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Calcium
I was wondering if anyone takes any kind of calcium other than the typical supplements: citrate, caltrate, etc. I have not read much, but I read somewhere that excess calcium could increase strokes, heart attacks and accumulate in joints. I try to eat all my calcium from my food, but it has become a challenge. I have been…
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MRI - 3T Abdominal - Pelvis (MMMT)
My mom was diagnosed in Sept 2012 having MMMT (early stages) after the hysterectomy and 4 rounds of chemo (Carbo/Endoxan) we recieved today the MRI (Abdominal -Pelvis) results and everything seems normal and clean except one comment "The liver size is normal, slightly steatotic. small dehiscence of the anterior abdominal…
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A Little Advice Here...
Ok, Momma has been in rehab since Aug. She is comming home(to my house) Jan.24. She has run out of Medicare, doesn't qualify for Medicaid. and has capped out her priviate insurance. She is 87, can walk a little with a walker, cannot stand for any lenght of time,and is too shaky to dress, bath, eat,or go to the bathroom by…
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Gemzar
Does anyone have experience with Gemzar? Am trying to decide between that and weekly Taxol Beila
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Dangers of flouride
Most everyone of you ladies is way ahead of me on all things but yesterday I went to a dentist that is fairly progressive on new ideas for health and well being. I went in due to the link of mouth health and cancer, also because I have one failing tooth that is a root canal tooth and there is a link between that and…
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Scared, waiting on uterine biopsy results
Hello - I'm trying to keep my wits about me and not jump to conclusions until I get a call from my Drs Ofc tomorrow. My changes started 3 months ago. I'm 51 so thought the changes to my period were signs of Menopause. My period has always been as regular as clockwork. Starting 3 months ago I started having some spotting…
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Recently Diagnosed with Uterine Cancer
Hello! My mom was recently diagnosed with Uterine Cancer. We do not know which stage and are hoping that it is very early on. She has her first appointment tomorrow with the gyn oncologist. Some questions/concerns we have had over the past week: 1. She has had severe lower back pain/hamstring (ciatic feeling) over the past…
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Another rise in CA 125
Had repeat lab today. The CA 125 is now 505. The last one the end of November was 360. Since I hav no symptoms I am going to continue observation for now and go for a repeat lab the end of March. Last time my CA 125 went to 2700 before changes occurred on the CAT scan, so I am comfortable with waiting and watching. I will…
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weekly taxol
Has anyone ever heard of Taxol every week for 8-10 weeks?
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Kathy- Surgery 28th (Monday)
Kathy- I hope and pray that everything will work out with the scheduling this time and the surgery goes perfect. Have a relaxing weekend! Please let us know how you are doing when you can. Big Hugs! Lisa
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Sharing something positive
My friend who has been dealing with a recurrence of UPSC in her pelvis and been on chemo since August receives her last "chemo lite" tomorrow. She did 4 cycles of standard big gun carboplatin and taxol, then 4 weekly treatments of Taxotere. Her PET scan in October was clear and her CA-125 last week was 6 and it has been 6…
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Flaxseeds and Estrogen
I eat a lot of flaxseeds with my oatmeal every morning. I was reading about it and found the following here http://www.webmd.com/vitamins-supplements/ingredientmono-991-FLAXSEED.aspx?activeIngredientId=991&activeIngredientName=FLAXSEED Flaxseed is sometimes tried for cancer because it is broken down by the body into…
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Final pathology
I was graded-Endometrioid Adenocarcinoma STAGE 1-A The cancer is only in the endometrium, which is the uterine lining. GRADE 2- Intermediate With Peritoneal Washings positive for malignant cells This is the first time my husband was able to go with me to an appt. with the GYN/ONO. He was not impressed with the doctor…
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CSN update
I apologize to everyone for not having communicated sooner. You have been more than patient under the circumstances. At this point, all of the content that was missing following the upgrade has been restored with the exception of private messages. There has been an ongoing investigation for several weeks that has yielded…
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Symptoms
Hello all, I found this site after I had the courage to make a doctors appt. I must say I am a big baby when it comes to drs. i have had a lot of cancer in my family, daughter had cancer three times and a grandaughter who died of a brian tumor at age 5. so, I have had some spotting( very, very light)l for several months. (…
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Surgery Rescheduled!
