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?'s
Back with some ?'s My grandpa gets out of breath when he talks, gets very tired walking short distances, and is having some numbness and tingling in his hands. I was wondering if anyone else had these things happen after surgery and about how long it lasted. I know how big of a surgery this is and things are expected but…
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One week after the MIE: good and bad
It's been one week now since Tom was admitted to get his surgery done. We are still in the hospital, and would probably be here for few more days. First, some good news. No, GREAT news! The pathology report indicated no evidence of disease in any of the removed tissue, including lymph nodes. Yay! All indicators (blood…
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Good results!
Good News!! Gpa did the barium swallow and passed! The doc said as of now Mon. or tues he will b able to come home. I asked the doc about the pathology report and was kind of discouraged by his answer. He said the results could be in anytime between mon-wed and that he tells all his patients, mostly those that have had pre…
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Tell me about your follow up care...
Hi everyone, My husband has been getting CT scans every three months since his surgere. It's been almost a year since his surgery and his doctor is suggesting a visit every 6 months. So I'm curious as to what type of follow-up care everyone is getting? CT scans? PET scans? Bloodwork? Thanks!
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new stage 4 with mets to liver
Hey everyone I am pretty new to the site, but have been reading yaws post since the early April. I am a 37 year old male with stage 4 EC and mets to the liver. To begin my story, in the late spring I started having pains in my chest around the sternum area. I figured it must be indigestian, so I blew it off for about a…
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Please Pray for Brendon
I come to this site today to ask for many prayers tonight and tomorrow. Brendon went in the hospital on Saturday morning with bloating, a feeling of fullness, and an unexpected weight gain of 12 lbs in a couple of days (with no feeding tube and very little nutrients)... Blood work shows no signs of infection. CT scan shows…
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Best B-Day Gift!!
I am getting the best birthday gift of my 31 years, Grandpa is coming home!! Danielle
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Need your input, please share!
Has anyone been prescribed medication to aid in digestion following their esophagectomy? If you were, did you experience any side affects you can contribute to the medication?
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Hospice
My father has been fighting Stage IV EC cancer since last December. He decided yesterday it was time to stop treatments. There was one remaining tumor in his liver and the treatments have had no impact -- in fact a new hot spot had appeared. The past 6 weeks have been very difficult for him -- his lack of appetite and…
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i am new and have been diagonsed for 2 months now. How can i help everyone around me to heal and und
I am a 38 year old woman. My husband and my family keep thinking there is hope. I know there is not. How do i help them to let me go. I dont mean to be selffish, but it is best for everyone i think. I am so scared for a second round of chemo beacause i know they say your hair will grow back. But im just plain tired of…
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beautiful song written by a friend
The following link is a song written and preformed by our dear friend Jane Kennedy. She wrote it following my husband Lee's diagnosis with stage iv EC. It is very touching and definitely worth a listen. http://www.youtube.com/watch?v=bM1Q6JM7LqI Enjoy, have a lovely weekend! Chantal
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New member with a question
This is my first time posting on this site. I spent much of the day reading all the posts, and I feel very moved by everyone’s encouraging words and support of each other. In January my wonderful husband Lee, who is 48, was diagnosed with stage 4 esophageal cancer, with mets to the Liver. After several months of what we…
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It is all about John
Hello everyone I wanted to check in and let you know life does go on after stage IVb EC. John passed away one week ago today. He sure filled up this home. I have had many tears and lots of laughs too. My friends and family have surrounded me with lots of love and support. John's memorial service will be on Sunday at 1:00…
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Ivor Lewis Esophagogastrectomy post surgery complications
Hi everyone. My father was diagnosed with T3 esophagus cancer in January of 2011. In the past months my father was going through chemotherapy and radiation. Recently on May 3rd my father had the Ivor Lewis Esophagogastrectomy. After the surgery he was doing pretty well besides a little breathing problem. About 10 days…
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My diagnosis & some questions
Hi, William wrote a few days ago, but I was a bit late replying (I won’t blame the time difference between US and Australia). I got pernicious anaemia (Vitamin B deficiency) for the second time last December and my GP sent me to a gastrologist as someone my age (35) eating all type of foods shouldn’t be getting that again.…
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My Dad's journey as a Stage IV patient
Hi All, Well the ride for a Stage IV patient and their families is certainly a roller coaster. And there is hope new treatments are getting results and there is more research and awareness every day. We can never stop the battle to find a cure, to raise awareness and to fight for our loved ones. For us it was a few weeks…
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HOW MUCH RADIATION?
