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Uterine/Endometrial Cancer

Sunrise19 update
Realize that I have taken way too long for an update, but seems things go up, down, sideways and always appts down the road. And that's the way this is gonna be. Then I read all the recent updates and questions and realize that there are so many more complicated issues ... and this will hopefully be simple. Dear Bluebird1…
Wigsbuy?
I was just wondering if anyone has ordered a wig from wigsbuy.com? I have already gotten a wig from a wonderful lady at a nearby salon . She did a great job matching it to my current hair but as I tried wearing it around the house it's long and hot in the summer heat.I found one on wigsbuy online but I wasn't sure how the…
feelings are a funny thing
Went for my second check-up since chemo ended. All is good! Will have another in 3 months and a CT scan at that time. I was just feeling differant about this visit and the way my Dr. was. It's kind of funny, almost like when you were a kid in school and you really liked your teacher, but then the next year she had a whole…
4 Years since cancer and all good
Hi, to give a bit of encouragement to those still going through treatment I wanted to report that I just had my 4 year checkup for stage IIIC endometrial cancer (grade 2) and all is well at this point. On June 30, 2015 I had a hysterectomy, and then on July 30, 2015 I began six months of a sandwich treatment (carbo-taxol,…
NCCN Guidelines
https://www.nccn.org/patients/guidelines/uterine/50/index.html This is a link to a very good source of information on uterine cancer. I just thought I would post it again, as there are some new members.
neuropathy pain and Quell
Saw my podiatrist today about a bunion but also mentioned the pain in toes from the chemo induced neuropathy. She told me about a device called Quell that one can wear on the leg to reduce pain. I was wondering if any of you have used this and if it was any help. I have used a TIN some and it does help when it is on, but…
Arthritis
Have anyone had that due to chemo? I've been experiencing pains in fingers, hands and ankles. It's not neuropathy,as I had that during chemo and this feels different. It's worse in the morning and getting somewhat better during the day. I'm almost 5 months out of treatment of stage 4 UPSC. still waiting on the NED part as…
Aching legs
I am getting close to 5 months from last chemo, 4 months from Brachy. I know joint and muscle pain can be a side effect of chemo, but I wondered about how long that lasts on average. I have aching legs a lot of the time, and my hips hurt and are kind of weak. I am dealing with tendonitis in my ankle, and I also have…
Treatment clothing
I was shopping for shoes the other day and found "treatment wear" clothing on the Zappos website under their Zappos Adaptive line. I was fascinated; maybe there's a lot of stuff out there like this and I just didn't know about it? Since I generally wear pullover shirts, chemo-day clothes can be a challenge for me but this…
New clinical trial from The University of Colorado Cancer Center
Endometrial cancer clinical trial aims to pave the way for practice-changing therapy https://coloradocancerblogs.org/endometrial-cancer-clinical-trial-aims-to-pave-the-way-for-practice-changing-therapy/ “We are excited to be one of the first cancer centers in the nation to offer this therapy to our patients,” says Bradley…
Stent Update
I've had my stent for three weeks now and am happy to report no problems thus far. To recap, they tried a nephrostomy tube (aka pee bag) but couldn't insert it because the tumor was in the way. The urologist gave 30% odds of being able to insert a stent; with odds so low I thought why even try? Plus, I was really, really…
Cancer Research Funding Article
It's been mentioned on the board before, but this new article supports the observations that research on endometrial cancer, along with colorectal, pancreatic, ovarian, cervical, brain and lung cancer are all poorly funded, considering how frequently they occur and/or how many people they kill.…
Endometrial Stage 1
I was just diagnosed last week with stage one Endometrial Cancer. I am anxiously waiting to hear from the GYN oncologist. It’s been almost a week when I was told it would only take 72 hours. I already called my GYN and they are trying to move things all along. I haven’t told a lot of people yet however some of them I have…
Very Low White Cells
My blood work 2 weeks ago had my white cells at 190. Because of that My Chemo Dr. said I might not get my last (I hope) Chemo treatment. Has anyone had their Chemo stopped because of their low white cells issue? Dr. did give me a lower dosage in my Chemo. I'll get my blood work done tomorrow & next week to see if I'll get…
