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Endometroid carcinoma with squamous differentiation
Hi everyone, I do not post anymore but I keep reading your stories quite often When I was diagnosed on July 2018 the Dr told me that I had Endometrioid Stage 1A Grade 1 I read my Pathology report yesterday with more attention and it says Endometrioid Carcinoma with Squamous Differentiation. I checked online and I've got…
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Doxil and carboplatin
Have anyone done this mix, Doxil and carboplatin? If yes, how did you feel duri g treatment? And, did it work? Currently being treated for my first reccurance of USPC...
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Treatments done but . . .
Hi, I was diagnosed last fall 2019, with carcinosarcoma. Had surgery immediately was then diagnosed at Stage IIIc.1 - radical hysterectomy and 6 cycles of carbo. and taxal with 28 radiation sessions sandwiched in between. CT scans shows NED - and yet I am struggling mentally with moving on - I have this constant awareness…
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To freeze eggs or not to freeze eggs, that is the question
Hi everyone! I have just been diagnosed and have been given bout a three month window to potentially pursue some egg freezing. I'm 29 and have never had a significant other. I have always thought that one day I would be pregnant and have a baby of my own, but now I need to have a hysterectomy and can never scare little…
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Recurrence
I had total hysterectomy in January, internal vaginal brachytherapy in March and now found out the cancer recurred in a para-aortic lymph node. Surgery is scheduled for June 29th. Doctor says I may need follow up chemo and radiation therapy. I am not looking forward to this. Has any one had any experience with integrative…
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SHARE- resources.
I volunteer with this group. They have online support groups and other resources some of you may find helpful. They recently launched their uterine cancer support resources. https://myemail.constantcontact.com/Introducing-SHARE-s-New-Uterine-Cancer-Newsletter-.html?soid=1101376025441&aid=EMTJA7nfX80
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Drug Costs Lotto- vent alert
Just want to vent....I've been on the phone most of the afternoon trying to find a way to reduce my drug costs. I have a Medicare Part D plan through United Healthcare AARP (it sucks compared to my previous commercial plans). Although Medicare is great, the drug plan sucks. i currently am in the "doughnut hole" because of…
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UPSC and hormone replacement?
I know there are many UPSC survivors on the board, so perhaps one of you can help. Although I'm in my 60s, I learned I was not technically hormonally in menopause when I saw the gyn last July who referred me to the gyn/oncologist who became my doctor. The referring gyn is very into hormone replacement and gave me a lot of…
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At Wits End - follow up to guidance welcome.
I am truly at Wits End. I went for yet another biopsy this morning following that marathon period of more than a month. It was so painful! The last two biopsies were hardly uncomfortable but this one was torture (even with a lidocaine injection). Maybe because the endometrial stripe was just 5mm? In any case, he had to do…
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Endometrial Biopsy
My conclusion is don't let them do this painful procedure when they often don't get enough tissue to tell you anything. https://www.cancertherapyadvisor.com/home/cancer-topics/gynecologic-cancer/endometrial-cancer-study-reveals-practice-gap-treatment/
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Guidance Welcomed
Hi, this saga of mine doesn't seem to stop. After being treated for simple hyperplasia last summer (2019) I had a biopsy which was hyperplasia free (following 4 months on megestrol acetate). My periods did return but about every 6 to 7 weeks (despite being 52 my bloodwork says I'm not menopausal). Then just over a month…
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upcoming D&C
I have PCOS and my last ultrasound was done in 2017. Recently, I started with a new MD who happens to be a gyn onc. I saw this dr because I have a history of vin 3 and my previous gyn moved to a different location. My ultrasound from 2017 had a stripe of 1.4 cm. She told me that she was going to schedule another ultrasound…
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Drinking Alcohol while having Chemo Treatment
I was hoping someone here could answer a question for me please! My sister is just starting trreatment for cancer of the uterus & had her first carboplatin treatment a couple of week's ago! I am seriously concerned about it & worry that it may effect how well she does with her treatment! If I say something to her she get's…
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neuropathy or carpal tunnel?
About a month ago the neuropathy that I have had in my fingers suddenly became worse. Its in both hands and the pain and burning shoots up my arms. I often cannot use my hands for fine motor tasks. I cannot lift things, unscrew jars, etc. because I don't have enough strenght. I wake up in the middle of the night in pain. I…
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Mixed results but OK
Doc called at 8 a.m. to report on Friday's CT scan. Good news and maybe some not so good. It appears that the surgery in October killed the beast on the vaginal cuff! I think she was shocked! But, I do have 3 lymph nodes in the pelvic area that have grown slightly larger. One is tiny, 2 are a little over 1.3 cm. I will…
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My girls!
