Good article for newly diagnosed or recurrent EC

takingcontrol58

Ladies,
For those of you who have recently been diagnosed with endometrial cancer or are experiencing
a recurrence, below is a great article that summarizes the risks, types, some gene mutations,
treatments for initially diagnosed and those with a recurrence, emerging treatments, prognosis
and follow-up.  It may answer some of your own questions.  It compiles information from
many different articles. 

www.oncologynurseadvisor.com/obstetrics-and-gynecology/endometrial-cancer--molecular-
therapies/article/6179891

If the home page of the web site comes up, search for the title of the article-
"Endometrial Cancer- Molecular therapies." - It was published Dec 21, 2016.

You can look up information on many different types of cancers at this web site.

Takingcontrol58

 

 

 

 

 

 

 

 

Jeannie123

Article

Thank you I will check it out?

Jeannie123

Article

web site is currently down

derMaus

No it's not. Cut and paste

No it's not. Cut and paste the address in your web browser. 

Jeannie123

Article

I found it thanks.  I went to Stanford and saw a surgeon who I thought would consider surgery he said he did not do surgery on anything under 5cm, I think. I tend to go brain dead. He referred me to a radiologist who scheduled an MRI to see how far the cancer was in my vagina cuff. results were good and she suggested 3 brachytherapy and a course of 25 VMAT.  Just when I had resolved myself to deciding on radiation someone told me that the Mayo clinic has a program for early reacurrance surgery.  The article I just read mentioned surgical resection so now I don't know what to do? I would just like to make a decision has it has now been 3 months since I found this out?

has anyone out there had surgery vs radiation?  Thanks so much

CheeseQueen57

Pap

Interesting article and again PAP was mentioned as perhaps diagnostic. After a year, the lawyer I hired concluded I didn’t have a case against my original gyn for not doing PAPs for 3 years unbeknownst to me. Because my cancer was so extensive and invaded the Cervix , I just can believe it would not have been found if he would have been doing PAPs. But I guess I don’t have time to pursue this now. 

MoeKay

PAP Test

Cheese, I had a pap as part of the testing I had before my endometrial cancer was diagnosed.  So it was not an annual screening pap smear.  The pap results stated "adenocarcinoma, most likely of endometrial origin."  Of course, this was after I had abnormal vaginal bleeding.  At the time of my diagnosis in 1999, annual paps were the standard of care, but if I'm not mistaken the standard of care in recent years has been 3 years, at least for middle-aged women.  I remember being very unhappy when I read that the experts were considering making changes to the guidelines on the frequency of pap tests, because there is data out there that, while the pap test is not an endometrial cancer screening test, endometrial cancer can in some cases be picked up incidentally on routine pap tests. 

MoeKay

CheeseQueen57

My point exactly

That’s my point MoKay. And what makes me even more angry is that arrogant **** didn’t tell me he wasn’t doing PAPs. I was under the impression he was doing them and if I knew he wasn’t I would have insisted on having one.  Perhaps I should consult another lawyer but this practice is suppose to be the best malpractice firm in Philly. 

ConnieSW

CheeseQueen57 said:

My point exactly

That’s my point MoKay. And what makes me even more angry is that arrogant **** didn’t tell me he wasn’t doing PAPs. I was under the impression he was doing them and if I knew he wasn’t I would have insisted on having one.  Perhaps I should consult another lawyer but this practice is suppose to be the best malpractice firm in Philly. 

I'm furious for you

since my cancer was diagnosed with a pap. I tell everyone I know to continue with yearly paps even if you have to pay for it yourself. It may not be a great tool but you use what you have. At any rate, we have the right to make informed choices. 

MoeKay

PAP Test

Cheese, I checked and it looks like the pap guidelines were changed to every 3 years back in early 2012, so it's been close to 6 years now that annual paps have no longer been considered to be the standard of care:  http://www.cnn.com/2012/03/14/health/brawley-cervical-cancer-screenings/index.html.  Didn't the lawyer you consulted explain his/her rationale for the conclusions reached on your case? 

 

CheeseQueen57

PAP

Yes, I know the guidelines changed but my point was that he never informed me and I would have insisted on a PAP even if I had to pay. I only found out he wasn’t doing them after I was diagnosed and I asked one of his colleagues what my last PAP showed. My Gyn had retired. 

No, the lawyer didn’t explain. Just sent me a letter. And I’m getting close to the 2 year limit For taking any action. It makes me mad that it took them almost a year to determine I didn’t have a case. I was checking with the regular,y and they were saying they were waiting on their expert opinion. 

Kaleena

Just what I was complaining about

I just left my gyne/onc whom I had since 2014.   I saw him in July after he cancelled 3 appointments with me.  The last time I saw him was in December 2015 wherein he was supposed to do a biopsy on a mass that I had after the urologist did the reimplantment of my ureter.  However, he never did do any biposies (probably because he knicked my bowel and had to repair that).   Anyway, I had a CT scan in June and then went to see him for my exam and results.   Guess what, after not seeing him for almost 2 years because he cancelled my appointments, and given the fact that I was complaining about being in daily pain, all he did was read me my Ct results and sent me home.  No exam whatsoever!   According to my CT scan I had a new soft tissue mass and my other mass grew slightly and my illiac node was borderline.  He said nothing there is causing me pain and said I could have abdominal massages and see him in 4 months.  So I decided there and then not to ever go back.  He never did PAPs on me even though I had two abnormal ones in 2013 with one being positive for HPV high risk virus.   I asked the doctor why he didn't do PAPs and he indicated that it wouldnt show a recurrence.   I didn't buy that at all.

Anyway, I met with a gyne where I live and he recently did a liquid based PAP.  I am still waiting for the results.   I also met with an oncologist who did an MRI and then I just had a Rectal EUS.  Apparently something is showing by the vaginal cuff.  However with the rectal EUS I believe they only biopsy an area in the perirectal area.   

I see the oncologist on Thursday.  I believe the PAP results should be back this week also.  I'll let you know.

Kathy

Jeannie123

Totally agree

I had my hysterectomy for my uterus cancer in 2009 in Texas, a great surgeon who did a speculum exam every year. Then we moved to California in 2013. I went to see a gyn oncologist he did not use a speculum so I saw another specialist the head of his Dept, he did not use one either just examined me. So I had my gp do one, it came out clear. 2016 back to specialist new Dr again no speculum. 2016 diagnosed with breast cancer the first biopsy missed it. I asked  my surgeon to refer me to gyn specialist because I felt I was not getting the care I should the new gyn used  a speculum and found that i had Recurrence.  I was told that they do not usually  do follow up exams after a couple of years because this is considered such a low risk For recurranc.   It is enough to drive one insane trying to find a decent doctor.  And I did research on the doctors I had all had great reviews.....