Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Uterine/Endometrial Cancer

Osteoporosis treatments
Hola! I was wondering if anyone is going through treatment for osteoporosis. I developed osteoporosis after having 18 treatments of chemo six years ago. I am currently taking Risedronate Sodium 150 MG Oral Tablet once a month, but I feel like I am developing a side effect: acid reflux. My doctor wants to do a bone density…
Phase I Clinical Trial
I started my phase I clinical trial a week ago. The trial consists of taking 2 small chemo pills a day and an immunotherapy infusion every 3 weeks. The name of the chemo drug is Cabozantinib (XL 184) and my immunotherapy is anti-B7-H4 antibody. The chemo drug is used for other cancers, including USC I believe, I want to…
Papillary Serous Endometrial Cancer
My mother who is 74 was diagnosed with stage 3B papillary Serous Endometrial Cancer. She has completed the 6 cycles of chemotherapy and is now on Maintenance every 3 weeks. Her tumor was sent in to a Genome Fundation to see if she qualifies for other cutting edge treatments. Doctor told us that as of about a month ago, the…
Vaginal Surgery? And Radiation question related
I am 63 now. In 2017 I was diagnosed with Endometrial Adenocarcinoma. I had been spotting and bleeding for quite a while prior to discovering this news, and appeared, even at sixty, to have period aches and symptoms. My life marched on, as I was overseas caring for my Mum, so my health, while in need of attention, as a…
NCCN Guidelines
Link again for new members. https://www.nccn.org/patients/guidelines/uterine/50/index.html Guidelines for treatment.
In hospital for Look See
Surprise for me at my 3 mo. exam. CT showed no cancer anywhere but alas it did show a golf ball size sac of fluid at the vaginal cuff. In order to have a pelvic w/o excessive bleeding due to blood thinners, had to go off the Eliqus and then 48 hrs. later, have pelvic. Due to bleeding when the sac was punctured, gyn/onc…
immunotherapy complications
For the past two months I've been sick on and off as a result of side effects from the clinical trial of a new immunotherapy drug. I was removed from the trial in August after the cancer continued to progress. Then I spent some time in the hospital with what was hypothyroidism. Went on levothyroxine. I went on a dream trip…
immunotherapy did not work for me/ everolimus?
I had a CT scan earlier this week and met with my study oncologist. Unfortunately, for me the immunotherapy drug I was on did not work. My cancer has continued to progress. While not surprising to find out, ( I could both feel and see some of the tumors growing) it was still very disappointing. This came on the heels of…
Beach Therapy and Living Life After Cancer...so far!
It’s been 6 months since my last chemo and radiation treatments. I felt so weak and awful for about 10 weeks after, tired, achy and wrung out. I was ,also, just an emotional mess. I had terrible neuropathy in my feet and slight neuropathy in my fingertips. I often thought that I may have beaten cancer, but, at a great cost…
CA125
Question about CA125 result. I just got back from my oncologist and my CA125 in March was 12 now today it is 16. My dr wants to have a scan just to be sure we aren't missing anything since I have no symptoms and have been finished with chemo since March 2017. I just had my port taken out today so now I am thinking I should…
weak legs.
I think I have mentioned this before, but has anyone else had leg problems after all the treatments are over? My last chemo was in Feb. followed by 3 brachytherapy treatments. I feel pretty much OK except my legs continue to give me problems. If I am on my feet for any amount of time my legs start aching and feel like they…
Interesting study about checkpoint inhibitors
This is just a preliminary study, but interesting. Checkpoint inhibitors include Keytruda (pembrolizumab). https://jamanetwork.com/journals/jamaoncology/article-abstract/2749683 September 12, 2019 Association of Prior Antibiotic Treatment With Survival and Response to Immune Checkpoint Inhibitor Therapy in Patients With…
Dry Scalp
Hi Ladies, I have just little peach fuzz left in my head. My scalp is very dry. My oncologist recommended using using Dove shampoo and conditioner for washing. Wondering if that's what I should be using and if I should be massaging with lotion. I'm a also told I should be massaging my scalp in general to keep my scalp…
Platelets down. Treatment delayed 1 week
Hi ladies I went to have my third treatment today and my platelet count was down to 40 so they had to delay treatment. Rescheduled for next week hoping that my accounts are backup has anyone experienced this? I can't believe that there isn't a shot or pill or something to boost your platelet count. They just informed me…
Radiation cystitis
hi all, just wondering if everyone has any treatment suggestions for radiation cystitits? happy holidays and best wishes to everyone
I am grateful for this group
