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Persistent Iron-deficiency Anemia
Two and one-half years out from 12 rounds of Carboplatin & Taxol chemotherapy, my blood work shows persistent iron-deficiency anemia. I have been taking 65 mg daily Iron for at least one year, together with Vitamin C, and I eat daily protein of red meat, chicken, fish, legumes, etc. and plenty of the "good" veggies. Since…
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New use for the box from the dilator
Okay, ladies, get ready for an off-color laugh. My husband was intrigued by the instructions written on the box for the dilator, "Use ten minutes daily". So he posed with the empty box - bet you can all guess where he put it! Incredible, how he can laugh in the face of this, and make me laugh too! I definitely married the…
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Coronavirus is deadly to us. Plan on self-isolating, very soon
I'll add more if site allows posting. It's been acting glitchy.
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Keytruda/Lenvima ---- DAY 1
Well, I was hoping that Donna Faye would be first to report any side effects from this Keytruda/Lenvima treatment. This combination was FDA approved for some Endometrial Cancers on September 17, 2019 so I would have thought several ladies would have been on this treatment My timeline: December 2017 - Hysterectomy and UPSC…
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Radiation only statistical data
I first would like to thank everyone for all of their posts to this website, as they have helped me greatly understand things that men will never experience. My wife has recently suffered many significant medical issues and just as we thought we were seeing the light at the end of the tunnel, we were hit with the…
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So Glad We're Back!
I was really getting worried when this board was down for so long! What if we lost each other forever?? I wish there was some way CSN could keep track of posters. When I don't see someone for a while, I just hope and pray that they are doing so well, they no longer need our support. I know some of us are connected on other…
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Re: Remembering Pinky
To All the Ladies on this Board: I wanted to respond to a post regarding "Remembering Pinky". I probably and most definitely was one of Pinky's closest and best friends on this Uterine Board. She e-mailed me a few times in a WEEK and I returned ALL of her e-mails and we had a wonderful and very caring friendship. I have…
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Radiation treatment after hysterectomy
I just had a robotic-assisted laproscopic hysterectomy 3 weeks ago. I was diagnosed with Stage 1B Grade 2-3 Endometrial Adenocarcinoma. My doctor recommended I have radiation therapy to prevent the recurrence of cancer. Is the radiation necessary? Does radiation damage healthy cells? Has anyone had this diagnosis, but not…
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Keytruda/Lenvima ---- DAY 2
I want to step back to day one when we met with the pharmacist to review both Keytruda and Lenvima. He said that Lenvima was a “super-charged Avastin” or “Avastin on steroids”. Now Little Annie had been on Avastin for six months and we think that is a “miracle” drug for what it has done. Last summer, Little Annie had five…
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Re: Remembering Pinky
To All the Ladies on this Board: I wanted to respond to a post regarding "Remembering Pinky". I probably and most definitely was one of Pinky's closest and best friends on this Uterine Board. She e-mailed me a few times in a WEEK and I returned ALL of her e-mails and we had a wonderful and very caring friendship. I have…
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And so it begins
The sun is finally rising but I have been awake for some hours. No matter how many times one faces the beginning of new treatment ( this is my 4th time), it is daunting. Once again I am beginning w/o a port. I do not know why this always is the way but it has been. (3 times I have had chemo more than 3 infusions and never…
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IMPORTANT for potential Lenvima/Keytruda users
This is very important information if you are thinking of going on this drug. I feel so fortunate to have an oncologist who will call a halt when she thinks it is needed. I thought I was to begin treatment today. HOWEVER, the pharmacologist came in and went through all the possible side effects and how I was not to wait if…
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For new members, treatment recommendations
https://www.mdanderson.org/content/dam/mdanderson/documents/for-physicians/algorithms/cancer-treatment/ca-treatment-endometrial-web-algorithm.pdf This is a good link to current treatment recommendations for endometrial cancer
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Remembering Pinky
It's kind of funny how different things happen to make me stop and think of those we've lost. For LuAnn, it's every time I see Eldri's sock monkey. News from Buffalo always makes me think of what happened to Lady Mox. Brissance's Peppermint Patti avatar. Today, all the snow from the storm just past has got me thinking of…
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P53 Positive
I met with my oncologist today and she was a little confused by my pathology report. It said I had endometrioid adenocarcinoma grade 3, but it also said I was p53 positive. She said those two things usually don't go together. p53 positive typically goes with serous carcinoma. Furthermore, it is usually with postmenopausal…
