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The "Outlier" persists....
Good day, Ladies. I am posting today mostly because I do think it help others newly diagnosed to hear life experiences that challenge the generalized statistics that we all know and dislike. I am a 15-year survivor of endometrioid adenocarcinoma who has been up to bat three times so far in the treatment sphere, likely…
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Serous endometrial cancer (UPSC) - please give me hope
Dearest members! I'm from Stockholm Sweden. My 71- year old mother was diagnosed with UPSC stage II B for about 3 months ago. She underwent surgery and will have her fourth cycle of chemotherapy next week. During the chemotherapy a CT scan was performed and further investigation showed that had positive cytology in one of…
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Happy Thanksgiving
While Thanksgiving will be very different this year than what we're used to, I hope everyone has a peaceful and safe holiday. And for those members who don't celebrate this U.S. holiday, extending warm wishes to you and your loved ones as well.
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Peritoneal Cancer - After Endometrial
Good Morning ladies... Happy Sunday! Wondering anyone on here, was dx with peritoneal cancer, after endometrial? If so, what were your symptoms... I know it is possible, even after a complete hyster/bso. Thanks.
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Lynparza
Ok so I am 8 years out! I’ve had 2 surgeries on my lung because of recurrence from UPSC ! I have also had radiation at the beginning and 2 sets of chemo! Carbo and Paclitaxol. I am suppose to start Lynparza because o have an mutation in my BRCA sequence. I’m not necessarily BRCA positive! Probably from chemo! I am afraid…
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My Internist of 11 years will not accept MediGap insurance anymore
Aaarrrhhhh! She got me thorugh my dx of cancer, has been a wonderful doctor who has been dealing with me as I degenerate into a puddle of old age complaints. Now I learn that she will not accept my Medicgap plan anymore. I cannot sign up for a Medicare Advantage plan because we live in two states, and I do not want to be…
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Medicare supplemental or advantage advice?
Well, I've defied the odds for long enough that I will be going on Medicare as of March. I live in CT, and would like to have access to Dana Farber and/or Sloan Kettering. Annual medical bills are likely to be high (although who knows, with no recurrence of uterine, and if the lymphoma stays in remission, all I'd have is…
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Uterine Biopsy and delayed bleeding???
Hi all. Posted several days ago that I had to have a biopsy done for a 14mm thickness. All went welll. Very minimal spotting. On day three I began to bleed. Lightly. Day 4, have to change my pad about two times, now today- day 5- I wake up with heavy bleeding!!! I called my dr yesterday and was told she would return my…
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Icing and increased pain in toes
Tomorrow I have my second round of chemo and after first round I experienced neuropathy in hands and feet. So I'm trying out the ice booties and hand mitts and am having a hard time tolerating the feet booties especially. The only thing that makes it more tolerable is to wear a thin sock. I find my toes are…
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UPSC and hormone replacement update - MA Bound
I had my 3-month check up a couple of weeks ago and, as expected, my gyn/onc recommended against hormone regulation. So, I'm trying the eggshell that MA Bound recommended, and I wanted to thank you for the information. It isn't something I found on my own. Also, a friend mentioned my neuropathy to his podiatrist who said…
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Comparison of Universal Genetic Testing vs Guideline-Directed Targeted Testing for Patients With Her
Interesting study about genetic testing in cancer patients. https://jamanetwork.com/journals/jamaoncology/fullarticle/2772576 Findings In this multicenter cohort study of 2984 patients with cancer, 1 in 8 patients had a pathogenic germline variant, half of which would not have been detected using a guideline-based…
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Fallopian tube girl on your uterine page
I'm sorry, Ladies to be on your board, but the PFTC boards (threads) are very quiet and "cmb" replied to my original post and kindly suggested I come here! I'm very impressed by the love and support you all give each other.❤️ Here's my original post: alicia2020 Posts: 1 Joined: Sep 2020 Sep 06, 2020 - 11:14 pm Hi, Ladies…
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New, Scared and full of questions
Hi everyone - Not loving I'm here, but it is what it is. Brief history: 54 , female (haha) February of '19 had a GUSHHHHING period so bad I ended up in the ER. Had a D&C w/hysteroscopy. Everything came back ok. Fast forward to June. Heavy period with massive clots lasting 40 days. Nine day break, then a 17 day period. Gyno…
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Needing help
Hey y'all. How is everyone today? I am a Uterine/Ovarian Cancer survivor. I will have been in remission 3 years this December. My health is starting to get bad again and I'm afraid with this corona virus being so rampant. I was wondering if anyone knows of any kind of Grants or donations for survivors. If so,please let me…
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Pls Help Me Quiet the Hamster Wheel of My Mind
Hello - I have been lurking on this board all day and love how supportive everyone is. Here's my background - I pretty much stopped having a period from about 40 years old to 48. I attributed it to early menopause. I started bleeding heavily last year and was diagnosed with endometrial hyperplasia. It was not atypical. I…
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New to Forum
Hi Everyone! I tried to post a new thread to introduce myself yesterday but kept getting an error message...hoping this works...I'm not usually such a tech mess-up... I'm new here although I have been fighting UPSC for a year now...I am Stage IVB. I had a complete hysterectomy in November 2016, 6 rounds of…
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Not giving up!!
