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a timely and inspiring quote for thanksgiving or anytime, really.
sisters: "to hope is to gamble. it's to bet on the future, on your desires, on the possibility that an open heart and uncertainty are better than gloom and safety. to hope is dangerous, and yet it is the opposite of fear, for to live is to risk...to hope is to give yourself to the future, and that commitment to the future…
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My platelets went up alittle bit finally and Susafina I took your advice
Friends, Still working to recover on my blood counts following my 6th chemo which was on Nov 2nd. My platelets are what is being closely monitored by my oncology team. It is 4 weeks tomorrow since that 6th chemo. Here are my latest counts as of today: White cells went from 1.3 to up to 1.8......should be 4-10 Neutrophils…
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UPSC - Distended Abdomen
I am 58, was diagnosed upsc stage 3c when I had a hysterectomy in June. Into my 2nd set of chemo my abdomen began to swell and become sore. I had an ultra sounds and ct scans but the only solution was thought to stop chemo. I percervered through the chemo and it continually got worse. I finished my chemo 3 weeks ago and my…
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anyone have their ca 125 jump because of a cold or an infection??
sisters, i've read, and seen on the ovarian cancer site, postings from women who say their ca 125 had spiked because of something as small as a cold, and certainly a big infection. wondering if anyone here has actually had that experience? i wrote recently that my ca 125 spiked, but hadn't thought of the fact that i was…
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Ct scan results
Hello again, I called the doc's this morning to get the results of my recent ct scan and to my big, big surprise it came back good. I am so confused because the doc told me that the dye from the ct scan would pick up any tumors. Well it didn't show any in the pelvic area so the biopsy I got the other day is…
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I am the low platelet girl
Friends, Well, my platelets are still super low. But Monday and Tuesday they stayed the same at 21,000. My oncologist decided rather than having me come in in a day or so,as we have been doing for the last week, we will wait to have another blood test until Monday. He feels they won't drop much more. My last 6th chemo was…
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HELP NEEDED WITH DILATOR WHILE UTI INFACTION
ok i have had a on going UTI infaction the the past month and 1/2 the radition doctor told me i need to still use the Dilator to keep my skin tisue open, my family doctor and the Blader doctor i saw today said it is caused by the radition i had, he told me that since i had 3 or 4 meds to fail me it was due to the radition…
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HAPPY THANKSGIVING
Hi EVERYONR! As another turkey day rolls around I just want to wish everyone a Happy Thanksgiving. It has been quite a year for all of us but I am truly thankful for finding this site and meeting all of you wonderful people. Your support has been terrific and everyone here have really helped me through this journey. I only…
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Platelets dropped again today from 23,000 down to 21,000----I am 11,000 platelets away from a transf
Friends, I am so bummed, my platelets just are not recovering. It has been 3 weeks since my 6th chemo. Today they went from 23,000 down to 21,000. I have to go back for a bloodtest everyday that they drop, as they are closely monitoring me. If I hit 10,000 I have to have a platelet transfusion. Has anyone had a platelet…
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pianogal--looking for you
hi pianogal, would you be willing to say anymore about your experience with hormonal therapy? i'm seriously considering it, if i have a recurrence of upsc, which it's looking like i do. thanx alot, sisterhood, maggie
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Platelets still dropping from 25,000 down to 23,000-another blood test tomorrow
Friends, Well, had another bloodtest today. My platelets dropped again since Saturday when they were 25,000 down to 23,000 today on Monday. My white count is also low but went up from 1.1 to 1.2 today. I am guess neutophils probably went from 600 to 700 as they usually are equal with the white-but that number was not back…
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Recurrence on Vaginal cuff
Well I just wanted to post to ask if anyone has had this issue. I had a 3 month check-up last week and my doctor's assistant did the examine and felt a thickening of the vaginal cuff so they did a biopsy. I just received the call that it is cancer again. I don't know what the plan is next, I am waiting for a call from the…
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Linda how are you doing and feeling?
