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Constipation
i was diagnosed with stage 1B and grade 2 endo cx in August 2018. I had Brachy therapy. About 2 months ago I started experiencing constipation. 3 weeks ago had surgery for a bowel obstruction. The bowel some how looped itself around the small intestine. No mass. I also had some abhesions which were removed. Prior to the…
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Papillary Endometroid Adenocarcinoma of Intermediate Grade
Diagnosis on report they sent me-Papillary Endometroid Adenocarcinoma of Intermediate Grade. So Grade 2 for sure, unsure of stage until after I have the lymphadenectomy which is scheduled for next Friday 8/9. I don't know why, but I'm really nervous about having all of the lymph nodes in my pelvic region removed. I am…
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tumor pain
Recently (about 4 months) I have been having pain from tumors growing and pressing on nerves, pulling on muscles, etc. Most of my tumors are in my abdomen. This has interfered with me be able to be as physically active as I would like to be sometimes. I've been taking percocet which has helped with the stabbing burning…
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Treatment 1 Done...thanks to u all getting me through it!
I can't thank you all for helping me get through my first treatment! Thanks to all your support and encouragement as well as what to expect I was able to walk in the Center and receive my treatment. Not to say there wasn't many tears out in the parking lot. And a plea with my husband to take me to the ocean and not inside.…
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Lymphedema
5 months post chemo and dealing with lymphedema. Have any of you ladies had lymphedema this soon after chemo? I know if you start physical therapy right away it is easier to treat. Swelling in my left foot and leg. Will have leg wraps and compression garments and exercise should help. And eating a balanced diet along with…
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Fruit paste for constipation
I am an RN and I worked in a family pracitce office for the last few years. Constipation was one of the things I advised patients about. This is a recipe I copied from another office. The patients told me is was really effective. It's worth a try and they said it tastes good too. Fruit Paste Recipe 8 oz dried prunes 8 oz…
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Just diagnosed, high anxiety
I am 68 years old and was just diagnosed. First meeting with oncologist is next week. But I'm crazy anxious about the whole thing. And because I live alone, I am especially concerned about the recovery after the hysterectomy --- how painful, how long, how much help I will need at home. I would be grateful for any input or…
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Cheese Update
I heard from Cheese today and it's not good. Her run of bad luck just goes on and on... She finally got out of the hospital and headed off to the Maryland shore, where she last posted. Unbelievably, when they took the stent out (that damn stent!) she got sepsis, resulting in a 2-hour ambulance ride and an emergency…
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Lymph node removal? Molecular profiling?
I am having my surgery in 2.5 weeks and, until them, I'm away from home. Consequently, my initial diagnosis came to me via phone and the only conversation I've had with my surgeon was also via phone. I was hoping you ladies might be able to help me with some questions I have. I have grade 1 endometrioid adenocarcinoma and…
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Had no signs until after biopsy done
I recently had a biopsy. Diagnosed with Uterine Cancer. The pathology report states grade 2/3 Endometrium Adenocarcinom. I have shown no signes until a week after the biopsy was done. Anyone have similar experience? I go to the oncologist this coming Tuesday.
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USPC recurrence
Hi gals. Have any of you with UPSC not have a recurrence? It seems like it inevitable, to get one or more recurrences. :( would be great to hear from people that didn't have a recurrence (yet) :)
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Lulu update
Well darn it......... the last CT scan has shown that the darn stupid beasts have progressed so I have a call into my gyn/onc about an appt to discuss another clinical trial or ???plan B. I had a feeling the scans weren't going to be positive news, especially when my CA 125 marker went up 15 points after dropping…
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Sunrise19 update
Realize that I have taken way too long for an update, but seems things go up, down, sideways and always appts down the road. And that's the way this is gonna be. Then I read all the recent updates and questions and realize that there are so many more complicated issues ... and this will hopefully be simple. Dear Bluebird1…
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Wigsbuy?
