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Stomach ache - Back pain - Shoulder pain
Hi everyone, I think last time i stopped by it was January. Things have been fine with us since then. Tom has joint a gym in March to strengthen his back. He has lost 4 pounds again and now back to 153 (his pre-diagnosis normal is 170-175). He thinks it is due to the physical exercise, and I choose to believe him. Other…
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last week of rads
I am starting my last week of radiation monday. last infusion of oxyplatin monday also. 2 more weeks 24-7 of 5fu. still not very many side effects no rash from rad yet. I have been blessed so far, I feel very fortunate. Just real tired and the days seem to get away from me before I can get anything done. The time has…
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Good News!!
I wanted to share that I met with my oncologist today and God has been kind enough to allow me another clear CT scan. This is my 2 1/2 year scan and I thank God for the gift of every day. Best Regards, Paul Adams McCormick, South Carolina DX 10/22/2009 T2N1M0 Stage IIB 12/03/2009 Ivor Lewis 2/8 through 6/14/2010 Adjuvant…
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Good Results
Hi friends, Just an update on Jeff and his 7 month scan results. As you may or may not remember he had his last scan on Valentines Day, that CT scan showed a small single nodule in his lung. The decision was made to scan again in two months, but with a PET/CT this time. He has also in the past two months been diagnosed…
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Chemosmoker (Eric) has passed
Posted by Michelle at Facebook: “Thank you Jen for posting this morning. My dearest, loving husband slipped away from us this morning, surrounded by friends and myself. He was tired and needed to be finished with this journey. I am very saddened and relieved all at once. Grief stricken and heavy I tell you all that he is…
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April is Esophageal Cancer Awareness Month
All, I wanted to update everyone on the efforts to have April declared Esophageal Cancer Awareness month. Any one else here who has had their state declared please add on. So far these are the States that have declared April Esophageal Cancer Awareness Month: Arkansas....by Lori Walls Connecticut.... by Maggie Solsbury…
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Beyond Blessed!
We have been fighting this beast for 6 months, treatment all in all has gone much better than we expected. Rocky stays positive and hope filled! We just had our repeat PET scan and endoscopy and they were both CLEAN! He was diagnosed 6 months ago with stage IVb with Mets to Liver and Lymph nodes. Today we were told he is…
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need help finding the discussion
I can not seem to find the discussion where everyone "piched" in their ideas of food for when eating has become difficult. I remember some were different shakes etc. Could someone post a link for me? I thought I had saved it, but I guess not. thanks, chrissie
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Popi is going home!
Just wanted to post a quick update about our Popi. He had MIE on April 03, 2012 with Dr. Alvelo-Rivera at Karmanos. The surgery went very well and he is progressing wonderfully. We will be headed home today. We also learned that the pathology report came back and all lymph nodes were negative. We are feeling really…
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Chemo Discoloring Dentures
Has anyone had this happen? My mom's dentures are stained as a result of the chemo. Is there a good way to remedy this other than replace her dentures? Thanks, Stephanie
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17 year old caregiver...
Hi there. I'm Rebecca, and i'm 17 years old from Canada. In feburary, my Dad who is 53 years old was diagnosed with stage 3 esophogeal cancer. It has spread to lymph nodes, is in the aorta(spelling?) and is rather close to the kidneys. He has a PEG tube for feeding, and a PICC line for chemotherapy. He has had…
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Bad taste
Dad has started spittin alot of what he calls slime. It looks actually like a really thick clear mucus. He says it taste really bad. He spits it into a tissue cause he cant swallow at all. Any ideas how to help. He wears false teeth. Got me washin them all the time. But the taste is still there.