Ive just booked an appt with my GP, to discus some repurposed drugs I've found. LDN, dipyridamole and disulfiram. I hope he will prescribe it to me. Already on the COC protocol. I refuse to give up. I have so much to live for still. All 3 children are still living at home. I need to stickl around for them as long as…
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Message from Susan, the Queen of Cheese
I just got a text from CheesyQueen57 (Susan). She said she wasn't up to posting yet but was ok with me sharing this with you all. "I’m doing better. The tummy bloating seems better and I’ve been able to control the nausea. Let’s hope the treatment works at least for a little while." I'm praying the treatment works!! Love,…
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Still around 9 year survivor MMMT
Good Morning Everyone, It has been awhile since I posted. I was contacted by No Time for Cancer and she said I needed to post as some of the long timers were wondering if I was still around. Yes I am still here. It has been 9 years since my last chemo treatment Aug 22 2011 from Stage 3c1 Carcinoma sarcoma Uterine cancer…
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Wait until there is vaginal bleeding?
Hello, I am so grateful to find this amazing community and am humbled by your strength and fellowship. I do not have a diagnosis of endometrial cancer, but did have a concering transvaginal ultrasound result. I was wondering if anyone here could comment. I am 53 and postmenopausal. I have been feeling very bloated, but…
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UPSC new study results
https://ascopubs.org/doi/abs/10.1200/JCO.20.00549 Molecular Classification of the PORTEC-3 Trial for High-Risk Endometrial Cancer: Impact on Prognosis and Benefit From Adjuvant Therapy I have the p53 mutation, 70% of serous have the p53 mutation which has a poorer prognosis. Does this explain why some UPSC survive and so…
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Six years, still NED from metastatic EC
It’s been awhile since I last posted, but wanted to let you know that I am still here and it is now six years since I was diagnosed with advanced, then metastatic endometrial cancer, and I’ve been NED for over five of those years. It is hard to believe it has been six years already. Congratulations to all who have…
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FIVE YEARS and I'm still alive!!
Five years ago today I had my hysterectomy. When I went in for my first doctor visit, he gave me the bad news I had UPSC. He ordered an MRI and x-rays to see if it had spread beyond the cervix. Based on those test results he decided not to go back in and take lymph nodes. That's why I was given a Stage II/III, Grade 3…
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This is just to make you laugh
My lymphedema in my right leg began to swell about a month ago. Because it swells all the way to the top of my leg, my PT has been wrapping the leg and I leave it for 48 hours. It has begun to get much better but he says I need support hose. We tried the knee highs but that made the thigh worse; we tried the thigh high but…
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Decision time
Update: Met with Hospice and now better understand their role. Guess I am not ready for it, so they say. In order to keep my lymphedema PT, I need to remain free agent ( : ????Just got a phone call from Hospice super and she says I can keep PT and the nurse just check every few weeks.??? So guess you will have to wait and…
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CT ok (I think), granuloma
I just had my 6 month CT, see below (finished chemo and radiation in 6/2018 for stage 3a). Although the fluid and spot he identified are described as unchanged, this is the first time they've been noted (4th CT altogether). He only mentions the last scan, which makes me wonder about the earlier ones. No growth in 6 months…
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Update from me...
Hi all. Ive been away for a while. I'm doing weekly Topotecan. 3 times weekly, one week off. Just had my #4 yesterday. My CA125 was 600 before treatment started. Had my blood drawn on August 28th. Its now 1410 after the first 3. 18 chemos planned.. So I guess it is not working. Unless this topotecan is taking some time…
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Stage 1 Grade 1 Adenocarcinoma
Good Morning ladies... Been a very long time , since I have posted on the board however, I know this site and our group is amazing for advice, support and comfort. I was dx Nov 1 2017, full hyst and BSO on Dec 8 2017 and placed into remisson Jan 2018 after staging results where returned and confirmed with the tumor board.…
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How to deal with waiting?
Hi ladies, a few days ago my gyno called me in to tell me a polyp she removed is suspicious for adenocarcinoma. I am scheduled for a CT scan on the 11th and will be scheduled for a hysteroscopy with biopsy ince my period arrives (based on my body signs, within a week). While she has told me thst signs point to it being at…
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Three
Dear sisters: Today I picked up the results of my CT scan which marked three years since the end of treatment for Stage IVB, Grade 2 endometrioid endometrial adenocarcinoma. Before I began to post tonight, I went back and read my first post here (Feb of 2018 after reading every post on this site beginning in April of 2017…