. It is titled, " The Cancer Recovery Plan", by Dr. Barry Boyd. He is the founder of the Integrative Oncology program at Yale New Haven. It covers topics of diet, stress reduction, exercise, supplements, etc. I highly recommend it. I ordered it from Amazon and it is a…
-
Confused about Relay for Life......
So on friday I walked the survivor lap at a Relay for Life. I went with a young woman that I met at school who was treated for breast cancer 8yrs ago and wanted to go but is new in the area and had no one to go with. She asked me to walk with her, so I did. As I walked and saw all the smiling proud faces of the people…
-
HI..i am new here and plz help me
I was worried that i might have anal cancer for about a month. so last week, i went to the doctor who put his finger into my anal and examin the area and then put a big rounded metal thing into my anal again and said that there is nothing round and i still have some symptons such as change in size of the stool. He just…
-
Pap Question ????
Hi everyone.......I have a question that like so many I seem to get conflicting answers on, and it may be just that everyones personal situation is different. I am 54yrs old, and 2yrs post treatment for anal cancer and 1yr post treatment for breast cancer. I feel great! My mom died of ovarian cancer and so I had genetic…
-
WHAT KEEPS YOU GOING?
Hi Everyone, My name is Laz, I am a 48 year old man with a pretty bad rectal cancer. I just started my treatment with chemo and radiation, will have surgery in September ending with a permanent colostomy. Mentally my days are like a roller coaster: sometimes I feel strong and optimistic, because I still have so much to…
-
Scan Results 6/3/2013
I was scheduled to see my med onc this afternoon to discuss the results of Monday's CT scan. Since I was picking up discs and copies of the reports from the 1/30/13 scan and also Monday's scan at the hospital prior to this appt., I looked at the dictated report and this was the impression: “No evidence of metastatic…
-
New here
Hi all, Just wanted to introduce myself. My anal cancer first appeared in August of 2007, and I've had three mets since then - one in each lung and one in the kidney. You can read my story in detail here: http://www.thebody.com/content/69290/personal-perspective--the-good-patient-fighting-an.html Done three rounds of…
-
2 years ago
Two years ago today I had my last radiation zap. So far, so good... I'll be celebrating by having a colonoscopy next week. Ann
-
HAND & FOOT SYNDROME
I'm wondering if any of you had hand and foot syndrome from Xeloda. What did you do to prevent it? How did you treat it? I expect my anal area to be very sore from possible diarrhea and the radiation. What should I do about it? Also, How big of an area of burn irritation should I expect from radiation? Thank you, Laz
-
Mets
I am just wondering if anyone here had mets from this cancer? If so, where did it go? I am in the process of following up on some scarey scan results.