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Scan on Tuesday, Scanxiety today. :)
I've got my first PET/CT since starting FOLFOX this Tuesday. I've just completed the 4th round of FOLFOX and I feel better on this chemo and the pain has dropped to almost nothing so I am hopeful. As always, prayers and good thoughts appreciated. It's been a tough couple of weeks. My port became infected and had to be…
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Coughing a lot
Did anyone experience a lot of coughing after surgery? Don has been coughing so much - he says it feels like phlegm in his throat that he cannot cough up (sometimes it is a productive cough) - it seems to be very bothersome and he has difficulty sleeping or napping because the coughing wakes him up. We appreciate any input…
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Niki & Jeff - Positive thoughts go with you
Just wanted to let you know that we are thinking positive thoughts and sending prayers to keep Jeff safe and the news good in his coming scan. {hugs} to you both! TErry
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Affects of morphine drugs,
I am taking Endone, which is a morphine based pain reliever, and have also been prescribed Morphine in a liquid form. My pain is pretty bad without the pain relief, I am really having excruciating pain swallowing at the moment and the constant pain at the site of the tumor is also a constant severe pain. I haven't taken…
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Hi friends, both new and old
Hi to all..... I have been away from these boards for a few months, although I occasionally take a moment to catch up on how everyone is. I have shed endless tears and celebrated tremendous victories with so many of you. I am so sad to see so many new names and stories. I am finding it increasingly hard to visit this…
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Signatures??
How do you put those signatures under your name? I can't imagine you type all that info with each post. I'd like to include some of mom's stats in my signature.
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PECTIN
Wondering if anyone has ever used pectin to help with dumping syndrome symptoms? If so, how much did you take and how often? Thanks, Cora
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update on Dad
Dad started Hospice Tuesday. Last time I posted Dad had developed deminshia. Doctor gave him a patch and his memory came back enough to sign all his on papers and make his own decisions on his care. He is still foggy though and I'm not quite sure he understands everything. I dont know what to expect next. Its real hard to…
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4 Years NED
Just had my yearly scan and Endoscopy at MD Anderson and everything looks great. I had the IL in 08 and so far, I have not had one complication. I can eat whatever I want and almost to the point of preop eating. All of you are in my prayers and I wish everyone the very best. While I won't turn my back on the beast, I have…
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6 months CT scan
Hi Everyone: I got great news today, but I’m also very sensitive to those on this board who have had not-so-great news. In my first post last fall I said I almost felt guilty for being “only” Stage 1, and Eric “yelled” at me and said I should feel blessed, not guilty, which I have tried to do ever since. It was one of many…
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NEED TO KNOW IF ANYONE HAS THIS PROBLEM
It has been 5 months since my Esophageal surgery. I was a stage 2. I went thru 30 days of radiation and chemo and then surgery. They didn't see anything else there after treatments but I elected surgery anyway to make positive. I go for my first 6 month check up next month. These last 2 weeks I keep getting what feels like…
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Please keep kimdymecki in you thoughts and prayers.
Kim's husband Joe passed away early yesterday morning. The world has lost another warrior. Mary Widow of Chad who Battled IVa EC from October 2009 to March 1, 2012
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2 year EGD results
Yay! Completed the above scan this week. Surgeon says everything looks great. No biopsies needed. See you for another one next year. We are humble that we have been so blessed. BMGky DX Dec 2009 Chemo/radiation Ivor Lewis April 2010 Stage 11 N0M0 Two years post-op continues NED
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Mom home less than a week after Trans-Hiatal Esophagectomy
Hi All, I was shocked when I got the call that Mom was being discharged. Her surgery lasted less than 5 hours. Today she is very happy to be home, but she is extremely short of breath. I'm wondering if shortness of breath is a common side effect. She had daily chest scans and there is no sign of pneumonia, but she is…
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I need uplifting or something
The last couple of weeks have been tough with the pneumonia and being in the hospital. I never do well in the hospital. Anyway, for the past three days I have been in a great deal of pain. Taking the pain meds hasn't done much and the doc has been working with some other options. I think the pain may be better today.The…
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My photo...
The photo above my name is my mom dancing with my son at his wedding 3 years ago. It's a very happy photo I think.
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Mom's Post Op Pet Scan Shows 2 Lymph Nodes Lit Up
I'm absolutely devastated, my mom is still recovering from her esophagectomy and we had her 3 month PET scan results and 2 lymph nodes lit up right near her neck. My mom was shocked and I started freaking out inside. The same scared grieving feelings I had when we first found out her diagnosis 7 months ago came right back.…
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Good Treatment Today
Just a quick note, my taxotere treatmen went well today. Have one more round of taxotere then we will change to something else. Tumor marker is trending upward slightly so in my view, taxotere has run its course. Not sure where to go next. Anyway, other than the post treatment fatigue and a slight headache which happens…