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JDO -- Get a 2nd Opinion!
If your oncologist immediately gives up and says "There is no cure for you, only palliative treatment", immediately get a second opinion from a top-level cancer center. My Doctor wouldn't even stage me. I had no idea there was such a thing until I found this site. Just cancer in the esophagus and lymph nodes does NOT…
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Post chemo then chemo/radiation results - good news
Bill just finished a week of tests at M D Anderson to assess his progress 5 weeks after 2 months of chemo followed by 6 weeks of chemoradiation (no surgery due to other health problems, as many of you know). We were terrified to find out the results, but as they trickled through during the week, they were more than we…
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Excessive Spitting-any tips?
Hi all, So the last few weeks I have been spitting constantly during the day. My Doctor prescribed some pills called Maxeran this week but so far they have not helped. If anybody has any tips or similiar symptoms please let me know. I think the issue is either my body producing too much saliva or not being able to swallow…
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starving the cancer??
Update on my dad: After he received the G tube, he was still not able to do any feedings, as he was feeling to full and crummy all the time. Last Wed. after radiation, his blood pressure was low, and he was still sick and now bloated. They did hospitalize him. As of today, he is still in there. I do not know much, because…
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Brain Mets and Whole Brain Radiation: Guidance/ Advice Needed
My apologies as a first time poster, I hope this is the right place for this. I am looking for advice/ input/ guidance about whole brain radiation for mets to the brain. My father (stage 4 EC, dx 6/11) has done very well on chemo, except for the fact that it seems to be chasing the cancer up to his brain. He had 2 large…
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post treatment scan
We are heading to the u of mich sat . I am scheduled for my post treatment ct @ 10:30 am. Scanziety runs amook.
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1 Minute Cure
About a month and a half ago, I saw a post on here that I can't find anymore regarding a book called 1 minute cure. Something about food grade hydrogen peroxide therapy. Does anyone remember that post and was it just a scam? Any opinions?
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Has anyone experienced Small Bowel Obstruction related to Esophageal cancer?
Hi there, Im dan and Im around the 2 year mark post treatment for stage 4 esophageal cancer,never had an operation,just chemo and radiation but had a j tube inserted in my stomach. Have been having problems and ended up in hospital couple of times in the last month due to having a small bowel obstruction. The doctors tell…
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Recently diagnosed cancer, 64 years old, about nutrition ... for life after diagnosis
Hi all, I am from Romania and after much searching I found this site and that I read a few days. With your permission I will tell my story. (unfortunately real, no fiction) My husband, Adrian, was diagnosed with EC in November 2011. The investigation began when the sensations have increased the lump in the throat and he…
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Please fill out details on About Me Page
Hi, Can everyone fill out the About me page with full details on symptoms before diagnosis, staging, treatment plans, dates corresponding to everything, and any other details regarding your EC? This would be really helpful for people reading. I click on many people's about me page to get more information but there's no…
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Offering Some Free Levity to Those in Need
Hi Everyone, I think about this board and its members often and I wish to share a humor book I wrote and hopefully bring a chuckle or two to those in pain. You can read my personal story here: http://csn.cancer.org/user/157325 I wrote a book called LETTERS TO EBAY which was published in 2007 by Warner Books (now Grand…
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G tube vs J tube
Well, my dad did get the feeding tube. He has a G tube instead of the J tube. The Dr. told my parents the reason for this is because the J-tube is smaller and can not get enough nutrition in him. Since having the tube, he has been really sick to his stomache and throws up often, if he doesn't he feels like he is going to.…
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In the Dallas area
Would like to find some to talk or email about anyone who has esophageal cancer. my wife is taking treatment for stage three and is having a hard time, she wants to give up
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Sam (sangora) update
Wanted to let my EC buddies know that I am still around. Am getting very tired and having hard time being up much to check on our board. Last friday I had to have my feeding tube replaced. That was an ordeal but I got through it ok. Hospice continues to be here and are very supportive and doing a good job.I continue to be…
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Tom's lung fluid test came back negative..no cancer cells found
So now he'll go June 12th for a ct scan and if it shows no growth since he's been off chemo for 4 months..ct in 3 months. So taking advantage of the time and no chemo...we're going to Vegas June 5-10th. He loves to go, me not so much. But it's warm now, and the pool will be calling me...No painting this time..and I buy my…
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Trying to Stay Positive...
