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Keytruda/Lenvima ---- DAY 21
Glad to see the Discussion Board is up and running. I missed all you ladies. Well, today is Keytruda infusion #2 for the 30 minute infusion. Blood work was yesterday and I was expecting WBC, RBC, and hemaglobin to all be down but surprisingly all were actually up and all in normal range. great! Started Day 1 with 2 pills…
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CA125 continues to rise even though chemo is working
Hello Ladies, Hoping to get some insight from you all regarding CA125. My mom received the great news that her cancer (recurrent UPSC) is shrinking and the chemo is doing it's job. Pet Scan (after 3 sessions carbo/taxol) shows decrease in size and decrease in metabolic activity in the lymph nodes and improvement in the…
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Recurrence
Hi all, It's been awhile since I updated but I do read your posts and keep you all in my prayers. july 9 I had a sigmoidectomy for diverticulosis and had unexpected results. 2 Masses were found along with cancer in my abdomen. Big surprise because I had 3 ct scans and a pet scan that showed nothing. i currently have a…
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Let the games begin....
This morning I started my new therapy of afinitor and Letrozole. I have to admit, I thought I was so ready until I tried to cram that big pill into a mini marshmallow! The steroid mouth rinse ( of which I am to do 4 times a day to prevent ulcers) wasn't so bad but 2 minutes is a long time to rinse! Praying for limited side…
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Radiation Gastroenteritis
Hello, all. I'm hoping to get some hints on my diet. I finished my treatments in 2018, including surgery, radiation and brachy therapy. Since that time, I have been able to eat less and less. Right now, I'm down to consuming High Protein Boost and clear Boost Breeze. Surgery was done by a general surgeon, with a large…
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Brachytherapy on the horizon
Hello Ladies, I've been lurking here for about a month and have enjoyed the posts, although I don't always understand the terminology. I am a new member of the endometrial adenocarcinoma "club". I didn't have traditional symptoms (bleeding, etc.) and the issue came up during a routine Pap smear (abmormal cells) in April. I…
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Serous Carcinoma- spots in lungs.
Hello everyone. I'm new to the board and would like to thank everyone for taking the time to write their experiences! I cant tell you all how much it has already meant to us. My aunt was recently diagnosed with serous carcinoma stage 4. The doctor is recommending a total hysterectomy provided they did not find and spots in…
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Uterine Serous Carcinoma- Lenvima/Keytruda
Hello, Has anyone else been on the new FDA approved medication Keytruda/Lenvima? My mom had arecurrence of USPC & was started on this drugs. thanks
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Chemotherapy
I just had a post operative appointment with my surgeon. He successfully removed the cancerous left para-aortic lymph node (on June 29, 2020) that had been a recurrence from the Stage IB, FIGO 2 endometrioid endometrial adenocarcenoma (Total hysterectomy in Jan 2020). He now recommends chemotherapy and possibly targeted…
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Endometroid carcinoma with squamous differentiation
Hi everyone, I do not post anymore but I keep reading your stories quite often When I was diagnosed on July 2018 the Dr told me that I had Endometrioid Stage 1A Grade 1 I read my Pathology report yesterday with more attention and it says Endometrioid Carcinoma with Squamous Differentiation. I checked online and I've got…
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Doxil and carboplatin
Have anyone done this mix, Doxil and carboplatin? If yes, how did you feel duri g treatment? And, did it work? Currently being treated for my first reccurance of USPC...
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Treatments done but . . .
Hi, I was diagnosed last fall 2019, with carcinosarcoma. Had surgery immediately was then diagnosed at Stage IIIc.1 - radical hysterectomy and 6 cycles of carbo. and taxal with 28 radiation sessions sandwiched in between. CT scans shows NED - and yet I am struggling mentally with moving on - I have this constant awareness…
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To freeze eggs or not to freeze eggs, that is the question
Hi everyone! I have just been diagnosed and have been given bout a three month window to potentially pursue some egg freezing. I'm 29 and have never had a significant other. I have always thought that one day I would be pregnant and have a baby of my own, but now I need to have a hysterectomy and can never scare little…
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Recurrence
I had total hysterectomy in January, internal vaginal brachytherapy in March and now found out the cancer recurred in a para-aortic lymph node. Surgery is scheduled for June 29th. Doctor says I may need follow up chemo and radiation therapy. I am not looking forward to this. Has any one had any experience with integrative…
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SHARE- resources.
