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Uterine/Endometrial Cancer

IMPORTANT for potential Lenvima/Keytruda users
This is very important information if you are thinking of going on this drug. I feel so fortunate to have an oncologist who will call a halt when she thinks it is needed. I thought I was to begin treatment today. HOWEVER, the pharmacologist came in and went through all the possible side effects and how I was not to wait if…
For new members, treatment recommendations
https://www.mdanderson.org/content/dam/mdanderson/documents/for-physicians/algorithms/cancer-treatment/ca-treatment-endometrial-web-algorithm.pdf This is a good link to current treatment recommendations for endometrial cancer
Remembering Pinky
It's kind of funny how different things happen to make me stop and think of those we've lost. For LuAnn, it's every time I see Eldri's sock monkey. News from Buffalo always makes me think of what happened to Lady Mox. Brissance's Peppermint Patti avatar. Today, all the snow from the storm just past has got me thinking of…
P53 Positive
I met with my oncologist today and she was a little confused by my pathology report. It said I had endometrioid adenocarcinoma grade 3, but it also said I was p53 positive. She said those two things usually don't go together. p53 positive typically goes with serous carcinoma. Furthermore, it is usually with postmenopausal…
Apologies
Ladies, please forgive me. I've been unable to keep up with the joys and trials here lately. My husband is retiring from the military in a couple weeks and we are packing up our quarters here in Texas and preparing to move across the country. I know I've missed welcoming new members and cheering others on, and I'm sorry.…
Monitoring for a Cancer Recurrence
I’ve seen many women on this site develop recurrences who are no longer with us, Stage 1 cancer patients who have developed recurrences, people who have survived five years, seven years, who then developed recurrences and women who want to know what to look for to watch for a recurrence. The cancer industry says there are…
Identifying who will/won't benefit from checkpoint therapy
This research is hot off the presses and I don't imagine the procedure mentioned in it is widely known or maybe even usable yet. But I wanted to flag it here for anyone of us who is now or may be down the road considering checkpoint therapy, a type of immunotherapy. I plan to pack it away in case my own onc brings up…
Endo cancer and cardiovascular death
There's a new longitudinal study out, "Cancer Patients Are at Higher Risk of Dying from Heart Disease and Stroke." I think it's worth a read by all of us. A few takeaways that particularly caught my eye: "For some cancers, like breast, prostate, endometrial, and thyroid cancer, around half will die from cardiovascular…
Surgical Menopause Symptom Management
Hi All! I've been off the board for awhile, but thought I'd ask others who may have some insight into managing the symptoms of early meopause without HRT or products with sources of Estrogen. Soon after my surgery in August and seems since brachytherapy to be worse-I started having daily pain in hands, feet and hips. It's…
Keytruda
I don't use this forum (bad news is discourage here it seems), but I have posted updates abut being on Keytruda before. I have been on it for 3 1/2 years now before it was approved for MSI-H and so far so good. I now have opted for every 6 weeks and I have refused all other treatements except Anastrozole. Search for my…
Really scared
Hello to everyone. I have been reading through many stories and trying to take in as much information as possible to get me through this very difficult time. A few years ago my husband had kidney cancer and I was able to find a lot of info from these discussion boards. I am 46 and have been very regular with periods up…
Decision Made
I am one fortunate woman. Today my RN son called at 3 and we went over the latest notes on my treatment choices. Then my oncologist called at 6 pm after a long day in clinic and answered all my concerns. At 7p my daughter came and shared what her gyn friend had said. I have decided to go on the pembro/lenvatin regimen. I…
Can't be afraid to talk about cancer "down there"
Ladies, I want to share a story about an interaction I had with a young woman yesterday. Weather is supposed to be cold and crappy here in Indianapolis this weekend and I decided to eliminate one stop for Saturday and pop in to the grocery store on Friday on my way home from work. When I pushed the shopping cart back to my…
How fast does serous carcinoma spread
Waiting 3 weeks after biopsy to see oncologist After biopsy showed high grade serous carcinom And also atypical on pap. Is that typical? How fast does this spread? I first noticed very slight pinkish discharge in oct or nov 2019 ask doctor shortly after for GYN appointment to check it out... he didn’t get around to it till…
Biopsies vs. D&C
Hi, I was diagnosed with simple cystic hyperplasia in July 2019 along ovarian cysts based on a uterine biopsy. I'm 51 years old. My endometrial lining at the time was 12mm. I was told this has a very low chance of becoming malignant over time. My gynecologist put me on 80mg of megestrol acetate for 4 months. Then I…