CRAZY HAIR
OK, so we all wait for hair after treatment ends: and, mine is finally coming in, yay. But.....it is now a mixture of white and gray, before I always colored it dark brown, the color of my youth, I loved it, it was thick, managable and I loved it. Now...it is a little over an inch long and I can't do anything with it,…
DM_K
How are you doing? I see you haven't posted since April. Did you ever get on a clinical trial?
Weight loss after hysterectomy
Did anybody experience weight loss after your hysterectomy? I had gained a lot of weight during the years and ended up at 157 lbs before the hysterectomy. I wanted to lose the weight and go back to what I used to be long ago (about 130 lbs) but somehow I couldn't do it. Then this cancer diagnosis became everything and had…
Hair Loss
Hi Everyone, This is my first post. Have had 4 chemos. The last one was 2 wks ago & started the Taxol & Caboplatin. Have 3 more Chemos coming up every 3 wks.Today brushing my hair, twice, with lots of hair coming out on the brush. Guess this is the beginning of hair loss. Not worried about hair loss, it'll grow back.Have…
How many Drs.?
I'm just curious if your gyn/oncologist was also your surgeon? I just assumed that was the way it is for everyone, but my friend just got diagnosed with breast cancer and she has an oncologist and a surgeon?
Pathology question
I decided to put all my papers and folders about my surgery and everything away in a drawer, and I saw my pathology report again. Is anyone on here good at deciphering these? I never did fully understand what this part meant and what I did understand, I have now forgotten. LOL. It is the immunohistochemical study of the…
Another Lynch Article
https://www.oncnursingnews.com/web-exclusives/a-positive-outlook-for-lynch-syndrome-related-cancers This one talks about a vaccine.
Virotherapy
Anyone heard of virotherapy?
Unexpected
I was diagnosed with uterine/endometrial cancer and I had to have a hysterectomy...this was completely unexpected and I really don’t know how to deal with it...the emotional toll it’s taken on me is not something that I was prepared for...I feel so alone and no one in my family understands my bouts of sadness and…
Update
I'm overdue to post an update but have been procrastinating because the news isn't so good, and because the field keeps shifting under me. Every time I think I know what to report, something new comes along. Seven weeks ago, I was hospitalized for 5 days with DVT in my left leg (not to be confused with lymphedema in my…
Two articles of interest
Reulators cite care deficiencies at MD Anderson after patient's adverse event. https://www.houstonchronicle.com/news/houston-texas/houston/article/Regulators-cite-care-deficiencies-at-MD-Anderson-13969785.php This was a scary article to read as it seems like the deficiencies were major for Medicare to get involved.…
Marijuana to help with sleep
A friend with situation anxiety told me she's been smoking a very small amount of marijuana to get to sleep. She says it's very helpful and has no side effects on the next day. She doesn't use it daily. I'm having trouble falling asleep so started taking an Ativan. I still lie awake for 2-3 hours but at least it's peaceful…
Estrogen Vaginal Cream
I had Garden Variety Endometrial Cancer 9 years ago. Everything has been fine and dandy since and surgery was the only treatment need. I also had breast cancer and was treated with chemo and anti-estrogen (Tamoxifen and Arimidex) after. For the last couple of years I have been having frequent bladder "infections"…
Finding a reason
I have a friend who is also a close neighbor, and we live in the country, so by close I mean about 4 miles down the road. She has just been diagnosed with breast cancer, she has an agressive kind and is HER positive. She is waiting for a surgery date and then will be having both chemo and radiation. Although she is…
No hat, no wig, no problem??
My hair has come back to the point that I am almost brave enough to go out with no wig. This is great! However, there are people I see that don't realize I have been wearing a wig, don't know I had chemo and all that. One lady even said she liked my new haircut, I didn't tell her it was a wig LOL. So how do I go out with…
NRG Oncology trial sets new standard regimen for women with uterine carcinosarcomas (MMMT)
Results from the phase III NRG Oncology clinical trial GOG 0261 comparing paclitaxel plus carboplatin (PC) to paclitaxel plus ifosfamide (PI) in women with stage I-IV, recurrent carcinosarcoma of the uterus or ovary, indicate that the PC combination treatment should be considered a standard of care for this patient…

Uterine/Endometrial Cancer

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