Uterine cancer metastasized to lung - looking for others to talk to with similar condition

My uterine cancer metastasized to my lungs. I went in for bronchitis; otherwise I would still be walking around with it spreading by the day, as I am in otherwise excellent health. I start chemo. on Friday. Just wanted to enter the forum and be part of the community. I have a fantastic support team with family and friends but would like to connect with other survivors going through this or who have been through this.

Thanks,
Babs in sacramento, Ca
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Comments

  • lociee
    lociee Member Posts: 102
    lungs
    Hi - my uterine cancer also spread to my lungs. Chemo was incredible - it zapped the lung cancer - still had tumor in uterus - shrunk with radiation. Still going strong. Good luck with the chemo! I think it will work.
    Mia
  • DaughterNo1
    DaughterNo1 Member Posts: 14
    lociee said:

    lungs
    Hi - my uterine cancer also spread to my lungs. Chemo was incredible - it zapped the lung cancer - still had tumor in uterus - shrunk with radiation. Still going strong. Good luck with the chemo! I think it will work.
    Mia

    UPSC lung metatstasis
    Mia, if you don't mind me asking, what type of chemo did you receive? My year old mom has UPSC, no sign of it anywhere except her PET scan 2 weeks ago showed small spots in her left and right lungs and something on her spine which we hope is just bone degeneration.

    Last May a 9mm spot on her left lung was removed and she was given Doxil once a month for 6 months. We are meeting with her pulmonary surgeon tomorrow to discuss the new lung spots and she's also getting a spinal MRI. I was told that lung metastasis is common with UPSC but the chemo would get it.

    It seems that each doctor uses a different drug used for the same areas with varying degrees of effectivness. The more info we get, the more pro active we can be.

    Thanks and best of luck to everyone.
  • MJ5
    MJ5 Member Posts: 14
    Uterine cancer mets to lung - looking for others to talk to
    Hi, Babs, I do have lungs mets. Have been receiving chemo since 10/2010, and mets are shrinking but not yet gone. I was terrified of the chemo, but I have had 7 rounds so far. I hope you are handling chemo well also.
  • lociee
    lociee Member Posts: 102
    MJ5 said:

    Uterine cancer mets to lung - looking for others to talk to
    Hi, Babs, I do have lungs mets. Have been receiving chemo since 10/2010, and mets are shrinking but not yet gone. I was terrified of the chemo, but I have had 7 rounds so far. I hope you are handling chemo well also.

    mets to lungs
    Hi Babs - I had carbo/taxol every three weeks - I think for 6 sessions. Then I had radiation. But the lung responded well to the carbo/taxol. It's a killer chemo. Chemo got easier each time. They do everything possible to control the nausea and the aches and pains.
    Good luck - I'd definitely push for the carbo/taxol.
    Mia
  • TiggersDoBounce
    TiggersDoBounce Member Posts: 408
    Babs
    Sending healing thoughts your way!

    Please keep us posted on your progress!

    Laurie
  • sand5249
    sand5249 Member Posts: 2
    Endometrial cancer has metastasized to lungs
    I have been battling endometrial (uterine) cancer since 2003. It was treated with a radical hysterectomy and internal radiation. It recurred in 2005 as a mass in the lower right abdomen. I underwent radiation and chemo, but had little results. After being told by my GYN Oncologist that surgery would be morbid in his opinion, I sought a 2nd opinion. I changed doctors, had abdominal surgery and underwent chemo with great success. June of 2010 I found that I had mestastic endometrial cancer to my lungs and a mass obstructing my right kidney. I had to have a stint from the kidney to the bladder and started carboplatin and doxil in July. In December I had a PET/CT scan that showed the abdominal mass gone and only a small area in each lung still affected. I took 2 more treatments of carbo and doxil. Just had another PET/CT scan and the abdominal mass is still gone but the cancer in the lungs has started growing again. I will start carboplatin and cytoxin Tuesday and hope it will stop the growth. My doctor had wanted to use avastin but the insurance company feels it is not proven effective for endometrial cancer. However, I have read that it has good results for ovarian and lung cancer, as well as colon cancer.

