where is everyone?

Best Friend
Best Friend Member Posts: 222
in Peritoneal Cancer #1

No one has written in forever. Hoping all is well.

 

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Comments

  • seatown
    seatown Member Posts: 261 Member
    #2
    Also wondering where everyone is . . . .

    Was wondering the same thing. I'm here! Not much news, but my CA 125 is slowly creeping up, now 215. I see the docs next week to learn what's next. Back to chemo?

    Wishing the best to you all.

    http://www.CaringBridge.org/visit/CaroleSeaton

  • Nflinchum
    Nflinchum Member Posts: 75
    #3
    I was also wondering

    I'm still here too. I have had a lot going on. I developed a nodule in my breast so I had to have a needle biopsy done. The results were not good. It was cancer not new cancer but the same cancer as my PPC. The dr says it is very odd for it to go there but they have seen it before. I also had a ct scan. Went to the dr yesterday to see what was next. The ct scan was pretty good but  a few of the lymph nodes had increased slightly. The dr is taking me off the study of doxil and amg 386 that I have been on since October 2013. Going to give me a 5 week break to get rid of these drugs in my body. He had been to a conference in FL and was excited that there had been good results with taxol and avastin for recurring ovarian cancer. He wants to put me on taxol and avastin in 4 weeks. I had these two drugs 2 years ago along with carboplatins. My CA125's are 1102 only came Down 17 points in a month. So it looks like I will be hairless again which is my least worry right now.

    has anyone out there experienced the PPC cancer going to the breast.

    sorry your CA'S are creeping up Carole. Keep me posted on what the dr says.

    anyone heard from Julie? She hasn't been on since january. I'm worried about her.

    take care all!

    nadine

  • Lovingmymom
    Lovingmymom Member Posts: 54
    #4
    Glad I wasn't the only one

    Glad to hear you ladies are well.  It's nice for you to take a break from this board for awhile, but please know we are here.  My mom continues on a new chemo and is starting to battle some new side effects. Numbers climb, numbers go down, numbers climb.  It's a vicious cycle.  Overall, status quo and we very much subscribe to the theory that no news is good news.  Stay strong and keep up the fight. You are all an inspiration and I remember you in my prayers every day.  Spring is coming and there is a renewed hope as the seasons change.  

    Be Well,

    Jessica

  • JulieBelle
    JulieBelle Member Posts: 61
    #5
    Hi All

    Sorry for my absence - so good to see some posts up again though.  Unfortunately I have had an awful start to the year - just home from I think my 7th hospital stay this year.  Latest problem is pleural effusions on the left lung.  Had 3 drains and another booked for this week..Would love to have another pleurodesis surgery but not strong enough to do it at the moment.   My CA125 which has been steadily rising took a big jump this week from 798 to 1470 and that really knocked me sideways!!    I have moved to downstairs bedroom as sadly can't manage the stairs just now and feeling very sad about that.   Sorry this is a bit of a downer post but feeling pretty low just now.   Waiting for that miracle!!

    Love and healing thoughts to you all.

    Julie xxx

  • Nflinchum
    Nflinchum Member Posts: 75
    #6
    Glad to see your post

    Julie,

    I'm so sorry you are not doing well. I knew something was amidst because you haven't been on here in awhile. Things are not going so well for me either as you can see by my post. Hang in there and I will keep you in my prayers. Take care and try to keep us posted on your health.

    Nadine

  • seatown
    seatown Member Posts: 261 Member
    #7
    JulieBelle said:

    Hi All

    Sorry for my absence - so good to see some posts up again though.  Unfortunately I have had an awful start to the year - just home from I think my 7th hospital stay this year.  Latest problem is pleural effusions on the left lung.  Had 3 drains and another booked for this week..Would love to have another pleurodesis surgery but not strong enough to do it at the moment.   My CA125 which has been steadily rising took a big jump this week from 798 to 1470 and that really knocked me sideways!!    I have moved to downstairs bedroom as sadly can't manage the stairs just now and feeling very sad about that.   Sorry this is a bit of a downer post but feeling pretty low just now.   Waiting for that miracle!!

    Love and healing thoughts to you all.

    Julie xxx

    Thinking of you . . . .

    Julie, thanks for writing. But so sorry to hear you are having such a tough time. I think of you so often and wish you all the best. Hang in there!

    Carole

  • seatown
    seatown Member Posts: 261 Member
    #8
    Nflinchum said:

    Glad to see your post

    Julie,

    I'm so sorry you are not doing well. I knew something was amidst because you haven't been on here in awhile. Things are not going so well for me either as you can see by my post. Hang in there and I will keep you in my prayers. Take care and try to keep us posted on your health.

    Nadine

    Keep up the fight--bald is beautiful!

    Nadine, hope the changes in treatment are successful for you. Thank you so much for all your kind comments and encouraging words. I appreciate it!

    Best, Carole

  • ConnieSW
    ConnieSW Member Posts: 1,688 Member
    #9
    JulieBelle said:

    Hi All

    Sorry for my absence - so good to see some posts up again though.  Unfortunately I have had an awful start to the year - just home from I think my 7th hospital stay this year.  Latest problem is pleural effusions on the left lung.  Had 3 drains and another booked for this week..Would love to have another pleurodesis surgery but not strong enough to do it at the moment.   My CA125 which has been steadily rising took a big jump this week from 798 to 1470 and that really knocked me sideways!!    I have moved to downstairs bedroom as sadly can't manage the stairs just now and feeling very sad about that.   Sorry this is a bit of a downer post but feeling pretty low just now.   Waiting for that miracle!!

    Love and healing thoughts to you all.

    Julie xxx

    Julie

    I've been worrying about you too.  I am pulling for your miracle.  I think about you every day.

  • stella65
    stella65 Member Posts: 152
    #10
    Me too

    I had also been wondering as I still drop in to see how you lovely ladies are doing, I was hoping no news was good news and am sad to see this has not been the case for some, sending you all love and strength

    SueX

  • Best Friend
    Best Friend Member Posts: 222
    #11
    best friends mom

    I HAD MY LAST CHEMO IN NOVEMBER AND MY CA WAS 5 THEN IT WENT TO 6.7 AM GOING AGAIN ON MONDAY. I WANTED TO GIVE UP SO MANY TIMES. YOU JUST NEVER KNOW. I PRAY FOR ALL OF YOU EVERY NIGHT. TAKE CARE 

  • Lovingmymom
    Lovingmymom Member Posts: 54
    #12
    Hope you are well Julie!

    Julie,

    I was thinking of you today and found your last post.  Hope you are feeling better and are finding renewed strength everyday. Prayers for you and yoru family.  Stay strong!!!

    Jessica

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