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Information on the Uterine Board Content Lost in CSN Outage - Updated 5/2/2019

cmb's picture
cmb
Posts: 349
Joined: Jan 2018

Updated 5/2/2019

Members' Personal Information: Please be aware that CSN lost all the content that had been submitted by site members after October 29, 2018 to January 30, 2019. You may also find that some of your personal information, such as email address, has been changed or is missing. CSN recommends that you check your personal information to make sure that all this information is still correct.

To check your information: Click on CSN Home at the upper left of the screen, then go to My CSN Account – Preferences & Settings.

Lost Posts: Even if no one ever posts a new message to an older discussion topic, we all recognize that this collective history is very valuable to both new and existing members of this board. Therefore, I've restored as many of the old posts that were still available online by searching for old copies of the website pages that had been saved by Google's web cache function.

The content from the Uterine board posts that were lost have either been recapped in new posts or added to discussion topics that had been created before the data outage. The majority of these posts were added or updated with this restored content on February 8, 2019. (In a few cases, restored content had been posted earlier in that week and a few more able to be retrieved as part of this update).

Not every web page was cached on 1/29/2019, so topics with newer posts may or may not be complete. For example, the posts for the topic 3d recurrence decision tree end on the cache date of 1/10/2019, not the date of the last post. And in most cases, only the first page of topics that spanned multiple pages were cached by Google.

Topic List

In addition, I generated a list of topics discussed during this period, also using Google's web cache function. This list was taken from a cached page, as of Jan 29, 2019 18:30:28 GMT, so any posts made after that time were not captured.

This listing is intended to be a quick reminder of the topics that were discussed during this period, when they were discussed, and who initiated the subject.

Initially these cached pages were available on Google, but as CSN reused the web page addresses for new posts added after the data outage, the old posts were periodically overwritten with posts from other boards as Google "crawled" CSN to collect the site data.

Therefore, I've linked the topics below to the posts that I added as "recaps" of the lost content. In a few instances, the posts for particular topics were no longer available. I've left these topics in the list, but they do not have links to the recapped content.

 

Topic

Created

Replies

Last Reply

Hand tremor

Jan 28, 2019 - 7:09 pm 
By Tamlen

2

Jan 29, 2019 - 12:00 pm 
By EZLiving66

Potential new treatment in the pipeline

Jan 29, 2019 - 4:24 am 
By zsazsa1

4

Jan 29, 2019 - 11:53 am 
By EZLiving66

Will my eyebrows grow back?

Jan 26, 2019 - 7:24 pm 
By zsazsa1

15

Jan 29, 2019 - 9:43 am 
By Soup52

Avastin been denied by insurance

Dec 03, 2018 - 12:19 pm 
By LadyMox

44

Jan 29, 2019 - 3:30 am 
By zsazsa1

Cancel brachytherapy after starting?

Jan 28, 2019 - 8:12 pm 
By Badyear2018

3

Jan 29, 2019 - 12:28 am 
By Forherself

Anyone else on Herceptin also? Has anyone reached the point where they're on it alone?

Jan 28, 2019 - 7:23 pm 
By zsazsa1

0

n/a

How many lymph nodes?

Nov 09, 2018 - 11:35 am 
By Ribbons

48

Jan 28, 2019 - 2:44 pm 
By christine8822

Endometrial cancer

Jan 19, 2019 - 1:26 pm 
By lab44

21

Jan 28, 2019 - 11:56 am 
By Forherself

Five year post treatment from UPSC

Jan 26, 2019 - 3:11 pm 
By joannewtta

14

Jan 28, 2019 - 11:45 am 
By Donna Faye

How long to recover from vaginal brachytherapy?

Jan 08, 2019 - 5:23 pm 
By zsazsa1

8

Jan 27, 2019 - 11:57 pm 
By Cass83

How long before the port is removed?

Jan 09, 2019 - 6:04 pm 
By Canary

16

Jan 27, 2019 - 11:46 pm 
By Cass83

USPC/Clear Cell ?

