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Biopsy Results Back...After 3 Years of Hell..."I Beat Anal Cancer"

Ottawamarc1234's picture
Ottawamarc1234
Posts: 148
Joined: Feb 2018

All clear but radiation damage ans still 1 Anal Ulcer of Two not healed yet!

 Meeting with Surgeons next Tuesday for next step. No idea if I still need surgery and/or Ostomy Procedure. Maybe time will tell.

So not totally healed yet. Still itch and minor pain. Still wearing diapers but....Anal Cancer Gone. Post 9 mths Treatment Chemo radiation. OttawaMarc

 

 

 

Mollymaude
Posts: 421
Joined: Nov 2016

Glad you got the all clear, hope the ulcers can get treated effectively!

eihtak
Posts: 1429
Joined: Oct 2011

I have not had to deal with ulcers thank God but have heard that patience is needed as the healing is slow. Congratulations on the clear report, thats great news! 

I will pray for a long life of health and wellness ahead for you!

katheryn

mp327's picture
mp327
Posts: 4451
Joined: Jan 2010

Glad you got good news on your cancer being gone and I hope that the other issue will heal on its own. 

Ottawamarc1234's picture
Ottawamarc1234
Posts: 148
Joined: Feb 2018

Will know more next Tuesday when I meet with the Surgeons. Does Radiation Damage ever heal on its own? Or am I doomed for eventual surgery...and or Ostomy? Time will tell I dont know?

Still in mild pain and itch. Ultrasound today for my blood clot leg. Another complication after my treatment Post 9 mths.

annie4145
Posts: 98
Joined: Jul 2018

I'm happy for you getting the all clear on cancer.  You went through treatment just before me, and I have been following your posts.   Hopefully everything else will heal quickly. 

Ottawamarc1234's picture
Ottawamarc1234
Posts: 148
Joined: Feb 2018

Deep anal pain. Weird. Tried pooing nope. Could be radiation damage or PRD. Took 1/2 perc to ease pain and hopefully go back to sleep. Drinking my stool softner with OJ and water.

Seeing my Radiologist later today and Surgeon tomorrow. Would rather try to 'heal' on my own over time than contemplate the 'surgery with the possible'bag outcome'. Up to them not me. 9mths post treatment. 

I recall my Radiologist saying 'it could take a year or more to heal at my age of 57!"

 Only 9mths....

Ottawamarc1234's picture
Ottawamarc1234
Posts: 148
Joined: Feb 2018

....heal on Its own over time. Was so worried for months of the possibilty of sewn up *** and bag!

 

I went to Dentist today first time in two years...need a lot of work. Radiation and Chemo ruined my gums. Teeth in Austin Powers shape.

 

The Dentist was not a friendly guy. Froze me but I was too jittery with him. He wanted to do both bad teeth at once. I wasnt keen on that. One at a time please 4 hr root canals no tjanks. He got frustrated with my nerves and anxieties and sent me home without any work done. Going to attempt another Dentist tomorrow morning. Got to get 1 of the 2 bad teeth dealt with before the long Easter weekend.

 

Basically pain and itch in bum is Radiation Inflamation...barrier creams and baby powder in diaper to keep area dry. They want me to start up sitz baths next week again instead of using hand held shower sprayer and eventually reintroduce Epsom Salts in my baths. 

 

The itch is still bad daily.

Salsify's picture
Salsify
Posts: 36
Joined: Nov 2015

Hi Marc,

I read this board fairly often although I don't often post. I have been following your posts and identifying, not so much with exact issues but emotionally. I am glad to hear that the cancer is gone and that the dreaded bag does not appear to be in the cards! I know that was one of my biggest fears.

I am typing this as I sit on the toilet again, where it seems I spend way too much of my life, lol. I had a stomach bug last weekend and it has wreaked havoc on my nether regions. Skin split, sore and bleeding, from the top of my "crack" down. I try to avoid wearing pads or incontinence pants because all my nether parts do best if covered only by cotton clothing, and often I can get away with that if I spend enough time in the morning letting everything move through that wants to. As long as I don't eat anything but a protein bar, banana, yogurt, and MAYBE now and then an apple all day until after work I can usually go 8 hours without trouble. Oh, and maybe a protein drink. I started with protein bars and drinks during treatment and kept on, because it didn't seem like my normal diet was very high in protein, and I knew the body needed protein to heal. I live alone, and you probably know it isn't all that fun to plan meals and cook for one ;-) not to mention by the time I am done with work there is not much energy left!