    Elizabeth from Georgia
  • sand5249
    sand5249 Member Posts: 2
    MJ5 said:

    Uterine cancer mets to lung - looking for others to talk to
    Hi, Babs, I do have lungs mets. Have been receiving chemo since 10/2010, and mets are shrinking but not yet gone. I was terrified of the chemo, but I have had 7 rounds so far. I hope you are handling chemo well also.

    Cancer mets to lungs
    Hi MJ5, just wondering what chemo drugs you are receiving? I had carbo/doxil that seemed to be working, but after 6 rounds, still showed small mets in lungs. Took 2 more treatments, had scans and cancer is growing again. I will start carbo/cytoxin tomorrow.
    Good luck in your treatments.
  • LenaW
    LenaW Member Posts: 1
    My mom has the same condition as you
    Hey Babs, I couldnt help to read your story! it really helps to see someone going through what I, my family and my mom(the victim) is going through! her uterine cancer has spread to her lungs as well causing her to be losing breath. Her lungs continue to build with fluid and the fluid has cancer cells in it. She has done 2 treatments of chemo and she meets with her oncologist fri for a follow up. She feels ok but we are all concerned. How is your chemo working for you? Please follow up with me! thanks!
  • Lori_VA
    Lori_VA Member Posts: 16
    sand5249 said:

    Endometrial cancer has metastasized to lungs
    I have been battling endometrial (uterine) cancer since 2003. It was treated with a radical hysterectomy and internal radiation. It recurred in 2005 as a mass in the lower right abdomen. I underwent radiation and chemo, but had little results. After being told by my GYN Oncologist that surgery would be morbid in his opinion, I sought a 2nd opinion. I changed doctors, had abdominal surgery and underwent chemo with great success. June of 2010 I found that I had mestastic endometrial cancer to my lungs and a mass obstructing my right kidney. I had to have a stint from the kidney to the bladder and started carboplatin and doxil in July. In December I had a PET/CT scan that showed the abdominal mass gone and only a small area in each lung still affected. I took 2 more treatments of carbo and doxil. Just had another PET/CT scan and the abdominal mass is still gone but the cancer in the lungs has started growing again. I will start carboplatin and cytoxin Tuesday and hope it will stop the growth. My doctor had wanted to use avastin but the insurance company feels it is not proven effective for endometrial cancer. However, I have read that it has good results for ovarian and lung cancer, as well as colon cancer.

    Elizabeth from Georgia

    lung mets
    My uterine cancer has also metastasized to my lungs. This happened while I was taking carbo/taxol. I am currently in a clinical trial at NIH which combines dasatinib and avastin. I'll let you know if it works. Good luck to everyone.
  • TiggersDoBounce
    TiggersDoBounce Member Posts: 408
    Lori_VA said:

    lung mets
    My uterine cancer has also metastasized to my lungs. This happened while I was taking carbo/taxol. I am currently in a clinical trial at NIH which combines dasatinib and avastin. I'll let you know if it works. Good luck to everyone.

    Lung Mets
    Lori,

    Hope all is going well for you...How did you get diagnosed with the Liver mets? This is what I worry about most...I am not sure why...Did they diagnose from a CAT Scan?

    Let us know how you are doing!

    Laurie,
  • jamay
    jamay Member Posts: 3

    UPSC lung metatstasis
    Mia, if you don't mind me asking, what type of chemo did you receive? My year old mom has UPSC, no sign of it anywhere except her PET scan 2 weeks ago showed small spots in her left and right lungs and something on her spine which we hope is just bone degeneration.

    Last May a 9mm spot on her left lung was removed and she was given Doxil once a month for 6 months. We are meeting with her pulmonary surgeon tomorrow to discuss the new lung spots and she's also getting a spinal MRI. I was told that lung metastasis is common with UPSC but the chemo would get it.

    It seems that each doctor uses a different drug used for the same areas with varying degrees of effectivness. The more info we get, the more pro active we can be.

    Thanks and best of luck to everyone.

    Lung Mets
    I have a Bronchoscopy with argon lazer Friday for mets in my right lung bronchi then on to an oncologist. Glad to hear your chemo is doing the trick. Thanks! You give me hope!
  • missbabsonmars
    missbabsonmars Member Posts: 29
    lociee said:

    lungs
    Hi - my uterine cancer also spread to my lungs. Chemo was incredible - it zapped the lung cancer - still had tumor in uterus - shrunk with radiation. Still going strong. Good luck with the chemo! I think it will work.
    Mia

    wanting to connect
    Mia - thanks so much for replying to my post. I got so overwhelmed there for a few months that I didn't even realize that people had responded to my message! I will have my 6th chemo. tx in 3 weeks and afer that a PET scan and CT scan to see where I'm at with the cancer. The 3 month CT scan showed the cancer in lungs had decreased.

