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Happy Thanksgiving
Just wanted to wish everyone a Happy Thanksgiving with hopes that you all are in the midst of whatever your plans are. This group is one of the blessings in my life that I give thanks for even if I had to get cancer to need to find it.
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Tested for Lynch Syndrome?
Hey all. After your biopsy or surgery, were you tested for Lynch? My gyn onc's office called to ask if I wanted my biopsy to be tested. They automatically test now, but back in 2012 when I was dx and had surgery they didn't. I said 'sure'. Goodness knows what this test if going to run on my insurance. So my questions to…
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Bleeding years after cancer and chemo
Hi girls, I am back with more worries. Several months ago I posted about my CA125 going up for the first time in 8 yrs post chemo, and it turned out to be from pelvic inflamation due to periformis injection with steroids, 2 days prior to getting my blood analysis. Got that scare out of the way, and now I have another one.…
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One year ago.....
It's late at night, sweet hubby has gone to bed and I'm here hanging out with my girls. One year ago I was about 3 weeks post hysterectomy after having a bleeding incident over Labor Day weekend (thank goodness for that). I'm just about to have the first anniversary of my first chemo (carbo and taxol) November 19, losing…
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A Uterine Board FAQ?
I've been thinking about when to "unstick" the post explaining the data outage that now appears first in the topic list. I've left it stuck at the top of the topic list this long since I know that some members may go quite a while between visits to the board. But perhaps a more useful "sticky" topic would be a Frequently…
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Clinical GYN-ONC research and personalized treatment protocols at Yale
Tonight I was at a lab tour and lecture at Yale's Gyn-Onc department. Their physician clinician researchers are doing clinical research and personalized treatment that is of great interest to me, and I assume to the women on this forum. The physician researchers are performing genetic sequencing of tumors, and then…
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Living with recurrent advanced endometrial cancer at 56
First visit on the forum. Diagnosed with Stage 1B uterine cancer 19 years ago at the age of 37 ( no genetic predisposition, thin, no estrogen use, no risk factors). Treated with surgery and pelvic radiation. I did well and went back to work in healthcare after recovering from surgery. Thought I was cancer free forever. 2…
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Wait times for surgery impact on survival study
Impact of wait times on survival for women with uterine cancer. Elit LM, et al. J Clin Oncol. 2014. Show full citation Abstract PURPOSE: To determine whether wait time from histologic diagnosis of uterine cancer to time of definitive surgery by hysterectomy had an impact on all-cause survival. PATIENTS AND METHODS: Women…
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High Grade Endometrial Stromal Sarcoma (HGESS)
Has anyone diagnosed with HGESS and Stage IVB taken Doxil therapy monthly? if yes, how did it go?
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opiods after surgery?
I would like to hear from people about their experience with pain-killers after surgery. I had a bad experience with opiods after a hip replacement, so told the doctor at my pre-op that I wanted something else. She suggested Tramadol rather than the Oxy that is usually prescribed. Since this is surgery that affects the…
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Preliminary List for Tribute Page
As the first step in assembling the tribute page I've gone back to the beginning of the board and found the dear ladies that we know are no longer with us. I've also started to pull together the other information for their entry on the page, but first I'd like to ask if I've missed anyone. The notice about a death may have…
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Checking in after quite a while
Hello, everyone - I've been gone from the forum for quite a while, taking a break from talking and thinking constantly about cancer. For those who have joined the forum since I was here last, I was diagnosed almost two years ago with Stage IV, Grade 1 endometrioid adenocarcinoma. I'll update my forum profile shortly to…
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DeMaus Update
Dear sisters. I heard from our dear Bobbi. She is at home being cared for by dear friends and hospice. Unfortunately she is still suffering a lot of pain. So please pray for her pain to be relieved and her mind to be at peace. Also pray for those who are caring for her. I know you'll wrap your virtual arms around her.
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Just diagnosed
I am 76 years old (soon to be 77) and have just been diagnosed with high grade endometrial adenocarcinoma, serous subtype. I am still trying to understand all the terminology, but from what I can find out, it's not a common type of uterine cancer and is aggressive--meaning, I think, that it comes back. I have no symptoms…
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3 years
I Just got back from my 3 year checkup. I had a vaginal exam and Doc said things look good. The best part about this is I only need exams every six months. I am not seeing rhe doctor I saw today for a year. It was nice to say that to him. After a while it gets to be a pain making and remembering these apointments. Its…
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clear vaginal discharge after external pelvic radiation - normal?
