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Hi friends, both new and old
Hi to all..... I have been away from these boards for a few months, although I occasionally take a moment to catch up on how everyone is. I have shed endless tears and celebrated tremendous victories with so many of you. I am so sad to see so many new names and stories. I am finding it increasingly hard to visit this…
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Signatures??
How do you put those signatures under your name? I can't imagine you type all that info with each post. I'd like to include some of mom's stats in my signature.
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PECTIN
Wondering if anyone has ever used pectin to help with dumping syndrome symptoms? If so, how much did you take and how often? Thanks, Cora
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update on Dad
Dad started Hospice Tuesday. Last time I posted Dad had developed deminshia. Doctor gave him a patch and his memory came back enough to sign all his on papers and make his own decisions on his care. He is still foggy though and I'm not quite sure he understands everything. I dont know what to expect next. Its real hard to…
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4 Years NED
Just had my yearly scan and Endoscopy at MD Anderson and everything looks great. I had the IL in 08 and so far, I have not had one complication. I can eat whatever I want and almost to the point of preop eating. All of you are in my prayers and I wish everyone the very best. While I won't turn my back on the beast, I have…
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6 months CT scan
Hi Everyone: I got great news today, but I’m also very sensitive to those on this board who have had not-so-great news. In my first post last fall I said I almost felt guilty for being “only” Stage 1, and Eric “yelled” at me and said I should feel blessed, not guilty, which I have tried to do ever since. It was one of many…
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NEED TO KNOW IF ANYONE HAS THIS PROBLEM
It has been 5 months since my Esophageal surgery. I was a stage 2. I went thru 30 days of radiation and chemo and then surgery. They didn't see anything else there after treatments but I elected surgery anyway to make positive. I go for my first 6 month check up next month. These last 2 weeks I keep getting what feels like…
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Please keep kimdymecki in you thoughts and prayers.
Kim's husband Joe passed away early yesterday morning. The world has lost another warrior. Mary Widow of Chad who Battled IVa EC from October 2009 to March 1, 2012
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2 year EGD results
Yay! Completed the above scan this week. Surgeon says everything looks great. No biopsies needed. See you for another one next year. We are humble that we have been so blessed. BMGky DX Dec 2009 Chemo/radiation Ivor Lewis April 2010 Stage 11 N0M0 Two years post-op continues NED
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Mom home less than a week after Trans-Hiatal Esophagectomy
Hi All, I was shocked when I got the call that Mom was being discharged. Her surgery lasted less than 5 hours. Today she is very happy to be home, but she is extremely short of breath. I'm wondering if shortness of breath is a common side effect. She had daily chest scans and there is no sign of pneumonia, but she is…
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I need uplifting or something
The last couple of weeks have been tough with the pneumonia and being in the hospital. I never do well in the hospital. Anyway, for the past three days I have been in a great deal of pain. Taking the pain meds hasn't done much and the doc has been working with some other options. I think the pain may be better today.The…
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My photo...
The photo above my name is my mom dancing with my son at his wedding 3 years ago. It's a very happy photo I think.
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Mom's Post Op Pet Scan Shows 2 Lymph Nodes Lit Up
I'm absolutely devastated, my mom is still recovering from her esophagectomy and we had her 3 month PET scan results and 2 lymph nodes lit up right near her neck. My mom was shocked and I started freaking out inside. The same scared grieving feelings I had when we first found out her diagnosis 7 months ago came right back.…
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Good Treatment Today
Just a quick note, my taxotere treatmen went well today. Have one more round of taxotere then we will change to something else. Tumor marker is trending upward slightly so in my view, taxotere has run its course. Not sure where to go next. Anyway, other than the post treatment fatigue and a slight headache which happens…
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My mom is gone
It is with a broken heart that I tell you my mom is gone. She slipped into a coma 9 days ago and left me at 2:30 this afternoon. My brother stopped by to visit and I think that's all mom needed - her two children together with her. I was holding her and talking to her. She never regained consciousness. She took two breaths…
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Port or Line for getting Chemo and Blood Clots
Hello, My mother had surgery a while back to get a port or line inserted in the upper left hand corner of her chest (near her arm) so that she could get chemotherapy. I’m not sure whether a port or a line was inserted but the item was placed inside her body under her skin so it’s not visible from the outside. My mother did…
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2nd week of treatment
I am ending 2nd wk of rads ,first wk of 5fu pump. So far so good, not many side effects. Oxyplatin and cold ,not agreeable!! slight periferial neurophopy(sp). no nausia yet, just really tired. Mondays are hard, get oxyplatin, change iv pump 5fu, get rads, nothing we cant handle. I hope everyone feels as good as I do.…
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Minor Set-Back still in hospital
So we did not go home today:( Oxygen levels were at 84 so we went back on Oxygen. CT scan done, no clots, thank God. Next EKG,but no history of heart issues so. Any advice?? Also always thanks to our CSN family...
