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Tom's lung fluid test came back negative..no cancer cells found
So now he'll go June 12th for a ct scan and if it shows no growth since he's been off chemo for 4 months..ct in 3 months. So taking advantage of the time and no chemo...we're going to Vegas June 5-10th. He loves to go, me not so much. But it's warm now, and the pool will be calling me...No painting this time..and I buy my…
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Trying to Stay Positive...
It can be so hard to stay positive throughout this battle. I am in awe of those on these boards who are suffering with this beast and find time to help the rest of us as we do what we can for our loved ones. I feel so helpless watching my dad go through all this. At this point, I had to admit my dad to the hospital on…
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Starting new chemo protocol after herceptin
Round 2 of chemo- by mario33ec on Sat May 12, 2012 01:45 PM Quote | Reply Hi all, Have been on Herceptin for almost six months but Ct shows that it ain't working no more so now I am told the next dose is 5fu and irrocentin (sp?). Has anyone started with Herceptin and then moved onto this? Was there any success? I know that…
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Finally-happy news from us!!!!!!!!!
Hello everyone, I wanted to share our happy news. We are moving in a month, not far from where we have been for 17 years, but moving to a smaller home,a more afforadable home. My house is on the market and my younger sister has stepped up to the plate and helped us buy this home. Although I have had many tears packing my…
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Roux-Y
Dad had a full day of appointments at the Mayo today. The good news - his tumor has strunk significantly, there is no cancer anywhere else. I feel a little overwhelmed because this whole time I thought he was going to have the IL, but come to find out, there's only 2cm of the tumor in the esophagus, so he is having the…
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Preparing for MIE Surgery on 5/15/12-Very anxious about what to expect
I was diagnosed on 1/11/2012 while working in Honolulu with stage 2, t3 adenocarcinoma at the distal junction. I immediately flew home to Texas and had chemoradiation therapy (7 weeks out) and just had another EUS. My GI stated that he found no evidence of the tumor but did see inflammation and redness that he believed to…
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Positive radial (Circumferential) margin- Post surgery lab reports-
Hi Friends, My dad had a surgery on 3 April this and we have got his lab reports. It says that the radial margin of the removed esophagus still has cancer. When we asked the doctor, he said that since the disease was advanced. The radial margin that is the area on the outer layer of the removed esophagus has come positive.…
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How Quickly Things Change
This disease changes so quickly that its hard to keep up. This past Monday I threw up some dried blood and since I had an oncologist appt the next day, Tuesday, just waited. I talked to her about the epsiode and she didn't say much about it. I had my treatment that afternoon and all went well. Wed, afternoon, I threw up…
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If it sounds too good to be true it usually is
I also have read many articles on so-called vitamins, fruits, drugs, etc that will help with EC. I used the Indian spice curcumin every day in Vince's food as MD ANDERSON had done a study on's It's worth for EC. As I have said before EC is a vicious beast and using things randomly that may or may not be effective is not a…
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2 years and no sign of recurrence :)
Hello everyone, First of all i would like to say how deeply saddened i am to read some of the stories of peoples experiences with esophageal cancer,it really frustrates me that there isnt just some miracle cure for everyone...I guess everyone who experiences any type of cancer has there own story to tell,some positive,some…
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Hello
Hi everyone I hope you don't mind me butting in as I live in the UK. I do have a holiday home in Davenport Orlando. I have followed your threads since I found this site a few months ago! I must admit that we have the Macmillan site in the UK which is very similar to this site in what it offers. However I do find the…
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An update on my husband Tom
I read the board every night but I don't post very often. It's been awhile since I upddated Tom's condition etc. For new people, he was diagnosed with squamos ec in July 2009. His initial treatment was taxol, cisplation and erbitux in a clinical trial at the U of Chicago. Concurrently he had radiation every day for 6 weeks…
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Sore throat
I'm back with another question. I am 1year out from my surgery and still panic with every little pain. I have been doing ok lately until my throat became sore. I went to my primary dr and he said it was nothing, maybe some sinus drainage. I was wondering if anyone else experienced a sore throat. Do you think the cancer…
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Another Sad Ending
Hi everyone I dont post much but I always tried to keep up with the boards. I lost my husband Rust on April 1, 2012 to this beast. He fought a good fight, but in the end the beast won. My husband was diagnosised stage IV on August 2,2011. I Lost my best friend and the world lost a great man. I wish good health to all who…
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last week of chemo(5fme)
All done with radiation, monday I get rid of BOB (that is what I call my pump).Time sure fLYs when you're having fun!! I am ready to see doctor and talk about my surgery. Ct may 19 and Doc Orringer(sp) may31.Everything has been great if thats even possible. I am happy to hear about the sucess stories and very sad about our…
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Fluid build up?
