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Well, It’s Back
I got the results of my 6 month CT scan and there's a tiny, tiny area of disease on the left peritoneal area. We would not even see it but for the CT scan. Needless to say, I'm heartbroken. But I shouldn't be so surprised. The Megace was only going to work so long. So we've decided to try 21 days of tamoxifen and 21 days…
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Tomorrow....
I will have my appt with oncologist. Its gonna be a phone call due to corona... That’s gonna be a bit weird. ;) I did check my portal. CA125 is 32. Scan report seems to be okay, but so many medical terms, so.... Just have to wait I guess When I had my blood drawn, I was feeling horrible, due to gastritis. And that is…
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Sad news from Cheers regarding her Mother
Cheers just wrote to say her mother passed away from her struggle with uterine carcinosarcoma (MMMT) in January, 2020. Cheers reports that her mother persevered during her long fight with cancer, despite setbacks from her various treatments, but in the end, she couldn't beat back this insidious disease. You can read about…
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Blood and scan results in patient portal?
Do you have this option? In Denmark we do. And it’s up to you if you want to read it. It could be good news but it could also be bad news. Or news you don’t understand. I just had both blood work done and a CT scan. I know that the result will be in there within a few days. Just the thought makes me want to puke. A…
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How old when dx?
I told you I would be more active in here. Not lying :) :) :) How old were you when you were diagnosed the first time? What stage? What type? What treatment? Me: Diagnosed at 47 in September 2018. Stage 4B USPC Spread to fare for surgery so first 3 x Carbo/taxol. Chemo worked so got the massive open surgery. 12” scar.…
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Those of us with USPC...
If any, how many recurrencea have you had? How far apart? And how what it treated? I’m at the end of treatment of my first recurrences. I was only NED for 9 months :( First I was treated with 6 x carboplatin and taxol with massive surgery in between. First recurrence was treated with 6 x carboplatin and doxil, due to…
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New "My Posts" Function
If you haven't checked your "My CSN Space" section recently, you may not have seen the new "My Posts" function. This function enables you to: * See a list of the posts that you've initiated (the "Content" option). * See a list of the posts that you have commented on (the "Comments" option). Since we know that the CSN's…
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5 Years NED
I was diagnosed with UPSC stage 3c in April of 2014. Five years ago I had just finished the last of my radiation which followed my chemotherapy. I saw my oncologist today and he declared me cancer free. He also stated that he thought I was also at a very low risk for reoccurrence. When I was first diagnosed I was…
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10 years cancer free today UPSC Brachytherapy saves lives
Had my annual exam today and am 10 years cancer free. Another lady who did chemo with me just found out she had a reoccurance with UPSC at her 10 year checkup. The difference between her treatment and mine was I had the internal radiation (brachytherapy) and she opted not to do it. Her only new symptoms were a reoccuring…
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It’s my birthday today :) And something about gastritis...
We all know how important birthdays are. Next year I will be 50, and I can honestly say that I’m looking sooo much forward to that day. Something I use so kind of dread. Getting older. But getting older is GOOD :) So I’m embracing my b-day with all I have :) Im currently getting carboplatin and doxil. I think the latter is…
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What kind of follow-ups?
Hi all. Just wondering what kind of examinations you are getting at check-ups? Im in Denmark so here it’s normal to get scans. At least for uterine cancer. I’ve had both. My current oncologist prefers CT scans over PET/CT. She’s the head doctor of the oncologist department. Yes, I’m a bit lucky there ;) Bit it’s just a bot…
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Virtual Visits
How are you all finding your virtual visits? I like them for visits that you really only are talking and it saves me travel time. I agree with others that sometimes you need a "touch" visit and also I'm sure it is frustrating for people that are not tech savvy. But I myself hope we continue to have this option post-virus…
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Gastritis
Have anyone ever had this? I do. Due to chemo. It’s horrible. I’ve lost 8-9 pounds in 5-6 weeks and I’m not overweight. Gastritis is inflammation. Yes? Can this cause ca125 to raise a bit?