It can be so hard to stay positive throughout this battle. I am in awe of those on these boards who are suffering with this beast and find time to help the rest of us as we do what we can for our loved ones. I feel so helpless watching my dad go through all this. At this point, I had to admit my dad to the hospital on…
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Starting new chemo protocol after herceptin
Round 2 of chemo- by mario33ec on Sat May 12, 2012 01:45 PM Quote | Reply Hi all, Have been on Herceptin for almost six months but Ct shows that it ain't working no more so now I am told the next dose is 5fu and irrocentin (sp?). Has anyone started with Herceptin and then moved onto this? Was there any success? I know that…
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Finally-happy news from us!!!!!!!!!
Hello everyone, I wanted to share our happy news. We are moving in a month, not far from where we have been for 17 years, but moving to a smaller home,a more afforadable home. My house is on the market and my younger sister has stepped up to the plate and helped us buy this home. Although I have had many tears packing my…
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Roux-Y
Dad had a full day of appointments at the Mayo today. The good news - his tumor has strunk significantly, there is no cancer anywhere else. I feel a little overwhelmed because this whole time I thought he was going to have the IL, but come to find out, there's only 2cm of the tumor in the esophagus, so he is having the…
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Preparing for MIE Surgery on 5/15/12-Very anxious about what to expect
I was diagnosed on 1/11/2012 while working in Honolulu with stage 2, t3 adenocarcinoma at the distal junction. I immediately flew home to Texas and had chemoradiation therapy (7 weeks out) and just had another EUS. My GI stated that he found no evidence of the tumor but did see inflammation and redness that he believed to…
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Positive radial (Circumferential) margin- Post surgery lab reports-
Hi Friends, My dad had a surgery on 3 April this and we have got his lab reports. It says that the radial margin of the removed esophagus still has cancer. When we asked the doctor, he said that since the disease was advanced. The radial margin that is the area on the outer layer of the removed esophagus has come positive.…
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How Quickly Things Change
This disease changes so quickly that its hard to keep up. This past Monday I threw up some dried blood and since I had an oncologist appt the next day, Tuesday, just waited. I talked to her about the epsiode and she didn't say much about it. I had my treatment that afternoon and all went well. Wed, afternoon, I threw up…
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If it sounds too good to be true it usually is
I also have read many articles on so-called vitamins, fruits, drugs, etc that will help with EC. I used the Indian spice curcumin every day in Vince's food as MD ANDERSON had done a study on's It's worth for EC. As I have said before EC is a vicious beast and using things randomly that may or may not be effective is not a…
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2 years and no sign of recurrence :)
Hello everyone, First of all i would like to say how deeply saddened i am to read some of the stories of peoples experiences with esophageal cancer,it really frustrates me that there isnt just some miracle cure for everyone...I guess everyone who experiences any type of cancer has there own story to tell,some positive,some…
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Hello
Hi everyone I hope you don't mind me butting in as I live in the UK. I do have a holiday home in Davenport Orlando. I have followed your threads since I found this site a few months ago! I must admit that we have the Macmillan site in the UK which is very similar to this site in what it offers. However I do find the…
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An update on my husband Tom
I read the board every night but I don't post very often. It's been awhile since I upddated Tom's condition etc. For new people, he was diagnosed with squamos ec in July 2009. His initial treatment was taxol, cisplation and erbitux in a clinical trial at the U of Chicago. Concurrently he had radiation every day for 6 weeks…
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Sore throat
I'm back with another question. I am 1year out from my surgery and still panic with every little pain. I have been doing ok lately until my throat became sore. I went to my primary dr and he said it was nothing, maybe some sinus drainage. I was wondering if anyone else experienced a sore throat. Do you think the cancer…
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Another Sad Ending
Hi everyone I dont post much but I always tried to keep up with the boards. I lost my husband Rust on April 1, 2012 to this beast. He fought a good fight, but in the end the beast won. My husband was diagnosised stage IV on August 2,2011. I Lost my best friend and the world lost a great man. I wish good health to all who…
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last week of chemo(5fme)
All done with radiation, monday I get rid of BOB (that is what I call my pump).Time sure fLYs when you're having fun!! I am ready to see doctor and talk about my surgery. Ct may 19 and Doc Orringer(sp) may31.Everything has been great if thats even possible. I am happy to hear about the sucess stories and very sad about our…
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Fluid build up?
Can someone answer this for me? Jr. just went for his chemo and said he gained 11 lbs. but it is fluid. He isn't home yet, will find out more when he gets back. Mom said she has noticed he looks like he has gained weight in his stomach (Probably abdomen). His arms and face and legs are all so very skinny. Is this normal or…