-
Radiation side effects
Hi, I was just wondering if anyone had the RAI affect their mouth. I had RAI on the 17th of Feb. had bad jaw pain the next morning and I still I have had a bad taste in my mouth occasionally. Now I have sore areas in the corners of my mouth. Like they are cracked and now one side is open. I have been applying lip balm and…
-
Need some positive Hurthle Cell Stories
Had my visit with the endo on Friday. Based on the fact that I am 49 years old, my tumor was vascular and non-encapsulated, I have lymph node mets (1 of 3 tested), it was a pretty bad appointment. I know that it isn't going to be easy to beat this. That Hurthle Cells are resistant to RI, but I need some positive survivors…
-
Does it ever get better?
I am a thyroid cancer patient, I have posted on her several times!!! I'v had the TT July 09 an RAI Nov 09. Tg above 6.0 in Dec 09. Changed Levo many times now on 250mcg which seems to be doing better :) I just wanted to vent to u guys because u seem to offer the best comfort and advice. After the cancer came a multitude of…
-
how long off work after surgery and awaiting radioactive iodine trx????
Just wondering how long people take off work after TT and awaiting radioactive iodine treatment???????? I had two surgeries to remove my thyroid last one being Jan. 4 and now the docs are dragging my scans and treatment out while I am miserable being hypo. I have two young children who take all my energy. I'm not back to…
-
I'm new here!
I'm new here and still trying to muddle through this whole thing. As an intro I should tell you that I am 49 years old and a Registered Nurse. I worked my first 5 years of nursing in Oncology in the 80's. This can be both a blessing and a curse as I have seen just about everything. In Mid January when seeing my PCP for…
-
Poorly Differentiated Thyroid Cancer
I'm looking to hear from anyone who has been dx with PDTC. Rare and aggressive and not much info out there. Anyone???
-
Alternatives to lemon drops?
I am going in for RAI ablation at the end of April, and I am curious.. has anyone found any good alternatives to sugary candies? I'm not fond of sucking on sugar - not just for my health, but for my teeth as well. I am thinking of bringing in a container of lemon wedges, but I'm interested to hear if anyone has other…
-
New and daignosed with papillary carcenoma
Hi , I am a 48 year old female and was diagnosed with papillary cancer. I was told they will remove my total thyroid and the nodules around it. I am scared for the fact that I do not know alot about this cancer I was told it is completely treatable and that if it is 100 percent papillary cancer I will do radioactive iodine…
-
If you had RAI for thyroid cancer, what was your TSH before RAI?
I'm scheduled to have RAI on Monday after a TT on 2-3-10. I've been off my medication since 2-2-10. My TSH was around 50 on Monday and yesterday it had dropped to 45. Is that unusual or anything to be concerned about?
-
Problems after RAI
Hi all Anyone out there having difficulty a month after RAI? I had the RAI treatment on Feb 7th. I had surgery in October (TT) for papillary thryoid cancer, went on Eltroxin and basically felt pretty good. In January I had to go hypo and do the diet for 5 weeks before RAI and even though I was sluggish I didn't feel that…
-
Roger Ebert
The next time anyone tells you Thyroid Cancer is the good cancer, let them say that to Roger Ebert.
-
RAI scheduled for Weds., March 10th and I have a few questions...please help
My oncologist at my local hospital told me I was in the gray area for RAI since my papillary carcinoma tumor was 1.2 cm. It was found in my total thyroidectomy on Feb. 3rd. I've been off my levothyroxine since Feb. 2nd. I had my thyroglobulin checked on Feb. 26th and it was .1 and my TSH was 15 at that point. He told me my…
-
Atypical FNA Results
I have had 2 thyroid nodules followed by ultrasound for almost 10 years. Last week on ultrasound, one of the nodules has almost tripled in size. My TSH has always been normal. I had a FNA last week. I will be speaking with my endocrinologist when she is back in the office later this week. In the meantime, I am able to…
-
Do I need the second surgery?
I was recently been diagnosed with papillary thyroid carcinoma after a 3.8 cm tumor and the right lobe of my thyroid was removed on December 16, 2009. The ultrasound and needle biopsy couldn't determine if the tumor was benign or malignant, so the doctors recommended surgery to have it removed. I got the cancer diagnosis…
-
Thyrogobulin-please help
I had a total thyroidectomy and ablation for papillary cancer 7 years ago. I hadn't had any follow up body scans or thyrogobulin tests until a couple of weeks ago. I had thyrogen injections and then a body scan and then the thyrogobulin test. The radiologist said the body scan looked good. The thyrogobulin test came back…
-
salivary gland problems
I completed radio iodine treatment in September. I am now having what I think is delayed salivary gland problem. Pain in my jaw; I have had mouth sores and salty taste intermittently since the treatment. Has any had this and what did you do about it? Do I call my endo? Or my primary care and get a referral for an ear, nose…
-
Having surgery Feb 25!!!
