Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Lymphoma (Hodgkin and Non-Hodgkin)

Looking for experience with R2 Treatment, Rituximab and Revlimid
I’m looking for people with experience with 2nd line treatment and R2. I remain with widespread nodal swelling near my stomach, kidneys, IVC and small bowel. The Follicular NHL has been deemed refractive after 8 cycles of G-CHop which ended in April 23. New treatment is advised as cancer cells were found in chylothorax…
AITCL - CHOEP & Side Effects
For those that have went through treatments with (CHOEP - Doxorubicin, Vincristine, Cyclophosphamide, Etoposide, Prednisone), what cycle of treatment did you start losing taste? Husband is having his second cycle next week and I’m wondering if he will still be able to enjoy Thanksgiving food on the 23rd.
Weed
Hello All, I have a question! Has anyone here smoked weed or ate edibles during the chemo treatment? At home of course. Just curious if it actually helps/works. Thank you!
Scared and Anxious!
Hello all, I am a 24 year old female who was diagnosed with Classical Hodgkins Lymphoma in March. I started my 6 cycles of chemotherapy at the end of July and I have had a horrible time coping with my new reality. The first couple of treatments were really rough and though it’s getting better and each treatment gets…
Frightened about possible diagnosis
Hi all, I'm a 31 year old female. A year ago I was diagnosised with ovarian cysts, and my gyno sent me off for a PET scan to measure the cysts, because they were quite large on the ultrasound. On the PET, an enlarged lymph node was seen in my retroperitineum, and my spleen was enlarged to 15 cm. My gyno sent me to an gyno…
EATL LYMPHOMA
I recently started treatment for EATL lymphoma which as I understand it mainly affects people with Celiac disease (which I have). It is in the T-cell lymphoma family. Do any members have this variety of cancer? I would like to hear from people going through treatment, especially survivors. All comments are welcomed. Thanks.
The Un-known Here we go Again
My husband had head and neck cancer 12 years ago. He had some heavy doses of chemo and 32 rounds of radiation. He's a survivor for 12 years. Last November he broke out all over his body except his head. Not to long after, his feet, ankles, and hands were swelled. We went to the family doc, and he was referred to a…
Splenic Cystic Lesion - further evaluation with MRI
Hello. I am in my mid 50's and a year ago I was diagnosed with testicular cancer. At that time a CT scan of the abdomen and pelvis was done and an incidental finding was a 5cm simple cyst in my spleen. Every few months I get a CT scan of the abdomen and pelvis to make sure that the testicular cancer has not come back.…
I NEED HELP WITH DIAGNOSIS - LYMPHOMA
I will try to be as short as possible. I am 18 years old - Male Around 10 months ago i noticed an increased lymph node on the back of my neck (occipital lymph node)- ignored it as many say oh it’s just your body fighting ilness. Month after that, I noticed the second lymp node appear right beneath it - also occipital lymph…
Adriamycin?
I have recently been diagnosed with atrial fibrillation (afib). I don't have any of the usual causes: high blood pressure, high cholesterol levels, diabetes or high blood sugar, sleep apnea, obesity, and smoking. There is a genetic dispensation and my mother had afib but not until she was 90 and she had been treated for…
PORT & pleural effusions
Can a PORT still be placed if there is large right and moderate left pleural effusions? Husband is getting the Port put in tomorrow morning.
Resource for latest NLPHL studies
I stumbled across a Twitter feed called GLOW (Global nLPHL One Working Group), which is a community of hem/onc docs who treat and conduct research around Nodular Lymphocyte Predominant Hodgkin's Lymphoma (or whatever you want to call the disease now). Here is the link: https://twitter.com/glow_nlphl. It seems to be a good…
Sevondary Cancers
Just wondering if anyone has any experience or knowledge of secondary cancers which may have been caused by their treatment for Lumphoma.
Am I a horrible caregiver?
I’ve been giving care to my mom with lymphoma this past year. For the most part, it’s been an honor to provide support. It has been a lot of appointments, calling providers, getting medications, managing side effects, talking through issues, all of it. Now I am burnt out. I have the small kids including a newborn. I have a…
New Dx -- Reaching Out For Support
Hi, I'm Tom, and I'm very scared. So, I've just got the initial diagnosis of CLL yesterday, and I'm reeling. I'm alternating between depression ("what's the point? I'm just going to get sicker and sicker, until I die...") and anxiety ("oh god, every new ache and pain is the cancer taking over!"). I am not religious, but I…