    Thanks again. Tell me how you are doing please.

    Babs
  • Lori_VA
    Lori_VA Member Posts: 16
    MJ5 said:

    Uterine cancer mets to lung - looking for others to talk to
    Hi, Babs, I do have lungs mets. Have been receiving chemo since 10/2010, and mets are shrinking but not yet gone. I was terrified of the chemo, but I have had 7 rounds so far. I hope you are handling chemo well also.

    What chemo did you receive?
    I also have mets to my lungs and wondering what drugs you are taking? Carbo/Taxol did not work for me.

    Take care!
  • missbabsonmars
    missbabsonmars Member Posts: 29
    LenaW said:

    My mom has the same condition as you
    Hey Babs, I couldnt help to read your story! it really helps to see someone going through what I, my family and my mom(the victim) is going through! her uterine cancer has spread to her lungs as well causing her to be losing breath. Her lungs continue to build with fluid and the fluid has cancer cells in it. She has done 2 treatments of chemo and she meets with her oncologist fri for a follow up. She feels ok but we are all concerned. How is your chemo working for you? Please follow up with me! thanks!

    Chemo. Tx
    Hello All - the chemo. drug is the carbo/taxol combination. I have been extremely fortunate in that the side effects have been manageable: fatigue and moderate to severe joint pain in the knees for about ten days after treatment. I am receiving treatments every four weeks. Of course, I was in excellent health going into this and am doing everything I can to maintain that state of being by practicing many complementary therapies.

    I am fortunate in so many ways! I have been a sober member of AA for 27 years, so I have an incredible support network there, along with a wonderful husband and sister, and many, many friends. I am also very grateful to have stumbled upon you lovely ladies!

    Babs
  • sleem
    sleem Member Posts: 92
    Other symptoms before dr. visit
    I am getting over what I think was the flu. My husband had been sick & then I became so with the same stuff. Did you have any othe symptoms before going to the doctor with bronchitis? As, that is what I 'think' I'm getting over. Should I ask my Dr. about this?

    Thanks for any info.
  • kumo51
    kumo51 Member Posts: 1
    sleem said:

    Other symptoms before dr. visit
    I am getting over what I think was the flu. My husband had been sick & then I became so with the same stuff. Did you have any othe symptoms before going to the doctor with bronchitis? As, that is what I 'think' I'm getting over. Should I ask my Dr. about this?

    Thanks for any info.

    Lung mets
    My uterine cancer metastasized to my lungs also.
    I start a chemotherapy next week.

    Moni
  • Maggie379
    Maggie379 Member Posts: 3
    kumo51 said:

    Lung mets
    My uterine cancer metastasized to my lungs also.
    I start a chemotherapy next week.

