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Thyroid Cancer

RAI treatment - just got home
HI all After surgery for papillary cancer two months ago (total), I also had to go through RAI. I got through being Hypothyroid fairly well although the last three days were not great. I was able to work in a very stressful job right until the end. I also did not gain weight due to the low iodine diet. First time in life…
How many days were you in isolation (at home) after RAI
Just wanted to compare with what was told me. I am in my 3rd day, I was told 7 days to stay at least 3 meters apart for no more than an hour a day. Seems like I've seen online 3-4 days. What were your experiences? Thanks
Are they any others on this forum living in Israel
HI I would just like to know if there are any others on this forum that are living in Israel. The medicine and methods used here are a bit different than in the states and I would really like to know about your experiences. I have papillary cancer - had surgery in which they removed the entire thyroid, then the low iodine…
Has anyone had a false positive on a FNA?
I'm only asking because before I had my FNA results back my endocrinologist told a med student in front of me that it had been a bad idea for the ENT doctor to do the FNA when my thyroid was diffusely inflamed on both sides - for some reason the endocrinologist couldn't palpate the nodule at that time but the ENT guy could…
FDA meeting to discuss trial drug
If there are any others on here in the clinical trial for pazopanib you might be interested to know there will be a FDA public advisory committee meeting (open to the public) on October 5, the purpose of which is to gather information the FDA needs to make a decision about approval of the experimental drug pazopanib. The…
New to this
I had Papillary thyrpid cancer, my thyroid, along with its cancer, removed almost two years ago. in november my father in law died, and my world which had been held in a delicate balance was thrown to the wind. I watched my mother in law cope and deal and become strong. One thing she did was join a forum, like this, she…
Papillary Thyroid Cancer Patient needs help
My name is Adrian,I am 37 and was dx with papillary thyroid cancer in July 09. I had 3 tumors in left and right side largest was almost 4cm so I had TT July 31. I was told that the cancer would be removed once the thyroid was taken out, NOT SO. After sugery I was placed on 75mg of Levothyroxin. August 5th I went for the…
what's next after 3 surgeries and 4 RAI treatments and still have cancer
Hi, I'm 26 and was diagnosed with papillary thyroid cancer when I was 17. I had a TT then 2 more surgeries followed to remove tumors that kept coming back. I have also had 4 RAI iodine treatments and I still have cancer. Doctors are not really telling me whats next but they are telling me I've had my max of radiation and I…
What can I eat?
Can I have candy like starburst and skittles? They don't have red dye 3 in them, but are processed so I am unsure, but I sure do want them!!!
Unusual side effects????
Okay so this may sound very silly to some of you but I have to ask. I have been having ALOT of tenderness in my breasts and they feel very engorged, like when you're lactating, but I am not pregnant. I have papillary thyroid cancer, TT in July '09 and had 160 millicuries of RAI in Nov '09. I am still Hypo and am on 200 mcg…
Thyroglobin without RAI.
Hi There. I had TT in July 09 - they found it was papiliary after the surgery - was told I didn't need RAI...I kept questioning this...after seeing a couple of Endo's that had different opinions...one suggested to test my Thyroglobin to see if RAI is needed or not. I don't understand what this test is showing...the nurse…
After the RAI treatment, i never took up any hormone pill. will that result to infertility?
I am not trying to get pregnant anytime soon but was just wondering why I haven't had any problems considering that I'm sexually active and never used any birth control procedures. hoping for your response.! thanks a lot!
total body scan as a 1-year follow up
I had my thyroid removed in November 2008 with a RAI ablation in December 2008 to treat Papillary carcinoma. I am now in a very confused state after my 6 month routine check-up with my endo yesterday. She has prescribed a two shot Thyrogen treatment and then a total body scan a day later. What will the TBS show with no…
post RAI - day 5 and a few questions
I have found this discussion board to be both supportive and informative over the last few months. I had my RAI for hyperthyroidism on Monday and felt tired but fine until Wednesday night when the symptoms really started to kick in. Now its day 5 and I have an incredibly sore neck, gums, teeth etc... Today I fell worse…
Hurthle Cell Metastasis to Stomach?