A Tribute to Those Women We've Lost, but Not Forgotten
This page was created to memorialize the wonderful women on this board who did not survive their cancer. Although they are no longer here, we honor their journeys and appreciate their contributions to our collective knowledge about uterine cancer. This list focuses on those members with uterine cancer, but includes some…
N95 masks
Since some women here are on treatment, I hope. you have a supply of N95 masks just in case. Surgical masks don't work for viruses. I tried to buy some this week and they were out everywhere.
I had the 1st of 3 internal HDR brachy radiation today.
One down and 2 to go! I feel fine and a little silly for how much I've stressed worrying about this, dreading it even more than my chemo. It's quite an experience, and seems to be a little different for each of us who have it done. My total time at the hospital was 1 hour, and total time the radioactive material in my body…
Keytruda side effects
Hi, have any of you fine ladies been on Keytruda and could you please speak on side effects. thanks Little Annie
Waiting for treatment options
Many of you will relate to this. I am waiting for my daughter to pick me up to go to my oncology appt. to discuss the treatment options. We are well prepared as son emailed questions to her last week so she will know what we need to learn. Nevertheless, my stomach is upset and my BP is rising as it always does for these…
Ca-125 inching up
I'm worrying. My Ca-125 was around 30 at diagnosis, and years beforehand, had been in the low single digits, so I figured it was a valid predictor for me. It went up after surgery (1a UPSC/clear cell but isolated tumor cells found in one of the two sentinel nodes) to the 70s from post-op inflammation, but then slowly…
Free access to scientific articles
Access for patients – and other ways to get Elsevier articles without a subscription We’re updating our list of free and low-cost article access programs, including patient/caregiver access www.Elsevier.com While there are thousands of articles available via open access publishing, where an author or funder covers the…
When life throws you curveballs...
I enjoyed this article, perhaps because it captures my own journey to a new life. Nothing new for those of us who've been on this forum for a while, so I'm posting it mostly for new folks. This resonated with me: "The phrase ‘Now that you are back to normal …’ is like a knife to the heart. We cannot compare our current…
Confused about my options with Carcinosarcoma
I am a bit confused about my options. I was diagnosed 1a stage 3 aggression carcinosarcoma. within 2 weeks of diagnosis, I had a complete hysterectomy, lymphnodes removed, ovaries, everything gone. No cancer found anywhere but the uterine wall where there was a tumor (which I found odd that the CT scan never picked up, it…
New research news?
* Nearly 50 existing non-cancer drugs found to kill some cancer cell lines in the lab * Researchers surprised at the high yield of compounds active against cancer cells A variety of existing drugs for treating conditions such as diabetes, inflammation, alcohol abuse, and arthritis in dogs can also kill cancer cells in the…
Cancer Mortality Continues to Decline But Not For Uterine CA
The cancer death rate declined by 29% from 1991 to 2017, including a 2.2% drop from 2016 to 2017, the largest single-year drop in cancer mortality ever reported. The news comes from Cancer Statistics, 2020, the latest edition of the American Cancer Society's annual report on cancer rates and trends. That's the good news.…
Phase 2 study of the Exportin 1 inhibitor selinexor in patients with recurrent gynecological maligna
Interesting, a drug I hadn't heard of yet. I searched selinexor and endometrial cancer at clinicaltrials.gov and there were two other studies using selinexor, one for maintenance after chemo (phasec3) and one on combination with chemo (phase 1), both gor advanced or recurrent disease. The maintenance one is interesting in…
Update and apology
Hi Ladies, I so apologize for my lack of communication in the past few months and so sorry to have worried u all! Though I'm so grateful beyond words for all the advice, support and encouragement you all have given me , you all mean so much to me, I started becoming very anxious reading posts of those having recurrences…
A person who was my inspiration has died
She was not my "friend" but a member of my inner community. And she was my inspiration! She had ovarian cancer, beat it for 2 years, had a recurrence, then another remission for almost 5 years. She was also my doctors patient. I just found out today that she passed away in November. I knew in March she had a 3rd…
LuLu7582 Sad News
I received a sad message from LuLu's (Louise)husband today. She passed away October 23rd peacefully by her husband's side and surrounded by many family and friends who loved her dearly. She and her husband Dan had 36 years together and he states she was the love of his love lfe. She will be forever missed.

Uterine/Endometrial Cancer

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