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Circulating tumor cells

Denise66
Posts: 44
Joined: Aug 2018

Has anyone had their circulating tumor cells measured?  If you had circulating tumor cells, what was prescribed to reduce them. 

 

 

MAbound
Posts: 646
Joined: Jun 2016

Thanks for asking about this. I had never heard of it so went googling. It turns out that my insurance, Blue Cross, considers it investigational at this time and so does not cover it. I suspect that this is true for most other insurances and so I'd be surprised if any of us have had it. What I find concerning about this test is I wonder if it could be used to deny further treatment if it predicts a poor prognosis for metastatic cancer. 

derMaus's picture
derMaus
Posts: 476
Joined: Nov 2016

I had this done through Circulogene. My previous oncologist ordered it and my insurance refused to pay so I was out $500. It proviided no useful information. I asked my new oncologist about it and he said such tests aren't reliable for most cancers except certain know ones (e.g. PSA for prostate).

Denise66
Posts: 44
Joined: Aug 2018

Why did it not provide useful info?  

derMaus's picture
derMaus
Posts: 476
Joined: Nov 2016

The entire thing was blank except for TP53 @ 5.8% mutation (ALL cancers have this) and EGFR @ 3.0% mutation. There were no "actionable" items and no FDA treatment recommendation, likely because treatment is based on genetic profile of the tumor, not on what is floating around in the blood.  My Foundation 1 report, done at the same time, was useful. Circulogene was not. 

Denise66
Posts: 44
Joined: Aug 2018

Does insurance pay for the foundation one testing?  

CheeseQueen57's picture
CheeseQueen57
Posts: 715
Joined: Feb 2016

I‘m currently fighting with Aetna over payment of my Foundation one testing. They should be paying. Medicare pays. 

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