This group has been a God send to me. I have learned so much on this forum. The women here are brave and compassionate, and funny. It is remarkable to be able to talk to women who have gone through and understand what you are going through. Thank you and God bless.
Zantac / Ranitidine contamination uterine cancer link
I just saw an article on MSNBC about the same contamination found in some high blood pressure medicine has now been found in common heartburn medication. It specifically mentions uterine and colon cancer associated with the contaminant. Of course made in China. I am sure there is more details to come.
Chemo and the sun
Hi all, I was just wondering if when having chemo therapy do u need to avoid the sun? My appt to find out when I will begin therapy is next week and I'm sure they'll let me know but thought I'd ask here too. It's hot where I live and I'm anxious for when I feel well enough what my limitations are going to be. Thank you
Clinical Trial Decisions- No trial necessary - FDA approves treatment
Some of you all have done clinical trials and some of you have chosen against them. I now find myself in the position of having to make this decision. Brief synopsis: Diagnosed in 2012, Stage Ia, Grade 1 endometrial cancer. Surgery followed by brachytherapy. CT scan for hip pain two years later, negative. After six years,…
I am furious with my new primary care doctor!
I hate having to find a new primary care physician! Especially with us moving from Wisconsin to Florida where you don't have a lot of friends and family to give you recommendations. I started seeing a doctor near our home here when we switched insurance last April. The first time my husband and I went together to meet him…
Helpful program
Is anyone listening to NPR On Point right now? The discussion is "Life After Surviving Cancer" and covers " On the other side of cancer treatment, survivors can face new challenges and fears. We look at ways to help." This subject often comes up here andI found the program most interesting. If you missed it, the site said…
Chemo Odor 1+ years after last chemo?
Hello, it has been a while since I have posted, but I am experiencing something weird, and I am hoping someone can help. I was diagnosed with stage III endometrial adenocarcinoma and had a hysterectomy, 6 rounds of Taxol/carboplatin, and 25 days of radiation. I have been in remission since May 2018. While undergoing chemo…
anyone heard of this person?
Has anyone ever heard of a Dr. Mark Stengler? Is he for real or another scamer? Thoughts anyone?
cisplatin and radiation
Hi Ladies, next week I will begin my 25 radiation treatments with concurrent weeks 1 and 4 Cisplatin. I'm feeling very anxious about the cisplatin side effects. Does the anitnausea med help minimize the nausea and vomiting. I did not feel nauseous at all with the Carbo/Taxol treatments I received. This scares me to think I…
The Unusual Tale of the Roaming Gallstones
I love this story from NY Times Diagnosis series. They also have a Netflix series based on a few selected cases from their articles. If you have not seen it yet I would highly recommend it. A doctor (apparently a consultant to one of my favorite shows, House) is trying to solve medical mysteries with help from strangers.…
First Post
I have read these posts a lot over the last 9 plus months, thank you so much for all of the information you lovely sister warriors have posted, you have been my lifeline. I was diagnosed with UPSC in September, had a hysterectomy in October, began 6 rounds of carbo/taxol in November, 38 rounds radiation in January (32…
Serous 3a any trials going on you’ve heard about?
Is anyone aware of trials for treatment of reoccurring serous cancer? So far I am NED after surgery chemo and radiation in 2017 but I am trying to keep up on the latest just in case. I am unaware of trials going on for new treatments for serous uterine cancer. Any news?
Bile duct obstruction
I came home early from my dream vacation to Prague because of symptoms I have been experiencing for three weeks which have progressively gotten worse. I was admitted to the hospital last night and found out I have a bile duct obstruction. Then I logged on to see what has been going on the past two weeks and was surprised…
Interesting article about dying at home
I‘ve already decided that when the time comes I’m going to an in-patient hospice. I understand Medicare fights you on it. Perhaps my long termed care insurance would cover. I know my husband could not deal with the stress of caring for me at home nor would I want to burden him with not only the with the day to day care but…
Stool caliber after radiation
It's four months since I finished pelvic IMRT radiation, and I'm finally mostly over the diarrhea. I'm not back to how I was before, but at least I can go out, do things, without worrying so much about proximity to a bathroom. But I'm a bit worried. The diameter of the formed stool is so small! The stools are not as wide…

Uterine/Endometrial Cancer

Discussion List

Discussion Boards