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Uterine/Endometrial Cancer

Medicare Advantage and Step Therapy for Part B Drugs
I'm looking forward to signing up for Medicare next year as I reach 65. Since I was born one year too late to get a Plan F Medicare supplement policy, I expect to select a Plan G supplement policy. While I prefer the flexibility of a Medicare supplement plan, others also nearing 65 may also be considering a Medicare…
New Drug w/FDA Approval Based on Tumor Genetics
The FDA just approved the 3rd type of genetically driven, "tissue agnostic" cancer treatment. Pembrolizuab (Keytruda) was the first. This article gives the details; an excellent reminder of how important genetic tumor testing is when developing a treatment plan.…
clinical trial for me, I think
Thanks to MABound and LuLu who opened my mind to genomic testing and clinical trials. I am screening for a trial of an immunotherapy drug. Same as LuLu, I'm MSS but have some mutations that make this look promising as a treatment for me. Hoping to stabilize or even better. If all goes as expected with screening I begin the…
Chemo doable?
I will be starting treatment soon. I keep hearing the inspiring message that chemo is doable but I also hear so much of the side effects. Many have said to ice hands and feet during treatment. Ice packs? Bucket of ice? Dealing with anxiety of this whole traumatic ordeal?
A hot mess!!!
Hey Ladies, the 1st week after 1st chemo treatment I only was really tired for a few days. Then I had a great week and a half. Doing regular routine at home , running errands and enjoyed getting back to my walking routine. By Day 15 I have UTI and day later Thrush. UTI med not working after 4 days so got a new script.…
Diagnosed with Endometrial Cancer
I was diagnosed with Endometrial Cancer by my GYN after a biopsy. I see the GYN ONC tomorrow and am scared, nervous and confused. There's a part of me that feels like I waited to long to see my GYN after first symptom, but at 43, I really thought I was pre-menopuasal and that what I was experiencing was normal. It wasn't…
Adjuvant Chemoradiotherapy Superior to Radiotherapy Alone in Women With High-Risk Endometrial Cancer
Link to a detailed PDF: https://www.thelancet.com/action/showPdf?pii=S1470-2045(19)30395-X TAKE-HOME MESSAGE * This post hoc survival analysis of a phase III trial was designed to compare outcomes following treatment with adjuvant chemoradiotherapy and radiotherapy versus radiotherapy alone among women with high-risk…
New clinical trial for advanced or abdominal/pelvic recurrent UPSC
https://clinicaltrials.gov/ct2/show/NCT04030000 This trial will be opening soon. It's open label. It will utilize intraperitoneal chemo combined with radiation, in a protocol similar to what is done for serous ovarian cancer. It appears that the oncologist running this is in Manhasset, on Long Island, in Nassau County. I…
Ovarian Torsion
I was diagnosed with endometrial adenocarcinom, Grade 1 Stage 1A with a robotic hysterectomy in November 2018, with no further treatment. Last week I went to the emergency room with lower right abdominal pain. It turned out I had an ovarian torsion and had emergency surgery to remove the enlarged ovary that had a large…
Article on lymphadenectomy
This is a link to a good recent article on the deicsion to perform lymphadenectomy for endometrial cancer https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6189438/
Insomnia
Hey Ladies Any suggestions on how to get through insomnia ? Only sleeping 2 hours a night for weeks now, Reluctantly got a script for ambien this week, 3 nights later and it's not helping, I've been doing meditation for deep sleep from you tube but relaxes me but doesn't put me to sleep. I hate putting things in my body so…
Hair growing back
I forgot to mention that my chemo went fairly well although I realize we are all different and react differently to it. Just wanted to let anyone just starting that it wasn't as bad as I thought it would be. Take the nausea meds and keep food on your stomach even if it is crackers or dry toast. On the days where your taste…
DOES CHEMO DESTROY OUR TEETH?
Saw dentist two months before start of sandwich treatment but not since. It's been about a year and know I should go in for cleaning and checkup. But am afraid to face likely need for major work as a result of chemo; have heard that chemo can wreak havoc on our mouths. Can any of you report what kind of dental problems you…
Dandruff
Dandruff? In a post on uterine cancer? Well, here it goes: When I entered puberty I began to have dandruff. I did all the usual things and used all the OTC products. It continued to get worse and worse during college and grad school and my first positions. It got in my eyebrows, even. I'm sure any number of you know what…
Treatment Update: Torisel
I'll be having my third weekly round of Torisel in a couple of days and thought it was time to post an update. Torisel is a brand name for the drug Temsirolimus, which is administered via IV. (Everolimus is the version that's taken orally.) They're all versions of an mTOR inhibitor, geared to my genetic PI3K mutation. Thus…
