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Scheduling all the doctors
I am finally done with treatment (6 rounds of carbo/taxol) followed by 25 radiation. My oncologist told me I would see one of the three doctors involved (gyn onc, radiation onc and onc) every three months. However, I have appointments with all three scheduled in one week (May29-June3). I was wondering how others juggled…
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Besides doing chemo and/or radiation...
What else do you do to try and reach NED? I'm taking THC and cbd. I'm a vegetarian. And latest I'm trying that repurposed drugs and taking antihistamine. I'm going to do even more going forward, I'm just not sure what I should do? I have stage 4B USPC, so I'd better meet it with all I have. ;) Currently being treated with…
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Two years cancer free :)
I just had my regular follow up 2 days ago. As it turned out, I got a twofer out of it because I had a UTI and she took care of that for me. This marks 2 years post treatment (or close to it)! She scheduled my next follow up for 4-6 months instead of 3-4. It's nice to note that this makes me happy now instead of anxious,…
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How fast does uterine cancer grow?
I have a doctor appt Thursday; however he is out of our health insurance network and so I'll be responsible for 35% of his bill. The hospital is in the network. My husband wants me to go to another doctor who is in our network so we are covered in full. Both are good doctors. One is at Mt. Sinai hospital here in NYC and…
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Happy 80!
Donna Faye! Happy 80th birthday!!
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follow-up after surgery for high-grade serous carcinoma?
Dear wonderful people on this discussion list, I have good news, I think: after surgery a week and half ago the pathology report said that the cancer had not spread beyond the uterine wall; the tumor was less than 1 cm, so it was caught early. The stage is listed as 1a. I'm really happy (ecstatic is more like it) with this…
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Supposed to start Brachytherapy on Monday amidst covid-19 outbreak in NYS
I desperately need some advice. I don't know what to do, and I feel like my doctors are afraid to advise me one way or the other. First, I live in NYS where the outbreak is most active, though I am in upstate NY far away from NYC. My county currently has 46 positives, 200 in quarantine, but are refusing to test anyone that…
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GYNs won't do a visit
I started to lose weight the week before I began the rituximab for the indolent lymphoma. BTW, my counts improved greatly after the first dose, so clearly, it works for me. So naturally, my first thought, when it became evident yesterday that I really was losing weight, was that I had better start with an internal check,…
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Coronavirus, cancer and all alone
I guess tonight I'm struggling with all of the above, I am blessed with four years of not active cancer, yet I know I have to stay at home to protect myself. So I stay at home, day after day. But I'm all alone, family is distant, and the phone calls, or emails from family are too infrequent as they are only trying to get…
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Let's all check in,please
I am so worried about so many of you and not sure if you gave up on getting connected after the hacking or if you are not well or hopefully you are content with life as it is for now. But, just realized how much I miss not hearing from you and knowing that all is OK. I am on day 9 of the Magace and so far so good. I have…
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JOINT PAIN AFTER CHEMO
I went through 6 rounds of carboplatin and taxol chemo treatments this past year. I finished in April and a few weeks later I began to feel extreme joint pain. My Doctor said it was probably because I had not been active during my chemo, but as I was reading on here, there are many people who have gone through similar…
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CA125 question
Hi all. I had my first recurrence in November last year. My first dx was September 2018. Stage 4B USPC..... did 3 taxol/carboplatin, massive surgery and finished of with 3 chemotherapy. CA125 was 13. Now I’m doing doxil and carboplatin. I’ve had 4 rounds. CA125 was 160, rose to 180 after first infusion. Then 85, 65 and 45…
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Ca125 up a bit more
I was in for Herceptin yesterday. They repeated my Ca125, and it's crept up a bit more. It was 36, I think, at the time of diagnosis. Of course it rose after surgery, but it slowly drifted back down. I think that the lowest it got to, was just under 10 a few months ago. Then 11. something. Then 13.something, and I told…
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Sometimes life makes the decisions
So much has happened in the time we were offline so let me share a little. I sold my home so easily and put the equity in a MM for end of life care when needed. Moved to my son's home Feb. 29, and all settled and all my worldly goods in one room! Just like I wanted it. My guys have been fantastic and Harry(my dog) and I…
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Prayer for those on chemo
Prayer for today Lord, my heart aches for my friends, who are undergoing chemotherapy. How it saps their energy, Lord. Sometimes it seems the cure is more devastating than the disease. Stay close to them in this time of healing, Lord. Bring them comfort, and fill them with the knowledge that they can find hope in you. I…
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Shingles and increased CA-125
I am almost 2 years NED from surgery. I was Stage 1A, grade 3 with less than 50 mm myometrial invasion. Had 3 chemo and 6 brachytherapy. On 4/12 I started having symptoms f pain in my right pelvic area and feared recurrence. It turned out to be shingles. The rash was from lower back around to pelvic area and down inside…
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Re: Remembering Pinky
To All the Ladies on this Board: I wanted to respond to a post regarding "Remembering Pinky". I probably and most definitely was one of Pinky's closest and best friends on this Uterine Board. She e-mailed me a few times in a WEEK and I returned ALL of her e-mails and we had a wonderful and very caring friendship. I have…
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It's always something... oncologist thinks I have splenic marginal zone lymphoma
Well, the enlarged spleen that the first gyn med oncologist said was due to cirrhosis (even though I don't drink, and had normal liver function), now appears to be splenic marginal zone lymphoma, a slow-growing lymphoma, and I've probably had it for at least 4 years. I'm having the PET/CT on Wednesday to see whether I'm…
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Vaginal brachytherapy experiences?