Newly diagnosed
Hello. I was just diagnosed with small lymphocytic lymphoma. I see a medial oncologist September 7th. I’m not sure what to expect. I’m not sure how to even feel about things until this appointment or even afterwards. Any suggestions or help. Especially with my anxiety! Thank you
Newly Diagnosed with MZL Lymphoma BUT aggressive (55 years old)
Hello, Starting chemo on Monday. pola r chp will be my treatment plan for six cycles. Looking for advice, encouragement, and wonderful connections. BTW, I'm scared. And I'm scared of relapsing since it's slow-growing lymphoma but aggressive. It seems I will be living with lymphoma.
Nutrition and the Cancer Patient
I have come to the conclusion (opinion only - I am not a doctor) that one of the biggest misconceptions about cancer is that it is treated as some kind of foreign invader when in fact it is not foreign at all. Cancer is part of you just the same as healthy tissue. This struggle is a civil war - brother against brother.…
Any survivors of follicular lymphoma out there
Hi Any survivors of follicular lymphoma and for how long? I was diagnosed last april and have since been in remission. Do the doctors know if they can retreat the disease if it relapses? Real life experiences mean more than what statics say. Thanks Richard
Neuropathy
My last chemo was in July 2018 but after 5 years I still experience neuropathy. It is mostly at night and interferes with my ability to sleep. It always starts in my toes and front part of both feet. It is a weird tingling/numb feeling. Occasionally it goes all the way to my knees. Hot baths help but the gabapentin my doc…
Any survivors of Non-Hodgkin's lymphoma lymphoma out there??
Are any survivors of Non-Hodgkin's lymphoma out there? Anyone from India or Bangladesh?
Para Aortic Lymph Node Cancer
Hi, My mother had endometroid and serous carcinoma about 6 years back. During hysterectomy pelvis lymph node dissection was done and cancer was found in one of the node. Followed with Chemo (3 week cycle) and Radiation (weekly for 26 weeks). No issues for till 2-3 months back when she started getting slight back pain. When…
Possible secondary cancer post advanced stage Hodgkins Lymphoma w/ splenectomy. Depressed, worried
Is there a one else who may share a similar concern about my topic? It would be nice to chat w/ someone with same concerns:) I’m
T-Lymphoid markers positive
Hi Everyone, I am new to this forum. My brother (Age-32) who is in India had a Flow Cytometry test and the T-Lymphoid markers came positive.To be specific CD3,CD5,CD 7 -positive ,CD4,CD8- double positive ,CD 10 is positive The doctor ruled out Leukemia and is suspecting T cell Lymphoma. The CT scan report of the chest also…
Hair loss and chemo question among other things.
Around the first of the year I was diagnosed with non Hodgkin’s lymphoma. In a few days I will start my 5th treatment. Each treatment is 21 days and I’m scheduled for one more If all goes well. Anyways, around my second treatment I noticed if I even touched my beard or hair that I would see hair coming out. It got so bad…
Fourth cancer
Pathology report states squamous cell carcinoma. Not a blood cancer, but posted here as fellow blood cancer patients are my second family. Apparently confined to the skin. So an excision and topical chemo (my 21st!) for 2 weeks then watch and wait. At least I'm tapering off. 🙄
Pet scan not clean
I just received my pet scan on line. It should my lymphoma in my lymph nodes gone. Nbut it shows activity in my sternum w hi hi I haven’t heard before. I had breast cancer 10 years ago and had a bilateral mastectomy and lots of radiation. Did it come back. I’m terrified. gio
Issues again
6 months ago I started running low grade fevers nightly and a hacking cough. Lost 50 lbs over a 3 month period. I go for a pet scan today. I worked in the printing industry since 1989 and been exposed to that. Back in 2012 my adranline grand was removed for being enlarged. After 4 CT test said postive for cancer and pet…
Side effects from RCHOP a year after treatment
Hi I'm new to posting but here goes. Last April through July I went through 6 rounds of RCHOP for non Hodgkin's lymphoma. The treatment was effective and as of last scan no active disease present. I'm grateful for that but for several months now I have been dealing with occasional waves of nausea, joint pain that doesn't…
Update Hodgkin’s Lymphoma
Hi all, I cannot remember how to navigate through this site, as I have not been on here in at least a year. Anywho, for those I had conversations with during my initial diagnosis of Hodgkin’s, and throughout chemotherapy I just want to give an update. I had my most recent PET scan in April after finishing chemo in December…

Lymphoma (Hodgkin and Non-Hodgkin)

Discussion List

Discussion Boards