Uterine cancer metastasized to lung - looking for others to talk to with similar condition
My uterine cancer metastasized to my lungs. I went in for bronchitis; otherwise I would still be walking around with it spreading by the day, as I am in otherwise excellent health. I start chemo. on Friday. Just wanted to enter the forum and be part of the community. I have a fantastic support team with family and friends…
Sailing along
Ah, the joys of remission! Hair is growing in. The soft feathery curly short "pixie" look is actually kinda cute. The only chemo I'm on is Herceptin, every 3 weeks, and it doesn't seem to have any side effects for me. My weight is stable - not losing, not gaining, which is reassuring. I would like to lose about 30 lbs…
endometrial cancer 3c
I was diagnosed with 3C1 grade 1 in January 2018 and it was highly recommended that I do both chemo and radiation. I chose to do only the 6 rounds of chemo. Chemo was completed end of May 2018. I am currently in remission. If you had a similar diagnosis - What did you decide to do for chemo/radiation treatment after…
Constipation
i was diagnosed with stage 1B and grade 2 endo cx in August 2018. I had Brachy therapy. About 2 months ago I started experiencing constipation. 3 weeks ago had surgery for a bowel obstruction. The bowel some how looped itself around the small intestine. No mass. I also had some abhesions which were removed. Prior to the…
Papillary Endometroid Adenocarcinoma of Intermediate Grade
Diagnosis on report they sent me-Papillary Endometroid Adenocarcinoma of Intermediate Grade. So Grade 2 for sure, unsure of stage until after I have the lymphadenectomy which is scheduled for next Friday 8/9. I don't know why, but I'm really nervous about having all of the lymph nodes in my pelvic region removed. I am…
tumor pain
Recently (about 4 months) I have been having pain from tumors growing and pressing on nerves, pulling on muscles, etc. Most of my tumors are in my abdomen. This has interfered with me be able to be as physically active as I would like to be sometimes. I've been taking percocet which has helped with the stabbing burning…
Treatment 1 Done...thanks to u all getting me through it!
I can't thank you all for helping me get through my first treatment! Thanks to all your support and encouragement as well as what to expect I was able to walk in the Center and receive my treatment. Not to say there wasn't many tears out in the parking lot. And a plea with my husband to take me to the ocean and not inside.…
Lymphedema
5 months post chemo and dealing with lymphedema. Have any of you ladies had lymphedema this soon after chemo? I know if you start physical therapy right away it is easier to treat. Swelling in my left foot and leg. Will have leg wraps and compression garments and exercise should help. And eating a balanced diet along with…
Fruit paste for constipation
I am an RN and I worked in a family pracitce office for the last few years. Constipation was one of the things I advised patients about. This is a recipe I copied from another office. The patients told me is was really effective. It's worth a try and they said it tastes good too. Fruit Paste Recipe 8 oz dried prunes 8 oz…
Just diagnosed, high anxiety
I am 68 years old and was just diagnosed. First meeting with oncologist is next week. But I'm crazy anxious about the whole thing. And because I live alone, I am especially concerned about the recovery after the hysterectomy --- how painful, how long, how much help I will need at home. I would be grateful for any input or…
Cheese Update
I heard from Cheese today and it's not good. Her run of bad luck just goes on and on... She finally got out of the hospital and headed off to the Maryland shore, where she last posted. Unbelievably, when they took the stent out (that damn stent!) she got sepsis, resulting in a 2-hour ambulance ride and an emergency…
Lymph node removal? Molecular profiling?
I am having my surgery in 2.5 weeks and, until them, I'm away from home. Consequently, my initial diagnosis came to me via phone and the only conversation I've had with my surgeon was also via phone. I was hoping you ladies might be able to help me with some questions I have. I have grade 1 endometrioid adenocarcinoma and…
Had no signs until after biopsy done
I recently had a biopsy. Diagnosed with Uterine Cancer. The pathology report states grade 2/3 Endometrium Adenocarcinom. I have shown no signes until a week after the biopsy was done. Anyone have similar experience? I go to the oncologist this coming Tuesday.
USPC recurrence
Hi gals. Have any of you with UPSC not have a recurrence? It seems like it inevitable, to get one or more recurrences. :( would be great to hear from people that didn't have a recurrence (yet) :)
Lulu update
Well darn it......... the last CT scan has shown that the darn stupid beasts have progressed so I have a call into my gyn/onc about an appt to discuss another clinical trial or ???plan B. I had a feeling the scans weren't going to be positive news, especially when my CA 125 marker went up 15 points after dropping…

Uterine/Endometrial Cancer

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