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Uterine/Endometrial Cancer

upcoming D&C
I have PCOS and my last ultrasound was done in 2017. Recently, I started with a new MD who happens to be a gyn onc. I saw this dr because I have a history of vin 3 and my previous gyn moved to a different location. My ultrasound from 2017 had a stripe of 1.4 cm. She told me that she was going to schedule another ultrasound…
Drinking Alcohol while having Chemo Treatment
I was hoping someone here could answer a question for me please! My sister is just starting trreatment for cancer of the uterus & had her first carboplatin treatment a couple of week's ago! I am seriously concerned about it & worry that it may effect how well she does with her treatment! If I say something to her she get's…
neuropathy or carpal tunnel?
About a month ago the neuropathy that I have had in my fingers suddenly became worse. Its in both hands and the pain and burning shoots up my arms. I often cannot use my hands for fine motor tasks. I cannot lift things, unscrew jars, etc. because I don't have enough strenght. I wake up in the middle of the night in pain. I…
Mixed results but OK
Doc called at 8 a.m. to report on Friday's CT scan. Good news and maybe some not so good. It appears that the surgery in October killed the beast on the vaginal cuff! I think she was shocked! But, I do have 3 lymph nodes in the pelvic area that have grown slightly larger. One is tiny, 2 are a little over 1.3 cm. I will…
My girls!
After three whole months gone, I am finally surfacing and I have missed all of you so much. Praying as always that everyone's ok. We made it out of Texas just before the army shut down all military travel. Took six days to get across the country and arrived in our SC home three months ago today. Spent these past 12 weeks…
How's it goin' ZsaZsa?
Been thinking about you and hope all is ok!
megace and heartburn
I almost ashamed to even ask for help on this as it is such a minor side effect, but you all have so much combined wisdom that maybe you have some ideas I have not tried. When I am in the 3-week Megace phase, I get such gas and heartburn that I was eating Tums like crazy. Doc told me to ease off on the Tums - try…
Dedifferentiated adenocarcinoma
Ladies, first of all I admire your strength and thankful for this forum... I'm writing on behalf of my mother, she is just 58 years young and has been diagnosed with dedifferentiated adenocarcinoma stage 2. She had her surgery on November 21st and this went well and her gyn/onc from Cleveland clinic cancer center very…
Scanxiety
How do you deal with that? I’m having my CT scan this Tuesday and I’m already now so nervous. Does it ever get any easier??
Tribute Page?
I am wondering with so many losses on this board this past year if there is anyway to set up a tribute type page to our site? I don't know how everyone feels about that, but I feel like it might be a way for all of to mourn, honor and remember the ladies who have contributed so much here about their journeys... I don't…
Well, It’s Back
I got the results of my 6 month CT scan and there's a tiny, tiny area of disease on the left peritoneal area. We would not even see it but for the CT scan. Needless to say, I'm heartbroken. But I shouldn't be so surprised. The Megace was only going to work so long. So we've decided to try 21 days of tamoxifen and 21 days…
Tomorrow....
I will have my appt with oncologist. Its gonna be a phone call due to corona... That’s gonna be a bit weird. ;) I did check my portal. CA125 is 32. Scan report seems to be okay, but so many medical terms, so.... Just have to wait I guess When I had my blood drawn, I was feeling horrible, due to gastritis. And that is…
Sad news from Cheers regarding her Mother
Cheers just wrote to say her mother passed away from her struggle with uterine carcinosarcoma (MMMT) in January, 2020. Cheers reports that her mother persevered during her long fight with cancer, despite setbacks from her various treatments, but in the end, she couldn't beat back this insidious disease. You can read about…
Blood and scan results in patient portal?
Do you have this option? In Denmark we do. And it’s up to you if you want to read it. It could be good news but it could also be bad news. Or news you don’t understand. I just had both blood work done and a CT scan. I know that the result will be in there within a few days. Just the thought makes me want to puke. A…
How old when dx?
I told you I would be more active in here. Not lying :) :) :) How old were you when you were diagnosed the first time? What stage? What type? What treatment? Me: Diagnosed at 47 in September 2018. Stage 4B USPC Spread to fare for surgery so first 3 x Carbo/taxol. Chemo worked so got the massive open surgery. 12” scar.…
Those of us with USPC...
