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Virtual Visits
How are you all finding your virtual visits? I like them for visits that you really only are talking and it saves me travel time. I agree with others that sometimes you need a "touch" visit and also I'm sure it is frustrating for people that are not tech savvy. But I myself hope we continue to have this option post-virus…
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Gastritis
Have anyone ever had this? I do. Due to chemo. It’s horrible. I’ve lost 8-9 pounds in 5-6 weeks and I’m not overweight. Gastritis is inflammation. Yes? Can this cause ca125 to raise a bit?
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Lynch Article on future vaccine
https://www.oncnursingnews.com/web-exclusives/a-positive-outlook-for-lynch-syndrome-related-cancers?fbclid=IwAR0szpe5e921sA4vZ5h8wc6Px0AT40s_UAA6YYCFEqY4hfS1wEl7R-tHDVo Good morning all, This sounds promising for those of us with Lynch. I hope you all have a good day. Love and Hugs, Cindi
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Question about staging and diagnosis
I was diagnosed from a D&C in November, at which time they could not share a stage, but indicated they found 3 spots of Adenocarcinoma, FIGO grade 2. In December I had a radical hysterectomy, and was staged 1a (less than 50% myometrium invasion), but this pathology only found FIGO grade 1 cells. I also had clear lymph…
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Test
Just wanted to see if this is working since there's been no posts for a while
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Intersting new article on OncLive
Future Looks Bright in Endometrial Cancer, With Exciting Emerging Agents and Targets https://www.onclive.com/web-exclusives/future-looks-bright-in-endometrial-cancer-with-exciting-emerging-agents-and-targets
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I'm tired of the at risk warning, enough!
Yes, everyone who has an illness and is being treated by doctors have been told this, and cancer patients are extremely vulnerable, but my state is really pushing the stay home if you are elderly or at risk. To the point, that they are hinting that they would open up the economy, but still mandate (or at least insist) that…
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Next Appointment
When is your gyno/oncologist going to begin seeing you in the office again. I was supposed to have a 3 month checkup March 24, it was canceled and no other apoint meant made. Bloodwork was done, appeared to be ok. My next follow up should be in June. I am a stage 1a upsc survivor, hysterectomy was performed October 2018. I…
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Sharing an article
https://connection.asco.org/blogs/prescription-managing-fear-and-chaos-covid-19-pandemic-let-our-patients-teach-us- This is an article written by an oncologist who himself was diagnosed with cancer. He is talking about COVID 19. It is insightful and he understands. I like his expression he speaks from the other side of the…
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Hello All, it's been awhile
I'm just checking in. I'm over 9 years out since my dx of stage 3C1 adenocarinoma. I log on from time to time, you ladies are never far from my thoughts.
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Hello from a new member
Dear Ladies, I came across this discussion board and have been so uplifted by your positive attitudes. My run in with uterine cancer has been a car wreck. On Christmas Eve 2019 I was with my sister in California enjoying a program when I laughed out loud and thought I wet my pants. I ran to the bathroom and found blood…
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Has anyone heard from Kaleena?
Has anyone heard from Kaleena? She hasn't been here for a month and I'm a little worried about her. Things we not going so good with her. Love, Eldri
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Megace
So I always say if the cancer doesn't kill you...the treatment will. Megace bought me 3 years of NED but I just want to let you know the trade offs. Constant hunger with a 20 pound weight gain (but that seems to be it. Dead or fat? I'll take fat!). I developed diabetes and am on 48 units of insulin plus prandin but it's…
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Bleeding after sex and dilator use
Has anyone experienced vaginal bleeding after sex and dilator use 14 months after brachytherapy? I had my surgery for stage 1b, grade 2 in August 2018. I had 3 rounds of brachy therapy starting 10 weeks post op. after brachytherapy I had a very watery discharge for almost 10 months. It finally stopped in Sept 2019! My…
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Scheduling all the doctors
I am finally done with treatment (6 rounds of carbo/taxol) followed by 25 radiation. My oncologist told me I would see one of the three doctors involved (gyn onc, radiation onc and onc) every three months. However, I have appointments with all three scheduled in one week (May29-June3). I was wondering how others juggled…
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Besides doing chemo and/or radiation...
