Biopsy negative, but still turned out to have cancer?
I am a breast cancer survivor (10 years!), but this is my first time on the Unterine board. I was hoping you could help me with advice-
I am 59 years old, post menopausal. Six months ago, an ultrasound revealed I had an ovarian cyst. My GYN told me it should be followed up again in 6 months. In the mean time, I had moved from NY to NC, and didnt have a new gyn yet, but my PC doctor orderd the 2nd ultrasound.
Well, the cyst is still small but has doubled in size. What concerned my doctor was that the endometrial lining thickness went from 6.2mm in Sept. (it should be less than 5mm for a post menopausal woman) to now 25.2mm. That is a common indicator of possible endometrial cancer (anything over 20mm I believe) Mine is now four times the size in 6 months! A endometrial biopsy was recommended.
I took the first gyn that could take me, and she did the biopsy, which came back benign, negative for malignancy. I was very relieved, but was very unhappy with the GYN, who I felt wasn't listening to me. She gave me the results the following week that it was negative, and then tried to send me on my merry way- she came in the room, never even sat for a minute, said it was negative for cancer and started to leave! I said wait a minute, I have a few questions- Is it usual to have a lining this thick at my stage in life? She agreed no, it was actually uncommon. I askied if she was sure she was able to get the specific mass mentioned on the ultrasound, and she said "well, I did go all the way to the back to get the sample!". I wasn't implying she did anything wrong, I just wanted to be sure she tested the right spot (that was always critical in the breast biopsys I had). So I still felt something wasn't right, like we didn't get to the bottom of it, so I said I wanted a D&C to check the whole lining. She said okay, she would give me a referral to another place because "she wasn't scheduled to be at the hospital for a few months" WHat? But okay fine. ANd I said in addition, shouldn't I also follow up on the cyst again, as the ultrasound suggested? SHe answered Yes, you should, but wasn't going to give me a referral unless/until I asked for it. Shouldn't she have been telling me? Not me getting it off the ultrasound report? If I hadn't read it myself, she wasn't going to follow up on anything!
Needless to say, I don't think she ever put in for the D&C referral, she told me I had to wait to hear from them, but I have not.
Meanwhile, my sister-in-law (nurse) tells me she knows someone personally who had a negative biopsy but it came back positive after a whole D&C.
I spent the whole day looking for a new GYN, because I am definitely not going back to her. I guess I was just looking for support in continuing to push for answers, and to see if anyone elshe has ever heard of a negative biopsy but still did have cancer?
Am I crazy for pushing for further evaluation when the GYN thinks everything is done? I just don't trust her!
Thanks for any thoughts or feedback!
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