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Uterine/Endometrial Cancer

Checking in after quite a while
Hello, everyone - I've been gone from the forum for quite a while, taking a break from talking and thinking constantly about cancer. For those who have joined the forum since I was here last, I was diagnosed almost two years ago with Stage IV, Grade 1 endometrioid adenocarcinoma. I'll update my forum profile shortly to…
DeMaus Update
Dear sisters. I heard from our dear Bobbi. She is at home being cared for by dear friends and hospice. Unfortunately she is still suffering a lot of pain. So please pray for her pain to be relieved and her mind to be at peace. Also pray for those who are caring for her. I know you'll wrap your virtual arms around her.
Just diagnosed
I am 76 years old (soon to be 77) and have just been diagnosed with high grade endometrial adenocarcinoma, serous subtype. I am still trying to understand all the terminology, but from what I can find out, it's not a common type of uterine cancer and is aggressive--meaning, I think, that it comes back. I have no symptoms…
3 years
I Just got back from my 3 year checkup. I had a vaginal exam and Doc said things look good. The best part about this is I only need exams every six months. I am not seeing rhe doctor I saw today for a year. It was nice to say that to him. After a while it gets to be a pain making and remembering these apointments. Its…
clear vaginal discharge after external pelvic radiation - normal?
I finished external beam pelvic radiation which included the vagina (no brachy) about 5 months ago. I'm feeling MUCH better. Bowel function is greatly improved. My Gyn-Onc did a careful look-see internal exam about 3 weeks ago, said everything is fine. My Ca-125 is finally under ten (barely) for the first time since I was…
Hope & Gratitude
I don't post anymore, but I'm still here. I read updates from time to time to see how everyone is doing and think of all of you ladies often. Today marks one year cancer free for me. During those dark times many of you reached out to me and helped me when I desperately needed someone who could "understand". My husband and…
5 years, still NED from metastatic EC
It has now been five years since my D&C and official diagnosis of Stage 3b, Grade 3, endometrioid adenocarcinoma in Oct 2015. Grade 3 endometrioid is put in the same category as serous carcinoma, the most aggressive type of endometrial cancer. Two months after my hysterectomy my cancer metastasized to my liver, spleen,…
der Maus Update
der Maus asked me to post this update on her behalf. She'd been feeling bad for quite a while and was admitted to the hospital about 10 days ago. Her persistent tumor was blocking bile ducts and the duodenum, so her systems were backed up – which is why she felt so terrible. The first attempt at bile duct stenting was…
derMaus is BACK
Just in case you did not realize that Bobbi is back, go to the end of cmb's derMaus update and see her message. I am dancing a jig and singing happy songs to see that post. So glad she is feeling good enough to send us that message. Thank you, Bobbi, we love you !!!!
A little good news
Dear sisters, This morning I met my new gyn/onc to receive the results of last week's PET scan and have a physical exam. I like her. She is no-nonsense and answers the hard questions without flinching. Today she had good news. Both exams indicated NED. With a stage IVB grade 2 diagnosis, it feels like a miracle from our…
UTROSCT
Hi everyone. I'm in the UK and trying to find anyone who has been diagnosed with a Uterine Tumour Resembling Ovarian Sex Cord Tumour (UTROSCT) I had Breast Cancer in 2009 and following treatment was put on Tamoxifen (initially for 5 years, but during my treatment UK medical thinking was revised to giving Tamoxifen for 10…
evolo58, how are you?
She hasn't been on the board since July. Is anyone in touch? Veronica
Has anyone been in contact with Dermaus (Bobbi)?
I'm really worried about Bobbi. I see she hasn't been on the board since 9-23-19. She's always answered my emails before, but the last few....nothing. Hopefully, she's just resting and recuperating. Love, Eldri
To return to work or not return that is the question?
Hi ladies oh, I probably know the answer to this question but throwing it out there anyways. One doctor is saying I can work intermittently when I'm feeling good and other says she highly advises against it. I need to make a decision soon as I work as a teaching assistant and in two weeks my school year begins and my…
Lesions after radiation
I’m almost 2 years out from radiation. However I’m now getting open lesions. It started as just small red spots which was treated with Augmented Ointment. it took care of the red spots but now I’ve developed open lesions which are ext painful with the pain running down my leg. Has anyone else experienced this? Any…
Taxotere
Heard back from the oncologist today. They are going to switch me to Taxotere since I’m reacting to the Taxol. Anyone have experience with it ?