What else do you do to try and reach NED? I'm taking THC and cbd. I'm a vegetarian. And latest I'm trying that repurposed drugs and taking antihistamine. I'm going to do even more going forward, I'm just not sure what I should do? I have stage 4B USPC, so I'd better meet it with all I have. ;) Currently being treated with…
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Two years cancer free :)
I just had my regular follow up 2 days ago. As it turned out, I got a twofer out of it because I had a UTI and she took care of that for me. This marks 2 years post treatment (or close to it)! She scheduled my next follow up for 4-6 months instead of 3-4. It's nice to note that this makes me happy now instead of anxious,…
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How fast does uterine cancer grow?
I have a doctor appt Thursday; however he is out of our health insurance network and so I'll be responsible for 35% of his bill. The hospital is in the network. My husband wants me to go to another doctor who is in our network so we are covered in full. Both are good doctors. One is at Mt. Sinai hospital here in NYC and…
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Happy 80!
Donna Faye! Happy 80th birthday!!
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follow-up after surgery for high-grade serous carcinoma?
Dear wonderful people on this discussion list, I have good news, I think: after surgery a week and half ago the pathology report said that the cancer had not spread beyond the uterine wall; the tumor was less than 1 cm, so it was caught early. The stage is listed as 1a. I'm really happy (ecstatic is more like it) with this…
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Supposed to start Brachytherapy on Monday amidst covid-19 outbreak in NYS
I desperately need some advice. I don't know what to do, and I feel like my doctors are afraid to advise me one way or the other. First, I live in NYS where the outbreak is most active, though I am in upstate NY far away from NYC. My county currently has 46 positives, 200 in quarantine, but are refusing to test anyone that…
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GYNs won't do a visit
I started to lose weight the week before I began the rituximab for the indolent lymphoma. BTW, my counts improved greatly after the first dose, so clearly, it works for me. So naturally, my first thought, when it became evident yesterday that I really was losing weight, was that I had better start with an internal check,…
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Coronavirus, cancer and all alone
I guess tonight I'm struggling with all of the above, I am blessed with four years of not active cancer, yet I know I have to stay at home to protect myself. So I stay at home, day after day. But I'm all alone, family is distant, and the phone calls, or emails from family are too infrequent as they are only trying to get…
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Let's all check in,please
I am so worried about so many of you and not sure if you gave up on getting connected after the hacking or if you are not well or hopefully you are content with life as it is for now. But, just realized how much I miss not hearing from you and knowing that all is OK. I am on day 9 of the Magace and so far so good. I have…
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CA125 question
Hi all. I had my first recurrence in November last year. My first dx was September 2018. Stage 4B USPC..... did 3 taxol/carboplatin, massive surgery and finished of with 3 chemotherapy. CA125 was 13. Now I’m doing doxil and carboplatin. I’ve had 4 rounds. CA125 was 160, rose to 180 after first infusion. Then 85, 65 and 45…
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Ca125 up a bit more
I was in for Herceptin yesterday. They repeated my Ca125, and it's crept up a bit more. It was 36, I think, at the time of diagnosis. Of course it rose after surgery, but it slowly drifted back down. I think that the lowest it got to, was just under 10 a few months ago. Then 11. something. Then 13.something, and I told…
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Sometimes life makes the decisions
So much has happened in the time we were offline so let me share a little. I sold my home so easily and put the equity in a MM for end of life care when needed. Moved to my son's home Feb. 29, and all settled and all my worldly goods in one room! Just like I wanted it. My guys have been fantastic and Harry(my dog) and I…
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Prayer for those on chemo
Prayer for today Lord, my heart aches for my friends, who are undergoing chemotherapy. How it saps their energy, Lord. Sometimes it seems the cure is more devastating than the disease. Stay close to them in this time of healing, Lord. Bring them comfort, and fill them with the knowledge that they can find hope in you. I…
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Shingles and increased CA-125
I am almost 2 years NED from surgery. I was Stage 1A, grade 3 with less than 50 mm myometrial invasion. Had 3 chemo and 6 brachytherapy. On 4/12 I started having symptoms f pain in my right pelvic area and feared recurrence. It turned out to be shingles. The rash was from lower back around to pelvic area and down inside…
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Re: Remembering Pinky
To All the Ladies on this Board: I wanted to respond to a post regarding "Remembering Pinky". I probably and most definitely was one of Pinky's closest and best friends on this Uterine Board. She e-mailed me a few times in a WEEK and I returned ALL of her e-mails and we had a wonderful and very caring friendship. I have…