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Re: Remembering Pinky
To All the Ladies on this Board: I wanted to respond to a post regarding "Remembering Pinky". I probably and most definitely was one of Pinky's closest and best friends on this Uterine Board. She e-mailed me a few times in a WEEK and I returned ALL of her e-mails and we had a wonderful and very caring friendship. I have…
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It's always something... oncologist thinks I have splenic marginal zone lymphoma
Well, the enlarged spleen that the first gyn med oncologist said was due to cirrhosis (even though I don't drink, and had normal liver function), now appears to be splenic marginal zone lymphoma, a slow-growing lymphoma, and I've probably had it for at least 4 years. I'm having the PET/CT on Wednesday to see whether I'm…
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Vaginal brachytherapy experiences?
I was recently diagnosed with Stage 1a, Grade 2 endometrial adenocarcinoma. Though my surgical pathology only found grade 1 cells, the prior pathology from my D&C found grade 2 cells, so my final grade is 2. For this reason, along with other risk factors, they are prescribing brachytherapy, which is scheduled for 5…
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How is the virus impacting you?
We've always said that this is a safe place for us to vent our frustrations and fears, so I thought that I would start a thread where we could share with each other what's going on with us because of the coronavirus. We may have to do social distancing in our immediate environment, but we still have each other to lean on…
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Who would have thought?
I'm sitting here, listening to the "Best of the 60s" and thinking about my life. I was born in 1952, grew up in a small town, dirt poor, the oldest of five kids. We lived in a one-bedroom house and us kids slept upstairs in an unfinished attic. Our father beat us all along with our mother. I met my future husband when I…
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Timely article about cancer patients and Covid-19
Coronavirus means difficult, life-changing decisions for me and my cancer patients https://www.theguardian.com/society/2020/mar/19/cancer-patients-coronavirus-outbreak-difficult-decisions
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Just Have to Vent
So when last we talked I was starting to take Repatha for my cholesterol because God forbid I die of a heart attack instead of this damned cancer. I took one injection and by blood sugar spiked and was out of control. My endo vehemently denies its the Repatha but I know in my heart of hearts it is. He says although it's on…
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Moving forward
Hello, I havent posted on here for quite some time. I was. thinking of something today that i was hoping to post about. So some of you ladies who have been on here since i started know that my uterine cancer was the second cancer i was diagnosed with. My first cancer was Hogkins Lymphoma and was diagnosed with it about 25…
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Left bum discomfort after dilator and sex
I have not been having regular sex or using my dilator on a regular basis. I did not use my dilator for 4 months. When I did use it I ended up having some bleeding. I was checked out by my Mayo P.A., radiation onco doc and oncologist NP. They said everything looked Great. They stated the bleeding was from adhesions. Well,…
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Persistent Iron-deficiency Anemia
Two and one-half years out from 12 rounds of Carboplatin & Taxol chemotherapy, my blood work shows persistent iron-deficiency anemia. I have been taking 65 mg daily Iron for at least one year, together with Vitamin C, and I eat daily protein of red meat, chicken, fish, legumes, etc. and plenty of the "good" veggies. Since…
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New use for the box from the dilator
Okay, ladies, get ready for an off-color laugh. My husband was intrigued by the instructions written on the box for the dilator, "Use ten minutes daily". So he posed with the empty box - bet you can all guess where he put it! Incredible, how he can laugh in the face of this, and make me laugh too! I definitely married the…
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Coronavirus is deadly to us. Plan on self-isolating, very soon
I'll add more if site allows posting. It's been acting glitchy.
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Keytruda/Lenvima ---- DAY 1
Well, I was hoping that Donna Faye would be first to report any side effects from this Keytruda/Lenvima treatment. This combination was FDA approved for some Endometrial Cancers on September 17, 2019 so I would have thought several ladies would have been on this treatment My timeline: December 2017 - Hysterectomy and UPSC…
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Radiation only statistical data
I first would like to thank everyone for all of their posts to this website, as they have helped me greatly understand things that men will never experience. My wife has recently suffered many significant medical issues and just as we thought we were seeing the light at the end of the tunnel, we were hit with the…
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So Glad We're Back!