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Lynch Article on future vaccine
https://www.oncnursingnews.com/web-exclusives/a-positive-outlook-for-lynch-syndrome-related-cancers?fbclid=IwAR0szpe5e921sA4vZ5h8wc6Px0AT40s_UAA6YYCFEqY4hfS1wEl7R-tHDVo Good morning all, This sounds promising for those of us with Lynch. I hope you all have a good day. Love and Hugs, Cindi
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Question about staging and diagnosis
I was diagnosed from a D&C in November, at which time they could not share a stage, but indicated they found 3 spots of Adenocarcinoma, FIGO grade 2. In December I had a radical hysterectomy, and was staged 1a (less than 50% myometrium invasion), but this pathology only found FIGO grade 1 cells. I also had clear lymph…
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Test
Just wanted to see if this is working since there's been no posts for a while
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Intersting new article on OncLive
Future Looks Bright in Endometrial Cancer, With Exciting Emerging Agents and Targets https://www.onclive.com/web-exclusives/future-looks-bright-in-endometrial-cancer-with-exciting-emerging-agents-and-targets
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I'm tired of the at risk warning, enough!
Yes, everyone who has an illness and is being treated by doctors have been told this, and cancer patients are extremely vulnerable, but my state is really pushing the stay home if you are elderly or at risk. To the point, that they are hinting that they would open up the economy, but still mandate (or at least insist) that…
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Next Appointment
When is your gyno/oncologist going to begin seeing you in the office again. I was supposed to have a 3 month checkup March 24, it was canceled and no other apoint meant made. Bloodwork was done, appeared to be ok. My next follow up should be in June. I am a stage 1a upsc survivor, hysterectomy was performed October 2018. I…
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Sharing an article
https://connection.asco.org/blogs/prescription-managing-fear-and-chaos-covid-19-pandemic-let-our-patients-teach-us- This is an article written by an oncologist who himself was diagnosed with cancer. He is talking about COVID 19. It is insightful and he understands. I like his expression he speaks from the other side of the…
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Hello All, it's been awhile
I'm just checking in. I'm over 9 years out since my dx of stage 3C1 adenocarinoma. I log on from time to time, you ladies are never far from my thoughts.
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Hello from a new member
Dear Ladies, I came across this discussion board and have been so uplifted by your positive attitudes. My run in with uterine cancer has been a car wreck. On Christmas Eve 2019 I was with my sister in California enjoying a program when I laughed out loud and thought I wet my pants. I ran to the bathroom and found blood…
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Has anyone heard from Kaleena?
Has anyone heard from Kaleena? She hasn't been here for a month and I'm a little worried about her. Things we not going so good with her. Love, Eldri
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Megace
So I always say if the cancer doesn't kill you...the treatment will. Megace bought me 3 years of NED but I just want to let you know the trade offs. Constant hunger with a 20 pound weight gain (but that seems to be it. Dead or fat? I'll take fat!). I developed diabetes and am on 48 units of insulin plus prandin but it's…
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Bleeding after sex and dilator use
Has anyone experienced vaginal bleeding after sex and dilator use 14 months after brachytherapy? I had my surgery for stage 1b, grade 2 in August 2018. I had 3 rounds of brachy therapy starting 10 weeks post op. after brachytherapy I had a very watery discharge for almost 10 months. It finally stopped in Sept 2019! My…
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Scheduling all the doctors
I am finally done with treatment (6 rounds of carbo/taxol) followed by 25 radiation. My oncologist told me I would see one of the three doctors involved (gyn onc, radiation onc and onc) every three months. However, I have appointments with all three scheduled in one week (May29-June3). I was wondering how others juggled…
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Besides doing chemo and/or radiation...
What else do you do to try and reach NED? I'm taking THC and cbd. I'm a vegetarian. And latest I'm trying that repurposed drugs and taking antihistamine. I'm going to do even more going forward, I'm just not sure what I should do? I have stage 4B USPC, so I'd better meet it with all I have. ;) Currently being treated with…
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Two years cancer free :)
I just had my regular follow up 2 days ago. As it turned out, I got a twofer out of it because I had a UTI and she took care of that for me. This marks 2 years post treatment (or close to it)! She scheduled my next follow up for 4-6 months instead of 3-4. It's nice to note that this makes me happy now instead of anxious,…
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How fast does uterine cancer grow?
I have a doctor appt Thursday; however he is out of our health insurance network and so I'll be responsible for 35% of his bill. The hospital is in the network. My husband wants me to go to another doctor who is in our network so we are covered in full. Both are good doctors. One is at Mt. Sinai hospital here in NYC and…
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Happy 80!
Donna Faye! Happy 80th birthday!!