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Minor Set-Back still in hospital
So we did not go home today:( Oxygen levels were at 84 so we went back on Oxygen. CT scan done, no clots, thank God. Next EKG,but no history of heart issues so. Any advice?? Also always thanks to our CSN family...
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AFTER my son, Ben, our 2 dogs & I were diagnosed with CANCER, we found toxic levels of ARSENIC in ou
Nov 13, 2009, my son was diagnosed with STAGE 4A Gastroesophageal Junction Adenocarcinoma. In Feb 2010, we found toxic levels of ARSENIC, MANGANESE & IRON in our water heater water. We also found nitrates.. Then later found LEAD as well... Coming from Lead Arsenate that was used to erradicate boll weevils & cow ticks and…
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after effects of esophageal surgery
Hi, I was just wondering if anyone could please share their post op recovery stories, my dad has just got home from having surgery on his esophagus, he spent a month in hospital and is wanting to know some information on how people recovered after the operation, would love for anyone to share their stories, thanks Karen
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Why no PET scan?
My Dad was just diagnosed with gastroesophageal cancer. His tumor is about 2.5 cm and in the lower third esophagus. What we do know is his liver is involved and lungs but no PET scan was ordered. If he had cancer in any other areas would the CT scan pick it up? He started chemo Tuesday but why no PET scan? Is that not…
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Has anyone had this happen to them during recovery?
Hi my husband is 42 years old and had EC. On March, 16th he had his entire esophagus removed and was in the hospital for 7 days. Since Saturday the 24th he can not stop throwing up. It is not that he has nausea it just comes out without warning. We ended up in the ER, and were told that everything inside looks good and the…
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6 Months since dad's surgery!
6 months ago today, dad was in surgery. The ugly beast was removed and although there was setbacks, he is doing incredible. I know there is so many people that are suffering and at different stages but I am hoping sharing good news and hope will help. He is back to being a "husband for hire" in the community where he lives…
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Fishing for opinions
As some of you may know, I along with my wife hosted a "Paranormal" themed podcast regularly up until my diagnosis in February of 2011. We then went on hiatus while I was in treatment and ultimately, did a press release in early March that we were planning our final show. I feel so good that I am second guessing that…
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Acute kidney failure :(
I don't know what to do. I've watched my mom lay in bed with pain for the past week while we get setup for chemo of recurrence. Today we went to the ER because she hasn't urinated in nearly 12 hrs. Turns out she has acute kidney failure. What does this mean for her treatment? What do we do? I know these are all questions…
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Check-up News
I am 2 1/2 years post diagnosis and had an abdominal ultrasound and a chest xray Monday and got the results today. Great news--everything looks good--no sign of cancer. My oncologist had told me if everything was okay with these tests, there wouldn't be another CT scan until October, which means I am now getting CT scans…
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I'm special it is "adenocarcinoma of the gastric cardia".
Hi all and thanks for all the support you have offered me in the early stages of this diagnosis. The results from my biopsy came back with "adenocarcinoma of the gastric cardia", which is a cancer that has formed in the glands that are located at the junction of the esophagus and the stomach. It has invaded the esophagus.…
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I outlived my port
I started having problems with my mediport last week with redness which was finally diagnosed as a skin infection in the area. Well, the surgeon that installed it examined it and determined it couldn't be used any longer due to it being so close to the surface of the skin probably from some weight lose post-op. I had a PIC…
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Two Year Anniversary......Best Gift.......Clean Scan
Just returned from Mayo Clinic with a clean scan. NED. Yea! I am so grateful. Today is my 2 year anniversary of my diagnosis. We all remember that shocking and somber day. I continue to pray for all of you here and especially the newly diagnosed. It is a tough battle but can be won. God Bless..... Gerry