I was really getting worried when this board was down for so long! What if we lost each other forever?? I wish there was some way CSN could keep track of posters. When I don't see someone for a while, I just hope and pray that they are doing so well, they no longer need our support. I know some of us are connected on other…
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Re: Remembering Pinky
To All the Ladies on this Board: I wanted to respond to a post regarding "Remembering Pinky". I probably and most definitely was one of Pinky's closest and best friends on this Uterine Board. She e-mailed me a few times in a WEEK and I returned ALL of her e-mails and we had a wonderful and very caring friendship. I have…
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Radiation treatment after hysterectomy
I just had a robotic-assisted laproscopic hysterectomy 3 weeks ago. I was diagnosed with Stage 1B Grade 2-3 Endometrial Adenocarcinoma. My doctor recommended I have radiation therapy to prevent the recurrence of cancer. Is the radiation necessary? Does radiation damage healthy cells? Has anyone had this diagnosis, but not…
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Keytruda/Lenvima ---- DAY 2
I want to step back to day one when we met with the pharmacist to review both Keytruda and Lenvima. He said that Lenvima was a “super-charged Avastin” or “Avastin on steroids”. Now Little Annie had been on Avastin for six months and we think that is a “miracle” drug for what it has done. Last summer, Little Annie had five…
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Re: Remembering Pinky
To All the Ladies on this Board: I wanted to respond to a post regarding "Remembering Pinky". I probably and most definitely was one of Pinky's closest and best friends on this Uterine Board. She e-mailed me a few times in a WEEK and I returned ALL of her e-mails and we had a wonderful and very caring friendship. I have…
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And so it begins
The sun is finally rising but I have been awake for some hours. No matter how many times one faces the beginning of new treatment ( this is my 4th time), it is daunting. Once again I am beginning w/o a port. I do not know why this always is the way but it has been. (3 times I have had chemo more than 3 infusions and never…
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IMPORTANT for potential Lenvima/Keytruda users
This is very important information if you are thinking of going on this drug. I feel so fortunate to have an oncologist who will call a halt when she thinks it is needed. I thought I was to begin treatment today. HOWEVER, the pharmacologist came in and went through all the possible side effects and how I was not to wait if…
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For new members, treatment recommendations
https://www.mdanderson.org/content/dam/mdanderson/documents/for-physicians/algorithms/cancer-treatment/ca-treatment-endometrial-web-algorithm.pdf This is a good link to current treatment recommendations for endometrial cancer
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Remembering Pinky
It's kind of funny how different things happen to make me stop and think of those we've lost. For LuAnn, it's every time I see Eldri's sock monkey. News from Buffalo always makes me think of what happened to Lady Mox. Brissance's Peppermint Patti avatar. Today, all the snow from the storm just past has got me thinking of…
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P53 Positive
I met with my oncologist today and she was a little confused by my pathology report. It said I had endometrioid adenocarcinoma grade 3, but it also said I was p53 positive. She said those two things usually don't go together. p53 positive typically goes with serous carcinoma. Furthermore, it is usually with postmenopausal…
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Apologies
Ladies, please forgive me. I've been unable to keep up with the joys and trials here lately. My husband is retiring from the military in a couple weeks and we are packing up our quarters here in Texas and preparing to move across the country. I know I've missed welcoming new members and cheering others on, and I'm sorry.…
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Monitoring for a Cancer Recurrence
I’ve seen many women on this site develop recurrences who are no longer with us, Stage 1 cancer patients who have developed recurrences, people who have survived five years, seven years, who then developed recurrences and women who want to know what to look for to watch for a recurrence. The cancer industry says there are…
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Identifying who will/won't benefit from checkpoint therapy
This research is hot off the presses and I don't imagine the procedure mentioned in it is widely known or maybe even usable yet. But I wanted to flag it here for anyone of us who is now or may be down the road considering checkpoint therapy, a type of immunotherapy. I plan to pack it away in case my own onc brings up…
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Endo cancer and cardiovascular death
There's a new longitudinal study out, "Cancer Patients Are at Higher Risk of Dying from Heart Disease and Stroke." I think it's worth a read by all of us. A few takeaways that particularly caught my eye: "For some cancers, like breast, prostate, endometrial, and thyroid cancer, around half will die from cardiovascular…
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Surgical Menopause Symptom Management
Hi All! I've been off the board for awhile, but thought I'd ask others who may have some insight into managing the symptoms of early meopause without HRT or products with sources of Estrogen. Soon after my surgery in August and seems since brachytherapy to be worse-I started having daily pain in hands, feet and hips. It's…
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Keytruda
I don't use this forum (bad news is discourage here it seems), but I have posted updates abut being on Keytruda before. I have been on it for 3 1/2 years now before it was approved for MSI-H and so far so good. I now have opted for every 6 weeks and I have refused all other treatements except Anastrozole. Search for my…