I volunteer with this group. They have online support groups and other resources some of you may find helpful. They recently launched their uterine cancer support resources. https://myemail.constantcontact.com/Introducing-SHARE-s-New-Uterine-Cancer-Newsletter-.html?soid=1101376025441&aid=EMTJA7nfX80
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Drug Costs Lotto- vent alert
Just want to vent....I've been on the phone most of the afternoon trying to find a way to reduce my drug costs. I have a Medicare Part D plan through United Healthcare AARP (it sucks compared to my previous commercial plans). Although Medicare is great, the drug plan sucks. i currently am in the "doughnut hole" because of…
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UPSC and hormone replacement?
I know there are many UPSC survivors on the board, so perhaps one of you can help. Although I'm in my 60s, I learned I was not technically hormonally in menopause when I saw the gyn last July who referred me to the gyn/oncologist who became my doctor. The referring gyn is very into hormone replacement and gave me a lot of…
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At Wits End - follow up to guidance welcome.
I am truly at Wits End. I went for yet another biopsy this morning following that marathon period of more than a month. It was so painful! The last two biopsies were hardly uncomfortable but this one was torture (even with a lidocaine injection). Maybe because the endometrial stripe was just 5mm? In any case, he had to do…
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Endometrial Biopsy
My conclusion is don't let them do this painful procedure when they often don't get enough tissue to tell you anything. https://www.cancertherapyadvisor.com/home/cancer-topics/gynecologic-cancer/endometrial-cancer-study-reveals-practice-gap-treatment/
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Guidance Welcomed
Hi, this saga of mine doesn't seem to stop. After being treated for simple hyperplasia last summer (2019) I had a biopsy which was hyperplasia free (following 4 months on megestrol acetate). My periods did return but about every 6 to 7 weeks (despite being 52 my bloodwork says I'm not menopausal). Then just over a month…
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upcoming D&C
I have PCOS and my last ultrasound was done in 2017. Recently, I started with a new MD who happens to be a gyn onc. I saw this dr because I have a history of vin 3 and my previous gyn moved to a different location. My ultrasound from 2017 had a stripe of 1.4 cm. She told me that she was going to schedule another ultrasound…
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Drinking Alcohol while having Chemo Treatment
I was hoping someone here could answer a question for me please! My sister is just starting trreatment for cancer of the uterus & had her first carboplatin treatment a couple of week's ago! I am seriously concerned about it & worry that it may effect how well she does with her treatment! If I say something to her she get's…
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neuropathy or carpal tunnel?
About a month ago the neuropathy that I have had in my fingers suddenly became worse. Its in both hands and the pain and burning shoots up my arms. I often cannot use my hands for fine motor tasks. I cannot lift things, unscrew jars, etc. because I don't have enough strenght. I wake up in the middle of the night in pain. I…
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Mixed results but OK
Doc called at 8 a.m. to report on Friday's CT scan. Good news and maybe some not so good. It appears that the surgery in October killed the beast on the vaginal cuff! I think she was shocked! But, I do have 3 lymph nodes in the pelvic area that have grown slightly larger. One is tiny, 2 are a little over 1.3 cm. I will…
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My girls!
After three whole months gone, I am finally surfacing and I have missed all of you so much. Praying as always that everyone's ok. We made it out of Texas just before the army shut down all military travel. Took six days to get across the country and arrived in our SC home three months ago today. Spent these past 12 weeks…
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How's it goin' ZsaZsa?
Been thinking about you and hope all is ok!
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megace and heartburn
I almost ashamed to even ask for help on this as it is such a minor side effect, but you all have so much combined wisdom that maybe you have some ideas I have not tried. When I am in the 3-week Megace phase, I get such gas and heartburn that I was eating Tums like crazy. Doc told me to ease off on the Tums - try…
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Dedifferentiated adenocarcinoma
Ladies, first of all I admire your strength and thankful for this forum... I'm writing on behalf of my mother, she is just 58 years young and has been diagnosed with dedifferentiated adenocarcinoma stage 2. She had her surgery on November 21st and this went well and her gyn/onc from Cleveland clinic cancer center very…
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Scanxiety
How do you deal with that? I’m having my CT scan this Tuesday and I’m already now so nervous. Does it ever get any easier??
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Tribute Page?
I am wondering with so many losses on this board this past year if there is anyway to set up a tribute type page to our site? I don't know how everyone feels about that, but I feel like it might be a way for all of to mourn, honor and remember the ladies who have contributed so much here about their journeys... I don't…