I was recently diagnosed with Stage 1a, Grade 2 endometrial adenocarcinoma. Though my surgical pathology only found grade 1 cells, the prior pathology from my D&C found grade 2 cells, so my final grade is 2. For this reason, along with other risk factors, they are prescribing brachytherapy, which is scheduled for 5…
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How is the virus impacting you?
We've always said that this is a safe place for us to vent our frustrations and fears, so I thought that I would start a thread where we could share with each other what's going on with us because of the coronavirus. We may have to do social distancing in our immediate environment, but we still have each other to lean on…
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Who would have thought?
I'm sitting here, listening to the "Best of the 60s" and thinking about my life. I was born in 1952, grew up in a small town, dirt poor, the oldest of five kids. We lived in a one-bedroom house and us kids slept upstairs in an unfinished attic. Our father beat us all along with our mother. I met my future husband when I…
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Timely article about cancer patients and Covid-19
Coronavirus means difficult, life-changing decisions for me and my cancer patients https://www.theguardian.com/society/2020/mar/19/cancer-patients-coronavirus-outbreak-difficult-decisions
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Just Have to Vent
So when last we talked I was starting to take Repatha for my cholesterol because God forbid I die of a heart attack instead of this damned cancer. I took one injection and by blood sugar spiked and was out of control. My endo vehemently denies its the Repatha but I know in my heart of hearts it is. He says although it's on…
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Moving forward
Hello, I havent posted on here for quite some time. I was. thinking of something today that i was hoping to post about. So some of you ladies who have been on here since i started know that my uterine cancer was the second cancer i was diagnosed with. My first cancer was Hogkins Lymphoma and was diagnosed with it about 25…
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Left bum discomfort after dilator and sex
I have not been having regular sex or using my dilator on a regular basis. I did not use my dilator for 4 months. When I did use it I ended up having some bleeding. I was checked out by my Mayo P.A., radiation onco doc and oncologist NP. They said everything looked Great. They stated the bleeding was from adhesions. Well,…
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Persistent Iron-deficiency Anemia
Two and one-half years out from 12 rounds of Carboplatin & Taxol chemotherapy, my blood work shows persistent iron-deficiency anemia. I have been taking 65 mg daily Iron for at least one year, together with Vitamin C, and I eat daily protein of red meat, chicken, fish, legumes, etc. and plenty of the "good" veggies. Since…
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New use for the box from the dilator
Okay, ladies, get ready for an off-color laugh. My husband was intrigued by the instructions written on the box for the dilator, "Use ten minutes daily". So he posed with the empty box - bet you can all guess where he put it! Incredible, how he can laugh in the face of this, and make me laugh too! I definitely married the…
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Coronavirus is deadly to us. Plan on self-isolating, very soon
I'll add more if site allows posting. It's been acting glitchy.
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Keytruda/Lenvima ---- DAY 1
Well, I was hoping that Donna Faye would be first to report any side effects from this Keytruda/Lenvima treatment. This combination was FDA approved for some Endometrial Cancers on September 17, 2019 so I would have thought several ladies would have been on this treatment My timeline: December 2017 - Hysterectomy and UPSC…
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Radiation only statistical data
I first would like to thank everyone for all of their posts to this website, as they have helped me greatly understand things that men will never experience. My wife has recently suffered many significant medical issues and just as we thought we were seeing the light at the end of the tunnel, we were hit with the…