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How many Drs.?
I'm just curious if your gyn/oncologist was also your surgeon? I just assumed that was the way it is for everyone, but my friend just got diagnosed with breast cancer and she has an oncologist and a surgeon?
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Pathology question
I decided to put all my papers and folders about my surgery and everything away in a drawer, and I saw my pathology report again. Is anyone on here good at deciphering these? I never did fully understand what this part meant and what I did understand, I have now forgotten. LOL. It is the immunohistochemical study of the…
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Another Lynch Article
https://www.oncnursingnews.com/web-exclusives/a-positive-outlook-for-lynch-syndrome-related-cancers This one talks about a vaccine.
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Virotherapy
Anyone heard of virotherapy?
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Unexpected
I was diagnosed with uterine/endometrial cancer and I had to have a hysterectomy...this was completely unexpected and I really don’t know how to deal with it...the emotional toll it’s taken on me is not something that I was prepared for...I feel so alone and no one in my family understands my bouts of sadness and…
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Update
I'm overdue to post an update but have been procrastinating because the news isn't so good, and because the field keeps shifting under me. Every time I think I know what to report, something new comes along. Seven weeks ago, I was hospitalized for 5 days with DVT in my left leg (not to be confused with lymphedema in my…
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Two articles of interest
Reulators cite care deficiencies at MD Anderson after patient's adverse event. https://www.houstonchronicle.com/news/houston-texas/houston/article/Regulators-cite-care-deficiencies-at-MD-Anderson-13969785.php This was a scary article to read as it seems like the deficiencies were major for Medicare to get involved.…
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Marijuana to help with sleep
A friend with situation anxiety told me she's been smoking a very small amount of marijuana to get to sleep. She says it's very helpful and has no side effects on the next day. She doesn't use it daily. I'm having trouble falling asleep so started taking an Ativan. I still lie awake for 2-3 hours but at least it's peaceful…
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Estrogen Vaginal Cream
I had Garden Variety Endometrial Cancer 9 years ago. Everything has been fine and dandy since and surgery was the only treatment need. I also had breast cancer and was treated with chemo and anti-estrogen (Tamoxifen and Arimidex) after. For the last couple of years I have been having frequent bladder "infections"…
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Finding a reason
I have a friend who is also a close neighbor, and we live in the country, so by close I mean about 4 miles down the road. She has just been diagnosed with breast cancer, she has an agressive kind and is HER positive. She is waiting for a surgery date and then will be having both chemo and radiation. Although she is…
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No hat, no wig, no problem??
My hair has come back to the point that I am almost brave enough to go out with no wig. This is great! However, there are people I see that don't realize I have been wearing a wig, don't know I had chemo and all that. One lady even said she liked my new haircut, I didn't tell her it was a wig LOL. So how do I go out with…
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NRG Oncology trial sets new standard regimen for women with uterine carcinosarcomas (MMMT)
Results from the phase III NRG Oncology clinical trial GOG 0261 comparing paclitaxel plus carboplatin (PC) to paclitaxel plus ifosfamide (PI) in women with stage I-IV, recurrent carcinosarcoma of the uterus or ovary, indicate that the PC combination treatment should be considered a standard of care for this patient…
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Hysterectomy and colon cancer
Hi,I usually read posts on colon cancer forum,but maybe I can get some opinion or advice here. I have a rectosigmoid colon cancer stage3 (T4N2),low grade,which had been treated with chemo (Xeloda) and radiation this spring. Because CT scan (done in February,before starting the treatment) showed the tumor being invasive…
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abdominal discomfort and now vomiting, 6 weeks out from radiation
I finished pelvic IMRT external beam radiation for UPSC/clear cell about 6 weeks ago, finished chemo about 4 months ago. The diarrhea is intermittent, but for the past week or two, I've also had increasing GI discomfort whenever I eat (and I eat a very low fiber diet). Now, for the first time, I'm vomiting after having…
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Cystectomy
hello all, does any one have info about radiation cystitis and cystectomy (bladder removal). Any and all information would be greatly appreciateD. Thank you in advance. Best wishes to all cancer survivors. Thank you in advance!
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Still thinking of you CQ
It's that time of day that I do a lot of meditating and praying and just wanted to let you know that I think about how you are doing all of the time. Hope all is going well with your recovery.
