Let the games begin....
This morning I started my new therapy of afinitor and Letrozole. I have to admit, I thought I was so ready until I tried to cram that big pill into a mini marshmallow! The steroid mouth rinse ( of which I am to do 4 times a day to prevent ulcers) wasn't so bad but 2 minutes is a long time to rinse! Praying for limited side effects and maximum effectiveness. BTW, I'm in the doughnut hole, my copay for 1 month for afinitor is more than $800. Unfortunately (or fortunately) I don't meet any income guidelines to get that reduced. Wish me luck. Appreciate any advice from anyone on this therapy.
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Good luck!
Praying that it's very effective for you and no side effects! Please keep us posted. I remember Lulu talking about putting the Affinitor in marshmallows but didn't realize it was a big pill! I'll be keeping up with this one as that's the next thing my oncologist has recommended when/if the Megace fails.
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Pulling for you
Glad you are getting started on the new meds. Have been wondering if it all got sorted. Hoping they will work like a charm. I have to admit I relate to your let the games begin title as that is how we feel as we stand at the starting gate and wonder what the race will be like. Wishing you all the best!
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Thinking of you Cheese. I
Thinking of you Cheese. I hope this WORKS! As always, your attitude is awesome and will help you continue the fight.
Here's to zero side effects and some really great news down the road.
Love and Hugs,
Cindi
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Best of Luck
Wishing you the best of luck as you begin your new treatment. May you have great results and no significant side effects. That afinitor better work like a charm, with that gigantic copay you're getting hit with!!! Whatever happened to the good old days when doctors used to hand out free drug samples to their patients?
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Happy trails on your new journey!
Hi Cheese. "In bocca al lupo"* as you embark on this new treatment that we all hope steps in where Megace waned in effectiveness and that afinitor is useful in controlling/shrinking your hot spot(s). Your willingness to share so openly your decision-making calculus and your experiences while taking the drugs is humbling. Thank you. Best wishes, Oldbeauty
* (From Ms. Google in the spirit of your adventure next year!). "What [Italians] usually say to a person who is going to sit for a test or a job interview or is feeling unwell is ‘In bocca al lupo’, which literally means ‘In the wolf’s mouth’. To complete the good luck ritual, the person, who has been told that, has to answer ‘Crepi il lupo’ which means ‘die the wolf’. The short version of the answer is ‘Crepi’, the lupo is implied."
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Crepioldbeauty said:Happy trails on your new journey!
Hi Cheese. "In bocca al lupo"* as you embark on this new treatment that we all hope steps in where Megace waned in effectiveness and that afinitor is useful in controlling/shrinking your hot spot(s). Your willingness to share so openly your decision-making calculus and your experiences while taking the drugs is humbling. Thank you. Best wishes, Oldbeauty
* (From Ms. Google in the spirit of your adventure next year!). "What [Italians] usually say to a person who is going to sit for a test or a job interview or is feeling unwell is ‘In bocca al lupo’, which literally means ‘In the wolf’s mouth’. To complete the good luck ritual, the person, who has been told that, has to answer ‘Crepi il lupo’ which means ‘die the wolf’. The short version of the answer is ‘Crepi’, the lupo is implied."
Crepi, OldBeauty. Thanks for good wishes. The information others have shared has been so crucial to my journey I feel an obligation to pass it on to all my sisters. I don't know how I ever would have managed physically Or emotionally without this forum.
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How apt!oldbeauty said:Happy trails on your new journey!
Hi Cheese. "In bocca al lupo"* as you embark on this new treatment that we all hope steps in where Megace waned in effectiveness and that afinitor is useful in controlling/shrinking your hot spot(s). Your willingness to share so openly your decision-making calculus and your experiences while taking the drugs is humbling. Thank you. Best wishes, Oldbeauty
* (From Ms. Google in the spirit of your adventure next year!). "What [Italians] usually say to a person who is going to sit for a test or a job interview or is feeling unwell is ‘In bocca al lupo’, which literally means ‘In the wolf’s mouth’. To complete the good luck ritual, the person, who has been told that, has to answer ‘Crepi il lupo’ which means ‘die the wolf’. The short version of the answer is ‘Crepi’, the lupo is implied."
Now there's a word that's going to play over and over in my head! Good luck Cheese!
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Wishing you good luck and
Wishing you good luck and good cheer, Cheese, with my fingers crossed and eyes heavenward. (It makes me furious that you should even have to think about the cost of these medications. When are we ever going to get this horrible situation fixed? Payment should be very last thing on anyone's mind when they are fighting for their lives.)
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Good luck, Susan. I pray for
Good luck, Susan. I pray for you and success. Love you.
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CheeseQueen, hoping you have
CheeseQueen, hoping you have a rapid and excellent response to the new medications. I had to laugh when you told about having to put the pill in a marshmallow, because it reminded of me of tricking current and pet dogs into swallowing a pill when needed. Hope it goes down easily.
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So far, so good
I saw my oncologist yesterday. I've been on this therapy for two weeks and so far so good. Limited side effects and frankly I feel better than I have in years. All my labs were fine. I'll get more labs and a CT scan in August. Hoping for the best. My CA 125 was 13 so just reinforces that it is NOT a good indicator for me. So I'll continue with my marshmallow covered pill and mouth rinses and pray for effectiveness.
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Thanks for letting us know,
Thanks for letting us know, CQ! I add my prayers for continued success.
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That is nice to hearCheeseQueen57 said:So far, so good
I saw my oncologist yesterday. I've been on this therapy for two weeks and so far so good. Limited side effects and frankly I feel better than I have in years. All my labs were fine. I'll get more labs and a CT scan in August. Hoping for the best. My CA 125 was 13 so just reinforces that it is NOT a good indicator for me. So I'll continue with my marshmallow covered pill and mouth rinses and pray for effectiveness.
I am so glad to hear you are feeling better at this point. You have been through so much, and are such a inspiration showing such grace always. I pray that this continues for you.
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Crepi!CheeseQueen57 said:So far, so good
I saw my oncologist yesterday. I've been on this therapy for two weeks and so far so good. Limited side effects and frankly I feel better than I have in years. All my labs were fine. I'll get more labs and a CT scan in August. Hoping for the best. My CA 125 was 13 so just reinforces that it is NOT a good indicator for me. So I'll continue with my marshmallow covered pill and mouth rinses and pray for effectiveness.
Thankful to hear this wonderful news!
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Wonderful report
Sounds good. So happy for you.
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