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Apologies
Ladies, please forgive me. I've been unable to keep up with the joys and trials here lately. My husband is retiring from the military in a couple weeks and we are packing up our quarters here in Texas and preparing to move across the country. I know I've missed welcoming new members and cheering others on, and I'm sorry.…
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Monitoring for a Cancer Recurrence
I’ve seen many women on this site develop recurrences who are no longer with us, Stage 1 cancer patients who have developed recurrences, people who have survived five years, seven years, who then developed recurrences and women who want to know what to look for to watch for a recurrence. The cancer industry says there are…
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Identifying who will/won't benefit from checkpoint therapy
This research is hot off the presses and I don't imagine the procedure mentioned in it is widely known or maybe even usable yet. But I wanted to flag it here for anyone of us who is now or may be down the road considering checkpoint therapy, a type of immunotherapy. I plan to pack it away in case my own onc brings up…
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Endo cancer and cardiovascular death
There's a new longitudinal study out, "Cancer Patients Are at Higher Risk of Dying from Heart Disease and Stroke." I think it's worth a read by all of us. A few takeaways that particularly caught my eye: "For some cancers, like breast, prostate, endometrial, and thyroid cancer, around half will die from cardiovascular…
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Surgical Menopause Symptom Management
Hi All! I've been off the board for awhile, but thought I'd ask others who may have some insight into managing the symptoms of early meopause without HRT or products with sources of Estrogen. Soon after my surgery in August and seems since brachytherapy to be worse-I started having daily pain in hands, feet and hips. It's…
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Keytruda
I don't use this forum (bad news is discourage here it seems), but I have posted updates abut being on Keytruda before. I have been on it for 3 1/2 years now before it was approved for MSI-H and so far so good. I now have opted for every 6 weeks and I have refused all other treatements except Anastrozole. Search for my…
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Really scared
Hello to everyone. I have been reading through many stories and trying to take in as much information as possible to get me through this very difficult time. A few years ago my husband had kidney cancer and I was able to find a lot of info from these discussion boards. I am 46 and have been very regular with periods up…
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Decision Made
I am one fortunate woman. Today my RN son called at 3 and we went over the latest notes on my treatment choices. Then my oncologist called at 6 pm after a long day in clinic and answered all my concerns. At 7p my daughter came and shared what her gyn friend had said. I have decided to go on the pembro/lenvatin regimen. I…
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Can't be afraid to talk about cancer "down there"
Ladies, I want to share a story about an interaction I had with a young woman yesterday. Weather is supposed to be cold and crappy here in Indianapolis this weekend and I decided to eliminate one stop for Saturday and pop in to the grocery store on Friday on my way home from work. When I pushed the shopping cart back to my…
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How fast does serous carcinoma spread
Waiting 3 weeks after biopsy to see oncologist After biopsy showed high grade serous carcinom And also atypical on pap. Is that typical? How fast does this spread? I first noticed very slight pinkish discharge in oct or nov 2019 ask doctor shortly after for GYN appointment to check it out... he didn’t get around to it till…
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Biopsies vs. D&C
Hi, I was diagnosed with simple cystic hyperplasia in July 2019 along ovarian cysts based on a uterine biopsy. I'm 51 years old. My endometrial lining at the time was 12mm. I was told this has a very low chance of becoming malignant over time. My gynecologist put me on 80mg of megestrol acetate for 4 months. Then I…
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A Tribute to Those Women We've Lost, but Not Forgotten
This page was created to memorialize the wonderful women on this board who did not survive their cancer. Although they are no longer here, we honor their journeys and appreciate their contributions to our collective knowledge about uterine cancer. This list focuses on those members with uterine cancer, but includes some…
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N95 masks
Since some women here are on treatment, I hope. you have a supply of N95 masks just in case. Surgical masks don't work for viruses. I tried to buy some this week and they were out everywhere.
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I had the 1st of 3 internal HDR brachy radiation today.
One down and 2 to go! I feel fine and a little silly for how much I've stressed worrying about this, dreading it even more than my chemo. It's quite an experience, and seems to be a little different for each of us who have it done. My total time at the hospital was 1 hour, and total time the radioactive material in my body…
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Keytruda side effects
Hi, have any of you fine ladies been on Keytruda and could you please speak on side effects. thanks Little Annie