Jan 20, 2019 - 2:20 pm 
By Ribbons

15

Jan 27, 2019 - 5:53 pm 
By Ribbons

My bladder problems

Nov 20, 2018 - 12:56 pm 
By SF73

8

Jan 26, 2019 - 11:57 pm 
By SF73

Oregon?

Jan 21, 2019 - 3:08 pm 
By Ribbons

11

Jan 26, 2019 - 3:30 pm 
By ConnieSW

Bracky and blood thinners

Jan 18, 2019 - 7:17 am 
By Donna Faye

12

Jan 26, 2019 - 2:11 pm 
By TeddyandBears_Mom

Waiting with questions

Jan 23, 2019 - 4:53 pm 
By bfrank65

18

Jan 26, 2019 - 12:55 pm 
By Soup52

Lumps popping out all over

Dec 19, 2018 - 7:51 pm 
By KatnHat

29

Jan 26, 2019 - 4:31 am 
By Universe

3d recurrence decision tree

Jan 05, 2019 - 1:41 pm 
By oldbeauty

38

Jan 25, 2019 - 9:06 pm 
By derMaus

Aromatase inhibitor side effects

Jan 08, 2019 - 1:04 pm 
By Tamlen

12

Jan 23, 2019 - 5:54 pm 
By ConnieSW

Recurrence MMMT after chemo treatment. What´s next?

Jan 21, 2019 - 4:45 am 
By Cheers

5

Jan 21, 2019 - 2:28 pm 
By janaes

New Publication: NCCN Guidelines for Patients – Uterine Cancer

Sep 20, 2018 - 12:00 pm 
By cmb

19

Jan 21, 2019 - 12:38 pm 
By Northwoodsgirl

USPC article from Oncolog and MD Anderson

Feb 08, 2011 - 3:25 pm 
By nancygt

10

Jan 20, 2019 - 1:28 pm 
By Ribbons

Chemo round 4 delayed because of low platelet count. Has anyone had this?

Dec 28, 2018 - 12:59 pm 
By zsazsa1

19

Jan 18, 2019 - 2:40 pm 
By zsazsa1

Tamoxifen and megace v. Tamoxifen only

Jan 11, 2019 - 12:10 pm 
By paris11

19

Jan 18, 2019 - 1:00 pm 
By Lulu7582

Good news after a rough 2 years

Jan 15, 2019 - 6:33 pm 
By Donna Faye

23

Jan 18, 2019 - 8:39 am 
By barnyardgal

Tumor has doubled in size

Nov 27, 2018 - 12:45 pm 
By LadyMox

71

Jan 18, 2019 - 1:20 am 
By Universe

Neuropathy

Dec 14, 2018 - 4:50 pm 
By Ribbons

26

Jan 16, 2019 - 5:49 pm 
By derMaus

Cheese Update

Jun 05, 2018 - 12:19 pm 
By CheeseQueen57

118

Jan 16, 2019 - 12:04 pm 
By SF73

Research needs data

Jan 14, 2019 - 4:00 pm 
By NoTimeForCancer

14

Jan 16, 2019 - 8:51 am 
By Soup52

Mental attitude? and some humor about the weather.

Jan 13, 2019 - 12:00 pm 
By Ribbons

10

Jan 16, 2019 - 12:32 am 
By zsazsa1

Are there any other MMMT survivors out there?

Nov 08, 2009 - 1:59 am 
By 1975goatgirl

343

Jan 15, 2019 - 12:45 am 
By cmb

Newbies, please read this

Feb 03, 2018 - 11:48 am 
By EZLiving66

33

Jan 14, 2019 - 5:45 pm 
By Ribbons

How many did less chemo than scheduled?

Jan 09, 2019 - 2:50 pm 
By Ribbons

10

Jan 12, 2019 - 2:44 pm 
By hopeful56

Everolimus

Dec 27, 2018 - 12:11 pm 
By Lulu7582

14

Jan 10, 2019 - 7:19 pm 
By derMaus

Bone scans

Dec 28, 2018 - 9:45 pm 
By Wannabeatit

25

Jan 09, 2019 - 6:20 pm 
By ConnieSW

Is it working?

