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CT ok (I think), granuloma
I just had my 6 month CT, see below (finished chemo and radiation in 6/2018 for stage 3a). Although the fluid and spot he identified are described as unchanged, this is the first time they've been noted (4th CT altogether). He only mentions the last scan, which makes me wonder about the earlier ones. No growth in 6 months…
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Update from me...
Hi all. Ive been away for a while. I'm doing weekly Topotecan. 3 times weekly, one week off. Just had my #4 yesterday. My CA125 was 600 before treatment started. Had my blood drawn on August 28th. Its now 1410 after the first 3. 18 chemos planned.. So I guess it is not working. Unless this topotecan is taking some time…
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Stage 1 Grade 1 Adenocarcinoma
Good Morning ladies... Been a very long time , since I have posted on the board however, I know this site and our group is amazing for advice, support and comfort. I was dx Nov 1 2017, full hyst and BSO on Dec 8 2017 and placed into remisson Jan 2018 after staging results where returned and confirmed with the tumor board.…
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How to deal with waiting?
Hi ladies, a few days ago my gyno called me in to tell me a polyp she removed is suspicious for adenocarcinoma. I am scheduled for a CT scan on the 11th and will be scheduled for a hysteroscopy with biopsy ince my period arrives (based on my body signs, within a week). While she has told me thst signs point to it being at…
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Three
Dear sisters: Today I picked up the results of my CT scan which marked three years since the end of treatment for Stage IVB, Grade 2 endometrioid endometrial adenocarcinoma. Before I began to post tonight, I went back and read my first post here (Feb of 2018 after reading every post on this site beginning in April of 2017…
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Letrozole + Ibrance for ER+ endometrial cancer
Saw this announcement today and thought I'd share it with you all. It's a small study but with promising results for advanced or recurrent estrogen receptor positive endometrioid type endo cancer (those of you with serous should also read it). CDK4/6 Inhibition Boosts PFS in Endometrial Cancer
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Getting a port on Friday
So I went for my second Adriamycin treatment for my breast cancer. I had talked to my oncologist early in the morning about a need for the port because the MRI guy had a hard time finding a good vein the week before. The nurse warmed up both hands to find a vein and she got one on left hand, but did advise that since I…
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Re Nine and a Half Years Cancer Free!
Hello Ladies: I saw my oncologist this past Monday, August 24th. My CA No. is 14. It was the same number last year. My oncologist wants to see me next year in August and he said that my UPSC Stage 1 Cancer that I was diagnosed with in February of 2011 (Nine and a half years) is Unlikely to come back. That is very much a…
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5 year anniversary survived stage IIIC endometrioid adenocarcinoma
Hi, just wanted to post some hope for those going through a scary time. I just passed my five year anniversary since my treatment began for Stage IIIC, grade 2 endometrial cancer (endometrioid adenocarcinoma). It had spread to my pelvic lymph nodes, which boosted up my initial "don't worry about it" Stage 1 version of no…
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Reoccurence
I happily posted last December that I was five years cancer free following treatment and then out of the blue the cancer is back. UPSC is certainly sneaky. I was having severe lower abdominal pain last week that I thought might be diverticulitis but no the only thing they found on the CT scan were enlarged pelvic lymph…
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3 Years NED with Uterine Carcinosarcoma (MMMT)
I'm conflicted in posting this. On the one hand I know how important it was for me when I was first diagnosed to learn that some women with my type/stage of cancer (Stage 3B, Grade 3 uterine carcinosarcoma or MMMT) did survive longer than the typical statistics. On the other hand, I feel so badly for those women who…
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Medicare Drug Plans
With the change period on the horizon I'm starting to think about drug plans. I have traditional Medicare and plan F for my supplement which I chose at the time because of my cancer background. My drug plan did well for the couple meds I'm on. But now with the recurrence things have definitely changed. Have any of you…
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Checking in and saying "Hello!"
Hi Everyone: Sending you all hugs! Its been a few months since I check in. I'm hanging in there. I have a scan coming up in November. However, my work changed our insurance in September so now none of my cancer doctors or centers is covered. One good thing is that my doctor who left in April of this year and went into a…
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Thank you for all your comforting words
Thank you for everyone thinking of me during this most difficult time in my life. Tears are running down my face as I read your responses and all the love and care and heartfelt emotions that you were giving to me. I can't even tell you how much that meant to me. My husband ended up with double sepis after a failed…
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YAY! Port removal.
Had my port removed one week ago today. Everything went well. I finished treatment in March of 2019. All is well. Now, if only this damn virus would go away, I want to travel.
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So... I checked my portal...