After three whole months gone, I am finally surfacing and I have missed all of you so much. Praying as always that everyone's ok. We made it out of Texas just before the army shut down all military travel. Took six days to get across the country and arrived in our SC home three months ago today. Spent these past 12 weeks…
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How's it goin' ZsaZsa?
Been thinking about you and hope all is ok!
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megace and heartburn
I almost ashamed to even ask for help on this as it is such a minor side effect, but you all have so much combined wisdom that maybe you have some ideas I have not tried. When I am in the 3-week Megace phase, I get such gas and heartburn that I was eating Tums like crazy. Doc told me to ease off on the Tums - try…
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Dedifferentiated adenocarcinoma
Ladies, first of all I admire your strength and thankful for this forum... I'm writing on behalf of my mother, she is just 58 years young and has been diagnosed with dedifferentiated adenocarcinoma stage 2. She had her surgery on November 21st and this went well and her gyn/onc from Cleveland clinic cancer center very…
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Scanxiety
How do you deal with that? I’m having my CT scan this Tuesday and I’m already now so nervous. Does it ever get any easier??
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Tribute Page?
I am wondering with so many losses on this board this past year if there is anyway to set up a tribute type page to our site? I don't know how everyone feels about that, but I feel like it might be a way for all of to mourn, honor and remember the ladies who have contributed so much here about their journeys... I don't…
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Well, It’s Back
I got the results of my 6 month CT scan and there's a tiny, tiny area of disease on the left peritoneal area. We would not even see it but for the CT scan. Needless to say, I'm heartbroken. But I shouldn't be so surprised. The Megace was only going to work so long. So we've decided to try 21 days of tamoxifen and 21 days…
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Tomorrow....
I will have my appt with oncologist. Its gonna be a phone call due to corona... That’s gonna be a bit weird. ;) I did check my portal. CA125 is 32. Scan report seems to be okay, but so many medical terms, so.... Just have to wait I guess When I had my blood drawn, I was feeling horrible, due to gastritis. And that is…
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Sad news from Cheers regarding her Mother
Cheers just wrote to say her mother passed away from her struggle with uterine carcinosarcoma (MMMT) in January, 2020. Cheers reports that her mother persevered during her long fight with cancer, despite setbacks from her various treatments, but in the end, she couldn't beat back this insidious disease. You can read about…
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Blood and scan results in patient portal?
Do you have this option? In Denmark we do. And it’s up to you if you want to read it. It could be good news but it could also be bad news. Or news you don’t understand. I just had both blood work done and a CT scan. I know that the result will be in there within a few days. Just the thought makes me want to puke. A…
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How old when dx?
I told you I would be more active in here. Not lying :) :) :) How old were you when you were diagnosed the first time? What stage? What type? What treatment? Me: Diagnosed at 47 in September 2018. Stage 4B USPC Spread to fare for surgery so first 3 x Carbo/taxol. Chemo worked so got the massive open surgery. 12” scar.…
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Those of us with USPC...
If any, how many recurrencea have you had? How far apart? And how what it treated? I’m at the end of treatment of my first recurrences. I was only NED for 9 months :( First I was treated with 6 x carboplatin and taxol with massive surgery in between. First recurrence was treated with 6 x carboplatin and doxil, due to…
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New "My Posts" Function
If you haven't checked your "My CSN Space" section recently, you may not have seen the new "My Posts" function. This function enables you to: * See a list of the posts that you've initiated (the "Content" option). * See a list of the posts that you have commented on (the "Comments" option). Since we know that the CSN's…
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5 Years NED
I was diagnosed with UPSC stage 3c in April of 2014. Five years ago I had just finished the last of my radiation which followed my chemotherapy. I saw my oncologist today and he declared me cancer free. He also stated that he thought I was also at a very low risk for reoccurrence. When I was first diagnosed I was…
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10 years cancer free today UPSC Brachytherapy saves lives
Had my annual exam today and am 10 years cancer free. Another lady who did chemo with me just found out she had a reoccurance with UPSC at her 10 year checkup. The difference between her treatment and mine was I had the internal radiation (brachytherapy) and she opted not to do it. Her only new symptoms were a reoccuring…