Dec 09, 2018 - 2:12 pm 
By Ribbons

22

Jan 09, 2019 - 1:07 pm 
By Lulu7582

Large retrospective analysis out of Stanford supports use of standard chemo/brachytherapy for USPC and clear cell. Full text?

Jan 05, 2019 - 12:06 am 
By zsazsa1

3

Jan 09, 2019 - 9:26 am 
By zsazsa1

Anxiety...

Dec 31, 2018 - 7:07 am 
By wolfera

9

Jan 08, 2019 - 4:50 pm 
By wolfera

tan discharge 5 months post hysterectomy

Dec 27, 2018 - 6:03 pm 
By Denise66

7

Jan 07, 2019 - 4:13 pm 
By Denise66

MD Anderson

Jan 05, 2019 - 1:23 pm 
By Lulu7582

4

Jan 07, 2019 - 12:19 pm 
By Lulu7582

Doxil-avastian

Nov 27, 2018 - 2:22 pm 
By LadyMox

8

Jan 06, 2019 - 3:41 pm 
By evolo58

Just wanted to share, CA-125

Jan 05, 2019 - 6:49 pm 
By Ribbons

2

Jan 06, 2019 - 3:12 pm 
By Ribbons

Happy New Year 2019

Jan 01, 2019 - 5:04 am 
By Universe

10

Jan 05, 2019 - 8:39 pm 
By derMaus

For All Those With Financial Hardships & Who Have Cancer

Dec 28, 2018 - 10:22 am 
By linmk

7

Jan 05, 2019 - 6:15 pm 
By Armywife

Terrified They Seem Reluctant To Do Surgery

Oct 19, 2018 - 6:12 am 
By LadyMox

27

Jan 05, 2019 - 12:51 pm 
By Lulu7582

8 years post chemo

Dec 24, 2018 - 11:57 pm 
By snyderpm

13

Jan 04, 2019 - 9:43 pm 
By snyderpm

Remembering Lou Ann M

Jan 01, 2019 - 9:09 am 
By CheeseQueen57

15

Jan 03, 2019 - 3:32 pm 
By Abbycat2

Discharge post Brachy/Internal Radiation

Dec 28, 2018 - 12:30 am 
By BNT

2

Dec 31, 2018 - 7:44 am 
By BNT

For those on Herceptin, concerning issue with efficacy of certain lots

Dec 28, 2018 - 10:51 pm 
By zsazsa1

0

n/a

MMMT complications (met @ bone)

Sep 06, 2018 - 4:44 am 
By wynterpeak

57

Dec 28, 2018 - 2:24 pm 
By zsazsa1

Delete this, Decided to this too grim

Oct 30, 2018 - 10:13 am 
By LadyMox

28

Nov 19, 2018 - 8:16 pm 
By NoTimeForCancer

Am I doing the right thing?

Nov 10, 2018 - 7:34 pm 
By Ribbons

12

Nov 19, 2018 - 2:47 pm 
By The Storm

Doxil (newer type) and Avastin

Nov 15, 2018 - 2:37 pm 
By evolo58

10

Nov 18, 2018 - 10:31 pm 
By evolo58

No miracle today.

Nov 06, 2018 - 5:36 pm 
By evolo58

39

Nov 18, 2018 - 4:50 pm 
By JOANCAT

ultrasound for detection of metastases - has anyone had this for following masses?

Nov 10, 2018 - 3:37 pm 
By zsazsa1

8

Nov 18, 2018 - 4:44 pm 
By JOANCAT

Just need to vent

Nov 11, 2018 - 6:54 pm 
By Donswife48

17

Nov 18, 2018 - 4:34 pm 
By JOANCAT

Up at night to urinate

Oct 14, 2018 - 8:35 am 
By Denise66

19

Nov 18, 2018 - 9:12 am 
By CheeseQueen57

Will I be well enough 6 days after chemo to go to Thanksgiving?

