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Recurrence on Vaginal cuff
Well I just wanted to post to ask if anyone has had this issue. I had a 3 month check-up last week and my doctor's assistant did the examine and felt a thickening of the vaginal cuff so they did a biopsy. I just received the call that it is cancer again. I don't know what the plan is next, I am waiting for a call from the…
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Linda how are you doing and feeling?
Linda, How are you doing and feeling? Just checking in on you. Cindy
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PianoGAL...WELCOME...Wow, how encouraging
I cut and paste my response to your first posting from another post (the one that requests where we live.) I'm afraid your great experience might get lost and thought I'd welcome you in a new discussion. Peace and hope, JJ ******************************************************************************8 November 21, 2010 -…
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Queston for Karen
Karen, Hi. How long did it take for your platelets to recover from 23,000 back when you had the issue? Would your oncologist have transfused you if it dropped any lower? Are you remaining in NED? It sounds like you are....I am so happy for you. Hugs, Cindy
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Questions for Susafina and Ro10
Friends, Susafina, you mentioned your medical team advised you not to ride stationary bike with platelet count below 50,000. That is interesting. My oncologist's nurse said it was ok, but I kind of wondered if maybe that is too much activity and if I should stop. I do 30 minutes on the lowest setting. Did you team mention…
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Saturday's blood test platelets stayed at 25,000, so next bloodtest Monday
Friends, Thank you for all of the advice about platelets. It makes me very nervous being so low, and I am afraid I will drop lower as in one of my later chemos I kept dropping until the 5th week after chemo. I sure hope this time is not the same. And that time I had only dropped at the lowest to 69,000. I am getting the…
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Linda/Jazzy Jan/ Susafina: Platelets dropped again down to 25,000---I am nervous----
Friends, Has anyone here had a platelet transfusion? I had my 6th chemo Nov 2nd and am having daily bloodtests to watch my platelets because they are so so low. If they get to 10,000 I have to have a platlet transfusion? Has anyone had this? Thank you. Hugs, Cindy
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Mother Dx UPSC looking for comfort
Hello my name is Elvin my mother (66) was Dx on November 5 after a biopsy. Doctor sent her to get 3 CT's (pelvic,abdominal and chest) The cancer was found in the endometrium and the cervix . a 3m nodule was found in her left lung and a ct scan was recomended in another 6 months (Apr 2011 god willing!). Some thickening in…
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Had hemoglobin transfusion today and go back for another bloodtest Friday
Friends, Well, I had to go back for another bloodtest today since all counts are low after my 6th chemo.My last chemo was on November 2nd. Platelets went from 26,000 to 32,000 overnight White count went from 1.3 to 1.2 overnight Neutrophils went from 988 to 852 overnight Hemoglobin from 8.1 to 8.5 overnight It was still…
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Linda-I looked up a past posting of yours
Linda, Your posts are always so informative! :) I saw a past post you noted with low platelets not to lift anything heavy-I didn't realize that. Good tip. Thanks! Hugs, Cindy
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is this a sign of possible reoccurance
I just got a call from oncology Drs. nurse that request an office visit in reference to results from my 3 month check. during normal pap and ca 125 check lab test revealed a negative pap test (nurse said no cancer cells present) however, there was some "abnormal" glandular cells present, she said not to worry, i was fine.…
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I got my PET/CT results back
My dr called me today, tomorrow is supposed to be my surgery. Apperently the tumor is bigger then she thought it's 7cm, its apperently very aggressive that a word I want to hear when you are talking about tumors inside me. She said she isnt sure if the surgery will be able to be done because of the size of the tumor, but…
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Platelets are 26,000 two weeks after 6th chemo
Friends, I am worried......it is two weeks after my sixth chemo, and I had my bloodtest today. (I was 3C before surgery and chemo and radiation.) Today my counts tested at: Platelets are 26,000 Hemoglobin 8.1 White cells 1300 Neutrophils 988 CA125 5 I have had trouble with platelets now after chemo 4 and now 6. I usually…
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Got my bloodtest results two weeks after sixth chemo-all counts very low and platelets only 26,000
Friends, I had my 6th chemo two weeks ago, and so today I had the two week (nadir) bloodtest done. Here are my results: Platelets 26,000.................... (dropped down from 118,000 two weeks ago) Hemaglobin 8.1.................. (dropped from 9.5 two weeks ago) White Cells 1,300....... (dropped from 2,000 two weeks ago)…
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wierd cancer
New to this--so here's my wierd cancer situation (it's a bit long, but bear with me...): I was diagnosed with grade 3 endometrial andenocarcinoma in March 2010, just 10 days after my 52nd birthday. Had a complete abdominal hysterectomy with node sampling, washings, etc--all clean but the cancer had invaded to within 3mm of…
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Susafina--another question for you
Sue, Hi there friend.:) I enjoy your posts as well. It is comforting to know that we are not alone in what we have faced, or worries we still hold. If you don't mind my asking-how old are you? I am 46. I don't recall from previous posts? Do you work, or are you back at work now? Was wondering....and forgot to ask in my…
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Malia...what's happening?