Finished my treatment mid December 2015. Worked (office job) straight through, except the 2 chemo weeks, although not necessarily 8 hour days. Radiation treatments, my job, and my home all within a mile or 2 radius so it wasn't really hard.

Guess I just wanted to let you know your trials here are helping someone feel not so alone. And there are not many places we can talk openly about the body parts and functions that give us grief!

Hoping for your rapid recovery!

Sally

Ottawamarc1234's picture
Ottawamarc1234
Posts: 148
Joined: Feb 2018

Need an emergency Root Canal on tooth but can't find a dentist that will touch me cause of the Xerelto Meds I am taking for my blood clot. Seems there is NO antidote if I bleed during the procedure. They don't want lawsuits. So am suffering at home with vicious Headaches and bad nerve pain in mouth 

 

Spent all holiday weekend driving around from one Emergency dentist to another getting nowhere. One dentist did a partial filing which made it worst the next day throbbing nerve pain. The next day another dentist gave me a script for Metro antibiotics. Side effects...severe headaches but am still taking it every 8 hrs. You can't skip a dose to avoid the headaches cause the nerve pain comes back 10 fold.

 

Meanwhile my *** is a mess from the antibiotics with diarrhea and terrible sleeping problems. Putting my head on heating pad to help with the throbbing headache on my right side above my eye.

 

Madness!! 

Ottawamarc1234's picture
Ottawamarc1234
Posts: 148
Joined: Feb 2018

Am living on Disability. Not all Ontario Dentists will accept ODSP patients. On holidays worst. They have an Emergency Dentist every day of the year but don't do long procedures ie extractions or Root canals on Emergency visits. Ridiculous! Give antibiotic scripts or pain pill scripts and send you home to wait the specific holuday to end and back to the search of a dentist during normal business hours of a week that will take ODSP patient.

Ottawamarc1234's picture
Ottawamarc1234
Posts: 148
Joined: Feb 2018

5 days into the antibiotic Metronidazole 250 plays havoc with Radiated bum. Onslaught of diarrhea now. At least the vicious headaches have settled down. Side effects to this particular Antibiotic.

All antibiotics I find irritate me some way or another especially after Chemo radiation Treatment. Nerve pain better since taking this medication but have to stay on top of every 8 hours otherwise tooth nerve pain returns with a vengeance. 

Ohmy's picture
Ohmy
Posts: 102
Joined: Aug 2017

Hi Marc,

I drank kefir kefir during my treatments and that helped with the diarrhea.  It's also high in protein.  Barley Water is good for diarrhea.  My husband had C diff years ago and the Barley Water did the trick.  Glad your cancer is gone and I hope you find a good dentist.

Ottawamarc1234's picture
Ottawamarc1234
Posts: 148
Joined: Feb 2018

Want to heal. Sick of this crunchy internsl sandpaper feeling inside. False poos' and pain. Passing small flat poos. I lie down at night..urge too poo. Nothing there...weird. Almost 10 months post treatment. Nuts!

Salsify's picture
Salsify
Posts: 36
Joined: Nov 2015

After my recent stomach bug I remembered that taking probiotics seemed to help settle my inards a bit after treatment. Took maybe a year until I finally tried that. So I took some again, and my butt is getting to heal again. Bought the drugstore brand that seemed to have the most strains for the least money. Maybe you could try?

sally

Ottawamarc1234's picture
Ottawamarc1234
Posts: 148
Joined: Feb 2018

Hard to go for any walks..butt cheeks rub and cause friction with Sandpaper Anus. Frustrating!!

Ottawamarc1234's picture
Ottawamarc1234
Posts: 148
Joined: Feb 2018

Anal Ulcers not healing post 11mths to the date. Started regime of antibiotics to see if will help. Probiotics between doses. Epsom salt baths after every BM. Nifidipine Baclofen Lidocaine Cream afterwards. Percasets for pain. Magnesium Suppliements for leg spasms from 'constant leaning to left side' terrible shooting spasmadic pains.

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