    Moni

    Lung Mets
    What type chemo are they using for your lungs? My biopsy is being analyzed to see what will work best. Maggie379
  • alidabee
    alidabee Member Posts: 1
    how are you today?
    I am new to the site. I am greateful there is a forum for others to join in as "Uterine cancer metastasized to lung " is not an isolated occurance. My beautiful mother (69yrs) had uterine cancer surgery in April and was cleared of cancer down there. Upon a CT scan before going in for surgery, Dr.s noticed spots in her chest - she was just diagnosed last week with two tumors that metastasized to her lungs. They have grown to 3mm since first noticed. I was in disbelief - unable to comprehend how this can happen. Today I have some comfort in reading your post as well as from others. I have yet to find the name of the medication they perscribed to mum, i only know it as a hormone pill that "should" shrink the tumors, with a follow up CT scan in 3mo. I wanted to know how you are doing these days?
    thank you for sharing
    alida
  • nancygt
    nancygt Member Posts: 86
    join in
    My cancer also is in my lungs-this third recuurence and others involved lymph nodes so I am conerned. I had carboplatin/taxol first year (2009)and CA 125 went way down but 5 months later I had recurrence. This time my doc consulted Moffitt and MD Anderson and they recommended Cisplatin and Doxirubicin-I did 6 treatments. CA 125 came way down and tumors shrunk 30% which my doc thought was great-all I could think of was that they counted 20 tumors and 70% of those were still there. Now again 5 months out from chemo and they are growing again and are in all 4 lobes, not just bottom of lungs, although no symptoms.We did PET scan last week, he put me on Tamoxifen hoping to retard growth and we will disucss game plan in a few weeks with PET in hand. He said there with several other drugs to try-Ifosfamide(probably with Paclitaxel), Topotecan and Avastin.
    Does this mean that cancer has spread through bloodstream as opposed to lymphatic system and that recurrence is considered distant metastasis as opposed to local ? I must admit I am depressed and panicked and even though I like and trust my doctor, I wonder if is time to get consultation at MD Anderson again.I know this cancer for me is not curable, only treatable and he told me the tumors would not be completely gone after last chemo (NED twice before was not meaningful anyway) and I am scared this is the beginning of the end and wonder if he will tell me that. Linda P and I were on almost exactly parallel schedules and it has shaken me that I found about the new growth on the day she died-I am not usually this panicky but I am having hard time emotionally this go round.
    Sorry to go on so long but some times it just helps to vnt or exp0ress our fears.
    I wonder if it is worthwhile to do carbo/Taxol again as it came back so quickly before-has anyone had that rteatment for recurrence in lungs that has been lonlasting.
  • HellieC
    HellieC Member Posts: 524
    nancygt said:

    join in
    My cancer also is in my lungs-this third recuurence and others involved lymph nodes so I am conerned. I had carboplatin/taxol first year (2009)and CA 125 went way down but 5 months later I had recurrence. This time my doc consulted Moffitt and MD Anderson and they recommended Cisplatin and Doxirubicin-I did 6 treatments. CA 125 came way down and tumors shrunk 30% which my doc thought was great-all I could think of was that they counted 20 tumors and 70% of those were still there. Now again 5 months out from chemo and they are growing again and are in all 4 lobes, not just bottom of lungs, although no symptoms.We did PET scan last week, he put me on Tamoxifen hoping to retard growth and we will disucss game plan in a few weeks with PET in hand. He said there with several other drugs to try-Ifosfamide(probably with Paclitaxel), Topotecan and Avastin.
    Does this mean that cancer has spread through bloodstream as opposed to lymphatic system and that recurrence is considered distant metastasis as opposed to local ? I must admit I am depressed and panicked and even though I like and trust my doctor, I wonder if is time to get consultation at MD Anderson again.I know this cancer for me is not curable, only treatable and he told me the tumors would not be completely gone after last chemo (NED twice before was not meaningful anyway) and I am scared this is the beginning of the end and wonder if he will tell me that. Linda P and I were on almost exactly parallel schedules and it has shaken me that I found about the new growth on the day she died-I am not usually this panicky but I am having hard time emotionally this go round.
    Sorry to go on so long but some times it just helps to vnt or exp0ress our fears.
    I wonder if it is worthwhile to do carbo/Taxol again as it came back so quickly before-has anyone had that rteatment for recurrence in lungs that has been lonlasting.

    So sorry for recurrence in lungs
    I was so sorry to read that you have a third recurrence and it is in your lungs. It does sound as if it may be a good time to get a second opinion. Not because there is anything wrong with the treatment options suggested by your medical team but more to get another perspective on it. I am in the UK, so I don't know the "form" in the US but I am sure that other ladies on this board could recommend or help you find the best place for the second opinion.
    I'm not sure what type of cancer you have (adeno, UPSC, MMMT etc), but my oncologist seems to go by the "6 month rule" with the carbo/taxol combo. She reckons if you get 6 months or more response with it then you can be classed as "platinum sensitive" and have it again, but anything less than 6 months and it's not a good idea.
    I understand that if the tumours are ER+/PR+ then hormone therapy e.g. Megace may be a way forward. My oncologist mentioned it to me a month or so back, when we thought I might be facing another recurrence (my scan turned out to be clear, thank goodness). She said that she knows of ladies who have stayed on it for many years and it has controlled things for them. I believe that it can be particularly useful for recurrences in the lung. Perhaps worth investigating?
    I hope things become clearer for you.
    Helen