Dear Malia, I woke up this morning thinking of you and your mom. How are you both doing? Have you gotten the full results from the scan, yet? When are you visiting the oncologist? I continue to prayer that you receive strength and guidance at this time. Peace and hope, JJ
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question for those who have had reoccurrence
wondering about this as I come up to my 1 year visit, of those of you who have had recurrence, did you have symptoms that you spotted and went in to the doc to check them out or was the cancer caught through the CA 125 or something else. I ask this as my first doc did not do a pre operation CA 125 so there is no base…
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Genetic Testing -- Lynch Syndrome
Hi all, My doctors recommended I have the test for Lynch Syndrome because of my family history and my UPSC. Blood was drawn and sent out this past Friday, the 22nd. I was wondering if others have done this and how you handled the results if you were positive for it. Thank you for anything you can share regarding this.…
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Aromatase Inhbitors
I have a question for everyone. Has anyone been placed on these drugs post treatment. I know that they are used in estrogen receptor positive patients in breast cancer. My oncologists have told me they are now being used in uterine cancer patients for one year after treatment. I have been encouraged to start on them but am…
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glandular cells found in Pap Test after Radical Hyst after UPSC
Has anyone else every had a finding of NORMAL Glandular cells after Radical Hysterectomy? I got a call from my ob/onc nurse today, DR wants to see me for a look/see, not to worry Pap was negative, but it is not normal to have these cells present as they are only found in cervix and uterus, which I do not have any longer. I…
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PET Scans and Medicare
From reading the board lately, this topic appears to affect many of us. I too am on diability and while I am very happy with my current insurance, I will have to go on Medicare mid 2012 and my other insurance will become secondary.As many of you have discovered, if Medicre deciles secondary and supplemental coverage will…
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Susafina
Susafina: Hi friend! You mentioned in another posting thread that you are 4 months post treatment and still waiting for your hemaglobin to rise. Did you have an issue with all low counts after 6th chemo, or primarily hemaglobin? I started this last 6th chemo on Nov 2nd with hemaglobin at 9.5 so I know it will of course…
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UPSC reoccurrence
Hello all, My mom was diagnosed with UPSC and she finished her last carbo/ taxol chemo treatment on 03/09. She was told NED after 6 treatments. Her CA125 was 9 and she had pet scan. Today, we found out that her CA125 jumped to 1000 and the doctor assured us that her cancer recurred. She will have her scan done next week.…
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very interesting and informative article on cancer and patient: " patience not passive: cancer in th
http://www.themonthly.com/feature1011.html--this is the link to this long, very, very, interesting article in our local sf-east bay paper--that my daughter sent on to me. all about how we patients are taking control of our own treatment, or at least are collaborating, and not just doing what the doctor says also, how we're…
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Ro10 Question for you
Ro, Hi there! :) I noticed in a recent post that you have an oncologist in IL and FL. I was curious if you live in FL or IL, and which is your main oncologist. Do you have one oncologist that is particularly good that you go out of state to see? Hugs and healing. Cindy
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Claudia?
Anyone hear from her? I've thought of her often, as I really miss her witty postings. Jan
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ok need help with questions to ask for my 1 year visit
hello all, I am going to be coming up to my 1 year visit with my doc , I have a few questions, I was wondering if any of you have suggestions on questions to ask. or questions you wanted to ask. getting a little ancy about this visit, still have that first doctors voice in my head (you ARE going to die in 1 to 2 years ,…
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IP Clinical Trial NCI
If interested, you can google this. I am starting 5 of 6 Cycles of IV paclitaxel weekly and IP carboplatin for a 2nd recurrence of Stage IV endometrial cancer. The chemo treatment has been refined and is not that difficult. I think that close to 90% of women complete the 6 Cycles. February 9, 2010 • Volume 7 / Number 3 |…
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Did anyone ever experience any unexpected bruising after chemo
Hi friends, As I have posted, I had my 6th taxol/carbo chemo last week. Last night while watching tv on the couch I fell asleep briefly, I think on my right side. When I got up, I noticed I had a small bruise by my outer right eye, and another bruise on my left jaw. They look better today. Do you think that means my…