Complex Hyperplasia with Atypia/**New Diagnosis Post Op - Endometrial Adenocarcinoma Stage 1-A
Hello All! I am obviously new here! Hoping that all of you are well in spirit and fighting with all of your might!! I never thought the day would come that I would be worried about cancer! I have been having extremely heavy periods and going through all signs of perimenopause - sleeplessness, weight gain in my belly;…
Pathology report not so good from Look See
My onc doc just called with the path report. There was UPSC tissue within the clotted blood mass. She cleaned the vagina out so all growth is removed for now. She suggested we wait and see what the next visit shows as it took almost a year to show up again. If there is regrowth, she said we would talk treatment but for…
Kanjinti (biosimilar Herceptin drug)
Hi All, My mother has just been informed that all patients currently on Herceptin will be switched to this new biosimilar drug, Kanjinti. It was recently FDA approved for HER2 positive patients on Herecptin. Kaiser has adopted it and will switch all patients (including breast cancer) to this new drug. I'm unfamiliar with…
Osteoporosis treatments
Hola! I was wondering if anyone is going through treatment for osteoporosis. I developed osteoporosis after having 18 treatments of chemo six years ago. I am currently taking Risedronate Sodium 150 MG Oral Tablet once a month, but I feel like I am developing a side effect: acid reflux. My doctor wants to do a bone density…
Phase I Clinical Trial
I started my phase I clinical trial a week ago. The trial consists of taking 2 small chemo pills a day and an immunotherapy infusion every 3 weeks. The name of the chemo drug is Cabozantinib (XL 184) and my immunotherapy is anti-B7-H4 antibody. The chemo drug is used for other cancers, including USC I believe, I want to…
Papillary Serous Endometrial Cancer
My mother who is 74 was diagnosed with stage 3B papillary Serous Endometrial Cancer. She has completed the 6 cycles of chemotherapy and is now on Maintenance every 3 weeks. Her tumor was sent in to a Genome Fundation to see if she qualifies for other cutting edge treatments. Doctor told us that as of about a month ago, the…
Vaginal Surgery? And Radiation question related
I am 63 now. In 2017 I was diagnosed with Endometrial Adenocarcinoma. I had been spotting and bleeding for quite a while prior to discovering this news, and appeared, even at sixty, to have period aches and symptoms. My life marched on, as I was overseas caring for my Mum, so my health, while in need of attention, as a…
NCCN Guidelines
Link again for new members. https://www.nccn.org/patients/guidelines/uterine/50/index.html Guidelines for treatment.
In hospital for Look See
Surprise for me at my 3 mo. exam. CT showed no cancer anywhere but alas it did show a golf ball size sac of fluid at the vaginal cuff. In order to have a pelvic w/o excessive bleeding due to blood thinners, had to go off the Eliqus and then 48 hrs. later, have pelvic. Due to bleeding when the sac was punctured, gyn/onc…
immunotherapy complications
For the past two months I've been sick on and off as a result of side effects from the clinical trial of a new immunotherapy drug. I was removed from the trial in August after the cancer continued to progress. Then I spent some time in the hospital with what was hypothyroidism. Went on levothyroxine. I went on a dream trip…
immunotherapy did not work for me/ everolimus?
I had a CT scan earlier this week and met with my study oncologist. Unfortunately, for me the immunotherapy drug I was on did not work. My cancer has continued to progress. While not surprising to find out, ( I could both feel and see some of the tumors growing) it was still very disappointing. This came on the heels of…
Beach Therapy and Living Life After Cancer...so far!
It’s been 6 months since my last chemo and radiation treatments. I felt so weak and awful for about 10 weeks after, tired, achy and wrung out. I was ,also, just an emotional mess. I had terrible neuropathy in my feet and slight neuropathy in my fingertips. I often thought that I may have beaten cancer, but, at a great cost…
CA125
Question about CA125 result. I just got back from my oncologist and my CA125 in March was 12 now today it is 16. My dr wants to have a scan just to be sure we aren't missing anything since I have no symptoms and have been finished with chemo since March 2017. I just had my port taken out today so now I am thinking I should…
weak legs.
I think I have mentioned this before, but has anyone else had leg problems after all the treatments are over? My last chemo was in Feb. followed by 3 brachytherapy treatments. I feel pretty much OK except my legs continue to give me problems. If I am on my feet for any amount of time my legs start aching and feel like they…

Uterine/Endometrial Cancer

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