Nov 15, 2018 - 3:28 pm 
By zsazsa1

17

Nov 17, 2018 - 11:38 am 
By zsazsa1

IP Chemo

Nov 15, 2018 - 10:12 am 
By LadyMox

2

Nov 15, 2018 - 3:16 pm 
By zsazsa1

Those taking Metformin

Nov 02, 2018 - 4:20 pm 
By oldbeauty

23

Nov 14, 2018 - 1:51 pm 
By Lulu7582

Wish me luck! Update 11:32 pm. Thank you all!

Nov 12, 2018 - 1:12 pm 
By BluebirdOne

27

Nov 13, 2018 - 10:25 pm 
By MugsBugs

Cervical Cancer Statistics on TV

Nov 09, 2018 - 2:03 am 
By pinky104

7

Nov 11, 2018 - 8:35 am 
By NoTimeForCancer

CA-125, Does it really mean anything?

Oct 31, 2018 - 8:31 am 
By LadyMox

21

Nov 10, 2018 - 5:10 pm 
By BluebirdOne

Da Vinci Hysterectomy

Oct 27, 2018 - 8:26 pm 
By wolfera

20

Nov 09, 2018 - 11:28 am 
By Ribbons

High dose brachythetapy

Nov 07, 2018 - 10:30 pm 
By Denise66

3

Nov 08, 2018 - 7:32 pm 
By NoTimeForCancer

Augmentative treaments?

Nov 04, 2018 - 9:03 pm 
By Meggie67

2

Nov 08, 2018 - 8:55 am 
By Meggie67

Got the CT scan done today

Nov 05, 2018 - 12:37 pm 
By evolo58

18

Nov 06, 2018 - 1:59 pm 
By ConnieSW

Letrozole

Aug 13, 2018 - 12:01 pm 
By barnyardgal

18

Nov 06, 2018 - 1:49 pm 
By ConnieSW

Update on my mom changed diagnosis

Nov 05, 2018 - 12:55 pm 
By Minimee33

3

Nov 06, 2018 - 1:46 pm 
By ConnieSW

Is it normal to have slight nausea even ten days after chemo?

Nov 05, 2018 - 11:49 am 
By zsazsa1

8

Nov 06, 2018 - 9:30 am 
By Donna Faye

recurrence after 1 year - new thread

Mar 13, 2018 - 6:12 pm 
By Donna Faye

36

Nov 05, 2018 - 2:51 pm 
By Meggie67

Metformin vs Megace

Nov 05, 2018 - 8:44 am 
By LadyMox

1

Nov 05, 2018 - 9:23 am 
By Lulu7582

Blood clot in neck from portacath - slept on right side

Nov 04, 2018 - 6:55 am 
By zsazsa1

5

Nov 04, 2018 - 5:38 pm 
By Armywife

Newly diagnosed stage 4 uterine serous upsc

Aug 19, 2018 - 11:29 pm 
By Acookie

29

Nov 04, 2018 - 12:53 pm 
By BluebirdOne

Pelvis Slightly Sore

Nov 03, 2018 - 8:09 am 
By LadyMox

3

Nov 03, 2018 - 3:10 pm 
By SF73

How sick might I be the day after Carbo/Taxol?

Oct 26, 2018 - 6:11 pm 
By zsazsa1

21

Nov 02, 2018 - 11:47 pm 
By Armywife

Didn't quite clear that last hurdle.

Nov 01, 2018 - 2:44 pm 
By evolo58

15

Nov 02, 2018 - 10:09 pm 
By ConnieSW

High-Dose Radiotherapy / Stereotactic ablative radiation ... research

Nov 01, 2018 - 2:38 pm 
By LisaPizza

5

Nov 01, 2018 - 4:10 pm 
By LisaPizza

Uterine cancer metastasized to lung - looking for others to talk to with similar condition

Feb 08, 2011 - 9:09 pm 
By missbabsonmars

149

Nov 01, 2018 - 12:36 am 
By Armywife

Circulating tumor cells

Oct 25, 2018 - 10:46 pm 
By Denise66

7

Nov 01, 2018 - 12:08 am 
By Butt

Are there any other MMMT survivors out there?