And the bloody beast is back. :( Iys in my abdominal wall/muscles, and there is a bit of both peritoneal carcinomatosis and a small amount of asctis... CA125 was 32 4 months ago. Now it's 600 :O Firwt though was... I'm gonna die. That peritoneal carcinomatosis is not so good though. Right? That part killed you in the old…
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What do you do during infusions?
If you're icing your hands and feet, what do you do to pass time? I understand there's a few hours of this. The first time I would probably be too worried, thinking and overthinking, worrying about reactions. But when you're not doing this, how do you cope with inactivity?
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hip and leg pain after chemo
I finished 6 rounds of chemo April 5, 2012. A week later I began to feel pain all over and now it is getting worse. Especially in my hips, buttocks and knees. I thought it was because I hadn't worked out, but the pain is waking me in the middle of the night. Even my hands hurt to make a fist. Is anyone going through this?…
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VAT assisted lung biopsy
Hi all. Hope you are all doing well in these crazy times. I was diagnosed with endometrial cancer last year; grade was 3 so I had a hysterectomy really fast on April 15. I was staged 1A. The pre-operative scans revealed 2 lung nodules (stable at 3mm each up till now), but also a section that is 0.9cm of ground-glass…
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Keytruda/Lenvima ---- DAY 21
Glad to see the Discussion Board is up and running. I missed all you ladies. Well, today is Keytruda infusion #2 for the 30 minute infusion. Blood work was yesterday and I was expecting WBC, RBC, and hemaglobin to all be down but surprisingly all were actually up and all in normal range. great! Started Day 1 with 2 pills…
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CA125 continues to rise even though chemo is working
Hello Ladies, Hoping to get some insight from you all regarding CA125. My mom received the great news that her cancer (recurrent UPSC) is shrinking and the chemo is doing it's job. Pet Scan (after 3 sessions carbo/taxol) shows decrease in size and decrease in metabolic activity in the lymph nodes and improvement in the…
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Recurrence
Hi all, It's been awhile since I updated but I do read your posts and keep you all in my prayers. july 9 I had a sigmoidectomy for diverticulosis and had unexpected results. 2 Masses were found along with cancer in my abdomen. Big surprise because I had 3 ct scans and a pet scan that showed nothing. i currently have a…
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Let the games begin....
This morning I started my new therapy of afinitor and Letrozole. I have to admit, I thought I was so ready until I tried to cram that big pill into a mini marshmallow! The steroid mouth rinse ( of which I am to do 4 times a day to prevent ulcers) wasn't so bad but 2 minutes is a long time to rinse! Praying for limited side…
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Radiation Gastroenteritis
Hello, all. I'm hoping to get some hints on my diet. I finished my treatments in 2018, including surgery, radiation and brachy therapy. Since that time, I have been able to eat less and less. Right now, I'm down to consuming High Protein Boost and clear Boost Breeze. Surgery was done by a general surgeon, with a large…
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Brachytherapy on the horizon
Hello Ladies, I've been lurking here for about a month and have enjoyed the posts, although I don't always understand the terminology. I am a new member of the endometrial adenocarcinoma "club". I didn't have traditional symptoms (bleeding, etc.) and the issue came up during a routine Pap smear (abmormal cells) in April. I…
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Serous Carcinoma- spots in lungs.
Hello everyone. I'm new to the board and would like to thank everyone for taking the time to write their experiences! I cant tell you all how much it has already meant to us. My aunt was recently diagnosed with serous carcinoma stage 4. The doctor is recommending a total hysterectomy provided they did not find and spots in…
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Uterine Serous Carcinoma- Lenvima/Keytruda
Hello, Has anyone else been on the new FDA approved medication Keytruda/Lenvima? My mom had arecurrence of USPC & was started on this drugs. thanks
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Chemotherapy
I just had a post operative appointment with my surgeon. He successfully removed the cancerous left para-aortic lymph node (on June 29, 2020) that had been a recurrence from the Stage IB, FIGO 2 endometrioid endometrial adenocarcenoma (Total hysterectomy in Jan 2020). He now recommends chemotherapy and possibly targeted…
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Endometroid carcinoma with squamous differentiation
Hi everyone, I do not post anymore but I keep reading your stories quite often When I was diagnosed on July 2018 the Dr told me that I had Endometrioid Stage 1A Grade 1 I read my Pathology report yesterday with more attention and it says Endometrioid Carcinoma with Squamous Differentiation. I checked online and I've got…
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Doxil and carboplatin
Have anyone done this mix, Doxil and carboplatin? If yes, how did you feel duri g treatment? And, did it work? Currently being treated for my first reccurance of USPC...