Can someone answer this for me? Jr. just went for his chemo and said he gained 11 lbs. but it is fluid. He isn't home yet, will find out more when he gets back. Mom said she has noticed he looks like he has gained weight in his stomach (Probably abdomen). His arms and face and legs are all so very skinny. Is this normal or…
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Sodium bicarbonate
Has anyone had any dealings with sodium bicarbonate being used to fight tumours? This is not for me, but a friends mum has a rare form of cancer that has spread and she has researched sodium bicarbonate that has originated in Rome. She spoke with another woman here in Australia who had bladder cancer and it worked for her.…
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Blood Pressure and Chemo question?
Does anyone have advice for us on a blood pressure issue? Rocky started back on a lighter version of chemo this week, Herceptin and 5FU pump. Today is the last day for the pump. Thursday he came home and his right leg (from the calf down) was really swollen and his blood pressure was high. 190/100 in that range all night.…
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A friend in need is a friend in....
Hello everyone! My name is Jacque and my father John was diagnosed with stage IV esophageal cancer in December 2011. The biopsy showed it was a non-small cell carcinoma. The PET scan revealed a spot on his rib and adrenal as well as the large esophageal mass. After 9 weeks of chemo (5-FU, cisplatin, and epirubicin) he had…
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My Beloved Don is Gone
It has been four months since I lost my sweetheart of 61 years to this terrible EC. I am doing pretty good but of course some days are harder than others. I have no doubt that I will one day join him in heaven. It is very lonely, but I am not alone. I have my God with me every day. I hope you are all doing well. I thank…
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What do you say?
I was wondering what you say when you see people you know that don't know you are fighting cancer. I've been fighting stage III EC since last Jan. I'm doing very well now but not sure what to say when I see friends. The first reaction is usually WOW! You look great, you've lost a lot of weight and I love the new hair do.…
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so scared!!
I am going with my dad to a Dr. and Radialogist appt today. Last week they did another check down his throat, because he had been so sick. His tumor has grown so much. They did not do his chemo that day. Tioday we go to see if they will evwen consider doing radiation to shrink the tumor. He has had such a good year when…
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I m 46 yrs old and 4 children and 25 yrs of teach and coach am dx on april 5th EC AC protrude to upp
I am new at this Discussion Boards and i just want ot let you know i was born deaf at birth and I hope you or anyone can understand me.. I was Dx on April 5th esophagus cancer junction to my upper portion of my stomach... I have been jumping around different dr to dr for other opinions and that s crazy.... they have not…
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Squmous cell cancer with occult primary tumor
I have the Squmous cell cancer and I begin 6 weeks of Radiation and Chemo 5 days a week for the 6 weeks. What in the world am I going to do. I am in a state of shock, and it feels like a dream.
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feeding tube-- why don't the Dr's agree??----- UPDATE
My dad is not able to eat. He started Radiation last week because his tumor has grown so big and causes pain. I told my mom to ask about a feeding tube, because all he is drinking is gatoraid. He was drinking ensure and able to eat peaches and applesauce but no longer to even have that. the Dr convinced them he does not…
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Clindamycin
I have osteomyelitis in my lower left jaw, and so now am on IV clindamycin 3 times a day for perhaps 6 weeks. Does anyone else in the group have any experience with it? A bit of Internet research is pretty horrifying. --Jerry
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pleurodesis - palliative (update from radiation damage post)
Hi all Yesterday they drained 1.5 litres, still double that in the space, of foul smelling fluid from the pleural of the lungs. Waiting for lab findings but the thought is this is malignant pleural effusion. Recommendation is pleurodesis, does anyone have any experience of this? It is thought survival will be a few months.…
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Cancer of the cervical esophagus
Does anyone have any information about this subject? My husband has been diagnosed with cancer of the cervical esophagus after undergoing treatment for laryngeal cancer and being free of any signs of cancer for the last year. We have consults with a radiologist and medical oncologist on Friday at Emory Winship Cancer…
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Recovering from surgery
I'm currently waiting to be scheduled for surgery to remove my esophagus and voice box within the next couple of days. I would really like to hear from others that have had this same kind of surgery. How long was the recovery process? What can I expect in the future for speaking options?
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Esophageal Cancer: Preparation for Treatments
Recovery from laparoscopic esophagectomy surgery, and the transition from hospital to home care, was made easier and more comfortable because of a few significant preparations I made prior to the surgery — BEDROOM arrangements including equipment, bed, and layout; BATHROOM arrangements and equipment; CAREGIVER arrangements…