Nov 08, 2009 - 1:59 am 
By 1975goatgirl

339

Oct 31, 2018 - 9:17 pm 
By DonnaA

Terrified They Seem Reluctant To Do Surgery

Oct 19, 2018 - 6:12 am 
By LadyMox

26

Oct 30, 2018 - 5:05 pm 
By zsazsa1

More tests ... Breast issues this time

Oct 18, 2018 - 2:46 pm 
By evolo58

18

Oct 29, 2018 - 11:40 pm 
By ConnieSW

MAbound
Posts: 847
Joined: Jun 2016

CMB you are a real treasure!

Harmony09's picture
Harmony09
Posts: 75
Joined: Aug 2017

cmb, Your time and energy are appreciated! I hope you know that:) From those of us old and new and somewhere in between who will want  to learn, relate, commiserate, or whatever...THANK YOU!

Forherself's picture
Forherself
Posts: 168
Joined: Jan 2019

Thank you so much for doing this.  It was such an empty feeling to see all those conversations deleted.  It really brought home how important this group is.  And when you reposted them, it was such a hearwarming feeling to see the conversations again.  

Lulu7582's picture
Lulu7582
Posts: 112
Joined: Jun 2018

Yes thank you for reposting all those conversations... so much knowledge and experience has been retained. Thank you again. xo

Armywife's picture
Armywife
Posts: 273
Joined: Feb 2018

Every day when I log onto this site, the first post I see is this one - the result of your hard work and concern for all of us here.  You preserved our history, and I am so grateful for you.  At a time when every minute is precious to all of us, you really sacrificed to make this available to us.  Thank you.

Forherself's picture
Forherself
Posts: 168
Joined: Jan 2019

I thought I would take a look at these posts and they seem to be just random posts from the boards. Is it me or are they now garbled?

 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2562
Joined: Mar 2013

sadly, it looks like it links to a different cancer - colon - and nothing of Uterine.  It is not you, Forherself, I see it too.

cmb's picture
cmb
Posts: 349
Joined: Jan 2018

Thanks for flagging this problem Forherself and NoTime. Sadly, CSN has compounded the original data loss problem by reusing the old web addresses that had been assigned to the old uterine board posts to new posts created by other boards.

I'll have to look at each topic in the list above and change the original web address to the one that points to the matching "recap" that I created in early February.

Frankly it never occurred to me that CSN would reuse a block of web addresses. Good data management practice would have been to reset the address algorithm to start with a brand new series of addresses for the posts created after the data loss.

I'll post again when I've completed the cleanup.

 

Forherself's picture
Forherself
Posts: 168
Joined: Jan 2019

What a gift your talent is.  It was such a time for many members.  Hard to lose those posts.   I was just going to read some posts to remember Lady Mox.  It has been a hard couple of months.  

ConnieSW's picture
ConnieSW
Posts: 1426
Joined: Jun 2012

again thank you for all your work. 

cmb's picture
cmb
Posts: 349
Joined: Jan 2018

I've updated the topic list of the lost content. Clicking on the topic's title will now take you to the content that I was able to recover and recap for that topic, either back in February or in May for a few newly recovered topics.

Thanks again for alerting me to the problem. I'm glad that others have found the recaps of the lost posts useful.

Keep in mind that since the recaps include the user name in the body of the text, you can search for the post(s) by a specific member by entering the user name in the standard text search box.

Forherself's picture
Forherself
Posts: 168
Joined: Jan 2019

you are.  As in very sweet person.   It is a very valuable service you performed.   Those posts were just when I joined and meant alot to me, and I'm sure I'm not the only one.  I see lots of women who come to the board and read, and don't post.  And some posts

would wipe memories of someone completely off the board.    Thank you

BluebirdOne's picture
BluebirdOne
Posts: 194
Joined: Jul 2018

These posts are like gold and you have saved them for us. 

Denise 

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