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CBD oil
While I dropped my consumerlab.com subscription some time ago because I'm not adding new supplements to my regime at this time, I still get emails from them and this one about CBD oil caught my eye because I remember a prior discussion about black seed oil and cytochrome p450 enzymes. Below is from the email I recieved:…
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Dilation after brachytherapy
Today I finished my third and last brachytherapy. I found out about dilators here and during the second visit, I talked to the nurse about it. She filled out some papers for the doctor, but didn't give anything to me. The radiologist will see me in a month. So, I have no dilators and I'm afraid a month is too long to start…
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Happy day
Have to share my joy that I got my port out today! Finished chemo on Feb 15, finished 3 rounds of brachytherapy on April 1. My oncology/gyn said I could loose the port and I am so relieved to have it gone! It was a constant reminder of chemo, it itched sometimes and I hated that metal lump in my chest. I know some choose…
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Dear neuropathy friends,
Dear neuropathy friends, What is everyone doing to help with their neuropathy. I have a slight dullness in my fingertips; but, my feet are wicked. I am taking gabapentin 300 mg 3 times a day, it may or may not be helping. My neuropathy is a bit better than it was in the beginning, I no longer get shooting pains up to my…
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Affiliate Hospitals
And that’s why I didn’t go to Cooper. https://www.cancertodaymag.org/Pages/cancer-talk/When-a-Top-Ranked-Cancer-Center-Comes-to-a-Hospital-Near-You.aspx
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Biopsy results
I have an appointment next Thursday to go over my results from my d&c I had done on the 23rd.but I’m getting nervous waiting.how long did you wait? Does that mean no news is good news
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Henry Lynch, celebrated as father of cancer genetics, dies at 91 (Lynch Syndrome)
Anyone diagnosed with Lynch Syndrome may find this obituary about the doctor who discovered the gene mutation interesting. And even those who don't have Lynch Syndrome may have benefited from his genetic cancer research. “Nobody believed me,” Dr. Lynch said. “But I knew we had something here. I knew we could potentially…
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Re: Good news regarding my tests
Hi Ladies: I just wanted to post some Good news. I had a second reoccurence of UPSC in the fall of 2016. I was originally diagnosed with stage 1 of UPSC in February of 2011. I only had an 18% chance of it reoccurring on me which is very very low odds of a reoccurrence with stage 1. My oncologist has been sending me for…
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Recurrence of diarrhea after improvement following completion of radiation treatment - normal?
I thought I was out of the woods, but I guess not. I finished pelvic external beam IMRT about a month ago for UPSC/clear cell, isolated tumor cells found in one of the two sentinel nodes. I had horrible diarrhea during radiation treatment after the first two weeks. About two weeks after completion of treatment, the…
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Avastin and Avastin/Doxil Side Effects
Hi Everyone, I am contemplating either Avastin alone or Avastin/Doxil as my next step along this journey. The published side effect look awful. I am looking for first hand information from you ladies that you might be willing to share on how well tolerated these drugs are......thanks.
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How soon is soon?
3 months ago I experienced heavy uterine bleeding. It lasted for 2 weeks. There was a gap of 3 weeks, then I experienced it again for 2 more weeks. There was a gap of 3 weeks, during which I made an appt with an ob gyn. I wasn't able to see her for a few weeks, and by the time I did, I'd had a 3rd bout of 2 weeks of…
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Herceptin UPSC
Hi All, I was hoping those of you who have been on Herceptin would chime in and share your experience. With the support of many of you on this board, I pushed for genetic testing for my mother who has recurrent UPSC and is being treated at Kaiser. Her results came back Her2/neu positive and she has been approved for…
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Good news for me bad for a friend
Hello from Texas, it has been while since I posted. Still NED August will be 8 years from MMMT stage 3 grade 3 with no recurrance. So that is my Good news. Bad news for my friend Jon, just had surgery for a brain tumor, very agressive, radiation starts tomorrow along with chemo pills. Father of 4 amazing boys all still in…
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Looking for Suggestions on dealing with Metal Taste in Mouth
Assuming many who have had treatments have suffered from the side effect of the metal taste in the mouth that will not go away. Any suggestions on how you are dealing with that or dealt with this in the past are appreciated!