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I'm soooo friggin' PO'd!
Just another example of why you need to be your own advocate. Standard treatment protocol for MMMT is usually 3 rounds of chemo, radiation, then 3 more rounds of chemo. I finished the first half of the chemo and all the radiation and was "recovering" for the last few weeks. I met with my oncologist for the first time since…
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Beila , how are you?
We have not heard from you for a long time. I hope you are doing okay. Did you start Gemzar. Thinking of you and hoping you are doing okay. In peace and caring.
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UPSC new to this
I am new to this blog and needing advice and information and anything anyone with this cance is willing to share. I was diagnosed in December. My original cancer was misdiagnosed in 2010 and I was not treated correctly then so my options are limited now since this is bing view as a recurrence and not tthe first time…
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types of chemo for USPC..quick question
Aside from Taxol/Carboplatin, does anyone know what are the effective chemotherapies for USPC??
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Random Thoughts
I know it's only a 3 month check-up and it wasn't a scan, but I got a "perfectly normal" yesterday. I will take those words as many time as I can get them. We have discussed this before, but the PA said you start counting your survival time at the completion of treatment. To me, that makes no sense as my chemo and…
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Cardiac tamponade: back from the brink of death
Shocking but true. My lymph system failed to drain and fluid built up in pericardium & pulmonary cavities. I was told within a week my blood pressure would be zero. They waited another 4 days! Lesson learned: don't get sick on weekend. 3 weeks & 2 days in hospital and still very weak. The doxil failed to work. New plan:…
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Radiation
Hi! I have been diagnosed with Stage 3 uterine cancer. I had a full hysterectomy and just finished chemo. I begin radiation on Valentine's Day. Happy Valentines to me! lol I'm looking for any experiences of what really happens during radiation. One doctor said it won't be that bad because I went thru chemo. Another doctor…
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AMERICA'S BEST HOSPITALS - 2013
Many of us have been asking about what hospitals, etc with best care per area. Link below might shed some light. Jan http://www.healthgrades.com/quality/top-hospitals-2013
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Random Thoughts
I know it's only a 3 month check-up and it wasn't a scan, but I got a "perfectly normal" yesterday. I will take those words as many time as I can get them. We have discussed this before, but the PA said you start counting your survival time at the completion of treatment. To me, that makes no sense as my chemo and…
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Lymph Node Inconclusive
I had a lymph node biospy done on 2/21... I am meeting my Dr tomorrow but called him today asking for the results because I couldn't stand waiting any longer. He said the report came back inconclusive. Has anyone had this? I want to go into my appointment tomorrow with questions i should be asking. Should he surgically…
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Planned CSN outage
Hello everyone, Between 3:00 and 4:00 Eastern Time this morning, CSN will be taken offline for about 2 hours. Exhaustive efforts were made to find a way to restore all private messaages. I'm not qualified to provide technical details but the bottom line is that all private messages that you sent from September 2009 forward…
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Norma 2
Norma Darling! Where the heck ARE you! Please, please, pretty please, let us know how you are doing with the lung x-ray!!! Love, Debrajo
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Where do i go from here?
SO I had my D&C today. Results to come in a couple of days. The waiting for results is the hard part. Have wrapped my head around the Hysterectomy. Just want it over with.
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As with all these things.....
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Dealing with Uncertainty - blog article
I found this to be very helpful for some specific information on how to deal with uncertainty. The full blog article is here: http://tinybuddha.com/blog/7-ways-to-deal-with-uncertainty/ but if you're not up to reading the full article: * Replace expectations with plans * Prepare for different possibilities * Becoming a…
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To Annie-Upsofloating-----Question
Annie, How did you handle being terminated when you were ready to get back to work? Were you already released from disablity and obtain unemployment? Are you working now? How are you you feeling? Just curious as this is a big stressor for me right now. I will have to pay Cobra, which is triple the cost of what I was paying…
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Losing my mind?