If any, how many recurrencea have you had? How far apart? And how what it treated? I’m at the end of treatment of my first recurrences. I was only NED for 9 months :( First I was treated with 6 x carboplatin and taxol with massive surgery in between. First recurrence was treated with 6 x carboplatin and doxil, due to…
New "My Posts" Function
If you haven't checked your "My CSN Space" section recently, you may not have seen the new "My Posts" function. This function enables you to: * See a list of the posts that you've initiated (the "Content" option). * See a list of the posts that you have commented on (the "Comments" option). Since we know that the CSN's…
5 Years NED
I was diagnosed with UPSC stage 3c in April of 2014. Five years ago I had just finished the last of my radiation which followed my chemotherapy. I saw my oncologist today and he declared me cancer free. He also stated that he thought I was also at a very low risk for reoccurrence. When I was first diagnosed I was…
10 years cancer free today UPSC Brachytherapy saves lives
Had my annual exam today and am 10 years cancer free. Another lady who did chemo with me just found out she had a reoccurance with UPSC at her 10 year checkup. The difference between her treatment and mine was I had the internal radiation (brachytherapy) and she opted not to do it. Her only new symptoms were a reoccuring…
It’s my birthday today :) And something about gastritis...
We all know how important birthdays are. Next year I will be 50, and I can honestly say that I’m looking sooo much forward to that day. Something I use so kind of dread. Getting older. But getting older is GOOD :) So I’m embracing my b-day with all I have :) Im currently getting carboplatin and doxil. I think the latter is…
What kind of follow-ups?
Hi all. Just wondering what kind of examinations you are getting at check-ups? Im in Denmark so here it’s normal to get scans. At least for uterine cancer. I’ve had both. My current oncologist prefers CT scans over PET/CT. She’s the head doctor of the oncologist department. Yes, I’m a bit lucky there ;) Bit it’s just a bot…
Virtual Visits
How are you all finding your virtual visits? I like them for visits that you really only are talking and it saves me travel time. I agree with others that sometimes you need a "touch" visit and also I'm sure it is frustrating for people that are not tech savvy. But I myself hope we continue to have this option post-virus…
Gastritis
Have anyone ever had this? I do. Due to chemo. It’s horrible. I’ve lost 8-9 pounds in 5-6 weeks and I’m not overweight. Gastritis is inflammation. Yes? Can this cause ca125 to raise a bit?
Lynch Article on future vaccine
https://www.oncnursingnews.com/web-exclusives/a-positive-outlook-for-lynch-syndrome-related-cancers?fbclid=IwAR0szpe5e921sA4vZ5h8wc6Px0AT40s_UAA6YYCFEqY4hfS1wEl7R-tHDVo Good morning all, This sounds promising for those of us with Lynch. I hope you all have a good day. Love and Hugs, Cindi
Question about staging and diagnosis
I was diagnosed from a D&C in November, at which time they could not share a stage, but indicated they found 3 spots of Adenocarcinoma, FIGO grade 2. In December I had a radical hysterectomy, and was staged 1a (less than 50% myometrium invasion), but this pathology only found FIGO grade 1 cells. I also had clear lymph…
Test
Just wanted to see if this is working since there's been no posts for a while
Intersting new article on OncLive
Future Looks Bright in Endometrial Cancer, With Exciting Emerging Agents and Targets https://www.onclive.com/web-exclusives/future-looks-bright-in-endometrial-cancer-with-exciting-emerging-agents-and-targets
I'm tired of the at risk warning, enough!
Yes, everyone who has an illness and is being treated by doctors have been told this, and cancer patients are extremely vulnerable, but my state is really pushing the stay home if you are elderly or at risk. To the point, that they are hinting that they would open up the economy, but still mandate (or at least insist) that…
Next Appointment
When is your gyno/oncologist going to begin seeing you in the office again. I was supposed to have a 3 month checkup March 24, it was canceled and no other apoint meant made. Bloodwork was done, appeared to be ok. My next follow up should be in June. I am a stage 1a upsc survivor, hysterectomy was performed October 2018. I…
Sharing an article
https://connection.asco.org/blogs/prescription-managing-fear-and-chaos-covid-19-pandemic-let-our-patients-teach-us- This is an article written by an oncologist who himself was diagnosed with cancer. He is talking about COVID 19. It is insightful and he understands. I like his expression he speaks from the other side of the…

Uterine/Endometrial Cancer

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