Five year post treatment from UPSC (Recap of Lost Posts, Topic Created by joannewtta on Jan 26, 2019

cmb

This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19.

joannewtta

Jan 26, 2019 - 3:11 pm

I was diagnosed with UPSC Stage 3, 3b  in June 2013. I underwent 18 chemos of taxol and carbo plus four brachytherapies finishing in Feb. 2014. Surgery was in July 2013 about two weeks after my husband had his left kidney removed because of bi-lateral kidney cancer. Last week I had my five-year end-of-treatment with my oncologist and although I never anticipated any issues it is just a relief to be there at last. CELEBRATION!

I have been looking through some recent posts and wil add that I had my port out one year after finishing treatment. My Dr. would not remove it before that. For me it was important to get it out; sort of a affirmation that I would not go through this again. Treatment was rough. Holiday that year taught me how to delagate, let go, and enjoy without being a control freak.

I am left with pretty severe neuropathy in my feet(taxol) for which I take Gabopentin. Lyrica was a disaster for me. The best relief is warm sand so we are heading to Mexico in Feb. for almost three weeks. Therapy and celebration. Brachytherapy did a job on my bladder which has not improved with time but with with my staging(it had escaped to a lymph node) I am very grateful to just be here and be healthy.

Out daughter was diagnosed in Oct. 2014 with breast cancer and had a double mastectomey with reconstruction and 4 chemos. She was living with us then and now and needless to say we know how to do cancer in our household. My husband had a cryoablation a couple of years later to freeze remaining tumor on other kidney. Cancer free household.

I know this is a long post and I don't post often but so many ladies continue to post and offer the the best advice. I benefited from much of that and from some of the incredible ladies that have passed. I know how scary this is for new newly diagnosed and hope this offers hope and a sense of "I can do this" to you. Prayers and thoughts to all.

 

LisaPizza

Jan 26, 2019 - 3:15 pm

What an amazing story. You

What an amazing story. You and your family have been through SO much, and are doing so well. I'm glad you shared. 

 

zsazsa1

Jan 26, 2019 - 3:28 pm

Thank you so much for

Thank you so much for returning and posting.  You give recently diagnosed patients like me hope!

 

Forherself

Jan 26, 2019 - 3:30 pm

It also gives home to other women here

Your story is inspiring.   Thank you for sharing your success.    Everyone is different as we all know.   I pray for your continued NED household.   

Sue

 

ConnieSW

Jan 26, 2019 - 3:33 pm

Thank you so much

for the update. I'm so glad your family has made it thr such a harrowing time. 

 

NoTimeForCancer

Jan 26, 2019 - 3:37 pm

joannewtta, WHOOP WHOOP!  So

joannewtta, WHOOP WHOOP!  So happy for you and I wish you many more.  

 

Soup52

Jan 26, 2019 - 8:19 pm

You are an inspiration!

You are an inspiration! Congratulations !!

 

janaes

Jan 26, 2019 - 10:04 pm

Im glad you made it 5 years

Im glad you made it 5 years

 

SF73

Jan 26, 2019 - 11:59 pm

It is so great to read your

It is so great to read your inspiring story! Hope you guys will have a great time in Mexico!

candy546

Congratulations and Thank You

Congratulations for your success and thank you for giving hope to those of us who have just started this journey.  I was diagnosed with Clear Cell Endometrial Cancer in October 2018 after a total hysterectomy,  and another primary Cancer, Invasive Breast Cancer in November 2018  after a biopsy.  I avoided chemotherapy but finally after much urging from family,  I started my first  round of chemotherapy On January 29 with carboplatin and taxotere and already I'm dealing with peripheral neuropathy in both hands.  My doctor says he doesn't usually see it until after the 2nd treatment but I guess I'm one of the exceptions.  I keep feeling that there must be a better way and why haven't they come up with a better regimen after all the studies and all the money poured into cancer research.  Hearing your story helps me try to stick it out.  God Bless you and may you have many more good years ahead.

cmb

candy546 said:

Congratulations and Thank You

Congratulations for your success and thank you for giving hope to those of us who have just started this journey.  I was diagnosed with Clear Cell Endometrial Cancer in October 2018 after a total hysterectomy,  and another primary Cancer, Invasive Breast Cancer in November 2018  after a biopsy.  I avoided chemotherapy but finally after much urging from family,  I started my first  round of chemotherapy On January 29 with carboplatin and taxotere and already I'm dealing with peripheral neuropathy in both hands.  My doctor says he doesn't usually see it until after the 2nd treatment but I guess I'm one of the exceptions.  I keep feeling that there must be a better way and why haven't they come up with a better regimen after all the studies and all the money poured into cancer research.  Hearing your story helps me try to stick it out.  God Bless you and may you have many more good years ahead.

Neuropathy

Candy,

A number of women on this site have used cold gloves and other cold devices to prevent neuropathy. I hadn't heard of this before I started reading this site after my treatment was over and I do have some mild neuropathy in the balls of my feet.

You may want to read the suggestions discussed in the following post:

https://csn.cancer.org/node/318295