Hi there, my name is Jill and I'm currently going thru endometrial cancer Tx again. When it was first discovered I was very lucky, I just needed surgery and then constant vigilant testing. After 7 years I was considered to be in total remission. Then I went into the dr. for what I thought was a gallbladder problem. Never…
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Mary Ann is home
Welcome Home Mary Ann. She came home the end of last week. I talked with her today. She is getting stronger each day. She went to her primary care today and he stopped her diuretic. She said the swelling is better. She goes to the onocologist next week. She is fearful of the news she will receive. Let's pray she gets a new…
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My Mother newly diagnosed with UPSC Stage 3a....Looking for Support
Hello brave ladies! I have been reading your post for a few weeks and finally decided I needed to join in behalf of my beautiful mother. I will be trying to get her to join soon as well. Her story is probably typical of many. She is a very young 70 (I have more grey hair than her!) and she started bleeding late last year.…
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Treatment Options for Stage 4 Endometrial Cancer?
Apologies for being repetitive on the forum but I am desperately trying to gather any helpful information before my parents meet with my mom's oncologist (next week). My mom's endometrial cancer appears to have spread to her appendix and possibly liver, despite completing chemo (carb/taxol) and 28 sessions of external…
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Newly Diagnosed...what next?
Hello, I was diagnosed on Monday, 2/4/13, with endometrial cancer as a result of a biopsy. Based on the conversation with my Gyn, it seemed that this would be fairly straight forward and routine....surgery, follow-up treatment decisions if needed. However, after spending all day Tuesday reading and researching, my…
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lost my mum/how to help?
on October 5th my beautiful and brilliant mum passed away at 58 years old.. just 4 months after her diagnosis of stage IV poorly differentiated endometrial cancer. I wish all the best for you ladies and hope you have much better results. We are heartbroken. She left behind a devastated husband and three children. Many…
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Taxol-Carbo over, but starting Topotecan for liver mets - a bit discouraged
I was so happy to complete 6 rounds of Taxol-Carbo Jan 9th- have been feeling rocky for weeks and ready to feel better. (Can handle all the side effects except the constant queasiness/stomach ache, and anti-nausea pills do nothing for me.) Had CT scan that showed blood clot in my lung, so started on a blood thinner. Worse…
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6-month checkup / NED 3.5 yrs
I'm good for another 6 months...yeah! Have a checkup with oncologist every 6 months and we generally follow the CA125 marker, as fairly reliable for me. Been 2 years since my last CT scan, doc thought lets do one since I've got a small cyst on my liver (non suspecious), but like to watch for any size changes. All is fine,…
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New to the site, not so new to cancer
Hello All, I was diagnosed on Sep 11, 2012 after a comlete hysterectomy and removal of an 18" tumor. Just finished 6 rounds of chemo with Carbo/Taxl and starting radiation first week of March. Differing opinions on what to expect from radiation, some say eat lost now, I will need the weight, my Doc says it won't be…
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Norma 2
Norma 2...how are you? Did your chest x-ray coom back ok? Hope all is well! Best, debrajo
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ANTPOPOOLA
Hi Sis, I responded to your private message. You have found a real old post from 2010. I was dx with cancer then and two years later my beautiful daughter was dx with Leukemia and fell asleep in death in November 26, 2012. Check your private message and we will talk some more. love back to you.
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Surgery/Pathology Results
Hi Everyone! I wanted to share my pathology results from my 1-28-13 surgery. I went for my post op appointment today and it was reported I had stage 1a - grade 1 endometroid adenocarcinoma that penetrated the myometrial wall 11%. The cervix, ovaries, fallopian tubes, and lymph nodes are uninvolved with no sign of disease.…
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Alleviating & controlling DOXIL side effects ; what I've learned
I won't be posting for a few days because you are not supposed to do anything that cause friction between your toes and fingers for 3 to 5 days after a Doxil infusion to help prevent the hand/foot syndrome, with TYPING specifically listed. (ARGH! I can't imagine being cut off from you all and Facebook and my grantwriting…
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Question re: Second opinion at Memorial Sloan Kettering
Hello, I'm new to the boards and find the posts quite helpful. Recuperating well from abdominal full hysterectomy at Duke Medical Center. I was diagnosed with Stage 4 Serous Adenocarcinoma. This has been hard for me and my family, as the doctor doesn't sound too encouraging. Recommendation is for 6 treatments of Carbo &…