I finished external beam pelvic radiation which included the vagina (no brachy) about 5 months ago. I'm feeling MUCH better. Bowel function is greatly improved. My Gyn-Onc did a careful look-see internal exam about 3 weeks ago, said everything is fine. My Ca-125 is finally under ten (barely) for the first time since I was…
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Hope & Gratitude
I don't post anymore, but I'm still here. I read updates from time to time to see how everyone is doing and think of all of you ladies often. Today marks one year cancer free for me. During those dark times many of you reached out to me and helped me when I desperately needed someone who could "understand". My husband and…
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5 years, still NED from metastatic EC
It has now been five years since my D&C and official diagnosis of Stage 3b, Grade 3, endometrioid adenocarcinoma in Oct 2015. Grade 3 endometrioid is put in the same category as serous carcinoma, the most aggressive type of endometrial cancer. Two months after my hysterectomy my cancer metastasized to my liver, spleen,…
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der Maus Update
der Maus asked me to post this update on her behalf. She'd been feeling bad for quite a while and was admitted to the hospital about 10 days ago. Her persistent tumor was blocking bile ducts and the duodenum, so her systems were backed up – which is why she felt so terrible. The first attempt at bile duct stenting was…
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derMaus is BACK
Just in case you did not realize that Bobbi is back, go to the end of cmb's derMaus update and see her message. I am dancing a jig and singing happy songs to see that post. So glad she is feeling good enough to send us that message. Thank you, Bobbi, we love you !!!!
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A little good news
Dear sisters, This morning I met my new gyn/onc to receive the results of last week's PET scan and have a physical exam. I like her. She is no-nonsense and answers the hard questions without flinching. Today she had good news. Both exams indicated NED. With a stage IVB grade 2 diagnosis, it feels like a miracle from our…
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UTROSCT
Hi everyone. I'm in the UK and trying to find anyone who has been diagnosed with a Uterine Tumour Resembling Ovarian Sex Cord Tumour (UTROSCT) I had Breast Cancer in 2009 and following treatment was put on Tamoxifen (initially for 5 years, but during my treatment UK medical thinking was revised to giving Tamoxifen for 10…
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evolo58, how are you?
She hasn't been on the board since July. Is anyone in touch? Veronica
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Has anyone been in contact with Dermaus (Bobbi)?
I'm really worried about Bobbi. I see she hasn't been on the board since 9-23-19. She's always answered my emails before, but the last few....nothing. Hopefully, she's just resting and recuperating. Love, Eldri
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To return to work or not return that is the question?
Hi ladies oh, I probably know the answer to this question but throwing it out there anyways. One doctor is saying I can work intermittently when I'm feeling good and other says she highly advises against it. I need to make a decision soon as I work as a teaching assistant and in two weeks my school year begins and my…
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Lesions after radiation
I’m almost 2 years out from radiation. However I’m now getting open lesions. It started as just small red spots which was treated with Augmented Ointment. it took care of the red spots but now I’ve developed open lesions which are ext painful with the pain running down my leg. Has anyone else experienced this? Any…
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Taxotere
Heard back from the oncologist today. They are going to switch me to Taxotere since I’m reacting to the Taxol. Anyone have experience with it ?
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Complex Hyperplasia with Atypia/**New Diagnosis Post Op - Endometrial Adenocarcinoma Stage 1-A
Hello All! I am obviously new here! Hoping that all of you are well in spirit and fighting with all of your might!! I never thought the day would come that I would be worried about cancer! I have been having extremely heavy periods and going through all signs of perimenopause - sleeplessness, weight gain in my belly;…
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Pathology report not so good from Look See
My onc doc just called with the path report. There was UPSC tissue within the clotted blood mass. She cleaned the vagina out so all growth is removed for now. She suggested we wait and see what the next visit shows as it took almost a year to show up again. If there is regrowth, she said we would talk treatment but for…
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Kanjinti (biosimilar Herceptin drug)
Hi All, My mother has just been informed that all patients currently on Herceptin will be switched to this new biosimilar drug, Kanjinti. It was recently FDA approved for HER2 positive patients on Herecptin. Kaiser has adopted it and will switch all patients (including breast cancer) to this new drug. I'm unfamiliar with…