I'm having my surgery this thursday!!! Little freaked out but I'm very positive. I'm hoping that they won't have to remove the whole thyroid.... I just want to be back home asap and recover. :)
-
Is it ok to take CT Scan before RAI treatment
Hi, I have been asked to get a CT Scan for my abdomen, my question is, is it ok to have the CT scan before RAI treatment?? Any information will be helpful. Thanks
-
FNA biopsy New results, scared...
Hi everyone! I am so glad to be here!I am in need of some quick help though... I've had a "pain" in the neck, lol, which started back in June (or before I think) with a dull ache in the lower left thyroid area (if you were looking at me), that of course I ignored, until in October I had to be seen for a small fender bender…
-
Need information
Hi I have been diagnosed with papillar carcinoma, my nodules size is 2cm doctors have suggested me a total thyroidectomy and RAI treatment after the surgery. Can any one please advise me what to expect after the surgery and after how many weeks after the surgery they will start the radioactive iodine treatment. Any advise…
-
Am I Contaminated?
How do I know if I am safe to be around others. I know they say 5 days, but how do you know. What do you clean everything you have touched with. Is it going to be safe for me to kiss my grandson? At hospital they told me 5 days for my pregnant daughter and grandson, Doctor's office said 7 and Thyca says 8. How do you know?…
-
Just diagnosed with thyroid papillary carcinoma
I had a TT on 2-3-10 due to papillary carcinoma. Once I got over my initial feelings of shock and fear, I began trying to learn all I can to better understand the treatment process. My ENT surgeon prepared me for RAI (I've been off levothyroxine since surgery.)He referred me to an oncologist and I meet with him next week.…
-
feeding tube and air tube
hi i was told about 3 weeks ago that a bit down the line that i'm going to need a feeding tube along with a breathing tube. my doctor did'nt give me anymore info than that. i was freaked out and did'nt think to ask any questions. i have had thyroid cancer for allmost two years now. march 7th of 2008 they opened my throt…
-
Salivatory glands damaged
I was diagnosed with THYROID cancer on March 0f 2009. Had my thyroid removed and did the RAI treatment. I am currently taking 250 mcg of Levothroid. About one month ago I noticed that my tongue was getting stuck to my gums of my mouth at night. Know it seems to happen more often. At night when I wake up I have to force my…
-
Ultra sound
I had been feeling some discomfort in my throat now for about a month off and on. Didn't know if my mind was playing jokes on me or what. So I called my endo, I was'nt suppose to go back till next month for my 6 month ck. They moved it up to Feb 17th, Had blood work done on Feb 16th. My Endo says he can't feel anything but…
-
What questions I should ask my doctor???
I was diagnosed with papillary carcinoma last week. I'm going to see the surgeon on Feb 17, what questions should I ask him?? Im very new to this, 25 years old.
-
preparing for RAI
Hello, I'm into my 3rd week off synthroid in preparation for RAI treatment next week. The hypo symptoms haven't been bad.... yet. Am only experiencing a little brain fog & energy levels a bit draggy at times. I'm scheduled for labs next Monday to check my TSH levels. If those levels have reached 30, I'll be having the one…
-
Toatl Thyroid Removal with Papillary Carcinoma
Hi, On Dec. 3rd just under went total thyroid removal. This is my story and would appreciate replies to my concerns: Sept. 09 thyroid scan revealed nodules on both thyroids. Was then sent to a surgeon. He did a scan guided needle biopsy on the largest solid tumor on the left side only, report came back benign. But surgeon…
-
Newbie
I had my thyroid removed on January 14, 2010 due to having papillary carcinoma. The surgeon stated the tumor was just contained to my thyroid. He stated he did not have to remove any other surrounding nodes. I sure hope he is right. I go next week to see him and get the pathology report. My question to anyone is "How long…
-
RAI treatment - just got home
HI all After surgery for papillary cancer two months ago (total), I also had to go through RAI. I got through being Hypothyroid fairly well although the last three days were not great. I was able to work in a very stressful job right until the end. I also did not gain weight due to the low iodine diet. First time in life…