I was just wondering if anyone has ordered a wig from wigsbuy.com? I have already gotten a wig from a wonderful lady at a nearby salon . She did a great job matching it to my current hair but as I tried wearing it around the house it's long and hot in the summer heat.I found one on wigsbuy online but I wasn't sure how the…
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feelings are a funny thing
Went for my second check-up since chemo ended. All is good! Will have another in 3 months and a CT scan at that time. I was just feeling differant about this visit and the way my Dr. was. It's kind of funny, almost like when you were a kid in school and you really liked your teacher, but then the next year she had a whole…
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4 Years since cancer and all good
Hi, to give a bit of encouragement to those still going through treatment I wanted to report that I just had my 4 year checkup for stage IIIC endometrial cancer (grade 2) and all is well at this point. On June 30, 2015 I had a hysterectomy, and then on July 30, 2015 I began six months of a sandwich treatment (carbo-taxol,…
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NCCN Guidelines
https://www.nccn.org/patients/guidelines/uterine/50/index.html This is a link to a very good source of information on uterine cancer. I just thought I would post it again, as there are some new members.
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neuropathy pain and Quell
Saw my podiatrist today about a bunion but also mentioned the pain in toes from the chemo induced neuropathy. She told me about a device called Quell that one can wear on the leg to reduce pain. I was wondering if any of you have used this and if it was any help. I have used a TIN some and it does help when it is on, but…
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Arthritis
Have anyone had that due to chemo? I've been experiencing pains in fingers, hands and ankles. It's not neuropathy,as I had that during chemo and this feels different. It's worse in the morning and getting somewhat better during the day. I'm almost 5 months out of treatment of stage 4 UPSC. still waiting on the NED part as…
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Aching legs
I am getting close to 5 months from last chemo, 4 months from Brachy. I know joint and muscle pain can be a side effect of chemo, but I wondered about how long that lasts on average. I have aching legs a lot of the time, and my hips hurt and are kind of weak. I am dealing with tendonitis in my ankle, and I also have…
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Treatment clothing
I was shopping for shoes the other day and found "treatment wear" clothing on the Zappos website under their Zappos Adaptive line. I was fascinated; maybe there's a lot of stuff out there like this and I just didn't know about it? Since I generally wear pullover shirts, chemo-day clothes can be a challenge for me but this…
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New clinical trial from The University of Colorado Cancer Center
Endometrial cancer clinical trial aims to pave the way for practice-changing therapy https://coloradocancerblogs.org/endometrial-cancer-clinical-trial-aims-to-pave-the-way-for-practice-changing-therapy/ “We are excited to be one of the first cancer centers in the nation to offer this therapy to our patients,” says Bradley…
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Stent Update
I've had my stent for three weeks now and am happy to report no problems thus far. To recap, they tried a nephrostomy tube (aka pee bag) but couldn't insert it because the tumor was in the way. The urologist gave 30% odds of being able to insert a stent; with odds so low I thought why even try? Plus, I was really, really…
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Cancer Research Funding Article
It's been mentioned on the board before, but this new article supports the observations that research on endometrial cancer, along with colorectal, pancreatic, ovarian, cervical, brain and lung cancer are all poorly funded, considering how frequently they occur and/or how many people they kill.…
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Endometrial Stage 1
I was just diagnosed last week with stage one Endometrial Cancer. I am anxiously waiting to hear from the GYN oncologist. It’s been almost a week when I was told it would only take 72 hours. I already called my GYN and they are trying to move things all along. I haven’t told a lot of people yet however some of them I have…
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Very Low White Cells
My blood work 2 weeks ago had my white cells at 190. Because of that My Chemo Dr. said I might not get my last (I hope) Chemo treatment. Has anyone had their Chemo stopped because of their low white cells issue? Dr. did give me a lower dosage in my Chemo. I'll get my blood work done tomorrow & next week to see if I'll get…
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CRAZY HAIR
OK, so we all wait for hair after treatment ends: and, mine is finally coming in, yay. But.....it is now a mixture of white and gray, before I always colored it dark brown, the color of my youth, I loved it, it was thick, managable and I loved it. Now...it is a little over an inch long and I can't do anything with it,…
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DM_K
How are you doing? I see you haven't posted since April. Did you ever get on a clinical trial?
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Weight loss after hysterectomy
Did anybody experience weight loss after your hysterectomy? I had gained a lot of weight during the years and ended up at 157 lbs before the hysterectomy. I wanted to lose the weight and go back to what I used to be long ago (about 130 lbs) but somehow I couldn't do it. Then this cancer diagnosis became everything and had…
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Hair Loss
Hi Everyone, This is my first post. Have had 4 chemos. The last one was 2 wks ago & started the Taxol & Caboplatin. Have 3 more Chemos coming up every 3 wks.Today brushing my hair, twice, with lots of hair coming out on the brush. Guess this is the beginning of hair loss. Not worried about hair loss, it'll grow back.Have…