Hello Everyone! I am SO glad I have this board to sound off on b/c I am SO pissed off! My surgery was scheduled for this morning at 8am. I developed a cold over the weekend that got worse by Sunday so I called the surgeon to see what to do. He told me to take Tylenol Cold medicine and still report in. I am feeling like a…
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Three year check up. MMMT 1A
Hi Guys, Just went for my 3 year check up. Had a ct scan, complete blood work and chest xray. All clean. So what are those pains I still feel in my abdomen? I don't know what else to do. Any suggestions?
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ct, bone and colonscopy are in my future
17 months from last treatment and NED. Now I have some hip pain with swelling. I think it is nothing but my sister insisted I send a message to the dr. I did. Now I go next week for a ct scan then a bone scan with injections and the dr wants me to have a colonascopy. All of this without seeing her first. I have an…
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new drug Dalantercept?
Has anyone heard of this drug or tried it? Starting a phase 2 clinical trial and its an injection that supposed to block blood and nutrient supply to the tumor? Would appreciate any type of feedback. Hoping to find someone who tried it, and would love to hear its working great! :) Thank you!
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Newly Diagnosed
Hello Group! I am looking forward to gaining lots of information from everyone on this disease as well as how to handle everything associated with the diagnosis/treatment/recovery proccess. I DO plan to recover! A little background...I am a 55 yr old married female (obviously...lol). I have had UTI's my entire life and…
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Recurrence After Only 7 Months
In March I had a total abdominal hysterectomy -- was diagnosed with Stage 1b uterine cancer. Pathology report showed 16 lymph nodes tested and all clean. No spread to ovaries, cervix, fallopian tubes. No further treatment was recommended -- only 3 month follow-ups. At my last follow-up on October 17, all seemed to go well.…
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GYN ONC Recommendation - Montgomery County, MD, USA
I am returning to USA from overseas later this year and will settle in Montgomery County, MD. I would appreciate any GYN ONC doctor referrals from members of this board who live and are being treated in that area. I will be using the state insurance plan for uninsurable people that is administered by Care First BCBS since…
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Need advice, help, thoughts on treatment/clinical trial - stage 1A MMMT
I have been doing great getting used to this new diagnosis, thanks to all of you. However, Here is my stress. I am going to Dana Farber tomorrow per my request before the tumor board met. My gyno oncologist was very supportive and felt it was a dot the eye appt as she sees the tumor board recommend the standard carbo/taxal…
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I had a holistic nurse come to my hospital room!!!!! Very cool!
Yup got a lady walking in saying she was a homeopathic nurse and can she help me with my pain and nausea , this was in the hospital of course. I said, LAY IT ON ME BABY!!!! She let me pick out my scented oils for aromatherapy, she turned on soft cool music and soft lights and she did breathing exercises with me and laying…
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Anniversary Question
I hear people talk about 2, 1, 10 years NED.... is that the Dx date or the stop treatment date?
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Delete.
I decided to delete this, but didn't know how to remove it completely. Sorry.
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GYN/ONC kept results from me
I went for the last appt prior to surgery on the 7 th with OBG/ONC and asked her to confirm in person that my CT results were negative for problems since a nurse had given me the info verbally over the phone. She confirmed with a smile and asked if I would like a copy and jumped up to get one. After she handed it to me she…
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PET Scan results - Several nodes lit up again!
Nurse called with results. My first thought was, "Super. She's calling with good news!" NOT. I have 3 pelvic nodes and one post ascending aortic node that lit up. Plan: get the pelvic nodes biopsied Feb 3. using CT imaging. I've heard this procedure is not painful. If positive, this will be my 2nd recurrence of UPSC. I…
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hysteroscopy scheduled
Hi, Here's my story: 53 yrs old and went 13 mos without having my period. Figured that was the end of that. Then had 3 day bleeding episode. Saw my gyn, had transvaginal sono. Sono showed endometrial lining of 1cm and a nodule in lining of endometrium, along with multiple fibroids. Then my pap came back abnormal, showing…
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Possible late side effects of pelvic radiation
Hi! I finished 5 weeks of pelvic radition in May 2002. Has anyone suffered from bowel/bladder problems 10+ years later? I have been having bowel problems for a while now. Urgency and painful pressure, then feeling like I've finished only to discover I have not. I have also suffered from constant UTI's. Then 2 1/2 years…