I just had a PET scan and RAI total body scan for recurrent hurthel cell cancer. My TSH has been elevated for the past three years. Originally, my HCC had metastisized to my right hip. I had surgery to remove the dime-sized lesion, and thought I was past it. However, my TSH level kept rising, and has gone from 15 post…
Breast Cancer and Thyroid Cancer
Hi...my name is Pammy and I usually post on the BC boards, but I came here to post my question because it concerns my Thyroid. I was wondering how many of you that have thyroid cancer was also diagnosed with another cancer prior and went through radiation treatments? I read that radiation exposure was the #1 cause of…
Evening Primrose oil and the low iodine diet
I take Evening primrose oil every day - it helps regulate my menstrual cycle. Do you know if I can take this on the low iodine diet. My doctor did not know. thanks
second surgery
well on friday i go in for the second surgery to remove the rt. side of the thyroid. left side came back with follicular cancer. will be looking forward to rai(LOL). will this every end? I feel that i am on a roller coaster that will never stop.I only pray that this will be it and it has not spread. Has anyone out there…
Great Information
Hi Everyone, I was diagnosed in 2005 and have been battling follicular thyroid cancer for four years now. I have read a lot of different things but this is the best one that I thought explained it to myself as well as those close to me about what we are going through. Just thought I would share it.…
Work before RAI treatment
HI this discussion board has been so helpful to me. I had my thyroid removed due to Papillary cancer two months ago and I am finally feeling normal. I am due to start RAI in a month and my doctors took me off the thyroid hormone and I start the Low iodine diet in another week. Please let me know how long you were able to…
Hospitals for HCC in Florida
Which hospital do you recommend in Florida for Hurthle Cell Carcinoma...I have found MD Anderson in Orlando; Mayo Clinic in Jacksonville; Moffit Cancer Center in Tampa. Thank you :)
Remission
Hi everyone! I just wanted to post some good news today. After the last month of hell emotionally and physically, I just got the phone call with the news that my full body scan came back normal! No signs of cancer, I am in remission! The diagnosis of Papillary carcinoma, the surgery Total Thyroidectomy, the Radioactive…
Long Term Side Effects from RAI
I was wondering if anyone has experienced any long term side effects from the Radio Active Iodine Treatment ( I131). I had a large dose 150mci and it made me extremely ill. I have read nothing but nasty things about RAI but I have not heard anything about long term side effects from actual people that have experienced it.…
6 months going for another check up
6 months ago had complete Thyroid removed. Currently on 250 mcg of Levothyroid. It took 5 months to get to normal levels. My TSH level is .35. Scared that cancer came back. Feel pain in my throat. Also, since it took such a long time to have my medicine leveled. Any advise.
post-TT TSH levels
Hi, I am new to this board but hope someone can help. Had Total Thyroidectomy on 3/20/08 due to papillary thyca nodule that was very small (8 mm on ultrasound, thyroid cancer confirmed via FNA biopsy). My surgeon elected NOT to do RAI post-surgery, since it would do little to improve outcome for such a small nodule and…
Scared and confused.....
Back in 07 I was diagnosed with Papillary thyroid cancer. After doing an ultrasound on my thyroid, they found that my thyroid had microcalcifications on it. After the biopsys on my thyroid and lymph nodes they found out the cancer had spread there. Nov of 07 I under went a total thyroidectomy and had all the lymph nodes in…
Anyone have Follicuar Thyroid Cancer ???
Has the cancer spread?And where to?What treatments have you done.any advice for dealing with this cancer?
What caused your thyroid cancer?
I don't see or hear much discussion about the causes--suspected or actual--of our thyroid cancers. When mine was first diagnosed I read that exposure to radiation was the main suspect but the studies weren't very conclusive. That was almost 4 years ago so there may be more recent studies that point in other directions but…
What kind of doctor is the best for thyroid cancer?
I just found out that my cancer spread to my right side of my head.I have follicular cancer.I have had total tyroid surgery 2009.My doctor wants to wait 4 months before he does anything else.I think he should be seeing if it has spread anywhere else.What is the best doctor to go see.I see a endocrinologist. I also have…
neck pain
Has anyone else experienced neck pain specifically a choking feeling after a thyroidectomy and one round of rai? I also get a tingling feeling in my fingertips. Doctors basically blow off my concerns and just say time. It's been a year already and instead of feeling better I feel worse.

Thyroid Cancer

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