Linda, How are you doing and feeling? Just checking in on you. Cindy
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PianoGAL...WELCOME...Wow, how encouraging
I cut and paste my response to your first posting from another post (the one that requests where we live.) I'm afraid your great experience might get lost and thought I'd welcome you in a new discussion. Peace and hope, JJ ******************************************************************************8 November 21, 2010 -…
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Queston for Karen
Karen, Hi. How long did it take for your platelets to recover from 23,000 back when you had the issue? Would your oncologist have transfused you if it dropped any lower? Are you remaining in NED? It sounds like you are....I am so happy for you. Hugs, Cindy
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Questions for Susafina and Ro10
Friends, Susafina, you mentioned your medical team advised you not to ride stationary bike with platelet count below 50,000. That is interesting. My oncologist's nurse said it was ok, but I kind of wondered if maybe that is too much activity and if I should stop. I do 30 minutes on the lowest setting. Did you team mention…
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Saturday's blood test platelets stayed at 25,000, so next bloodtest Monday
Friends, Thank you for all of the advice about platelets. It makes me very nervous being so low, and I am afraid I will drop lower as in one of my later chemos I kept dropping until the 5th week after chemo. I sure hope this time is not the same. And that time I had only dropped at the lowest to 69,000. I am getting the…
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Linda/Jazzy Jan/ Susafina: Platelets dropped again down to 25,000---I am nervous----
Friends, Has anyone here had a platelet transfusion? I had my 6th chemo Nov 2nd and am having daily bloodtests to watch my platelets because they are so so low. If they get to 10,000 I have to have a platlet transfusion? Has anyone had this? Thank you. Hugs, Cindy
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Mother Dx UPSC looking for comfort
Hello my name is Elvin my mother (66) was Dx on November 5 after a biopsy. Doctor sent her to get 3 CT's (pelvic,abdominal and chest) The cancer was found in the endometrium and the cervix . a 3m nodule was found in her left lung and a ct scan was recomended in another 6 months (Apr 2011 god willing!). Some thickening in…
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Had hemoglobin transfusion today and go back for another bloodtest Friday
Friends, Well, I had to go back for another bloodtest today since all counts are low after my 6th chemo.My last chemo was on November 2nd. Platelets went from 26,000 to 32,000 overnight White count went from 1.3 to 1.2 overnight Neutrophils went from 988 to 852 overnight Hemoglobin from 8.1 to 8.5 overnight It was still…
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Linda-I looked up a past posting of yours
Linda, Your posts are always so informative! :) I saw a past post you noted with low platelets not to lift anything heavy-I didn't realize that. Good tip. Thanks! Hugs, Cindy
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is this a sign of possible reoccurance
I just got a call from oncology Drs. nurse that request an office visit in reference to results from my 3 month check. during normal pap and ca 125 check lab test revealed a negative pap test (nurse said no cancer cells present) however, there was some "abnormal" glandular cells present, she said not to worry, i was fine.…
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I got my PET/CT results back
My dr called me today, tomorrow is supposed to be my surgery. Apperently the tumor is bigger then she thought it's 7cm, its apperently very aggressive that a word I want to hear when you are talking about tumors inside me. She said she isnt sure if the surgery will be able to be done because of the size of the tumor, but…
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Platelets are 26,000 two weeks after 6th chemo
Friends, I am worried......it is two weeks after my sixth chemo, and I had my bloodtest today. (I was 3C before surgery and chemo and radiation.) Today my counts tested at: Platelets are 26,000 Hemoglobin 8.1 White cells 1300 Neutrophils 988 CA125 5 I have had trouble with platelets now after chemo 4 and now 6. I usually…
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Got my bloodtest results two weeks after sixth chemo-all counts very low and platelets only 26,000
Friends, I had my 6th chemo two weeks ago, and so today I had the two week (nadir) bloodtest done. Here are my results: Platelets 26,000.................... (dropped down from 118,000 two weeks ago) Hemaglobin 8.1.................. (dropped from 9.5 two weeks ago) White Cells 1,300....... (dropped from 2,000 two weeks ago)…
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wierd cancer
New to this--so here's my wierd cancer situation (it's a bit long, but bear with me...): I was diagnosed with grade 3 endometrial andenocarcinoma in March 2010, just 10 days after my 52nd birthday. Had a complete abdominal hysterectomy with node sampling, washings, etc--all clean but the cancer had invaded to within 3mm of…
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Susafina--another question for you
Sue, Hi there friend.:) I enjoy your posts as well. It is comforting to know that we are not alone in what we have faced, or worries we still hold. If you don't mind my asking-how old are you? I am 46. I don't recall from previous posts? Do you work, or are you back at work now? Was wondering....and forgot to ask in my…
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Malia...what's happening?
Dear Malia, I woke up this morning thinking of you and your mom. How are you both doing? Have you gotten the full results from the scan, yet? When are you visiting the oncologist? I continue to prayer that you receive strength and guidance at this time. Peace and hope, JJ
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question for those who have had reoccurrence
wondering about this as I come up to my 1 year visit, of those of you who have had recurrence, did you have symptoms that you spotted and went in to the doc to check them out or was the cancer caught through the CA 125 or something else. I ask this as my first doc did not do a pre operation CA 125 so there is no base…
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Genetic Testing -- Lynch Syndrome
Hi all, My doctors recommended I have the test for Lynch Syndrome because of my family history and my UPSC. Blood was drawn and sent out this past Friday, the 22nd. I was wondering if others have done this and how you handled the results if you were positive for it. Thank you for anything you can share regarding this.…