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Other Sites Or Groups?

woodstock99
woodstock99 CSN Member Posts: 212 Member

Me again.  Not that I wwnat to overload myself but are there any other support/user foorum websites or secure FB groups that are recommended.  Thanks.   

Comments

  • cmb
    cmb CSN Member Posts: 1,016 Member

    While this board has members with all kinds of uterine cancer, the other sites I'm aware of focus on particular types of cancer. For example, there is a Facebook group for women with my form of cancer: uterine carcinosarcoma or MMMT. And I believe there is Facebook group for women with UPSC. 

    Since I don't have endometrial cancer (the most common form of uterine cancer), I'm not familiar with a group or site specific to that type. Hopefully someone else can suggest a site.

    Beyond what is available online, check with your treatment center. Mine had a robust set of services, including counseling and support groups, nutrition classes, wellness resources, exercise classes and other help. I must admit that I only took advantage of the exercise classes, but it was nice to know that other help was available if I needed it.

  • woodstock99
    woodstock99 CSN Member Posts: 212 Member
    cmb said:

    While this board has members with all kinds of uterine cancer, the other sites I'm aware of focus on particular types of cancer. For example, there is a Facebook group for women with my form of cancer: uterine carcinosarcoma or MMMT. And I believe there is Facebook group for women with UPSC. 

    Since I don't have endometrial cancer (the most common form of uterine cancer), I'm not familiar with a group or site specific to that type. Hopefully someone else can suggest a site.

    Beyond what is available online, check with your treatment center. Mine had a robust set of services, including counseling and support groups, nutrition classes, wellness resources, exercise classes and other help. I must admit that I only took advantage of the exercise classes, but it was nice to know that other help was available if I needed it.

    Thank you.  Great

    Thank you.  Great suggestiuons.