And yet, another question for my oh-so-knowledgeable friends on this site. I start my Chemo/Radiation journey on Monday, May 23rd. I saw in the paper today they've updated the Star Wars ride over at Disney. I'll bet it won't even compare to this ride that I'm about to embark on. My question........I was told when they did…
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William&Loretta Happy 8th Birthday!!
William & Loretta, I hope you are out celebrating your 8th Birthday! 8 years ago today you had the surgery that gave you another chance at life like so many of us are praying for!! We spoke about you often today in Pitt.! I hope you enjoyed your day! Talk to you soon! Danielle
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Surgery is done. Busy night for Tom
Hi everyone, Thank you Susie, William, Linda and others for your thoughts and wishes. Happy anniversary to William! I think this day would be equally memorable for me and Tom. The surgery went well but not without some commotion. The building had fire alarm going off TWICE during the day. But apparently the OR did not hear…
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Dad passed away on Tuesday
Hi Everyone, My father, Paul, aka Slydog11, passed away two days ago. He was diagnosed last July with Stage IVb EC. Today would have been his 57th birthday. He died at home surrounded by his family. He was loved by so many people and he will be missed everyday. Dad was the kindest person I know and he was way too young to…
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How do you research a surgeon??
Silly question: What is the best way to research a surgeon? What exactly am I researching? I was given the name of where Dad would be referred to. Missi
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Going to MD Anderson
I'm taking my wife to MD Anderson today for their first round of examinations and diagnosis using the CT scans and PET scans already taken. Diagnosis starts tomorrow and goes for a number of days. We are experiencing the full gamet of emotions but have great trust in this renouned organization to prescribe a treatment that…
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Question about not digesting certain food & meds
Just a brief description about my StepDad...Stave IV with mets to lungs, lymphnodes and brain. Received chemo (not sure of names) one day for about 7 hours then what I called "chemo to go" for 5 days ( a fanny pac with chemo). He was supposed to get this every 21 days, but after an MRI the DR was not happy with results and…
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Dana...How's Dad doing?
We've been out West..Vegas and Zion... So glad he came through the surgery with flying colors. Prayers are with your family. jan
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surgery update
This morning they had to put a tube down my gpas throat to get the fluid out. They started him on antibiotics in case of pneumonia. When they came in tonight they said that there is a slight infection but it can get worse and that gpa needs to do the breathing treatments 10 times and hour, walk, and make sure he is…
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Dad hospitalized and then moved to rehab facility
Hi everyone, I'm fairly new here. My Dad has EC and is 5 weeks post chemo/radiation and trying like hell to bounce back. He isn't getting adequate nutrition and yet again ended up dehydrated and ambulance was called yesterday by Visiting Nurse. Hospital worked him up and found that he was dehydrated, no acute medical…
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My dad
I haven't been on this forum for awhile, but he recently did surgery and the surgeon said all the cancer was removed (he did the chemo and radiation prior) he seemed to be recovering ok, although he always had issues breathing after, until last week his lungs were inflamed and his breathing got so bad that they put him on…
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Hope there is no delay in surgery...
Well, Brendon is in the hospital as of yesterday due to a blood clot just below the knee. With surgery less than two weeks away, we are praying that there will be no delay. He still doesn't eat much and still gets sick often. It's a struggle and we were so looking forward to getting this beast out of…
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John will be waiting for Harmon
My darling John went to be in Heaven at 11:30 this morning. I miss him already.I'll post more at another time. Shirley
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What are the chances of this?
I have joined a group of phenomenol ladies called "The Mourning Dawns" who have lost thier husbands to Ec. One lady lost her beloved in January 2000. She finally remarried and her second husband just passed away with EC in March. This poor woman has gone thru this twice. The reason I am writing is that WE HAVE to get the…